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» LymeNet Flash » Questions and Discussion » Medical Questions » Bartonella Encephalopathy Rifabutin / Mycobutin Treatment

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Author Topic: Bartonella Encephalopathy Rifabutin / Mycobutin Treatment
daniel
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hey folks...


im about to switch my protocol against my bartonella h. infection. i think my encephalopathy is caused by bartonella.. and its improving very slow.
i've already done levaquin 2x 3 mo's and 1/2 year rifampin... both combinated with other abx.

i dont want to take the levaquin anymore... and i think that the rifampin isnt working anymore..

have someone done rifabutin for bartonella??? how did it work??? are there other protocols to treat bartonella induced encephalopathy???


greetz

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little_olive
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Adding Bactrim (with Rifampin) pulled me through the last part of it! Not related but... I'm about to finally stop treating bart after 1 year and that's what got me through the last four months. [Smile]

--------------------
Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine
Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08
IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++
IgG deficiencies and MTHFR 677TT mutations

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Lala
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What did you take with rifampin? I took it with doxy and azi for one year and it did not do much for bartonella (henselae and quintana) induced encephalitis. Now I am taking it with mino, azi and art. and I noticed some difference, though I am not cured. (I am only couple of days into the whole combination).

I am curious about rifabutin, too. I would stay away from levo.

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little_olive
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I did:

Rifampin 600mg, 1 month (not recommended, special case)
Rifampin + Doxy, 2 weeks (too strong, hospitalized from herxing)
Rifampin + Zithro, 7 months (then zith stopped working--easily fails)
Rifampin + Bactrim, 4 months

Now on to the Lyme treatment, which has its own set of encephalopathy. I knew my bart was gone when I stopped having exacerbations and fevers every 5-7 days, the rashes, shin pain, derealization/depersonalization, the frontal headaches, the terrible mood swings, the "bart rage," the hallucinations, blurred vision, seizure-like activity and the sleep-cycle reversal. Still have internal tremors, dystonia, severe headaches and neckaches, fevers once or twice a month, weak legs, cognitive dysfunction, fatigue, etc etc. Starting Tindamax and Mino next week.

[ 01-24-2012, 02:16 PM: Message edited by: little_olive ]

--------------------
Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine
Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08
IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++
IgG deficiencies and MTHFR 677TT mutations

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CD57
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Do bart treatment until you are 3 mos with no symptoms. Now, that is the magic part -- how do you know which is what?
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canefan17
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I have a bad case of Bart encephalopathy too
In fact I'm in a Bart flare as I type (it's awful)

I used Rifampin + Doxy for 2 months and it was amazing. 90% of Bart symptoms cleared.
After 2 months or so the Rifampin stopped working. Bart came raging back.

Now I'm left with Houttuynia (12 HH2 caps per day) just to barely keep Bart at bay.

I've heard Mycobutin (300mg per day working up) added with Zithro + Plaquenil

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CD57
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Add some Seagate OLE extract capsules in there Jason, 4 3x day, in addition to your HH.
You still have many options. You can try doubling dose of Rifampin (that is what you do when the symptoms come back) or trying Cipro, Levaquin, or Factive (lots of magnesium, no tendon problems).

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canefan17
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Thanks CD57

Daniel,
Have you tried any herbals with success?
What about going after parasites or metals to indirectly get Bart?

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daniel
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I haven''t done any herbals for Bart, but i'm looking forward to buy some a-bart in march. I've gone several times after parasites, but i will order some parastroy in march too and try it with the a-Bart. I'm doing detox with zeolite and activated charcoal
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little_olive
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quote:
Originally posted by CD57:
Do bart treatment until you are 3 mos with no symptoms. Now, that is the magic part -- how do you know which is what?

I.. think I just described that up there... Edited to add derealization to the bartonella list.

I'd heard 2 months with no symptoms.

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