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» LymeNet Flash » Questions and Discussion » Medical Questions » people with CNS barronella?!

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Author Topic: people with CNS barronella?!
daniel
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Are there some people in here with cns bartonella?? What did help you the most to get rid off it???
Posts: 371 | From velocity of light | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
canefan17
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I have it bad

Rifampin + Doxy helped but Bart developed resistance over time and Rifampin stopped working (eve at higher dose of 1200mg)

I'm now on HH2 caps (houttuynia) and it helps keep it from getting ER severe.

Next I'll try Mycobutin + Zithro + Plaquenil

(You can sub Zithro with Clarithromycin)

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daniel
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no 1 else?
Posts: 371 | From velocity of light | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
Lala
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I have bartonella induced encephalitis but despite beeing very long on atb I still did not kill it, though I improve..
Posts: 125 | From eu | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
gagamooppop
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It's pure torture...having clear days here and there but nowhere near 100%

Doing doxy/rifampin but doxy killing my stomach so switching to levaquin/rifampin also on tindamax

Doing Byron white formulas as well: a-l and a-bart

Also taking a bunch of supplements when stomach permits it.

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manybites
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I suffered severely from bartonella.I was a year in Rifampin , Doxy and Azithromycin ,but still had it .The first attempt of levquin caused tendonitis.I should not have started with levaquin as I was loaded in bart.Than I tried HH capssules and I was in very high dosages of it with biaxin that somhow gave me a remision from bart and felt finally better.
An accident and untreated babesia case made me relapse fully.Now in Biaxin plaquinil and Mepron to treat babs but stoped bart symtoms ( fry bug ) and the bone shin pain stoped as well.Before I actually use hign dosages of banderol.I tried A Bart in even high dosages and Many months of KNotweed.It is scary but I chase bart for 2 years and 1/2 as I knew I have bart since 15 and got reinfected with another strain in USA .
Bart seems persistant but over time as you reduce all other infctions it will be easier.
You just have to try the comb that works for you.I used them until I felt no change and went for other combos.The herxes were horrible.You become more neuro when you kill it .Try to detox but do not quit as when is activated comes back fully force with revenge and comes fast.

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daniel
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Oh man, that really doesnt Sound good... [Frown] i See many treatments here with no success .. which treatment gave you the Most success? Im currently on tetracycline+rifampin+zith.......
Posts: 371 | From velocity of light | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
Lala
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Daniel, which tetracycline are you on?
I have been on doxy, azi, tini longterm and added rifampin for whole year to the entire mix. It was not enough.

Now i changed doxy for mino and tini for art. and I had some improvement.
This bug is really resistant to treat [Frown]

Posts: 125 | From eu | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
daniel
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Im on Tetracycline itself, you can take quite High doses, so you have more tetracycline in your brain than doxy or mino...

The Azi+doxy+rifa didnt gave you some improvement??

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tickssuck
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I definitely have horrible CNS symptoms, but no clue if it's from Lyme, Bart, Babs or what.

I am always so amazed how people know which infection is causing what, just not true for me. So many listed symptoms overlap, I just don't know.

I have treated Bart very aggressively for over 1.5 years (including IV Rifampin). Sorry to say, I'm still not well. My last CD57 test was 9, ugh. Is it due to Lyme, Bart, Babs, mold, viruses, KPU, metals, detox issues....? I know that Lyme is suppose to be the culprit for low CD57, but aggressive Lyme tx has also not been very productive.

I wish I knew, wish I could find a LLMD who knew too...sigh. Sorry, don't mean to be a downer, just where I'm at right now. TS

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Lala
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Daniel, yes, it did, but I fought with lyme and cpn at the same time, also wih mycoplasma, so I think improvement came more from treating those other infections. Does tetracycline penetrate nerves? I thought tetracycline penetration to nerves was poor...

tickssuck all my lyme tests went down to zero and my CD57 reached the normal range, whereas bartonella tests are still positive with typical clinical symptoms, so I guess it is bartonella

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daniel
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mhh okay.... i have mycoplasma too... my borrelia tests always came back slightly positiv... the only one with high titers was my ELISA test (for normal antibodies).
bartonella was only shown in IGG.
cd57 always has been normal... mine is 260-390... at the beginning 260.. now after treatment 390...

i try to figure this thing out since 1 year.. but cant really find an answer. i think that borrelia isnt my mainproblem related to the brainfog...

someone tried some neuro-antioxidant??

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canefan17
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I also want to throw in there that I truly believe there is a parasite angle to this (and metal toxicity)

Both can keep an immune system suppressed and thus Bart never being under control.

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desertwind
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I have CNS symptoms but not sure which infection it comes from - probably all 3 -Lyme/Bart/Bab.

I am just starting on a new protcol of Septra/Zyth./Mepron/Plaq. Only on day 2.

What I can say is the IV Glut. I had a couple of days ago greatly decreased all my head related symptoms and pain.

I have taken Pinella in the past for brain. CNS detox - helped maybe a tad.

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Lala
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What is Pinella?
Posts: 125 | From eu | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
desertwind
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It is part of the Cowden Protocol and recommended as an herb for Nerve /Brain Detox.

If you go on Nutramedix website you can get more info.

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Lala
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thanx
Posts: 125 | From eu | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
   

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