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» LymeNet Flash » Questions and Discussion » Medical Questions » Can you get rid of bartonella without levaquin?

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Author Topic: Can you get rid of bartonella without levaquin?
tricia386
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Okay. So levaquin was teribble Dont know if its a herx or a reaction.

Can I get rid of bartonella with herbs?

I have done rifampin before but it messes up all my other medicines.

I have also done septra.

I need something that slow and steady bc I cant stand the herxs.

Some imput please on what has worked for you.

Thanks
Trish

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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Toppers
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Byron White A-bart is a bartonella killter. MD Junction has a 30+ page thread about how people are improving on it. In the past I would say no to herbs only treating bart, but judging by what they are saying, this is as strong as antibiotics.
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JenInMa
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Our doctor has kids on Zithro.

--------------------
IGG 41++, 58+
IGM 31 IND, 41 IND, 83-93 IND

Son (most chronically ill)
IGG 41+
IGM 39 IND, 41+++
Bartonella positive

Daughter
IGG 39 IND, 41++, 58+
IGM 31+, 41 IND, 83-93+

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skies
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Some people use minocycline & zith for bartonella. Have you tried that?

--------------------
"The simple things can get you through the hardest times."  -

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tricia386
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I am just finding antibiotics so toxix. Honestly I hate taking them they scare the Sh*t out of me. all of them besides penicillans. But all the other ones have such nasty side effects. How do you know its a herx or a side effect?

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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tickbitt
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Herx's subside after a while. They're something that come highly individualized - some people herx terribly at anything, some never feel much of anything. I'm somewhere in between.

I don't think you ought to give up on abx altogether. Talk to your LLMD about reducing the dose, break combos down into single drugs to get things under control, then start the combo again.

Separating herx from drug reaction can be really tough. You have lots of company there.

How long were you on abx?

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katiebobatie
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i'm getting rid of my bartonella with IV claforan (cefotaxime)...

it's the only thing that has helped me!

the herxing was horrific at first, but now that my doctor lowered my dose, i'm fine. it is definitely working!

so far other anti-biotics and herbal remedies have had no effect on my bartonella, but i know other people can do well with them..

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tricia386
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I was on 250 mgs for 4 days. Then I read all the side effects are the same as a herx and can leave people completely disabled. SCARY STUFF.

Not sure if its a herx or what?

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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katiebobatie
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what are your symptoms from taking levaquin?

if it's a herx, then i would keep taking levaquin because it's obviously working..

my doctor allows me to take breaks from my anti-biotics when i start to herx, maybe you could try that?

or you could try lowering your dose, which could make all the difference.

if you just feel worse because it's not helping you, then that's another story and you should probably try something else.

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tricia386
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I did stop taking it on Thursday still seeing the affects.

I had horribble muscle pain and bone pain. Weak upper arms. Burning pain in arms and legs foot pain.

My arms are just so weak, everything is cracking and popping.

I have been doing epsom salt baths and Alzeter Gold. If it was herx I could never go through that again. Got I hope it is a herx.

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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tricia386
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What are other options to treat bart? Septra, Rifampin?

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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jackie51
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I tried to find the 30+ page discussion on MD junction and couldn't find it. Can someone provide a link or instructions?
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gagamooppop
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Hopefully these links work:

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2418870-byron-whites-formula-guidance

http://www.mdjunction.com/forums/parasite-discussions/general-support/2547009-a-bart-instant-herx

You can also just go to mdjunction.com/lyme-disease and use the search function on the upper right hand.

I've been using the Byron White A-L and it hits you. Also doing antibiotics, which hit me too but do feel toxic.

Was never a believer in the power of herbs and am convinced.

Started A-bart today, very low dose (1 drop in 1 oz of water and only had half) and am feeling it.

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tricia386
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Gaga-

Let me know how this goes.

I did rifampin and I am fine with it but levaquin just scares the sh*t out of me. BC a herx could just be a NASTY side effect.

Also Bactrim makes me alil nervous bc of SJS syndrome

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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unsure445
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Take lot's of deep breaths and try not to get too far ahead of yourself.

Package inserts that come with medications have to list the worst possible scenarios. Major side effects are fairly uncommon. Could you be having some anxiety from Bartonella making your medication worries worse?

I remember a few years ago having a herx and I thought I had Steven Johnson's syndrome. I had no symptoms of it but I was convinced I was a goner. I was literally hyperventilating! The anxiety was part of the herx. It was completely irrational.

Take lot's of Milk Thistle to keep you liver functioning well and you should be fine.

An alternative to antibiotics is A-Bart but it is very potent. As potent if not MORE than antibiotics. It has to be used under your doctor's supervision.

Hang in there!!!

--------------------
unsure445

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Lala
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I was prescribed mino with azi plus rifampin plus artemisia for bartonella.
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nefferdun
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With those symptoms I would get off the levaquin ASAP.

Bactrim DS worked for me.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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tricia386
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I did get off it. Bactriam scares me too!! I guess pick the less of the two evils!!

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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gagamooppop
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Thank goodness for this website and community..if this wasn't here for me to check in I'd think I'm going mad.

The A-Bart, just as the A-L, is very potent. I only took half a drop this morning and the whole day has been brain fog central with a huge side helping of anxiety....

...more then before...

But I know its the bart and just took it nice and easy today..as much as I can.

Blugh.

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tricia386
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Please let me know how A-bart is going....are you on any other antibiotics gaga

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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Jason21
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Levaquin did not help my bart at all. What finally got me well was cipro for bart (250 mg) and tindamax for LD (500 mg) twice daily with meals.

--------------------
Igenex WB IgM 28+, 31IND, 34IND, 41+
WB IgG 30+, 31IND,39 IND, 41++++, 58+, 83-93IND
CD57 = 56
Prob infected since 2000
Doxy, Zith, Biaxin, Flagyl, Levaquin, Tindamax, Cipro
Highly Recommended: Trigger Point Therapy Workbook by Clair Davies

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tricia386
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I am scared of that family of drugs I haev read horribble things about them

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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tricia386
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Jason are you still in treatment?

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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randibear
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is cipro the same as levaquin?

--------------------
do not look back when the only course is forward

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tricia386
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It is in the same family

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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Jason21
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Tricia,

I am not treating presently. I did 18 months of doxy, zith, biaxin, and flagyl, which got me back to about 80%. Levaquin did not help.

My feet continued to hurt, so I started on cipro for bart and tindamax. I took this combo for 3 months, but my symptoms started coming back when I stopped abxs. I then did another 3 months of this combo and felt like I got back to 100%.

I was fine for a year until I got a cold and sinus infection back in May and took a z-pak. A few weeks later, my hands and feet started getting sore and stiff again, which is how my symptoms started years ago. I did another 3 months of tindamax and cipro, and my symptoms went away again. Its has been a few months since I stopped all abxs, and I feel ok.

Whether I am cured, I just don't know. I keep a supply of tindamax and cipro on hand just in case.

--------------------
Igenex WB IgM 28+, 31IND, 34IND, 41+
WB IgG 30+, 31IND,39 IND, 41++++, 58+, 83-93IND
CD57 = 56
Prob infected since 2000
Doxy, Zith, Biaxin, Flagyl, Levaquin, Tindamax, Cipro
Highly Recommended: Trigger Point Therapy Workbook by Clair Davies

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