posted
We need to know whether you have lyme. Have you been tested for lyme? There is a recent test that is apparently very accurate unlike the others. Have you been in treatment for lyme? I assume you know that ALS can be lyme. Some think it is always or almost always lyme.
I'm very interested in this illness because I know a woman whose son has it. I've been keeping my eyes open on this and other forums for any helpful comments.
Posts: 705 | From WA state | Registered: Jul 2011
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I know of someone that may have some information that may be helpful for you 2young2diemom. Please email me privately. Thanks
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
This old post tells her lyme testing history:
posted
I looked through the posted link at earthclinic.com. Some interesting alternative ways of halting or slowing down ALS. I found this interesting about Aspirin:
quote: Alcohol gels only kill bacteria, but not viruses. Viruses are weakened or killed in hydrogen peroxide, clove oil, vinegar, and peracetic acid. Aspirin liquifies these viruses, especially their lipid envelopes, it is this aspirin, I believed, that stopped the Spanish flu viruses. It's also what cured my measles when I got it at a young age, but the proper use is in powder form. It works best when taken together with vitamin C, which some drug stores sometimes don't carry, but aspirin nearly every drug stores does
posted
Do not ever give up, no matter how symptoms are crushing you physically and emotionally- that is my experience.
I have gone trough every possible neuro symptoms and the worst was during the combo of 4 abx at the same time - and it took 2.5 years to see some improvements. During that time I could not believe my LLMD that all those symptoms can be caused by Lyme&Co. I just told myself that I had no other option but to stick to Lyme diagnosis because seeking a treatment for other diagnosis did not give me any hope.
Posts: 191 | From va | Registered: Sep 2008
| IP: Logged |
quote:Originally posted by SForsgren: I know of someone that may have some information that may be helpful for you 2young2diemom. Please email me privately. Thanks
Posts: 305 | From United States | Registered: Nov 2011
| IP: Logged |
posted
thanks so muc seibertneurolyme
Posts: 305 | From United States | Registered: Nov 2011
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
in my search for help when lipitor made my legs so weak i couldnt walk i came across info relating mitochondrial problems to als on place said you dont get an als dx until the problem is so bad it is irreversable...i have many sx and they are improved with coq10 which means they could very well be mito in origin
there are supplement protocols out there that seem to hold it off...that is what i do. i havent figured out how to get to a mito doc...but it seems until you are really bad they will say you have notheing wrong...i could probably find the protocol -i know i have posted on here...pm me if you want it
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
quote:Originally posted by lyme-o: I know this is an old post but I was trying to send a PM to SForsgren
- If that doesn't work, they say he's on Facebook.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
The mito protocol is large doses of L-Carnitine and Co-Q10, plus zinc and other supplements depending on specific issues/deficiencies.
Statins CAUSE co-Q10 depletion, leading to liver, kidney, heart, and other organ problems, muscle destruction, etc. I will NEVER take a statin. I'd rather have the cholesterol than the horror that drug class can cause people!!
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic