been on iv rocephin and tindamax one week and pain pain everywhere--skin muscles bones all hurt
especially abodomen and really bloated feeling no appetite and so so tired
on urso and good probiotics
what can i do for pain everywher and pain in tummy area--can't do pills, need natural ideas for this
thanks os mcuh
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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posted
oh my - my heart goes out to you!! I have been up and down the roller coaster of herxing on rocephin and tindamax!
Actually, it's been my experience that it gets better on the rocephin, but the tindamax is the tough one.
The urso does nothing to help you in the short term, I'm sure you know that it's just to hopefully help prevent gallstone formation from the rocephin.
It's good you're on good probiotics, very necessary. But as far as the pain, fatigue, and gi symptoms, it really sounds like a herx - I can tell you what I do, but I hope you get a lot of other responses, because what helps one person, may not work as well for another.
Rest, rest, rest - drink plenty of water, using lemon in it is good. I drink lots of herbal tea, I've found that the only thing that really helps my tummy is a good quality peppermint tea. Better than any OTC med that I've tried.
Also, diet - a lot of people discover they develop food intolerances while dealing with TBD - especially gluten - you could try simplifying your diet, whole foods, no processed stuff, sugar, etc.
Some people like heat - baths or saunas, me personally, I don't tolerate it very well, but it's something to consider.
I take Tylenol or Motrin for the achiness and pain, although with your gi symptoms, probably should stay away from Motrin.
By the way - what doses are you on? Do you take the Tindamax every day?
Sorry, you're having a rough time, I can totally empathize!
-------------------- Susan Posts: 80 | From Queen Creek, AZ | Registered: Nov 2007
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posted
thank you so much susan, what you posted is what i needed to hear
i know many of these things but my brain is just all confused again and i cant remember whats ofr what
lemon water and herbal tea have done a number on my teeth but ill try again and remembr to brushj after
yea tylenol tears me up too at this poitn and im sturglling with the timing of meds
home nurse said same that probably tindamax doing it i appreciate the sympathy
printing out suggestions thanks again so mcuh
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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gmb
Unregistered
posted
How about trying Alka-Seltzer Gold.
It's only sodium bicarbonate, potassium bicarboate and a little citric acid.
I've been on IV Rocephin and Zith since just before xmas. After my first week I had a lot of flue like symptoms and felt like crap. I took someones advice and tried the Alka-S and my "Flu" symptoms went 80% away within 8 hrs.
posted
thanks i will try that too gmb hubby stopping at store on the way home
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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gmb
Unregistered
posted
Sbh,
Make sure he gets the "Gold". The other versions will contain asprin. I know that CVS does carry the "Gold". Others in htis conferece have found the Gold harder to find in their local stores.
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
I buy Gold in bulk from Amazon. It is cheaper that way. Rite Aid will order it for us at our nearby stor if needed.
We all herxed badly on tindamax and we only did it two days a week. Now it is no problem.
My son did 10 months of IV rocephin and went from bedbound to back to school.
Keep the faith you will get better and hang in there.
There are detox powders you could take. I take Detox 360 from Researched Nutritionals. Also take a detoxilean from Swanson's. Take alpha lipoic acid every day and NAC.
Can you do more of a pulse with tindamax with docs permission for a while to get a break?
Good luck,
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
thanks so much yes lemon water helps and hubby bought wrong alka seltzer but i will get it tomorrow
friday was very bad but seems to be lettting up as far as pain goes i was sweating a lot too took two showers and still soaked through four shirts but i guess that means its working
learning my lesson about needing to sleep more body felt a bit better after sleeping 12 straight hours just cant keep doing that but will try to nap more
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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