posted
So I'm confused, my dr is putting me on Mepron after testing me for FL1953. I read online that you need to eat fat while taking it, however, I read that you need to eat no-low fat to starve the biofilm.
What should I be eating?
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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posted
Yeah, there's a lot of controversy surrounding this. What did your doctor recommend?
I also have Protomyxoa Rheumatica and babesia, and take Mepron with 23 grams of fat. I've now been treating for 2 1/2 years, so I'm not as committed to the high fat, because my protozoa load is down. That said, I still take it with a meal and do not watch the fats like Dr. F. recommends.
It's really up to your doctor. How were you told to take Mepron? Many LLMD's, beside Dr.F., do not adhere to the low fat diet, even though for some it has been very successful.
Posts: 964 | From san diego | Registered: Oct 2009
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posted
That is a lot of fat if i take mepron twice a day! My dr didnt tell me about having to take it with fat. Hes an LLMD. He does not seem that familiar with the fry bug either.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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posted
That is a lot of fat if i take mepron twice a day! My dr didnt tell me about having to take it with fat. Hes an LLMD. He does not seem that familiar with the fry bug either.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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posted
I thought ivermectin was the drug of choice for the Fry bug?
Posts: 146 | From Maine | Registered: Aug 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
The people seeing F who take mepron are doing low fat. Less of the mepron is absorbed but the low fat inhibits the growth. Protomyxzoa grows 100 (one interview said 150) times faster with fat. So if you increase the absorption of the merlon 50% taking it with fat, that would be twice as effective - but the pathogen is multiplying 100-150 times faster.
I took mepron, malarone and/or coartem with high fat for about a year and the protomyxzoa was not affected. It got much much worse.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Thanks, i will be sending some transcripts from dr fry re diet. I finally found one where he suggested ivermectin rather than antis and planquenil.
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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posted
And recommendations for Malarone / Zith combo are used for FL1953. And, one does not have to take fat with malarone. You are defeating the purpose of breaking down the biofilm if you eat fat.
Some patients are still on Ivermectin, but most are on zith/malarone now. I'm a patient of said dr.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
hadlyme: I have a script for Malarone, haven't started it yet (for the protomyxzoa)
May I ask: are you pulsing it, or taking it daily?
Thanks-
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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And everything I've read, says even with malarone you have to take with fat, as it is fat soluble or it won't be effective. It loses at least 50% effectiveness.
from RXMed:
Absorption: highly lipophilic compound with low aqueous solubility. Dietary fat taken with atovaquone increases the rate and extent of absorption. When taken with a standard breakfast containing 23 g of fat, AUC was increased 2 to 3 times and Cmax 5 times compared to the fasting state. Patients should take Malarone tablets with food (see Dosage).
-------------------- lisa theobald Posts: 111 | From madison wi | Registered: Nov 2008
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I don't see Dr. F, I have a different treating Dr.
Some of the combinations being mentioned for the protomyxzoa, like adding Azithromycin or low dose Doxy,
I am not doing- I've been on those antibiotics before, at high doses, and do not wish nor see a need to go back. (me, personally)
I am doing rotations of Ivermection, Alinia, Malarone, Bonifuge, Tindamax, etc. (I'm also on Bicillin for Lyme.) Also combine with Bolouke and Klaire Interphase for biofilm.
When I start Malarone, I see myself taking it with a gluten free protein bar in the a.m. (has some fat in it) and dinner- which usually includes a lean meat.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
I have been pulsing each one separate. I am now going to start using them together after my last apt with dr. last week. He states that this is the best combo for it. I have been doing this combo for years now. Just not together at the same time.
You can take fat according to that 'script' from the pharm company if you like. I am not doing it. I keep on the low fat eating with any of this.
With this bug, it doesn't 'play' by the rules as we've known them. Do what you think best for your body, I will to.
With fat building the biofilm around the bugger, and then it can hide better, I for one will eat less fat as to break down the biofilm so the drugs can get to it better.
I see the dr. from the lab for this FL1953.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Ichtheobald, I'm very far from you, but will pm.
I don't think I eat much fat anyway- by the way, my test came back 'low' positive, which means it's still there, of course.
I can't start the biofilm stuff for another few weeks, have another minor health issue to take care of first,
But I am now conscious about the fat. I would/plan on trying to make it lower, as a trial, when I begin treating further later.
So, I figure, take the Malarone with the major fat of the day.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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