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» LymeNet Flash » Questions and Discussion » Medical Questions » Ivermectin = not easy

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Author Topic: Ivermectin = not easy
annxyzz
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I have been trying a moderate dose of ivermectin for parasites . I have taken it every other day at a low dose. Boy do I feel bad .

I think it is killing a new organism , not sure what . I have taken other parasite herbs before , but this is different .

I am detoxing and going slow , and still feel wiped out .

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annxyzz

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sparkle7
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If it were me, I would stop the ivermectin & focus on detox & binders. Don't take any more ivermectin until you start to feel better.

Try plain water enemas, too. Just my experience...

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Deb133
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My daughter's LLMD started her on 1/2 pill every other day for two weeks and then 1 every other day for two weeks.

Then she will take one every day. She has had no issues at all. Some people can only take 1/4 pill.

Debg

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seibertneurolyme
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Hubby got up to what we thought was therapeutic dose on ivermectin last weekend. He felt horrible Saturday and had what he would consider an actual herx reaction. He felt better on Sunday and going forward.

At his LLMD appointment today the doc suggested he increase his ivermectin dose by 50% so he will do that the next cycle. He takes the ivermectin 3 days straight and then is off that med for 4 days each week.

His bloodwork actually improved on the ivermectin. WBC and RBC both went up and RDW went down so it looks like it is preventing hemolysis of RBC. Still not sure if it is working on babesia or whatever pathogen is attacking his WBC.

One of hubby's worst symptoms right now is fatigue -- that is partly from the ivermectin and probably also from the sida acuta he just added a couple of days ago.

If it seems like it is too much then skip a dose or two of meds or decrease your dose. Hubby took the low dose ivermectin for 2 weeks back in December and then was off it for 2 weeks while we waited for a phone conference with his LLMD. His bloodwork got worse during the 2 weeks he was off the med so he was happy to get back on it even when it made him feel worse at a higher dose.

Good luck.

Bea Seibert

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annxyzz
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Thank you . I will not push the dose up and will take a break if I get too miserable. I guess the herx indicates the drug is doing something useful.

Bea , if your husband's babs improves, let us know . I wonder if this ivermectin is hitting anything other than worms , or maybe even lyme .

What is sida acuta for ? How did you hear about it ?

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annxyzz

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2roads
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What doses are we talking about when we refer to pills?

Thanks-

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annxyzz
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I think about 3- 15 daily or every other day , depending on tolerance.

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annxyzz

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kelmo
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I heard 9mg was theraputic dose. My daughter is on 3mg every other day and still not ready to up it.

annxyzz...let me know if old symptoms come back. We found that as it went into tissues, it brought up all the old symptoms in the order she got them when she first started getting sick.

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glm1111
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Sparkle,

What other antiparasitic pharma will kill the baby parasites as Ivermectin does not kill the adults. They will keep laying new eggs.

I remember reading that people in other countries where these infections are a big problem, ivermectin has to be given for life.


Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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annxyzz
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I am ODDLY enough having an old symptom from several years ago .I have transient hot spots on the top or bottom of my feet , not painful just strange .

Also , I have some cramping ( gentle like a spasm or twitch ) occassionally around my mouth. I have not had these in years and do not know why they are back .

I have not taken iver in 3 days and still feel fluish, and fatigued and having some chills and BIG fatigue.

--------------------
annxyzz

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Tricky Tickey
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Gee, I can go to Tractor Supply and buy Ivermectin paste. That's what I worm my horse with.

--------------------
Early Disseminated LD- 2010.
Currently doing acupuncture and yoga.
Negative Igenex (IND & Pos Bands)
ISSUES AFTER: Tendonitis, letter reversal, Low immune system.
PREVENTION:SaltC,Iodine,Humaworm,
Chiropractic.

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sparkle7
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Gael - maybe mimosa pudica? I'll have to look into it... I posted a study about mimosa on another thread yesterday. I think it was found to immobilize filarial worms.

There are some Auryvedic herbs that might work. I just started studying about some of them. There are an immense amount of Chinese & Indian herbs - not to mention the ones from the Amazon...

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glm1111
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Sparkle,

I meant to say what will kill the ADULTS in the post above. I know the herbs and salt/c works to kill adults because I had many exit, and of course LOTS of cloves to kill the eggs and larva.

Also just read that doxy is also being used in combo with Ivermectin because doxy kills the wolbachia bacteria that the worms are carrying.

I thought I remembered you posted about some pharma herbs to kill adults. Just thought it might be good to know for those choosing to use the pharma antiparasitics. Maybe GiGi knows?

Hope you are doing well,

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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annxyzz
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To others commenting here : I am having a lot of achiness in my arms , mainly upper arms, and the twitching is going crazy again.

I would like to know how others are doing with this... how long it takes to start feeling better . I am taking a small dose every three days . It is not easy . Also, I feel like I am having an asthma attack every day after I take it . The die off seems so toxic that I wonder if I am allergic to toxins.

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annxyzz

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annxyzz
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Regarding cloves mentioned : do you take capsules ?

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annxyzz

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annxyzz
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Another thought : mimosa pudica might be a possibility as it is helping healing in santa cruz , what about the herb Bea's husband is taken recommended by Buhner called sida acuta
( I think that is correct spelling ) ?

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annxyzz

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2roads
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What do you mean, "in santa cruz", annxyzz?


Thanks-

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annxyzz
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manybites : is the mimosa making him feel better?

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annxyzz

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annxyzz
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Manybites: what is high HH ?

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annxyzz

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annxyzz
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2roads :healing in santa cruz is a member here who is using mimosa and being helped by it .

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annxyzz

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2roads
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up
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Haley
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Can anyone give an update on their Ivermectin? I've got the pills, but I am afraid to take them.
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Haley
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Thanks many bites. I'm just so nervous about it. I will start slow. Good to know that you got up to 28 mg. Do you feel that it has pushed you forward quite a bit?
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annxyzz
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I have been doing it every 5-7 days , therapeutic dose and it is getting a bit easier.

I am also noticing that I am not twitchitching day or night at ALL .

I will continue to update as the weeks go on.

--------------------
annxyzz

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Haley
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Wow. That's amazing.

I just have a feeling about this.

Looking forward to seeing others experience with this.

Mine is definitely in the brain, that's what sort of freaks me out. I guess it's more freaky to have them alive in there than dead in there.

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kelmo
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Haley, don't be afraid to take a 1/4 tablet if need be. My daughter's lymph glands nearly exploded with the die off and she had to really cut back.

She has worked up to 1 and 1/4 pill every other day.

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Haley
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I will start tonight. I chickened out last night.
Kelmo - what is your daughter's weight?
I was going to start with a 1/2 pill tonight.
Makes sense that the lymph glands swelled.

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manybites
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kelmo she was loaded in filiary worm

I felt the same in the begining and it passed and gave me releif in the symtoms

it is time to use it again

that is allright haley if you chicken you can start slowly

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annxyzz
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Is the pill 3 mg that most are starting with?

--------------------
annxyzz

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kelmo
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Yes the three mg is the most common. Stromectol is the generic form.

My daughter weighs around 105.

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surprise
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I weigh around 105, I am doing Albendazole 2x a day for 7 days, and then on day 7, a one time dose (3 pills) of Ivermectin.

Stop for 10 days, repeat, repeat.

I'm in the 2nd. Headaches, nausea, and using the restroom a lot.
Yes, doing stuff for detox. Felt more sick after last one for a few days, but could function, at least get through a mild day.

Not fun, I'm crabby, but none of this stuff is easy.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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ItsMyTurn
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Can someone pm me the correct dosage for male at 175 lbs. Also, did u get prescription or buy direct on line.
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springshowers
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After Three months The herx hit. I am up in dose and fee very tired so tired. And having other things coming up such as viral issues. But it happens where things rotate and when I treat one ting the other pops out there and becomes more activated.

Makes you wonder if they just take turns?

I agree with the detoxing comments and I would not have been able to tolerate m dosing if I had tried this a few years ago.

Has anyone been on the med longer than six months ? And what have been the longer term results. I heard that this med alone is not enough and other ones will be added and will be soon to the ivermectin protocol so I am looking forward to that and see how that will work out.

Its hard to tell what is going one when you have it affecting specific parts of the body and it distracts you badly from feeling ok or being able to give attention to how your feeling over if that makes sense?

So right now I am not able to really report accurately how I am doing. But hope to get to a better place to have a clearer picture.

I guess that does tell you I am flaring. : ) So will check back in a week or so.. and see how others are and let you know how I am too.

Blessings all

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kelmo
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My daughter just upped her dose by a 1/4 tablet. She is now taking 3mg plus 1/4 of another 3mg pill.

Her lymph glands are VERY swollen, VERY painful, and the toxins are again making her face break out in cystic acne.

She is on accutane!

Her neck is in so much pain. She bounces, drinks detox tea, and gallons of water. Ivermectin kicks butt.

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Haley
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Hi Kelmo. I also have very swollen lymph nodes, I think that is a good sign. I had pain in my lymph nodes after the first pill went into my system. I also have stuff going on with my face. I wake up with severe pain in my sinus area and forehead.. the pimples too.

Does your daughter have any problems with her eyes? The side effects note that the eyes can become swollen. That has happened with me.

Also, does she have any scalp pain or feel flares in her knees?

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kelmo
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Her pain migrates. She will develop big knots in her shoulders that I have to work out. Once, the pads of her hands hurt so bad she couldn't use them.

I hope her eyes don't become swollen. She has had three surgeries on her eyes. That could be a problem.

She is also on accutane, so she is getting a double whammy of fun.

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annxyzz
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My update : I also had swollen glands ( lymph nodes) and a strong herx reaction.After five weeks , herxes are far easier .

I also noticed passing seed like elements or organisms in stool after each dose. I have had no bad side effects at all .

The positives : I have not had to use asthma meds in two weeks !!! I have to wonder if this relates to babs . I think so. I was living on asthma meds and never felt I got a good deep breath . I can breath much better . This is worth a try if you have breathing issues and I wish others would post if they have this improvement .
Other positive : I have almost NO twitches . The twitches were not in muscles, but felt like goldfish under the skin having epileptic seizures . Extremely weird ! This amazes me.

I still have fatigue and some fluish feeling, but have only been on this about six weeks.
I will continue to update . I hope others will too , esp about improvements of air hunger or asthma or breathing .

--------------------
annxyzz

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kelmo
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One week after upping dose 1/4 pill, only took a week of a strong herx. Getting easier. Asked how daughter was doing this morning..."pretty good".

She doesn't use those words lightly. It can change in an instant.

Gonna encourage her to start upping the dose every two weeks and see how that goes.

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