posted
This has been going on for several months. Seems like it started when I started abx about three months ago. It's not coming out in clumps but I'm getting concerned. When I shower or brush my hair there's so much coming out. My hair is kind of long and I'm constantly picking hairs off my shirt. Is this normal when in treatment?
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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posted
biotin saved my hair, I took about 4 or 5mg a day, but I would get your thyroid levels checked.
Posts: 908 | From Albany | Registered: Nov 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Some ppl have mentioned the same thing but hair loss can also be caused by low thyroid or diabetes. Best to get those things checked just to make sure there are no problems that need treatment.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
I had everything evaluated like others mentioned. Treatment and nutritional supplementation based on test results vastly reduced my hair loss, as did reducing washing and brushing/styling.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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posted
My hair was falling out earlier this year too and with vitamins and biotin especially it is thicker and shinier than ever now. It is such a blow to your self image have thinning hair, but if mine can be restored to this degree, I think anyone's can with this illness. Jess
Posts: 651 | From ct | Registered: Sep 2011
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Nioxin shampoo - kind of expensive, but it works. The salon inside the Walmart Super Center has the cheapest I have found.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
I'm getting my thyroid checked and I bought nutri-ox at Sally's. They didn't have Nioxin but this is comparable...we'll see. I just washed my hair and so much came out:(
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Lyme depletes vitamins, minerals and enzymes from our bodies. Get a good B complex with some biotin in it (works).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Check ferritin level too....should be at least 70-90...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
Iron, ferrtin and thyroid...okay will check these. Found my B complex, only has 33% daily biotin. This probably isn't enough is it?
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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posted
I have the same problem, nothing works. It got worse with more intensive treatment so I believe it�s inflammation or so.
Posts: 186 | From Germany | Registered: May 2012
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Jupiter, have you tried biotin? It was like a miracle for me, I have such thick hair now.
Posts: 651 | From ct | Registered: Sep 2011
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Diet - modified paleo Posts: 125 | From Rocky Mountains, USA | Registered: Feb 2012
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Definitely the Ivermectin causes my hair to fall out. I hear that the Albeza does the same thing, but I have not started yet.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Well, my hair is still falling out. I'm waiting on my thyroid results. I had blood work done which showed I'm deficient in copper, Coenzyme Q10 and pantothenate. Copper and pantothenate deficiency can cause hair loss. My biotin level was fine. So, I'm wondering if I should continue supplementing with biotin or just focus on the ones I'm low in. Anyone here been low in these minerals or enzymes?
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
How was your ferritin?
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
I am also having the same problem....my Dr has ordered to re-test my thyroid but she just checked it 2 months ago and it was fine. Now it seems everytime I turn around, another 20 hairs has fallen out....and I have been taking biotin for a while.
I love my hair so this is very depressing for me...
I feel like a chemo patient. Posts: 148 | From AZ | Registered: Sep 2011
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I did find that using Nizoral shampoo (or other dandruff shampoo) stopped my hair loss one time. Only had to use it for a week. With all the abx patients are on, it's common to get a fungus on your scalp.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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posted
That's interesting Lymetoo. I would have never thought of that. OK, I'll give that a try too. Thanks all.
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
You'll probably have to ask for a ferritin test. It's generally not checked in routine blood work. Serum iron is not very helpful.
Nizoral is helpful but you may have to get it online. I don't see it in many drugstores anymore.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
I have head and shoulders in the closet. Would that do the same as nizoral?
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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posted
My dermatologist recommended aldactone (Spironolactone). I have been getting it for several years now and it's a miracle drug for me. I was seriously considering getting a wig, and now I don't have the balding spots.
I have a bit of high blood pressure and the med really is made to treat HBP. So it works great for me. It's very mild, so I don't think it will lower one's blood pressure too much - but you have to check it out.
I have orthostatic hypotension, so I need my blood pressure to be up a little. I stopped taking my other blood pressure medicine and just took this in a mild dosage and somehow works. It doesn't lower it too much, but leaves it just high enough to keep me from fainting when I stand up. (This was all with approval from my cardio!)
My dermatologist said that you need to get your liver tested every three months on it. But my cardio doesn't seem worried about it.
I have to say - as miracle drug that it is - very few people have ever heard of it being used for alopecia. But in my case, it definitely works. I would be terribly depressed if I ever had to give it up.
Posts: 132 | From Texas | Registered: Apr 2012
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