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» LymeNet Flash » Questions and Discussion » Medical Questions » Off Balance and ringing in ears

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Author Topic: Off Balance and ringing in ears
phyl6648
Frequent Contributor (1K+ posts)
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If I could cut my head off and live I think I owuld be ok.

My main problems now are still the off balance and ringing in ears 24/7.. Could this be lyme?

I seem to be able to deal with my other symproms but this off balance, ear ringing and werid head feelings are driving me crazier..

Have had these symptoms from the beginning , there are days worse than others.. The ENT keeps saying sinus infection..

When my head is this way my anxiety is much worse so is my mood..

Can anyone relate?? Tks

Posts: 1058 | From VA | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
bcb1200
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Drop the ENT.

What you describe was my worst symptom pre diagnosis. I was diagnosed with Labyrinthitis, which is an infection/inflammation in the labyrinth in your ear (part of your vestibular (balance) system.)

Guess what can cause it...LYME (per John Hopkins).

In my personal experience this is either Lyme or Babesia or both.

Today, my dizziness / off balance feeling (I never had vertigo btw) is gone 99.9% of the time. But I still have mild tinnitus which I never had before lyme.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3124 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
lymeinhell
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These were my initial symptoms, that were labeled 'Meniere's disease'.

This page is very useful.

I worship the neuro that decided to put me on low sodium diet and gave me teeny dose of valium. Got me off the couch and back to living.

http://www.menieresinfo.com/treatment.html

FWIW - I'm better and have been off abx for 7 years now. But, my ears still ring - I no longer get the dizzies and ear fullness though.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
JenInMa
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I was diagnosed with Menieres and lost 20% of my hearing during 'grand mal' vertigo episodes. Valium and a low - sodium diet helped me as well.

--------------------
IGG 41++, 58+
IGM 31 IND, 41 IND, 83-93 IND

Son (most chronically ill)
IGG 41+
IGM 39 IND, 41+++
Bartonella positive

Daughter
IGG 39 IND, 41++, 58+
IGM 31+, 41 IND, 83-93+

Posts: 39 | From Boston, Ma. | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
Catgirl
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Babs for me. Maybe something else too (lyme or bart?).

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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phyl6648
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Thanks to each of you... It has helped with my anxiety. The ENT said no Menieres..

BCB, my first dx was Labyrinthiitis too.. You said you are much better.. What treatment did you have?

Through Igenex tested twice I had no Bart or Babs but who knows..

tks.

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS


http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89790

Topic: NATURAL SLEEP & ADRENAL SUPPORT
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
bcb1200
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Phyl...I've been on many: Here they are (mostly in order)

Each line is a different Combo. Each drug is daily unless otherwise stated.

-Doxy and Flagyl (3 days every other week)
-Biaxin, Amatadine and FLagyl (3 days every other week)
-Levaquin, Doxy, and Flagyl (3 days..)
-Rifampin, Biaxin, Amantadine, Flagyl (3 days....)
-Bactrim DS, Biaxin, Amantadine, Rifabutin, Flagyl (3 days..)
-Doxy, Omnicef, Flagyl (3 days...)
-Factive, Doxy, Flagyl
-Zithromax, Malarone, Tindamax, A-Bart
-Coartem

and now...

-Bicillin, Biaxin XL, Plaquenil,

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3124 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
lymeboy
Unregistered


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BCB1200,

Did your inflammation / ear fullness go away? This has been my most nagging symptom. It seems to get worse and worse. The dizziness is not as bad as it once was, but nothing has seemed to help my ear problem. I sometimes feel that if I didn't have ear issues, I might be close to 100% on my good days.

Some say this ear problem does not resolve.

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LSG Scott
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if you have been on a benzo for your anxiety you might want to know that tolerance withdrawal frow benzos can cause all that do a benzo search here to learn about it and good luck

--------------------
LSG Scott

Posts: 512 | From Boston, Cape Cod, Mass | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
dbpei
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Ear fullness, tinnitus and hearing loss along with some loss of balance were all symptoms I had before my DX of Lyme Disease.

My LLMD prescribed Valtrex 1000 mg 2 x day and recommended lysine at least 1000 mg / day before I had the results of IgeneX. Lysine is a nutritional supplement that you can get in many pharmacies. Take it separate from the Valtrex.

Doing this has helped the aural fullness and actually improved my hearing a little bit. I am occasionally bothered by the aural fullness, but there is a drastic improvement since using both meds.

The theory is that the herpes virus can attack your auditory and vestibular system, causing inflammation. Perhaps you could discuss with your LLMD. They have made an incredible difference for me.

Posts: 2369 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
   

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