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» LymeNet Flash » Questions and Discussion » Medical Questions » Oral ABX vs IV - want to hear your stories

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Author Topic: Oral ABX vs IV - want to hear your stories
dbpei
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Have any of you with neuro symptoms (numbness, tingling, tinnitus and vestibular issues, mood swings, etc) been helped with just the oral ABX? I would like to hear about some success stories without going the IV route but not sure I will. Thanks.
Posts: 2360 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
thomasx
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I've been treating with orals, my neuro sxs have largely been eradicated.
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lyme918
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I have every neuro symptom you can imagine... I tried treating with orals for almost two years with little improvement.

I started IV treatment December 1st and am already seeing a huge improvement. I still have a long way to go, but the IV route is definitely helping me more.

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Lyme918

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blinkie
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IV was huge for me too although I did get a lot out of ceftin and zith for 12 months straight (I was preggo).
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dbpei
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Those on IV TX - how long have you been on IV? Have you ever stopped? And how was it for you then? Sorry for all the questions, but I have a big decision to make.

I have only been on oral ABX 4 months and my daughter's wedding is coming up in June. I'd like to give it some more time but my LL NP says start now. Other LLMD I went to for second opinion (who is more old school) does not think it is a good idea.

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MichaelTampa
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I went on IV abx for 2 months, then stopped due to insurance disapproving IV abx, and eventualy restarted a few months later on oral abx. I'm still not completely well, but off abx for over a year now and still seeing improvements. Abx did a lot for me and are not a help anymore.
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ktkdommer
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My son did IV rocephin for 10 months and he improved a lot. Went from bedbound to back in school. I would make the same decision again only keep him on it for longer.

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Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
   

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