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» LymeNet Flash » Questions and Discussion » Medical Questions » could my case be chronic yet slight at the same time?

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Author Topic: could my case be chronic yet slight at the same time?
Sweetbee20055
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I never got joint pain but i do have a majorly herniated disk in my neck and that bothers me when i use poor posture etc or spend too much time doing repetitive motions.

I have chronic depression that responds to NOTHING after 17 years of treatment.

I have chronice fatigue- worsening all the time.

chronic gastritis

New as of last May a chronic cough that they keep saying is allergies yet never went away this winter.

Also fairly new is more wide spread muscle tenderness.

But the real question is I hear of terrible pain etc. I dont have that other than my neck and i have many days when my neck is pain free.

So could my lyme be to a lesser degree?

Posts: 17 | From Vermont | Registered: Mar 2012  |  IP: Logged | Report this post to a Moderator
nefferdun
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I was going to say your symptoms sound more like babesia until you mentioned the chronic cough and then FL1953 comes to mind, actually both infections.

Have you been treating and if you have, what have you been using? Have you been tested?
Here are the symptoms one doctor listed of FL1953. You don't have to have them all.

Symptoms of FL1953 are similar to Babesia. Symptoms include cold hands and feet, headache behind the eyes, scalp sores, sinus congestion, notable teeth pain, heart palpitations, shortness of breath, dry cough, abdominal pain, nausea,

IBS, insomnia, sweats, bladder pain, muscle pain, twitching, profound fatigue, exercise intolerance, insomnia, brain fog, poor balance, anxiety, OCD, irritability, hypercoagulation. Off and on hoarseness can be a symptom of FL1953.T

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old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
aperture
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Sweetbee,

Your symptoms don't sound slight to me. Maybe you've gotten used to them.

I've had chronic "depression" and horrible fatigue that didn't respond to years of therapy and anti-depressants.

I knew I wasn't depressed. The Dr's kept telling me I was fine, my labs were fine...that I was depressed. So, I accepted it and thought I was just crazy.

Turns out it was my body fighting off chronic, low grade infection for years.

Had I not developed fevers last year (a blessing in disguise), I never would have thought otherwise.

Everybody responds differently to Lyme. My husband's likes to go to his skin and joints, mine likes to go to my nervous system/brain, my son's goes to joints and brain. That's why it's called the great imitator.

3 people in my family are affected. However, based on symptoms, you would never think we had the same disease...also, nothing ever screamed "Lyme!". So, it's very hard to finally make the connection.

Read "Cure Unknown". She does a wonderful job describing different experiences with Lyme. The only initial symptom of one boy was a seemingly never-ending sleep.

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aperture

Posts: 551 | From Louisville, KY | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
tickled1
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Any chronic infection can cause body wide dysfunctions/symptoms. Also any chronic infection can cause you to get a multitude of other chronic infections by weakening your defenses/immune system.

It has taken me a long time (years) to finally figure this out. It is impossible to figure out which infetion started the whole thing when you have multiple infections.

You mention chronic gastritis. That is huge as 80% of the immune system is in your gut. Have you addressed possible food allergies, KPU, leaky gut, yeast, possible H. Pylori, heavy metals? Do you have a good LLMD and/or good alternative practitioner?

Posts: 2541 | From Northeast | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
Sweetbee20055
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I am currently being tested for 4 of the co infections that are known to the northeast.

I have had all kinds of stomach testing done since I was 15 when it started. Even that camera going down the stomach at 21. (gastritis was the diagnosis at 15 and again at 21)

at 17 i had a fever for about 3 months straight and my primary dr could never find anything wrong so she simply "ignored it"

No one has tested me for food allergies. I've had a lead test back when i was seeing a gastroenterologist and I would imagine he ran other tests.

I just dont feel like im "sick"?

My brother got it bad, till this day he has the joints of a 70 year old man they say, he cant do much of anything physical besides walking and stick to his special diet.

He is/was a landscaper- i did not ever have his symptoms- he got lyme and bartonella.

He did 3 years of antibiotics and then called it quits- he feels he's all done with the whole system and Lyme and where the world is at with not having a strong hold on it.

Just one day two months ago a new specialist heard where i grew up (hot bed) and said you need a lyme test and it needs to be from igenex.

World blown up- was prepared to be called fat, lazy, depressed and unwilling/wanting to help myself with the way i thought.

I was not prepared to live with this. I've watched my brother for 10 years now...........

I just cry a lot right now. Food was the one thing in the world that brought me a lot of comfort (and got me to being 70 pounds overweight) and now thats never an option again as I'm taking the eating seriously.

Currently started antibiotics and with a LLMD who has 20 years experience.

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tickled1
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So glad to hear you have an experienced LLMD! You are on your way!

As far as GI tests, I also had multiple endoscopies/colonoscopies and blood tests and H. Pylori still didn't show up despite chronic gastritis. Of course I'm sure the gastritis wasn't/isn't only due to H. Pylori but the key is that allopathic doctors and testing are often a waste of time. Alternative practitioners are the way to go with chronic illness. They want to uncover the underlying cause of disease rather than just put a band aid on symptoms by writing a prescription that will cause a bunch of other problems.

These are the types of doctors you want to see:

N.D. (naturopath)
D.O. (osteopath)

or M.D. is fine if they claim to practice "integrative", "functional", "alternative", or "homeopathic" medicine.

Sounds like you have a good doctor now though. Now that you do, try not to dwell on the past. It will take a long time to get well but at least you will be moving in the right direction rather than spinning your wheels as you have been for so long. Thinking of it that way may help you along.

Best of luck to you and hope you feel better soon! Are you addressing diet now by eliminating gluten, dairy and sugar and any foods you may be allergic to? Have you gotten food allergy testing done? Not just immediate (Ige) but delayed food allergy testing (Igg) which can happen up to 4 days after ingesting that food with atypical symptoms such as fibromyalgia type symptoms and brain fog?

The chronic gastritis most likely has caused leaky gut in you which can lead to deficiencies and malabsorption issues which can lead to depression.

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Keebler
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"Slight" ? There is NEVER anything slight about borreliosis. Now, it's great that it's not at bad as it could be but, still, it's vital to attend to it with due diligence.

Even if not totally flaring, borrelia - or any tick-borne infection - can be insidious.

But I see nothing about what you describe as slight. Not at all. You do not have to just put up with these harsh symptoms. It can get better.


Gastritis?

tickled1 has good detail for you. After you search all about "LEAKY GUT" . . . you may want to revisit the GLUTEN and be sure you are not getting some hidden, somehow.

(I assume you are gluten-free . . . but if not, that may well help a great deal)

I assume your doctors did a DNA genetic test for CELIAC? Even if so and if not positive, a gluten free diet should have been suggested.

Has that helped? You may be getting some hidden gluten.

Google: HIDDEN+SOURCES+OF+GLUTEN

Be sure to read from several of the links that pop up from this search. Each one is a bit different. You will need all that detail.

Even lip balm can have gluten. It's vital to be sure everything that touches your lips is gluten-free.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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tickled1 mentioned NDs and DOs.

A D.O. is a Doctor of Osteopathy. Locate one near you, find out if they are ILADS minded and LL. Get suggestions from you local lyme support group.
-------------------

I can't recall if this is in the thread or not:

http://www.osteopathic.org/Pages/default.aspx

American Osteopathic Association

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http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13964

How to find an ILADS-educated LL:

N.D. (Naturopathic Doctor);

L.Ac. (Acupuncturist);

D.Ay. (Doctor of Ayurvedic Medicine);

D.O.M. (Doctor of Oriental Medicine);

Integrative / Holistic M.D., etc.

Links to many articles and books by holistic-minded LL doctors of various degrees . . .
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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You mentioned your brother's experience with lyme. Sorry to hear about what he went through.

Links here may help shine some light on some things to consider if he wants to take another look at this. He might also be interested in other approaches in the above set.
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease (&/or whatever else is going on)

Other tick-borne infections and other chronic stealth infections - as well as certain conditions - that can hold us back are discussed here.

==================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

(What ILADS is) . . . WHY you need an ILADS-educated, Lyme Literate Doctor - starting with assessment / evaluation.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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