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» LymeNet Flash » Questions and Discussion » Medical Questions » Experience with Mold stopping you from getting better?

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Author Topic: Experience with Mold stopping you from getting better?
Beagle
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If anyone has tested and found that Mold in home is the cause of not getting better, what did you do? More important, did you notice feeling a little less sick after being outdoors for just a couple of hours, or is it something that you must get away from the mold in your home for weeks to notice a difference?

Thanks,

Beagle

Posts: 348 | From MA | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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Below, an excellent presentation from the recent ILADS conference that will answer many of your questions.

She stated that she thinks for those with mold exposure, unless they first tackle that, it's nearly impossible to get better with lyme treatment.

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http://ilads.org/ilads_media/lyme-disease-videos/

3/4 of the way down:

Identifying Environmental Illness and Mold Exposure in Patients with Persistent Lyme Disease.

Lisa L. Nagy, MD Video $15.

(She is NOT A LLMD, however, she understands the kind of toxicity issues faced by many with lyme. She did not have lyme but overcame very serious MCS. She spoke at the recent ILADS conference.

It's a great presentation to see. The DVD can be ordered. Great detail about toxicity issues also here:

http://lisanagy.com

Her Web Site
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
gigimac
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I am considering this as being a possibility in my case. Of all the time I have been on abx treatment the only time I felt good was when I had my windows open at night for several nights in a row.

I'm hoping to get out of the house soon. I personally don't notice a difference after leaving the house for only a few hrs but who knows, maybe you have to be away longer.

I would love to hear others experiences with how long it took to notice a difference after leaving the moldy environment.

Posts: 1533 | From Greensboro NC | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
whitmore
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We had an issue with mold in our basement and behind some of the stucco at the front of the house. On the advice of my doctor, I did leave during remediation work, but am now back. I do like the windows open and insist on it at night. I took CSM for a while, but that brought its own problems.

I also got haplotype testing and according to Shoemaker's research, I do NOT have the haplotype for whom mold is an issue. I do have the post-lyme syndrome haplotype. So I wonder whether I even needed to move out. Still, a clean environment has got to be better.

I don't know what others say, but it might be worth getting the genetic testing to see how much of an issue it is for you.

Sue

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gigimac
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I know the few people who have gone in my basement (I never go down there) all said that they got a tickle in their throat and were coughing etc.

I don't usually have any respiratory issues but that can't be good for my health if it has that affect on other people, right?

It's hard to know what to do when moving out temporarily is proving so difficult.

Posts: 1533 | From Greensboro NC | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
   

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