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» LymeNet Flash » Questions and Discussion » Medical Questions » Need to hear from those of you who have recovered from multiple food allergies

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Author Topic: Need to hear from those of you who have recovered from multiple food allergies
tickled1
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I react to everything I put in my mouth and don't know how to get out of this mess. I'd like to hear from someone, anyone, who has successfully overcome multiple food allergies.
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ArtistDi
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I saw a wonderful drug allergist at Brigham and Women's Hospital and also did a lot of alternative treatment at Northampton Wellness Clinic, Northampton, MA.

IV nutrients, slowly administered and only half the dose to begin with, with a rare foods diet, which was rotated. Eventually, I could withstand IV antibiotics, but I did them with low dose steroids (I know how the lyme community responds about that, but my llmd, along with drug allergist figured this out for me). This is how I was able to eat more balanced.

Will email you with contact name at Brighams,

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tickled1
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Yay! I have an upcoming appointment at Noho Wellness. Please PM me who you see there.
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ArtistDi
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Your mailbox is full, so I can only respond this way--if you look at the website, I see Dr. L, but Dr. E is the one who began this clinic. Either. Please check your email for the doctor at Brigham. She has been an angel and my lifesaver. You could have something called mastocytosis, which makes you allergic to lots of things.
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tickled1
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Interesting you mention mastocytosis. I remember stumbling upon that in my reading at one point.

I cleared my mailbox btw.

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GiGi
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http://allergie-immun.de/Englisch/allergietherapy.html
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sickmate
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I have similar problems, react strongly to all meds. I think its due to a leaky gut which i try to treat at te moment.
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tickled1
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I'm terrified that I have chronic pancreatitis now. The signs are there.
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tickled1
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Hoping it's gastritis and not pancreatitis.
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gagamooppop
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This is exactly what im going through right now and couldnt figure out if it was one of the bacterias or what...i react (terrible brain fog, out of it feeling, gastro stuff) with anything i put in my mouth...sometimes even water

Its been driving me bananas bc im already hanging by a thread now how do i get my nutrients if i dont want to eat bc i hate how i feel afterwards (my diet is so restricted..maybe i should just eat a burger since its been so long)

Blugh.

Seeing a food allergist on monday...hope they are helpful..helped a neighbor of mine while he was at his sickest so am hoping for the same...problem is i have such a hard time leaving the house and freak out at everything...maybe ill just ativan up...hopefully wont fall asleep at apt...

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LymeMECFSMCS
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Curious if you tested for mastocytosis at Noho Wellness. Could you PM me?
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sickmate
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quote:
Originally posted by gagamooppop:
This is exactly what im going through right now and couldnt figure out if it was one of the bacterias or what...i react (terrible brain fog, out of it feeling, gastro stuff) with anything i put in my mouth...sometimes even water

Thats exactly what happens to me. It must have started with tini or flagyl. Still am not 100% sure what it is but think abx caused leaky gut. I dont think its classical allergy. How does your gut feel?
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LymeMECFSMCS
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I had food allergy testing done very recently, and I found out I have delayed food allergies to pretty much everything I have eaten a lot of in the past year. But then I gave those things up for several weeks and felt WRETCHED, I mean, just horrible. I reintroduced one of them (eggs) which I'm supposed to have both an immediate and delayed reaction to, and I felt so much better.

This kind of makes me think that it's not true allergies a lot of us have. But what is it? Could it be a mast cell thing? Or gut permeability? I too pretty much feel worse no matter what I put in my mouth usually. I am always craving something to make me feel better, but really nothing does.

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willbeatthis
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I too have food allergies I believe caused by leaky gut... that was caused by abx... and my doc at least thinks so... I am trying to heal my gut now and have been somewhat successful with the gapsdiet-- Gapsdiet.com. It is easy to do and I feel worlds better. I would encourage anyone dealing with gut issues to try this. It has been a turning point for me in healing.

I am also looking at allergy immune. Best--

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sickmate
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Im trying to get better with psyllium husks.
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tickled1
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LymeCFIDSMCS,

I think I read something that as your body is clearing the toxins from the things you're allergic to you feel worse and I think eating a little bit of that food takes the edge off. But, I don't think you're supposed to eat it but get over the hump. At least that's the way I understood it.

Kind of like if you've ever heard of having a beer to cure a hangover? I am always craving things to make me feel better too and sometimes it is the foods that I'm allergic to which, like you, are the foods I've eaten a lot of over the last year or so.

That's b/c with leaky gut, the proteins pass through the leaky gut into the blood stream. They shouldn't be in the blood stream so the body produces an immune response to it.

About cravings, leaky gut, candida. Often when killing off candida I guess you will crave sugar b/c the candida wants it to survive? I read something like that somewhere. It's all so complicated.

Anyway, my doctor at Noho Wellness started me on UltraClear and am feeling a little better but too soon to tell.


willbeatthis, gonna go check out the gapsdiet!

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Marz
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There's a clinic in LaCrosse WI that does prescription drops under the tongue after being tested for allergies. I think it's LaCrosse Allergy Associates.

I've never done it, but know people who have had wonderful results. One person always had dark circles under eyes and they went away while on the drops and came back when he quit.

Maybe a clinic that does the same thing is near you?

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tickled1
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I don't know if my results would be the same for food allergies but when I attempted to treat seasonal/environmental allergies with neutralization therapy I felt worse. I think b/c my immune system is so tapped out. I don't that I would react the way a "normal" person would.
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CountryMouse
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I also see Dr L at Northampton Wellness. Great practice. He is the one who diagnosed all my food allergies. I have not done the IV stuff yet, trying to just avoid them all. Tough to do. But he said sometimes after 6 months or a year of complete avoidance, you can reintroduce the foods without a problem.

I have also heard about the 4 day cycle thing. Can't remember where I read this. But basically with delayed food allergies (not anaphylactic) it takes the body 24 hours to create an antibody after ingesting the food. Then it takes 3 days to eliminate that antibody from the bloodstream. Once the antibody is out of the bloodstream, you won't have a reaction. So the idea is that you can rotate foods on a 4 day basis, eating say eggs on day one, then not eating them again until the 5th day (the first day of a new 4 day cycle). Supposedly this would reduce the allergic response.

Try googling that before taking my word on it though. Like I said I can't remember where I read it.

Good luck.

--------------------
Country Mouse

6/2011 IgX:
IGG: 31 IND, 41+++, 45+, 58+
IGM: 31+, 39 IND, 41 IND, 83-93 IND
Band 31 confirmed to be Lyme epitope by Igenex 7/2011

8/2011 IgX: POSITIVE
IGG: 31+, 34 IND, 39 IND, 41++, 45+, 58+
IGM: 31+, 34 IND, 39 IND, 41++, 83-93+

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tickled1
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Part of the UltraClear program is a 4 day rotation diet. I didn't know the details though about the time frame with clearing the antibodies so thanks for sharing that! I am someone that needs to know why I'm doing something or else I won't follow through on doing it. I'd love to be able to eat eggs again!
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GiGi
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All allergic (dysregulation) problems are gone after concluding Allergie Immun. It is very simple and very permanent, unless you add newly man-made chemicals, etc. to the food and exposure mix. I was very allergic to everything around me, even hot and cold.

Take care.

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ArtistDi
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Ticked1, there is a very good pancreatic specialist at Baystate Hospital. I thought I had pancreatitis for a long time, but this was ruled out. If you want the gastro's name, pm me.
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ArtistDi
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Someone asked about mastocytosis. I am not sure of Noho Wellness tests for that, but there is a immunologist (great doc)http://www.drbayukallergy.com/
who does test and is affliated with Cooley and Baystate (for all you western MA patients).

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CountryMouse
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quote:
Originally posted by tickled1:
I'd love to be able to eat eggs again!

Me too!!! I so miss my eggs!!

--------------------
Country Mouse

6/2011 IgX:
IGG: 31 IND, 41+++, 45+, 58+
IGM: 31+, 39 IND, 41 IND, 83-93 IND
Band 31 confirmed to be Lyme epitope by Igenex 7/2011

8/2011 IgX: POSITIVE
IGG: 31+, 34 IND, 39 IND, 41++, 45+, 58+
IGM: 31+, 34 IND, 39 IND, 41++, 83-93+

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sickmate
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quote:
Originally posted by GiGi:
All allergic (dysregulation) problems are gone after concluding Allergie Immun.

What is this Gigi? Isnt Allergie Immun a lab?
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GiGi
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Sickmate,

http://allergie-immun.de/Englisch/allergietherapy.html

This therapy works.

Take care.

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GiGi
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You will probably find as all of us who have done the Allergie Immune test have that your body cannot regulate mucors well. That is one of the first "allergies" or "dysregulations" the AI program solves.

Then your immune system will recognize fungi/mucor again and take action. I don't see why you can't take the antifungal at the same time, but you may not need it because all antifungal are tough medicines. Fungal die-off is in my opinion one of the worst to go through.
So be sure you cover yourself with lots of binders.

Good luck.

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tickled1
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Despite feeling awful, I dragged myself to the Cape for an overnight last night just to have a little getaway with my family. Tonight I pulled a tick off of myself. Was probably there about 10 hrs. I called my LLMD. I justed started antibiotics. Please pray for me.
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tickled1
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....don't mean to sound dramatic but I haven't been able to treat my existing Lyme disease or Mycoplasma for 2 yrs. now due to stomach issues/yeast or whatever else so I don't know how I'm supposed to tolerate abx now when I can barely eat without reacting to everything I put in my mouth. This is the LAST thing I needed right now.
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sickmate
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So how do you react t abx now?
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tickled1
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I don't know yet
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Tammy N.
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Sorry tickled for what you are going through. Hope you get good guidance to see you through.
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Jane2904
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So sorry for all the difficulties you are going through.
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chaps
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The food allergies that most Lyme sufferers experience is caused by leaky gut. I've pasted below an explanation of how leaky gut works.

After reading it, it seems clear that these leaky-gut-induced food allergies are caused by an autoimmune reaction to the foods that pass through the mucosal lining. When you have leaky gut, you actually develop food allergies to foods to which you previously had no allergies.

I do not see how this relates to genetic or DNA-related dysregulations that cause food allergies. Thus it doesn't seem logical that the Allergie-Immun treatment would fix them.

If you could explain that for me, GiGi, that would be helpful.

Seems to me that if someone wants to cure the food allergy problem, they need to heal the leaky gut, which means fixing the problem that caused it in the first place, such as heavy metals, possibly candida and parasites, anything that compromises the biological terrain and the mucosal lining in the gut.

Here's an explanation of leaky gut food allergies for those who haven't seen it:

What does happen in leaky gut syndrome, is that the MUCOSAL LINING of the intestines is compromised. This lining is covered with villi for maximum surface area (for nutrient absorbtion), which in turn cover tiny capilliaries where substances are exchanged with the bloodstream. If there are holes in the mucosal lining, then substances that would not ordinarily enter the bloodstream, have access to it. Therein lies the problem of "leaky gut". It's about holes in the lining of the intestines, NOT the intestinal wall, proper.

See below, for a complete explanation
(from this link - http://www.leakygut.co.uk/About%20Leaky%20Gut.htm ):

" 70% of our immune system is located around the digestive system. In a normal healthy person the small intestine behaves like a selective sieve allowing only the breakdown products of digestion into the bloodstream. Nutrients and well digested fats, proteins and starches are readily able to enter into the bloodstream whilst large molecules, microbes and toxins are kept out.

In the intestinal tract, villi (finger like projections off the lining the intestinal tract with hair like cell membrane extensions called microvilli), serve as a point of absorption of nutrients. Nutrients such as glucose, amino acids or electrolytes are carried through the microvilli into the cells of the villus via active transport (carrier molecules take the nutrients across the cell membrane).

Leaky Gut Syndrome causes the intestinal lining to become inflamed and the microvilli become damaged or altered. The damaged microvilli cannot then produce the necessary enzymes and secretions that are essential for a healthy digestion and the absorption of nutrients.

In between cells reside desmosomes. These adhere adjacent cells together to form a strong, sturdy structure, which prevents large molecules from passing through. When an area becomes inflamed this weakens the structure of the desmosomes and larger molecules can escape through. This provokes the immune system to produce antibodies (a protein utilised by the immune system to locate and attack foreign objects) to fight off the molecules, as they are perceived as antigens (substances capable of triggering the production of antibodies).

A healthy individual would have a strong enough immune system to control the leakage of toxic substances but as it becomes over loaded the toxins leak into the liver resulting in an overworked overburdened liver.

The liver is the largest gland in the body and plays a really important part in detoxification as well as having many other functions including: producing bile, containing bile acids, which aid digestion, filtering out toxins, such as drugs, alcohol and environmental toxins, storing glucose as glycogen, then breaking it down about 4 hours after a meal to be converted to glucose to regulate blood sugar levels, converting ammonia to urea and removing damaged red blood cells.

Leaky Gut completely overworks the liver because it floods it with additional toxins diminishing the liver's ability to neutralise chemical substances. When it cannot cope with the level of toxins the liver expels them back into the bloodstream. The circulatory system then pushes the toxins into the connective tissues and muscles where the body stores them to prevent major organ damage. The liver doesn't get the time to go back and rid the body of the toxins.

As the intestinal lining becomes more and more damaged substances larger than particle size such as disease causing bacteria and fungus, potentially toxic molecules and undigested food particles pass through the weakened cell membranes. These enter the bloodstream, triggering antibodies and cytokines (protein molecules released by the immune system to cause a reaction in other cells) to fight the antigens. The cytokines alert the lymphocytes (white blood cells) to fight the particles that have escaped through the intestinal lining. Toxic oxidants are produced as a result causing allergic reactions and more inflammation throughout the body.

The digestive tract is normally coated with a mucus layer, which keeps out foreign substances. Leaky Gut Syndrome develops as the mucus layer is weakened and the bacteria, which usually resides in the intestine starts to inhabit other parts of the body as well (bacterial translocation), due to the intestinal permeability.

So put very simply your intestine develops leakages allowing substances that would normally be digested to enter the bloodstream. These toxins are passed onto the liver to deal with but it cannot cope with the overwhelming toxins and stores them in the body tissues to come back to later on. The liver is too overworked to go back to the toxins and as the intestinal lining gets consistently weaker more and more toxins and undigested food enter into the bloodstream. The immune system sends out antibodies to fight these foreign substances and in doing that toxic oxidants are produced which attack the body tissues causing allergic reactions and pain and inflammation throughout the body.

--------------------
-chaps
Listen to the bell, Borrelia. It tolls for thee!

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chaps
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Aside from my long post above, I saw a functional medicine doctor who put me on a protocol consisting of products by Apex Energetics. They are RepairVite, Strengtia, Glutathione Recycler, and OxyCell SE, which is a topical glutathione cream.

I've been feeling better, so it must be helping something. I'll be going for another test pretty soon to see if the gut has healed.

I was also using a product called MPS Gold 100 for a while. It also helps heal the gut. It's just very expensive and I couldn't afford to stay on it.

--------------------
-chaps
Listen to the bell, Borrelia. It tolls for thee!

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sickmate
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Im also more convinced of the leaky gut theory than of the information on the Allergie Immun website. But if it helped you Gigi thats great of course.
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tickled1
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Thanks everyone for your replies.

I understand the whole leaky gut thing causing more autoimmune type reactions than true Ige reactions (I think) but what I don't understand is how or why a few of my delayed, or Igg allergies have now turned into immediate. Does anyone know? And, will those now be permanent?

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sickmate
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Cant tell you why your reactions are more immediate now. Maybe your gut has gotten worse because of some drugs.There is so much happening in our bodies with lyme we dont understand yet.

I found this book about Leaky gut very helpful:
http://www.amazon.de/gp/aw/d/0876045735/ref=redir_mdp_mobile

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Jane2904
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up

I would be interested to know about the now immediate allergies too. Daughter tested positive for delayed, but gets lots of throat tightness lately from food.

I hope you get some relief.

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chaps
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If AI doesn't heal the gut (which we know it doesn't) then I can't see any conceivable way that it can fix the leaky-gut-associated food allergies. When food permeates the gut lining, the immune system is going to build up antibodies to it, I don't care what's in the DNA.

I've read a couple of publications on healing the leaky gut. If you want to heal it, here's what to take according to what I've read:

DGL
L-Glutamine (neuro-lyme patients be careful as this excites nerve activity in the brain for some)
Aloe vera juice or extract
Seagest whitefish capsules (digestive aid)
Marshmallow root extract
Slippery elm bark extract
Gamma oryzanol
MSM
German chamomile
Calendula (marigold extract)
Folic Acid
Pantothenic Acid
Colostrum
Digestive enzymes
Lactobacillus acidophilus
Sacchromyces boulardii
Bacillus coagulans
Any other good probiotics you want to take
Homemade kefir
Homemade sauerkraut (or "Buddies"....avoid store bought containing anything but water, salt, and cabbage)
Homemade kombucha and kim chi

It can take 8 weeks or more to heal the gut.

Once you heal it, don't stop the protocol until rid of heavy metals and parasites because these things will tear up the gut all over again.

--------------------
-chaps
Listen to the bell, Borrelia. It tolls for thee!

Posts: 631 | From A little place called, "we'll see." | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
tickled1
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Thank you chaps!
Posts: 2541 | From Northeast | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
ukcarry
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Chaps, did you do the Repairvite diet too when you were on these Apex products?

How is your gut now?

Posts: 1647 | From UK | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
   

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