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» LymeNet Flash » Questions and Discussion » Medical Questions » Guidelines-Petition- Groundhogs are Dancing! (Page 1)

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Author Topic: Guidelines-Petition- Groundhogs are Dancing!
Tincup
Honored Contributor (10K+ posts)
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Direct Link to Petition:
http://www.lymedisease.org/petitionscript/index.php

OK! I have a dream.

My bet is we can get 5,000 signatures by Valentines Day!!!! (For you guys out there, that is February 14.)

[lol]

If you don't want the IDSA guidelines to be blocking your way to getting treatment- SIGN ON NOW!!!!!

Lymedisease.org (formerly CALDA) is taking the lead on this effort, so we know it is a good deal for us.

Link to petition is below... (I would advise clicking the anonymous button before submitting your name- safety first!)

LYMEPOLICYWONK: SIGN THE PETITION TO TAKE DOWN THE IDSA GUIDELINES!

24
Jan

Medical treatment guidelines are tremendously important in determining your treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC), which is part of the US Department of Health and Human Services.

Its the governments way of providing updated information about different diseases to health care professionals. NGCs own rules require that listed guidelines be updated every 5 years.

Full story here:

http://www.lymedisease.org/news/lymepolicywonk/901.html

Direct Link to Petition:

http://www.lymedisease.org/petitionscript/index.php

EVERYONE CAN SIGN THIS! SO PLEASE DO!!!

[ 02-03-2012, 04:27 PM: Message edited by: Tincup ]

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Tincup
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Up for the early birds... here's your worm!

[Big Grin]

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Tincup
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At 12:30 am on Wednesday, January 25, 2012 there were 48 people signed on.

I was # 16. What's your number?

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Tincup
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At 2:20 AM we hit 109 people!!!

Keep going!!!

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Garden
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I was #365

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Garden

"Fibromylagia" for 8+ years
Pos IgeneX WB per both Igenex and CDC
Pos Neuroscience MyLymeImmuneID
Started tx for Lyme in March 2011

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baileypup
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I was 505
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tickssuck
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#543!
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Tincup
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GREAT! Thanks for signing on!!!

Now YOU have a voice!

I am thrilled we are over 500 already!!!!

[Big Grin]

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Tincup
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12:20 PM on Wed.

630 now!

Get your umbrellas out. I can feel the IDSA tear drops starting to fall.

[lol]

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Tincup
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"A small, but vocal group."

That is how the IDSA referred to us in multiple publications over the years as they tried to dismiss us to officials.

Show 'em your stuff!

[Big Grin]

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Tincup
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Hey TuTu... show 'em your tutu.

[lol]

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Tincup
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1:30 PM- 725 people!!!

Hot dawgs!

[Big Grin]

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Tincup
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Can we get 1,000 in 24 hours????

Before 11 PM?

YES! I think we can! ????

Go, go, go!

[Big Grin]

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baileypup
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2,430 signed....
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RZR
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I was 2,572

--------------------
Tick bite May 2009
Diagnosed June 2009

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Tincup
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2,808! MY GOODNESS!

I absolutely am not good with numbers, but right now I'm happy about that!

Looks like we have not 1,000, not 2,000 but maybe THREE thousand in 24 hours?

[Big Grin] [Big Grin] [Big Grin] [Big Grin]

Bailey and RZZZZZZR...

Thanks! Glad you made your voice heard!

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Tincup
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Drum Roll!

Absolutely amazing! I was hoping to see 5,000 signatures on the petition by Valentines Day.

It is very possible we will make it, especially considering in less than 24 hours- 11 PM last night, to 10:35 tonight- we got over ...

3,000 signatures!

Cheers and applause to you!

Having the community working together to give the IDSA guidelines the boot is wonderful!

Keep up the good work, and thank you for signing on, and for sharing this with everyone you know!

[Big Grin]

Direct Link to Petition

http://www.lymedisease.org/petitionscript/index.php

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steve1906
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I was number "3046"

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Everything I say is just my opinion!

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lyme in Putnam
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signed and my sister, don't know what number, and my husband.

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He took u to it, He'll you through

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Tincup
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GREAT Steve and Lyme in Putnam! Thank you and yours for signing on!

You know with your help we are getting an average of 127 people per hour signing on!

More than 2 per minute!

Amazing!

[Big Grin]

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Nicole_Denise
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Hoooray! That is so exciting! I signed today and I was only 723!

I emailed it to all my friends and families.

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cht girl
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Signed tonight.... we refuse to be silenced...
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Robin123
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24 hours ago, I was #108. 24 hours later, the count is at 3381!!!
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WhitneyS
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YAY I signed too
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Hopeful in Holland
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I signed already also, Glad to see it here. I was unable to copy the post proper to this site.
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opus2828
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Just signed it.
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Robin123
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The signatures are pouring in - every time I look, they've jumped in number. Since this can also be signed internationally, spread the word out there!
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lymeboy
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we'll have 5000 signatures by tommorrow....Valentine's day? maybe tens of thousands!!!!!
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Robin123
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I see about 100 an hour have been coming in - 12 more hours, or less, for 5000 on our new Valentine's day, January 26!

Oh well, blossoms are already coming out, so why not? Today, we can send Lyme Valentines to everyone who signed it or who will...Is a Lyme Valentine a Valenlyme?

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David95928
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3,844th

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Dave

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Lymetoo
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Done... didn't look for a number .. oops [bonk]

--------------------
--Lymetutu--
Opinions, not medical advice!

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payne
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3926

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TULAREMIA/rabbit fever ?

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Tincup
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3970 people signed this petition! Yee ha!

[Big Grin]

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Tincup
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Now it's over 4,000!

Do I hear 5?

[Big Grin]

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back2game
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#4184 - 11:45 AM

--------------------
CNS Lyme 05/08 - EIA 1.16+, IGG 18+, IGM 23+
01/11-IGM 31 Epitope Positive
01/11-IGM 31+++, 41+, 58++, 83-93+, 23-25IND, 39IND
01/11-IGG 41+
Vasculitis 01/07,MCTD 05/06,Fibro 11/04, Myofascial PS 11/03
Embedded Tick app. 1990

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Tincup
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4,470

Thursday, 3:50 PM.

Can we make it 5 thousand by 5 PM?

[Big Grin]

--------------------
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Robin123
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Reporting in:

Lymie drumroll pleeze --

5004 as of now!!

I imagine the 5000th person must have had a special pleasure in doing so, and of course, following everyone else who came to the site to cast their vote against guidelines that don't work for anyone -

time to move on, as they say in Moveon and lots of other organizations for social justice...

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kidsgotlyme
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My number is 5036. Woot woot!!

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symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

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Abxnomore
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Up:

http://www.lymedisease.org/petitionscript/index.php

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Robin123
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I have a new prediction - 45 minutes later, it's already at 5100 - I think we might make 6000 by midnight PST!
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Lymetoo
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We are so awesome!! [Big Grin]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Tincup
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hehehehehehe ... I agree!

Look at us go! Amazing we all are!

And, if we do really good and get those numbers up, up, up, maybe we can use the IDSA guidelines for toilet paper?

Or maybe use them to line the bottom of the bird cage?

[lol]

--------------------
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Abxnomore
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Send it to everyone in your address book and as them to pass it on. I did.
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Tincup
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GREAT ABX!!! I agree, please do!

Thanks too!

[Big Grin]

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Tincup
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5373 people signed this petition.

[Big Grin]

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jackie81
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5533 people have signed-wow
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Tincup
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Wonderful!

It appears we are good out of the gate, but can we keep up the pace?

6,036 people signed this petition as of now. How about sending out a reminder to friends and family?

[Big Grin]

--------------------
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Tincup
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Ok weekend bunch... show us what you can do!

Current number is.... 6,451

Thanks to all who are working to get this done.

[Big Grin]

--------------------
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www.MarylandLyme.org
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Tincup
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6,709

Did you sign on?

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17hens
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Up for the Weekend Crew!!!

Yes, show us what you can do!!!

[woohoo] [woohoo]

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"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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Abxnomore
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Back up:

http://www.lymedisease.org/petitionscript/index.php

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Tincup
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7,226 as of now.

[Big Grin]

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lightfoot
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Done and contacting friends and family.

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Healing Smiles.....lightfoot [Smile] [Smile] [Smile]

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sickpuppy
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#7358. Hope it helps.
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seekhelp
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Has CALDA had any credibility with the powers that be over the years? Obviously, I know the guidelines have not been amended, but does this organization yield any power with any important government agencies to sway things at all?
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Tincup
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7790 people signed this petition! We are getting there!

[Big Grin]

Lightfoot- good to see you! You too puppy! Thanks!!

Seek...

CALDA- now Lymedisease.org- is highly credible. The fact you even know what Lyme disease is, well, you can thank them for it. Why not read about them on their website?

They have done an incredible amount of work, non-stop, since the late 1980's to help sick patients, get doctors trained, work on legislation and educate the public.

I think the power they have to sway things, as you eluded to, is the truth.

They don't roll around in the mud and play kissy-face like others may do to sway people to their side, they do the honorable thing and present the facts and they don't give up.

And the best thing is... they are willing to do it.

Not many people or organizations have put in that many years working to help millions of people they don't even know.... out of the kindness of their hearts.

Have you signed the petition yet? It is something everyone, no matter how sick you are, can do!

Here is the link.

http://www.lymedisease.org/petitionscript/index.php

[Big Grin]

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Abxnomore
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Is there a magic number we need or just the more the better?

Back up!

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Tincup
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8,538 people signed this petition.

[Big Grin]

If we are going to get the 10,000 by midnight on Groundhog Day, we need to send the petition out to more folks!

If everyone sent it to 10 people with a personal request to sign on, and they sent it to ten more... wow!

Abxnomo- Other than my hopes of getting the 10,000 ASAP... no number needed.... but, you are right, the more the better!

[Big Grin]

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Tincup
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GROUNDHOG DAY PREDICTION

If Punxsutawney Phil sees his shadow on Groundhog Day, legend says we will have six more weeks of winter. If he doesn't see it, spring is just around the corner!

BUT.... Phil, who lives in highly endemic Pennsylvania, told me if he comes out of his den for his midnight snack on Feb 2 and sees less than 10,000 signatures on the petition to bury the IDSA guidelines, he will start biting everyone who didn't sign on!

The good news is... if there are more than 10,000 signatures he will only bite the IDSA guideline authors! Sounds like a deal to me! ~smile~

Please sign the petition and get everyone you know to sign it! Getting more signatures surely beats having to hide from an angry groundhog and deal with the IDSA any longer!

Link to petition:

http://www.lymedisease.org/petitionscript/index.php


Interesting stuff about groundhogs:

http://www.stormfax.com/ghogday.htm

HAPPY GROUNDHOG DAY!

[Big Grin]

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Keith2612
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8556!! [Smile]
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Tincup
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GREAT Keith!

Since you are in Alabama, you might want to know...

I am hearing some rumblings from General Lee- the southern groundhog weather predictor. Waiting on an official message from him now. Will post when it arrives!

[Big Grin]

As of now 8,595 people have signed this petition!

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Tincup
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CONGRATULATIONS!!!

Thanks to you, in less than one week the petition got over 9,000 signatures!!!

That is totally amazing! I love it when the community comes together for a good cause- one designed to help each other.

Thank you!

[Big Grin]

Now, can you get us some more so we have 10,000 by Thursday night when Pux Phil goes for his midnight snack?

Bet ya can!

[Big Grin]

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Razzle
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9250 as of 8:39am (Pacific Time)...keep 'em coming!

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-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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gagamooppop
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If this website had a like button it would be clicked right now for this post.

Amazing.

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Tincup
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GREAT!!!

9,429 people signed this petition, as of now!

[Big Grin]

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Tincup
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9,561 people signed this petition!

[Big Grin]

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Tincup
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HAPPY GROUNDHOG DAY!

Pux Phil is out of his den looking for the 10,000 signatures! Will they be there by midnight?

[lol]

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Tincup
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9,576 people signed this petition as of now!

More, more says Phil the Groundhog!

Sun is almost up! Will Pux Phil and General Lee see their shadows this morning?

??????????????????????????????

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imagine2
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9604 signatures. I signed it and forwarded to friends and family.
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17hens
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TC, this is sooo exciting! And you make such a great cheerleader! [woohoo]

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"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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Tincup
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[lol] Hens you are too funny!

OK, special message from General Lee....

```````````````````````````````````````````

General Beauregard Lee, PhD., the Southern Groundhog Weather Predictor based out of Atlanta, said to tell you there will be an early spring this year in the south!

He is sorry Punxsutawney Phil in Pennsylvania wasn't able to predict the same for the rest of the country.

General Lee said he is VERY pleased to know we now have over 9,000 signatures on the petition and he wanted to thank you very much for your efforts so far.

He is concerned though that there may not be 10,000 signatures by midnight tonight- Groundhog Day.

He said he would write people directly to ask them to sign on, but as you know, he is not allowed to have a computer or phone in his den, only a TV.

He said if you could help get the 10,000 signatures on the petition by tonight (tweet, facebook, email, phone calls, whatever), he would personally send a message to the guideline authors saying "Kiss My Grits!"

We need about 300 more people (as of now) to make it to 10,000.

Link to petition here: http://www.lymedisease.org/petitionscript/index.php

Thanks from General Lee!

[Big Grin]

Learn more about General Lee:

http://www.yellowrivergameranch.com/bio.htm

--------------------
www.TreatTheBite.com
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www.MarylandLyme.org
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Tincup
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9,766 now. It doesn't look like we will make the 10,000 the groundhogs had hoped for.

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cozynana
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It's moving. I just signed in at 9,814!!!!!
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Abxnomore
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We're getting so close to 10,000 and midnight is fast approaching.

Send it to everyone in your address book and urge them to pass it along.

We can do it!!

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BoxerMom
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9,860 and 9,861

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 - Must...find...BRAIN!!!

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