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» LymeNet Flash » Questions and Discussion » Medical Questions » Rifampin experiences?

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Author Topic: Rifampin experiences?
jackie81
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I have been half treating bartonella with

Bactrim
Zithro
Plaquenil
Malarone
tini

My LLMD wants me to start rifampin and take away the malarone

What are your experiences with it? did it make you feel horrible? did it make you have worse anxiety?

How long did the horribleness last? any info would be appreciated

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Catgirl
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Rifampin rocked for me. I did it with doxy. It was the turning point for me (felt much better after that).

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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MattH
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Catgirl,

How long were you on Rifampin?

All the Best, MattH

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lpkayak
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many have a very hard time on rifampin but once they are thru it they say it is one of the best drrugs they took

it made me suicidal...i cut dose way back-ramped up and had a close friend watch me

i got to full dose within 2 weeks and many sx were gone when i finished

i dont remember sx-never tested pos for bart-dont remember dose but it was from dr C in MO...someone else might know dose

good luck

--------------------
Lyme? Its complicated. Educate yourself.

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joysie
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Rifampin was very hard for two weeks but has helped significantly. Been on it 14 months, will need to come off soon.
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nonna05
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That's a lot for HALF treating,,,,any way rifampin affects so many other drugs .

check a drug interaction list..

Like it makes a valium at half it's worth in body and lowers strenght of some ABX"S and other thing's ..

so you adjust amounts


I have to order the 150 orange only capsules from sandoz...

have pharmacy call around to get it ..
to one start lower and two I couldn't take the other fillers in the red pills

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nonna05
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Also before diagnosed...and was put on it by "CHANCE" after 2 days I felt almost normal for first time in a year...

That's when I KNEW ,I WAS sick and could be cured /helped....
4 years later finally got diagnosed and getting more real treatment

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joysie
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Rifampin was very hard for two weeks but has helped significantly. Been on it 14 months, will need to come off soon.
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Sammi
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Rifampin wokred great for me. It interferes with Armour Thyroid though, so I had to stop taking it.
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jackie81
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Did any of you have really bad extreme side effects or herx reactions?
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Catgirl
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Matt, four months. I could tell within a few hours that this was the drug for me. Maybe it was the combo with doxy though. I felt REALLY good within two days. Then I just sort of plateaued after 3 mos.

My doc did ad zyth for 30 days after one month on the doxy/rifampin. Adding the zyth made me dizzy for a couple of weeks, but went away. Other than that, no problems for me with this med.

Best to all of you.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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eloise
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This might be too late to matter--but I just saw this question. Rifampin has been extremely powerful and helpful for me. HOWEVER, the first time I took 150 mg, I had a HUGE herx reaction. I decided instead to ramp up (very very) slowly.

I got the liquid form of Rifampin and started at 25 mg twice a day and would ramp up every 4 or 5 days with 25 mg more. I would often herx and then stay at that dose until the herx stopped. Then ramp up more.

It took me over a year to get up to 300 mg twice a day but it has been worth it. I never stopped working so I needed to be patient since my herx reactions were so bad.

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