I am not sure whether to attribute it to Rifampin or what?
I am having a hard time staying asleep more than a couple hours and I wake up super anxious and can only go back to sleep if I take a little xanax.
To get through the day I have to take Xanax XR. Yes, I have tried a ton of different natural things and I do take some natural things, but they do not seem to help much.
I had my first 2 good days since treatment last week and this week has been HORRIBLE. I am not sure if it is a herx or side effect from meds...
I just want to know that it can get better and I won't be stuck like this the rest of my life.
I'm trying to plan my wedding for September and I get so sad thinking that I'm going to feel so horrible that day and be focused on how horrible I feel. I am just so depressed and sick of it all. What's the point?
-------------------- Treating lyme, bart and babs Posts: 506 | From NE | Registered: Dec 2011
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Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
I was having the same thing on Rifampin. I could not control myself but it only lasted 2 days thank goodness.
I was literally over the top anxious and had to go running even though I felt physically terrible. I ran like 10 miles one day and I still couldn't calm myself down. I had to use benadryl to try to go to sleep.
I'm having a horrible week too. I wonder if it is Rifampin? I started that about 3 weeks ago but I herxed right away in the 2nd week and now I'm just really tired and weak with lots of numbness and twitching like I was while on Mepron.
posted
i think it's just the natural reaction to all we are going through. rifampin could worsen it although it had more intestinal problems with me. but i've gone months feeling like i was borderline seizure i was so anxious and days without sleep. literally rocking back and forth like a mental patient(aren't we all) for days.
eventually it calmed down. i'm sure it will come back again sometime too. just the peaks and valleys i guess.
xanax helps immensely but it also is the cause of a lot of this. i found low dose valium a great alternative with slower processing time in the body than xanax.
Posts: 109 | From PA | Registered: Feb 2012
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posted
and summer, consider yourself an extremely fortunate lyme patient if you are able to run that much...WOW. that is awesome.
Posts: 109 | From PA | Registered: Feb 2012
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posted
I have a lot of anxiety, especially lately as I have gotten so much sicker. I can only sleep a few hours a night, and I find myself fearful of places and situations that I wasn't before. I also am crying A LOT lately and that is very unusual for me.
I was not a severely anxious person before I got sick, so I attribute it to the constant stress of dealing with a devastating illness and trying to work and date and keep up a social life at the same time. It is overwhelming.
All the best to you, Jess
Posts: 651 | From ct | Registered: Sep 2011
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XOXO
Posts: 77 | From Denver | Registered: Feb 2012
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Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
Yeah, I wish I had felt good when I was doing it though! It was pure stress/OCD and it came out of nowhere.
I used to run 10 miles per day but lately I'm lucky to make it to the end of the driveway unless I'm coming off a glutathione/vitamin IV. Today I couldn't even get out of bed to go to the supermarket. I have no food....lol.
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
it will get better. I just started cipro so i should be rocking soon. have already been on the other drugs, its hard to accept that this is how it is. God bless.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I find rifampin unbelievably tough due to this. But I'm sticking it out.
Two things: DETOX, DETOX, DETOX!!! The problem is the die-off.
Plus, rifampin interferes with a ton of meds, and esp anticonvulsants, like neurontin, pain meds, sleep meds, thyroid meds---a lot of them! Get the package insert either from your pharmacy or online and check what meds are listed that rifampin interferes with---some are made less effective, some more effective. So dosages have to be changed, and/or the meds have to be changed.
Talk to your doctor about all this ASAP. Does your dr know that you are needing the xanax so much? I'm not judging, I understand. It's just that it can be horrific to get off xanax and other benzo's. So be careful, and get help with it.
Posts: 3766 | From around | Registered: Mar 2008
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