LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » How did your LLMD coordinate your PICC Line?

 - UBBFriend: Email this page to someone!    
Author Topic: How did your LLMD coordinate your PICC Line?
CaliLymer
LymeNet Contributor
Member # 6509

Icon 1 posted      Profile for CaliLymer     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Everyone,

My LLMD wants to have a PICC line placed, but wants my local doc to order it and keep an eye on it. But my local docs are not LLMD's and dont agree with long term ABX. My LLMD is not associated with a hospital so they wont take her picc line order directly.
How did you do it?
Thanks in advance!!

Calilymer

Posts: 215 | From CA, USA | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
poppy
Frequent Contributor (1K+ posts)
Member # 5355

Icon 1 posted      Profile for poppy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sounds like you better check around with other lyme people in your area and see if you can find a more supportive GP.

If the lyme doc will Rx the PICC, though, you can go to a free standing radiology office and they will probably do it for you, instead of using a hospital.

Posts: 2888 | From USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
CaliLymer
LymeNet Contributor
Member # 6509

Icon 1 posted      Profile for CaliLymer     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Poppy!!

Any one else care to share? [Wink]

Posts: 215 | From CA, USA | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
lyme-o
LymeNet Contributor
Member # 35115

Icon 1 posted      Profile for lyme-o     Send New Private Message       Edit/Delete Post   Reply With Quote 
Check all of your local hospitals. Even though your LLMD isn't associated, you may find one who will put in the PICC and you will receive your first dose there to make sure your not allergic to it. Then if you can find a visiting nurse who will draw blood and clean your picc once a week, thats probably the route you can go. Thats what my husband does. And you will have to have your blood drawn periodically. We were fortunate. The 2nd hospital that I called put his PICC in.
Posts: 305 | From United States | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
CaliLymer
LymeNet Contributor
Member # 6509

Icon 1 posted      Profile for CaliLymer     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Lyme-0!!

I tried going to and independent radiology clinic and they wouldn't do it. Ill keep trying hospitals ;(.

Lyme-0 how did you get a doc at the hospital to perscribe the first does???

Thanks in advance!!

Posts: 215 | From CA, USA | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
lyme-o
LymeNet Contributor
Member # 35115

Icon 1 posted      Profile for lyme-o     Send New Private Message       Edit/Delete Post   Reply With Quote 
They have to accept the order from your LLMD. If they will start the PICC from him, they will do the first dose of whatever your lyme doc orders. Feel free to PM me
Posts: 305 | From United States | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
LSG Scott
LymeNet Contributor
Member # 21624

Icon 1 posted      Profile for LSG Scott     Send New Private Message       Edit/Delete Post   Reply With Quote 
Best thing to do, is to get in touch with a local infusing pharmacy they will bend over backwards to help you get your pic,so you can buy their meds,they know all the tricks so start so there,
good luck

--------------------
LSG Scott

Posts: 487 | From Boston, Cape Cod, Mass | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
LBS
LymeNet Contributor
Member # 33323

Icon 1 posted      Profile for LBS     Send New Private Message       Edit/Delete Post   Reply With Quote 
We are in the process of beginning a PICC Line for myself.

Try www.qmedrx.com

They arrange everything for you once they receive the physician referral form.

--------------------
Tick Bite: March 2011
ABX Treatment: August 2011
Diagnosed: September 2011

Posts: 137 | From God's Got This! | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
CaliLymer
LymeNet Contributor
Member # 6509

Icon 1 posted      Profile for CaliLymer     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thx Scott & LBS!!

Did anyone else have trouble with the primary doc not being a fan of lyme treatment?

Posts: 215 | From CA, USA | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
gmb
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Cali,

Yes, I had to fire my PCP that I had been seeing for ten years. He provided my initial treatment upon seeing my EM Rash with the standard Doxy 200mg/day for 30 days and that was it. A few years later my symptoms started to flare and he sent me thru the normal specialist route from neuro, to rhuemo, etc.

Finally ended up with a LLMD and clinical diagnosis. My PCP and Rhuemo did not support the Lyme diagnosis and the Doxy treatment had cured that, but they couldn't agree on anything else except possible Fibro or Depression. I kept them both informed on my ABX treatment but at each office visit with them they said I was lucky I'm not dead yet from the ABX protocols.

So I had to fire them both and found another PCP that at least acknowledged Chronic Lyme and keeps tabs on all my lab reports.

Get copies of your records and move on.

gmb

[ 01-11-2012, 08:22 AM: Message edited by: gmb ]

IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.