posted
I just wanted to know if anyone had any thoughts on this, I've been on iv rocephin for almost four months now, was diagnosed with lyme one year ago now, i'm also on oral antibiotics, and being treated for co-infections
about two and half months into the iv rocephin some of my scarier symptoms that were constant went away like numbness, pvc's, but not my "fibro-like symptoms" of fatigue and muscle pain I've had for 8 years.
now I'm in a lyme flare again, not as bad as before, and I know I'm not stopping the iv's until I'm syptom free for a very long time, but do I stop before all my muscle pain is gone? I still do not know if this is fibro and lyme or just lyme? this is driving me crazy. i would appreciate any thoughts, thanks.
Posts: 229 | From Forty Fort, PA | Registered: Feb 2012
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Just my experience, but on IV Rocephin I got energy back and a lot of head and neck symptoms went away.
By my 4th month my head and neck symptoms graduareturn creased over the course. I started to develop new symptoms as well, including muscle burning and fibro like symptoms, something I never had before that.
Can you take it with Buaxin and Doxy and maybe pulse Flagyl or Tindimax?
I found Biaxin and Doxy to quiet down those fibro like symptoms.
Posts: 2094 | From NY | Registered: Oct 2011
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posted
I second the taking Tindamax--great combo (assuming it's not one of the orals you mention you're on already) and switching up meds in general. Four months is a long time to be on the same protocol. Rocephin is great and very well tolerated by most people, but ask your doc if perhaps it's time to switch.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Four months is not a long time according to Dr. S of California.
RESULTS: For cognition, fatigue, and myalgias, the greatest improvement occurred in patients on the longest courses of treatment (25�52 weeks)... In contrast, arthralgias were only significantly improved during the initial 1�4 weeks of therapy ..., and the beneficial effect of longer treatment did not reach statistical significance for this symptom.
DISCUSSION:
In conclusion prolonged intravenous antibiotic therapy is associated with improved cognition, fatigue and myalgias in patients referred for treatment of neurologic Lyme disease. In contrast, improvement in arthralgias did not persist after 1�4 weeks of therapy. Treatment for 25�52 weeks may be necessary to obtain significant symptomatic improvement in patients with neurologic Lyme disease. (Emphasis added.)
[ 06-16-2012, 03:30 AM: Message edited by: AuntyLynn ]
Posts: 1432 | From New Jersey | Registered: Jan 2012
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posted
I wouldn't stop the IV treatment, as you can cause a lot more problems stopping so soon. All Lyme and coinfections flare.
I have been on IV for going on 20 weeks. I got some relief at the 2+ month period and am now going through a flare. You have to ride them out. We are all different in how we react to the meds.
Are you being treated for coinfections. They alone, can make it impossible to get your lyme load down.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I actually was on IV treatment for 16 months. I know that every one is different so this is in no way a comparison. With that said, I too started with IV Rocephin and it reversed some symptoms but I still had so many left.
My LLMD changed my IV meds many times in those 16 months and each med change would bring on more herxing but then would reverse yet another symptom. It did take time chipping away at it and even after the IV, I was still on orals or Bicillin shots but there is life after Lyme and know you can get there too.
Hang in there and keep fighting.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
When you say you've been 16 months or some say 4 months on I.v. Treatment do you mean that you took it 3 or 4 days a week like Dr. B. suggests in his protocol or continuously ?
Posts: 186 | From Germany | Registered: May 2012
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