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» LymeNet Flash » Questions and Discussion » Medical Questions » Fibromyalgia/muscle pain

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Author Topic: Fibromyalgia/muscle pain
katrinab
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Anyone here have fibro aka muscle pain? I know I've had babesia, but i think Lyme can also cause this. Has anyone found anything to help with it? I've tried muscle relaxers like Skelton and flexera but they make me sleepy. Perhaps there is one that won't make me sleepy?
Posts: 723 | From boston,ma | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
Dekrator48
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I have FM muscle pain.

I have not found anything except diet changes and improved sleep, that have helped this so far.

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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Ellen101
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Magnesium has helped so much with muscle pain!
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TF
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If you have not yet already tried this, I suggest you start taking high doses of magnesium. If the pain is from lack of mag, in a few days you will notice a difference.

I hope this helps you.

Burrascano tells the brand he prefers--Mag-tab SR. Sold at Walmart.

"MAGNESIUM (required)

Magnesium supplementation is very helpful for the tremors, twitches, cramps, muscle soreness, heart skips and weakness. It may also help in energy level and cognition. The best source is magnesium L-lactate dehydrate (Mag-tab SR, sold by Niche Pharmaceuticals: 1-800-677-0355, and available at Wal-Mart). DO NOT rely on cal-mag, calcium plus magnesium combination tablets, as they are not well absorbed. Take at least one tablet twice daily. Higher doses increase the benefit and should be tried, but may cause diarrhea. In some cases, intramuscular or intravenous doses may be necessary." (page 28)

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

This is so extremely common with lyme patients. People are often amazed at what happens.

Take at least 4 throughout the day, not all at once, or you could get diarrhea.

Let us know what happens.

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desertwind
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Magnesium has helped me as well.

When I am having a bad babs herx the fibro type pain really gets out of control. Feels like I need to jump out of my skin.

I am not a med person but when all else fails I take Soma or Skelaxin and sometimes very low dose of Neurontin (1-300 mg.s) at night.

I think detoxing helps as well. I am finding some relief with Lymphatic Drainge massage.

Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Keebler
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-
Another vote for MAGNESIUM. I need between 1,000 - 2,000 mgs a day.

ALWAYS DIVIDE the dose, even at lower numbers.

Three x a day is best. Never all at once.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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-
Food additives can cause pain. You probably are clear of additives but, just to be sure:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=029690;p=0

Excitotoxins; MSG; Aspartame; & "Natural" Flavors

=========================

A gluten-free diet also tremendously helps reduce my muscle pain. Even a trace is too much.

Google: HIDDEN SOURCES OF GLUTEN
-

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debilyn
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Yes, my FM is way worse since starting treatment in Feb. I am trying not to take pain meds, but it is rough.

I've been supplementing with Magnesium Turate and Wobenzyme PS. I've not noticed much improvement yet

In pain levels. I hope I see some progress soon. Pain beats the heck out of a person.

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TerryK
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IM ceftriaxone for a little over 6 months brought my fibro pain down by 70%! It was severe so it was like a miracle. Nothing else worked including magnesium.

Terry
I'm not a doctor

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Jennifer70
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Im in the same boat. My pain doesnt seem to be getting any better, after one year of treatment. very frustrating...and difficult to live with.

--------------------
Psalm 119:50
My comfort in my suffering is this: Your promise preserves my life.

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Lymetoo
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Go gluten free.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Carol in PA
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Hypercoagulation (Thickened Blood)
http://www.diagnose-me.com/cond/C546624.html

You can reduce the hypercoagulation with systemic enzymes.
Wobenzym has helped reduce my pain and headaches tremendously.


Also, fish oil with high EPA is reducing pain too, for me.

Posts: 6947 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Laura_W
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My muscle pain is worse than joint pain. Except when I was on Rocephin, then my joint pains were way high. And I don't know how to deal with the muscle pain/spasms. I do the magnesium in the form of supplements and epsom salt baths.

I'll be watching this link in hopes of something else. I've finally gotten to the point that I'm about to ask for a muscle relaxer to help.

--------------------
10/10 EIA 1.4+, 41 (IGG), 23 (IGM)
Bitten over 20 years ago.
Currently not treating, looking for a Dr who will work with my insurance lol.

More muscular, cognitive, nerve issues than joints. Facial droop and blurred vision.

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lymeinhell
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I still need Flexeril at bedtime. I've done mag IV's and still do IM mag weekly in addition to taking oral supps. I sleep on a sleep number bed. Use a trampoline. Exercise regularly. Limit my carbohydrate intake. Take systemic enzymes.

But without Flexeril, the muscles in my chest/shoulder area would be in knots. I've been off abx and done with traditional treatment over 7 years now. My LLMD believes I am stuck with this as a leftover. I'm not complaining, I live a normal life. Just sayin others may be in the same boat as me.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

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katrinab
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I had my magnesium levels tested, they are normal. I don't know what else to do. I am taking wobenzym and serrapeptase. Is wobenzym the only enzyme that works for pain? I know there are a lot of enzymes out there.
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Robin123
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We're all different in terms of what helps.

I was able to get my fibro pain of 25 years completely down to zero in a week's time by taking oral clindamycin antibiotic.

I started with 150mg every 6 hours, then every 8 hours, and then 2x/day.

It worked for 5 years, and then didn't anymore. Now I do teasel root tincture and curcumin capsules.

Since an antibiotic worked for me, have you tried a number of antibiotics yet?

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Carol in PA
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quote:
Originally posted by katrinab:

I had my magnesium levels tested, they are normal.

I am taking wobenzym and serrapeptase.

The blood test for magnesium is not going to measure the level of magnesium in the muscle and nerve cells.

How much Wobenzym and Serrapeptase are you taking?
Try increasing the number of tablets.

Posts: 6947 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
   

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