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» LymeNet Flash » Questions and Discussion » Medical Questions » WE NEED EVERYONE'S HELP!!

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Author Topic: WE NEED EVERYONE'S HELP!!
Lymetoo
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As many of you know, Seeking a Doctor has no one to run it. I simply cannot work there like I have in the past. I have a lot of neck pain due to a bulging disc.

Others have similar problems and can only spend limited amounts of time on it.

I'd like to get your feedback on this ..hence the posting in Medical.

If you would be willing to build and maintain a list for your state, please post here. ( my PM box fills FAST )

I have a name list for all states. However, it is OLD!! I could give you what I have and you could go from there to update it. Delete and add.

I would prefer that you've been a member here for at least 6-12 months .. but perhaps I can't be choosy!! [bonk]

All you would need to do then is reply to those in Seeking that you are able to help.

We are thinking about creating an email address to receive recommendations of LLMDs from members. I'm tired of giving out names of doctors, only to get feedback that this particular dr is NOT a true LLMD and/or NOT a good dr. Let's narrow down the lists!!

[bow] Suggestions on how best to handle this are welcome!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94380 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
mom2kids
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If I had access to LLMD lists for different states I could help some or as much as possible I should say. There are times when I am down for the count and don't even get online for days, know what I mean?

I know when I first posted in seeking I got like a 20 page list that was outdated and took me a couple of times to get through the whole thing. Don't get me wrong I very much appreciated the guidance, but it could definately be edited.

The list also included advice on how to approach a LLMD or a doc about appointments and treatment along with some other pointers. This was all good info, but maybe it should be in a thread of it's own.

P.S. Just PM if you think I might qualify for the job.
P.S.S. I hope my "freshness" on another thread about you visiting Plum Island does not disqualify me. [kiss]

--------------------
Down on her knees, she wept on the floor.
This hopeless life, she wanted no more.
Dead in the mind and cold to the bone,
She opened her eyes and saw she was alone. ~Seether

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faithful777
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I can provide a list for VA, MD & DC and try to do that as much as possible.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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Lymetoo
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[Big Grin] heehehee... you're enlisted, mom2kids! Thanks!! [Cool]

Now to get a working list....

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94380 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
momintexas
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Tutu, I can do Texas, OK, Louisiana.

I already know the only 2 options unless someone new has come along - if there is - let me know.

Posts: 1408 | From Tx | Registered: Nov 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Woohooo! We're on a roll!

Sending faithful a list for comparison.

Thanks, MIT!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94380 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
gigimac
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I have all the posts for NC from when I got my references and would be happy to share
Posts: 1533 | From Greensboro NC | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Thanks, gigimac!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94380 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lyme in Putnam
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Ive been trying to do NY/CT as much as I can when I log on. Welcome back. Feel good.

--------------------
He took u to it, He'll you through

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fflutterby
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I can do NJ and New York area. I work full time but I will jump in every day!

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Psalm 46 1 God is our refuge and strength

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Lymetoo
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Do either of you need a starting list?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94380 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
mom2kids
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I need a list and I need to know if there are guidelines to posting replies in "Seeking"... I only know of 2 LLMD's near me (MA and CT), but I don't mind doing any of the states as long as I get a list.

--------------------
Down on her knees, she wept on the floor.
This hopeless life, she wanted no more.
Dead in the mind and cold to the bone,
She opened her eyes and saw she was alone. ~Seether

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fflutterby
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I think I still have mine but it may be outdated, can you send it along ?

--------------------
Psalm 46 1 God is our refuge and strength

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lyme in Putnam
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I just give them the names of who I've seen, which are many. Don't have an official list.

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Razzle
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mom2kids,

Just PM'd you my list for WA...

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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Nicole_Denise
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I'm not from the states and I only know one LLMD in Seattle. I do keep an eye out for Canadians, or people from Washington, but I don't know that I'd be much help
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mom2kids
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Thanks Razzle, got the WA list.

I know not ot post any LLMD info online, but are there any rules as to what info can/can't be sent in a PM. I don't want to get in any trouble...

--------------------
Down on her knees, she wept on the floor.
This hopeless life, she wanted no more.
Dead in the mind and cold to the bone,
She opened her eyes and saw she was alone. ~Seether

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TF
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If you want to send me the Maryland list, I will tell you if I think names need to be removed or added.

I try to respond to every Maryland request (unless they specify western Md which means they don't want the doc list I give out). I also help those in PA and Del. who aren't far from Maryland. And, I help those in northern Va.

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steve1906
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Lymetoo, Ill help out as much as possible. When youre done compiling a list you can send it to me.

--------------------
Everything I say is just my opinion!

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Rene
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I'm willing to do Kentucky and Indiana, however do not have any list at all. Only know of two, possibly 3 docs. If someone is willing to send a list that is current, I'm in.
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marypart
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Faithful, if you pm me your list for VA,MD and DC, I can send it out, too. I'll just post "List for VA, MD, DC sent" when I've done it. That way we'll know it has been done.

TF, I think I have your list, but if I'm going to be helping out with the DC metro area, please send me any updates you have.

Thanks to all.

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

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Dogsandcats
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What a great team!

--------------------
God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.

Billy Graham

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jackie81
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Iam from Canada but I am online all the time so if you give me a starting list I will do some research and add/delete whatever is needed. I will do any/all states

thanks

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Lymetoo
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steve... thanks!! may take awhile to compile ..

info sent to TF and ready to send to Rene

jackie .. will PM you

--------------------
--Lymetutu--
Opinions, not medical advice!

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sk8ter
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I and Robin123 can handle Ca....her Northern and me So...
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Lymetoo
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thanks! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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coffee71
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Guys you can count on me too, and I am willing to help if you sent me lists for NY,MD,VA and any other state.

Few months ago I offered my help, but I never received any list to share.


Lymetoo I sent you a PM

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Kudzuslipper
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Could a complete list be posted somewhere online with password only access? That way only one document is being updated . And then,a group of volunteers with the password could go in, copy the appropriate states and mail it to the person asking to find a dr.

I would be happy to pitch in too...but can't say i am an authority, as i am just figuring it all out too. But, if there was a lymenet approved list somewhere, I would be happy check into finding a doctor a couple of times a week an to copy and send.

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hopingandpraying
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Doesn't METALLIC BLUE have a complete list? Wasn't he updating it or something? And, btw, how is he doing?

Seems he hasn't been around for a while. I read he was trying new protocols. Does anyone have any information about him? We're all concerned.

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Kerryblue
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DUH, No sleep quite ill. Not quite sure all you want to be done or exactly how. Sorry.
Florida gal,Huggggssss, to all in need,Kerry

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Lymetoo
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I don't know, kudzu. Interesting idea!

hopingnpraying.. I'm not a fan of a list with 30-40% non-LLMD's on it. Just my bias.

no worries, kerry! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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hopingandpraying
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Thanks, Tutu. Was not aware the list had so many non-LLMDs on it!
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Lymetoo
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yes, many complaints

COFFEEEEE......your mailbox is full!!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94380 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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