LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » help please on iv rocephin

 - UBBFriend: Email this page to someone!    
Author Topic: help please on iv rocephin
sbh93
LymeNet Contributor
Member # 30429

Icon 1 posted      Profile for sbh93     Send New Private Message       Edit/Delete Post   Reply With Quote 
hi there, quick questions

been on iv rocephin and tindamax one week and pain pain everywhere--skin muscles bones all hurt

especially abodomen and really bloated feeling no appetite and so so tired

on urso and good probiotics

what can i do for pain everywher and pain in tummy area--can't do pills, need natural ideas for this

thanks os mcuh

--------------------
------------
It took 20 years to find out I'm not crazy.
New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco.
I am not a doctor and happily offer only my own opinions.

Posts: 357 | From The Beach | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
desertlily
Member
Member # 13894

Icon 1 posted      Profile for desertlily     Send New Private Message       Edit/Delete Post   Reply With Quote 
oh my - my heart goes out to you!! I have been up and down the roller coaster of herxing on rocephin and tindamax!

Actually, it's been my experience that it gets better on the rocephin, but the tindamax is the tough one.

The urso does nothing to help you in the short term, I'm sure you know that it's just to hopefully help prevent gallstone formation from the rocephin.

It's good you're on good probiotics, very necessary. But as far as the pain, fatigue, and gi symptoms, it really sounds like a herx - I can tell you what I do, but I hope you get a lot of other responses, because what helps one person, may not work as well for another.

Rest, rest, rest - drink plenty of water, using lemon in it is good. I drink lots of herbal tea, I've found that the only thing that really helps my tummy is a good quality peppermint tea. Better than any OTC med that I've tried.

Also, diet - a lot of people discover they develop food intolerances while dealing with TBD - especially gluten - you could try simplifying your diet, whole foods, no processed stuff, sugar, etc.

Some people like heat - baths or saunas, me personally, I don't tolerate it very well, but it's something to consider.

I take Tylenol or Motrin for the achiness and pain, although with your gi symptoms, probably should stay away from Motrin.

By the way - what doses are you on? Do you take the Tindamax every day?

Sorry, you're having a rough time, I can totally empathize!

--------------------
Susan

Posts: 80 | From Queen Creek, AZ | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
desertlily
Member
Member # 13894

Icon 1 posted      Profile for desertlily     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh, sorry, just saw you don't do pills - forget the Tylenol and Motrin part.

Maybe someone out there knows about a more natural way to relieve that symptom, I sure would be interested in that.

--------------------
Susan

Posts: 80 | From Queen Creek, AZ | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
sbh93
LymeNet Contributor
Member # 30429

Icon 1 posted      Profile for sbh93     Send New Private Message       Edit/Delete Post   Reply With Quote 
thank you so much susan, what you posted is what i needed to hear

i know many of these things but my brain is just all confused again and i cant remember whats ofr what

lemon water and herbal tea have done a number on my teeth but ill try again and remembr to brushj after

yea tylenol tears me up too at this poitn and im sturglling with the timing of meds

home nurse said same that probably tindamax doing it i appreciate the sympathy

printing out suggestions thanks again so mcuh

--------------------
------------
It took 20 years to find out I'm not crazy.
New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco.
I am not a doctor and happily offer only my own opinions.

Posts: 357 | From The Beach | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
gmb
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
How about trying Alka-Seltzer Gold.

It's only sodium bicarbonate, potassium bicarboate and a little citric acid.

I've been on IV Rocephin and Zith since just before xmas. After my first week I had a lot of flue like symptoms and felt like crap. I took someones advice and tried the Alka-S and my
"Flu" symptoms went 80% away within 8 hrs.

It's worth a try.

gmb

IP: Logged | Report this post to a Moderator
sbh93
LymeNet Contributor
Member # 30429

Icon 1 posted      Profile for sbh93     Send New Private Message       Edit/Delete Post   Reply With Quote 
thanks i will try that too gmb hubby stopping at store on the way home

--------------------
------------
It took 20 years to find out I'm not crazy.
New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco.
I am not a doctor and happily offer only my own opinions.

Posts: 357 | From The Beach | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
gmb
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Sbh,

Make sure he gets the "Gold". The other versions will contain asprin. I know that CVS does carry the "Gold". Others in htis conferece have found the Gold harder to find in their local stores.

good luck

gmb

IP: Logged | Report this post to a Moderator
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020

Icon 1 posted      Profile for ktkdommer     Send New Private Message       Edit/Delete Post   Reply With Quote 
I buy Gold in bulk from Amazon. It is cheaper that way. Rite Aid will order it for us at our nearby stor if needed.

We all herxed badly on tindamax and we only did it two days a week. Now it is no problem.

My son did 10 months of IV rocephin and went from bedbound to back to school.

Keep the faith you will get better and hang in there.

There are detox powders you could take. I take Detox 360 from Researched Nutritionals. Also take a detoxilean from Swanson's. Take alpha lipoic acid every day and NAC.

Can you do more of a pulse with tindamax with docs permission for a while to get a break?

Good luck,

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
WIGGY
LymeNet Contributor
Member # 15377

Icon 1 posted      Profile for WIGGY     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am on the same combo and what helps me is:
lemon water - lots of it

probotics

I'm trying gluten free and it does help

Just this week I started peppermint green tea - love it

clorella

I agree that tindamax is working so we're herxing

Posts: 128 | From MICHIGAN | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
sbh93
LymeNet Contributor
Member # 30429

Icon 1 posted      Profile for sbh93     Send New Private Message       Edit/Delete Post   Reply With Quote 
thanks so much yes lemon water helps and hubby bought wrong alka seltzer but i will get it tomorrow

friday was very bad but seems to be lettting up as far as pain goes i was sweating a lot too took two showers and still soaked through four shirts but i guess that means its working [Smile]

learning my lesson about needing to sleep more body felt a bit better after sleeping 12 straight hours just cant keep doing that but will try to nap more

--------------------
------------
It took 20 years to find out I'm not crazy.
New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco.
I am not a doctor and happily offer only my own opinions.

Posts: 357 | From The Beach | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
lucky8711
Member
Member # 26221

Icon 1 posted      Profile for lucky8711     Send New Private Message       Edit/Delete Post   Reply With Quote 
I love Alka seltzer Gold, I find it really helps. I too order it from Amazon.

I just started tryiing Burbur drops. Too soon to tell though.

Maybe something worth reading up on for you to try though.

feel better.

Posts: 80 | From RI | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.