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» LymeNet Flash » Questions and Discussion » Medical Questions » pain meds

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Author Topic: pain meds
katrinab
LymeNet Contributor
Member # 30330

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Can people please share their experience with PAIN MEDS and which ones worked. I am now looking for a pain med that I wont become addicted to, build tolerance, etc.
Posts: 723 | From boston,ma | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
joalo
Frequent Contributor (1K+ posts)
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Up.

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Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
back2game
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I've found that I cannot take any prescription pain meds. Combination of Lyrica, Hydrocodone and Tramadol kept me bed-ridden for 1 year. The Lyrica was literally dismantling my CNS. Fentanyl patch caused severe chest pain. Cymbalta and Savella caused more severe fatigue.

I believe I'm super sensitive to any meds due to lyme, so the strongest thing I can take is Tylenol PM, and usually only 1 cap.

I feel I rather be in pain and alive than in no pain and 6 feet under. Sorry for being so blunt, but this is from my own experience. They were literally killing me. In addition, the withdrawal process was the MOST excruciatingly painful thing I've ever been thru so far on this mad journey.

There are many holistic approaches to treating pain also. I do wish you find something that works for you.

Also, Dr. Bernie Siegel's books "Living Between Office Visits" and "Love, Medicine and Miracles" helped me immensely with the emotional aspect of loving with chronic illness.

--------------------
CNS Lyme 05/08 - EIA 1.16+, IGG 18+, IGM 23+
01/11-IGM 31 Epitope Positive
01/11-IGM 31+++, 41+, 58++, 83-93+, 23-25IND, 39IND
01/11-IGG 41+
Vasculitis 01/07,MCTD 05/06,Fibro 11/04, Myofascial PS 11/03
Embedded Tick app. 1990

Posts: 136 | From Massachusetts | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/24039

Topic: Looking for long term pain management

===================================

Since good sleep helps with our comfort level:
----------------------------

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89790

Topic: NATURAL SLEEP - Links to articles & supplements

Since Adrenal dysfunction that goes with lyme affects sleep, ADRENAL SUPPORT LINKS are included here.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Dogsandcats
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Every person is different. I would recommend you find what your pain med options are available to you.

A pain dr should have more available to help than just drugs.

It might be good to explore options.

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God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.

Billy Graham

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searching4truth
LymeNet Contributor
Member # 28481

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Katrinab, I sent you a PM.

[ 01-04-2012, 08:29 PM: Message edited by: searching4truth ]

Posts: 427 | From Pacific Northwest | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
Rumigirl
Frequent Contributor (1K+ posts)
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In addition to pain meds (which I wouldn't discount), and other natural remedies, I recently discovered Zyflamend, an herbal anti-inflammatory that really works apparently. I found a relatively cheap source online (I forget where at the moment). You start with 1 cap per day and work up to as much as 2 twice a day. Some take more even.

If I didn't have pain meds, I don't think I would have survived.

Lidoderm patches are really helpful, esp for neuropathic pain. They are an rx, and I think are expensive if you don't have insurance. They are lidocaine in a 12 hour patch (the same as novocaine). You can use up to 3 patches per day. I use a stetchy headband that you get in a sporting goods store to keep one on my neck. they're sticky, but don't stick as well as they should.

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lightfoot
Frequent Contributor (5K+ posts)
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Due to stomach issues I had to stop all NSAIDS (advil and maloxicam types). I had relied on these for several years.

I was in terrible shape and desperate. I did not want to go the opiate route.

I discovered Wobenzym - super anti-inflammatory used on an empty stomach systemically.

I haven't tried the one in the post above by Rumigirl but it's the same type of thing.

I also use Low Dose Naltrexone (LDN). I am back to be functional again. Wahoo!

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Healing Smiles.....lightfoot [Smile] [Smile] [Smile]

Posts: 6549 | From CO | Registered: May 2002  |  IP: Logged | Report this post to a Moderator
   

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