LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Trigeminal Neuralgia

 - UBBFriend: Email this page to someone!    
Author Topic: Trigeminal Neuralgia
tonysgirl
LymeNet Contributor
Member # 11202

Icon 1 posted      Profile for tonysgirl   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ok, I am just lighting up the boards tonight with questions, sorry!

Has anyone had Trigeminal Neuralgia as a result of their lyme infection and were you successful in treating it? I am getting pains in the side of my nose and corner of my eye. I am also getting a dull aching in the cheekbone area. It is not sinuses as I am clear. I am deathly afraid that this is a prodome to Trigeminal Neuralgia.

Posts: 157 | From connecticut | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
cozynana
LymeNet Contributor
Member # 34270

Icon 1 posted      Profile for cozynana     Send New Private Message       Edit/Delete Post   Reply With Quote 
So sorry to hear you think it might be TN. My girlfriend had it. It was not due to Lyme. Hope you can get it addressed soon.
Posts: 620 | From Ks | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
jlf2012
LymeNet Contributor
Member # 36002

Icon 1 posted      Profile for jlf2012     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, I was diagnosed with TN about three years ago. I think it was from the undiagnosed lyme though. Now that I'm in treatment I notice the pains when going through a herx. I'm hoping it will go away with successful lyme treatment. Tegretol will most likely help the pain if it's unbearable. However, tegretol has many side effects:(
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
I got trigeminal neuralgia while on lousy lyme disease treatment.

For me, taking Benadryl made it go away. Then, I got good lyme treatment and all of my symptoms went away.

It is now over 7 years ago that I completed my lyme and coinfection treatment.

I didn't get any prodome to TN. I just got a full-blown attack one day near the end of dinner.

The attacks came after chewing for a while. Hard chewing especially. So, many with TN eat only a soft diet.

I definitely became afraid to eat. After a number of attacks near the end of dinner, I could get an attack at any time. (The TN is "kindled" as they say.)

I tried various things that didn't work and just accidentally hit on the Benadryl. Give it a try.

If you are not getting the symptoms after chewing for a while, then it doesn't sound like TN to me.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
sickmate
LymeNet Contributor
Member # 31502

Icon 1 posted      Profile for sickmate     Send New Private Message       Edit/Delete Post   Reply With Quote 
I also have neuralgic pain in the face, a kind of atypical TN.

Mine is triggered by using my eyes, not by chewing.

Its hell and I havent found something that helps yet. Also tried an allergy med (not benadryl), but didnt help.

Trying high dose B12 at the moment and desperately looking for an answer.

Posts: 214 | From Home | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had what I believe was, at the very least, cranial nerve pain.

Taking cortef made it subside. I tried to go off the cortef 4 yrs ago and the pain returned with a vengeance. Back on cortef to stay! I take 10 mg a day. (for adrenals)

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
tory2457
LymeNet Contributor
Member # 10384

Icon 1 posted      Profile for tory2457     Send New Private Message       Edit/Delete Post   Reply With Quote 
I too have TN and had it for years off and on. I understand how hard this is to deal with and feel for you and others who do.

When I was first diagnosed with MS my neuros stated TN was not a symptom of MS cause "pain" wasn't a MS symptom. ha ha

Years later TN was considered a MS symptom and so was "pain".

My first appointment with my LLMD he said he sees MS and lyme patients with TN.

During treatment, my head pains came back with a fury. I hung in there continued with treatment /pain and found that treatment was in fact helping.

I no longer have the amount of on/off again pain and I am a believer that abx treatment helped me with this one symptom that was so intolerable.

This is my experience, but the advice I was given was to do my best to get through what treatment brought about, and for me it made a difference.

It's not easy due to the level of almost intolerable pain, but whew..I guess it can be done.

do try Benadryl or anything else to help with the pain..for me nothing helped..but keeping positive always is a winner.

Having a doc familiar with TN (finally) and understanding how treatment Might work was a relief as well.

the best to you,
tory

Posts: 158 | From PA | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.