LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Chronic lyme on 20/20 Friday,Please watch

 - UBBFriend: Email this page to someone!    
Author Topic: Chronic lyme on 20/20 Friday,Please watch
imagine2
LymeNet Contributor
Member # 3136

Icon 1 posted      Profile for imagine2     Send New Private Message       Edit/Delete Post   Reply With Quote 
http://lymeinside.wordpress.com/2012/05/15/a-teen-with-lyme-will-be-on-abcs-2020-this-friday-lyme-lymedisease-chroniclymedisease/
Posts: 677 | From Virginia | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
Maya12
Frequent Contributor (1K+ posts)
Member # 36392

Icon 1 posted      Profile for Maya12     Send New Private Message       Edit/Delete Post   Reply With Quote 
I will be watching this and will tell my family to do the same. Even my mom is now telling all her friends about Lyme especially since where I live in Ontario Canada has one of the highest rates of ms in north America. Many of our family friends travel up north to cottages in the summer. And one set of friends he has severe ms and their daughter has untreatable bipolar which developed after she had been at a summer camp 20 yrs ago. They also cottage in a tick infested part of Canada . The word really needs to be spread
Posts: 1632 | From Canada | Registered: Feb 2012  |  IP: Logged | Report this post to a Moderator
hopeful4
LymeNet Contributor
Member # 8486

Icon 1 posted      Profile for hopeful4     Send New Private Message       Edit/Delete Post   Reply With Quote 
Great! Thanks for posting this.
Posts: 873 | From WA | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
up

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94368 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
philly78
Frequent Contributor (1K+ posts)
Member # 31069

Icon 1 posted      Profile for philly78     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm watching 20/20 now. The segment on lyme isn't on yet but they are doing one on "misophonia" and I'm watching it thinking that they really have lyme!

--------------------
When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal.

Posts: 1000 | From PA | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Hoops123
LymeNet Contributor
Member # 18333

Icon 1 posted      Profile for Hoops123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just watched - These types of shows do a real disservice to all of those who are suffering. Even Dr. Phil, if he really wanted to help people, he would do a follow up show and continue talking about the controversy and how lyme persists despite treament
Posts: 749 | From State full of ticks | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
lotus2686
Member
Member # 30680

Icon 1 posted      Profile for lotus2686     Send New Private Message       Edit/Delete Post   Reply With Quote 
philly78--- i was thinking the EXACT same thing! i had/have some symptoms like that.

now, The building.. out of no where rage and the feeling of guilt and sorrow following it--this is the first time i heard someone explain my rage episodes i have. Triggered by the slightest bit of stress sometimes(not sounds always but sometimes!). It happens once a month now that i've been treating bartonella. (it used to happen much more!)

Posts: 60 | From central nj | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
lotus2686
Member
Member # 30680

Icon 1 posted      Profile for lotus2686     Send New Private Message       Edit/Delete Post   Reply With Quote 
hoops--- i agree completely. This is such a serious problem and so many people are suffering, it needs to be taken seriously. It seems like all these shows focus on whether or not we're faking it. Hello! Come live with me for a week.
Posts: 60 | From central nj | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
WendyK
LymeNet Contributor
Member # 18918

Icon 1 posted      Profile for WendyK     Send New Private Message       Edit/Delete Post   Reply With Quote 
But at least its raising awareness... I would think that shows like this, even though they hardly touch the topic, will lead to more. It gets people thinking about it.

--------------------
Wendy

Posts: 253 | From Near Albany, NY | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Hambone
Frequent Contributor (1K+ posts)
Member # 29535

Icon 1 posted      Profile for Hambone     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think this 20/20 thing made Lyme even more stigmatized. That only people with bizarre behavior have that.

Granted, I'd like to see someone get a brain infection and NOT act bizarre sometimes, but that's all they ever focus on.

Posts: 1142 | From South | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
lotus2686
Member
Member # 30680

Icon 1 posted      Profile for lotus2686     Send New Private Message       Edit/Delete Post   Reply With Quote 
Has this been on tv before like this?20/20, dr. phil, i went to a lyme lecture in holmdel nj and they are showing under our skin in edison nj tomorrow. am I just noticing it now because I have lyme and co?
Posts: 60 | From central nj | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well, I think TV showings can vary - we had one of our local patients on primetime TV a couple years ago, explaining that her insurance would not cover her IV med need,

resulting in her insurance company covering her for a little while after the problem got televised.

Posts: 12938 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835

Icon 1 posted      Profile for Tammy N.     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was disappointed with the coverage. It didn't convey the truth of Lyme in a way where the masses could "get it". Almost wish it wasn't even a part of the show.
Posts: 2238 | From East Coast | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
Hambone
Frequent Contributor (1K+ posts)
Member # 29535

Icon 1 posted      Profile for Hambone     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Tammy N.:
I was disappointed with the coverage. It didn't convey the truth of Lyme in a way where the masses could "get it". Almost wish it wasn't even a part of the show.

I agree. They made it out to be some freakshow thing that makes people act weird and fake it to get attention. They lumped the story in with a woman who has a penchant for eating rocks!

I'm getting to where I'm embarrassed to tell anyone I have Lyme. I think I will just start saying I have Lupus or something more believable where you aren't looked at like you have five heads and leave people wondering if you are faking your illness.

Posts: 1142 | From South | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ditto. They put people on with bizarre disorders.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.