LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Bad Night... Legs Jerking...severe

 - UBBFriend: Email this page to someone!    
Author Topic: Bad Night... Legs Jerking...severe
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

Icon 1 posted      Profile for Silverwolf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi <<<<< Lyme Family >>>>>,

Don't know what I might have done or eaten different than normal...nothing I can think of...

I did catch my foot and trip again... unfortunately common for me... yesterday evening.

I sleep sitting part way up...last night my right leg jerked so hard and went out stiff,that it pulled in my groin area.

Happened again late night/early AM. Bad dream: wild animal 'invisible' trying to pull me out of my chair... Jerking again..hollered out in my sleep and woke up TxC'.

Still sore and tired...don't know what is up... maybe more seizure like issues?? Been awhile and that usually starts in my neck/arms first.

I take a variety of supplements and vitamins...but not sure what would cause this...

I probably have babesia from what I saw in my blood slide smears Dec.1st so dealing w/ the three dreaded B's.

This was just unusual... I feel under attack and even a little paranoid, and fighting continuing head ache. Also going between to hot and sweating,and cold chills...annoying, Oy!

Any tho'ts on what might be up/ Stress ? Weather? cold and snowy now ...storm was coming in last night.Also yesterday ended up being a stay home 'Imodium day'.

I do a Fish oil blend, Cinnamon, Cats Claw, Resveretrol etc. [ the simple low dose Buhner Protocol]. Magnesium , Vit.D , Methylcobalamin B-12 and so on.

Ideas ,input tho'ts appreciated!

Thank You !!!

Jus' that Silverwolfi

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3558 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
jimmy1
LymeNet Contributor
Member # 33504

Icon 1 posted      Profile for jimmy1     Send New Private Message       Edit/Delete Post   Reply With Quote 
Silverwolf, I sent you a pm.

Sorry you're having such a tough time of it. Sending you healing thoughts.

Posts: 251 | From Florida | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

Icon 1 posted      Profile for Silverwolf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi <<<<< Jimmy1 >>>>>,

Thanks for the healing tho'ts,and the PM [Smile] !!

it was a rough night...still not sure what is up, but I hope tonight is much more peaceful.

Jus'Silverwolfi

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3558 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
nenet
Frequent Contributor (1K+ posts)
Member # 13174

Icon 1 posted      Profile for nenet     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Silverwolf! I'm so sorry this is happening - these symptoms are scary sometimes aren't they?

I'm no expert but it sounds like Lyme to me - I used to get violent limb or partial/whole body jerks both while awake or asleep, no matter if I'd been active or stressed recently or was perfectly calm and relaxed.

Are you not able to be on antibiotics for Lyme?

It sounds to me like you are saying these symptoms are increasing in frequency and maybe intensity?, and you mentioned you haven't changed your treatment protocol recently.

I hate to say it but it sounds like your Lyme is worsening and you might need to get onto some antibiotics. Just my non-doctor opinion. Do you have an LLMD?

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

Posts: 1176 | From KY | Registered: Sep 2007  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

Icon 1 posted      Profile for Silverwolf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi <<<<< nenet >>>>>,

I do not have a Doctor per see , It is difficult to find LL help in Idaho.

I recently went to a 'Naturopathic team'[one is a retired general surgeon], they had some great ideas, but they don't prescribe antibiotics.

They did recognize Lyme and some other issues...as seen in my blood smear slides.

Problem is, w/o insurance...I paid to see the 'Doctors' but then cannot afford the treatment herbs/supplements and so on.

I may have to go to a 'Doc in a Box' type clinic and get some Antibiotic for allergy/sinus respiratory issues, w/infection. Have to be super careful what I take now...darn allergies.

[ BLM has decided to re-seed w/ grasses, the fire zone in the hills above us., now in Dec. in 10 and 20 degree weather].

Trying to find something inexpensive that will at least be antibiotic like...

I'm sure the Lyme and Co's are reactivating and acting up...w/o proper treatment...just the caught me by surprise last night severe leg jerks and all.

Thanks for the input.

Jus'Silverwolfi

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3558 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
nonna05
Frequent Contributor (1K+ posts)
Member # 33557

Icon 1 posted      Profile for nonna05     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm just so sorry you have to go through this... Is there not a low income clinic near you? sliding scale or flat $10 co-pay... And just have a really tough bronchitis or something .until you can figure something out....Please get so kind of care. I just lost my 52 yr. brother fighting system ,never said the LD word... When he visited we got him on a city plan by income... But he had to get back to Arkansas to get his belonging's... He never made it back for medical treatment............

Heart issues, ear issues, chest/Bronch issues and yes they will ask a million lame questions..

Like mentioned above internet purchase???/


Not a doc , I can't believe so many of us can be medicated for months and not be jumping and doing flips... It's just a miserable illness

Posts: 2563 | From Denver,CO | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

Icon 1 posted      Profile for Silverwolf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi there <<<<< nonna05 >>>>>,

Sadly the 'Slide-fee clinic' here overcharges and prescribed a med they were warned I was allergic too. We payed what they asked [and we have the receipt] and they still keep trying to make us pay more.

They used a different sounding name for the meds and I didn't think to check the Net for info. But I believe they knew,

[because we wrote down Crestor and Lipitor on the allergy info'], I am still having issues from the wrong meds [statins].

One of the local larger chain dept. stores has the 'Doc in a box'. Their prices are posted for Sinus-respiratory, UTI and so on so I am going to try and save up and go,if this doesn't calm down right quick.

At least I got some sleep last night tho' am up a bit earlier than I wanted... dogs woke me up.

I am so sorry you lost your brother, May The Lord bring you comfort in this time of sorrow.

Extra hugs and continuing prayer for you <<<<< nonna' >>>>> [group hug] TxCoord and I both lost family members this summer ,and it is so difficult.

Thanks for your reply and the tho'ts and ideas!

<<<<< jimmy', nenet, and nonna' >>>>>,

Thanks again so much for each reply!!!

I am feeling a bit better this a.m. [tho' really achy] but I know I'll need to get more meds.

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3558 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.