LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Connective Tissue Disease

 - UBBFriend: Email this page to someone!    
Author Topic: Connective Tissue Disease
ItsMyTurn
LymeNet Contributor
Member # 31469

Icon 1 posted      Profile for ItsMyTurn     Send New Private Message       Edit/Delete Post   Reply With Quote 
Can someone explain this to me? Is this related in any way to Lyme? A friend had some blood tests ran and this was a possible diagnosis. C-reactive protein was @ 2.56. SM/RNP Antibody was 3.4. Some of her symptoms are joint swelling and pain. Thanks for any input.
Posts: 182 | From North Carolina | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Which disease?? No name for it??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95813 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
ItsMyTurn
LymeNet Contributor
Member # 31469

Icon 1 posted      Profile for ItsMyTurn     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm not sure. They called it connective tissue disease. No name. That was it.
Posts: 182 | From North Carolina | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020

Icon 1 posted      Profile for ktkdommer     Send New Private Message       Edit/Delete Post   Reply With Quote 
CTD is a catch all disease, in my opinion. It is often given out when it seems to be auotimmune but not all requirements for lupus or RA fit.

Is this on top of Lyme? Caused by Lyme?

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
sounds like multi joint disease-the name they give that is a little fancier but means the same thing which is nothing

it is true that Bb(lyme) like connective tissue much more than blood and muscle and bone

probably lyme-but i know i'm not supposed to say that

were they tested at igenex?

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
ItsMyTurn
LymeNet Contributor
Member # 31469

Icon 1 posted      Profile for ItsMyTurn     Send New Private Message       Edit/Delete Post   Reply With Quote 
They haven't mentioned Lyme. They are looking elsewhere. Did have ELISA test. Came back >9.1 but said Lyme was negative
Posts: 182 | From North Carolina | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
Razzle
Frequent Contributor (1K+ posts)
Member # 30398

Icon 1 posted      Profile for Razzle     Send New Private Message       Edit/Delete Post   Reply With Quote 
Point them to Roadback Foundation (roadback.org).

A false-positive ELISA Lyme test is really, really rare...false negative ELISA and Western Blot Lyme tests are very, very common.

I too have been told I had "Undifferentiated Connective Tissue Disorder" and then upgraded to "Secondary Lupus-Like Syndrome" before getting diagnosed with Lyme.

My Lyme doctor says I have Lupus that is secondary to Lyme, and the Lupus may or may not go away once the Lyme is under control.

It is a strange Lupus though - it does not affect my organs, only my joints, mucus membranes, and skin.

I've seen some improvements in both the mucus membranes & joints since starting Lyme treatment.

I never got any help from steroids or plaquenil for the Lupus symptoms.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4166 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
canefan17
Frequent Contributor (5K+ posts)
Member # 22149

Icon 1 posted      Profile for canefan17     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'd load up on the turmeric/curcumin and knotweed

[Big Grin]

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.