im about to switch my protocol against my bartonella h. infection. i think my encephalopathy is caused by bartonella.. and its improving very slow. i've already done levaquin 2x 3 mo's and 1/2 year rifampin... both combinated with other abx.
i dont want to take the levaquin anymore... and i think that the rifampin isnt working anymore..
have someone done rifabutin for bartonella??? how did it work??? are there other protocols to treat bartonella induced encephalopathy???
greetz
Posts: 371 | From velocity of light | Registered: Sep 2009
| IP: Logged |
posted
Adding Bactrim (with Rifampin) pulled me through the last part of it! Not related but... I'm about to finally stop treating bart after 1 year and that's what got me through the last four months.
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
| IP: Logged |
posted
What did you take with rifampin? I took it with doxy and azi for one year and it did not do much for bartonella (henselae and quintana) induced encephalitis. Now I am taking it with mino, azi and art. and I noticed some difference, though I am not cured. (I am only couple of days into the whole combination).
I am curious about rifabutin, too. I would stay away from levo.
Posts: 125 | From eu | Registered: Dec 2010
| IP: Logged |
Now on to the Lyme treatment, which has its own set of encephalopathy. I knew my bart was gone when I stopped having exacerbations and fevers every 5-7 days, the rashes, shin pain, derealization/depersonalization, the frontal headaches, the terrible mood swings, the "bart rage," the hallucinations, blurred vision, seizure-like activity and the sleep-cycle reversal. Still have internal tremors, dystonia, severe headaches and neckaches, fevers once or twice a month, weak legs, cognitive dysfunction, fatigue, etc etc. Starting Tindamax and Mino next week.
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Do bart treatment until you are 3 mos with no symptoms. Now, that is the magic part -- how do you know which is what?
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I have a bad case of Bart encephalopathy too In fact I'm in a Bart flare as I type (it's awful)
I used Rifampin + Doxy for 2 months and it was amazing. 90% of Bart symptoms cleared. After 2 months or so the Rifampin stopped working. Bart came raging back.
Now I'm left with Houttuynia (12 HH2 caps per day) just to barely keep Bart at bay.
I've heard Mycobutin (300mg per day working up) added with Zithro + Plaquenil
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Add some Seagate OLE extract capsules in there Jason, 4 3x day, in addition to your HH. You still have many options. You can try doubling dose of Rifampin (that is what you do when the symptoms come back) or trying Cipro, Levaquin, or Factive (lots of magnesium, no tendon problems).
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Thanks CD57
Daniel, Have you tried any herbals with success? What about going after parasites or metals to indirectly get Bart?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
| IP: Logged |
posted
I haven''t done any herbals for Bart, but i'm looking forward to buy some a-bart in march. I've gone several times after parasites, but i will order some parastroy in march too and try it with the a-Bart. I'm doing detox with zeolite and activated charcoal
Posts: 371 | From velocity of light | Registered: Sep 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic