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» LymeNet Flash » Questions and Discussion » Medical Questions » what got you done with encephalitis?

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Author Topic: what got you done with encephalitis?
thehause
LymeNet Contributor
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I'm looking for anyone's tips on encephalitis and what they did to get through it and to be able to really be themselves again.

Anyone?

Posts: 372 | From west of the mississitty | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
mmnn1385
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mepron helped me! terrible to take, but great results.
Posts: 43 | From RI | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
LBS
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thehause,

I struggle with this same think...not much touches the encephalitis for me. Treatment is supposed to work, but has only lessoned it slightly.

I am starting Mepron soon and hopefully it helps.

I go through a lot of ice packs and massages.

--------------------
Tick Bite: March 2011
ABX Treatment: August 2011
Diagnosed: September 2011

Posts: 137 | From God's Got This! | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Bugg
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My neurologist told me the only thing that touches it is IV Rocephin as orals don't cross the blood brain barrier....I had this and no orals helped me...just the Iv rocephin...even after treatment it can take months to years for a lot of the symptoms to resolve...but you will get better, much, much better!!

So sorry you're suffering with this

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Jessiep
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how do you know if you have encephalitis? what are the symptoms??
Posts: 342 | From Philadelphia | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Bugg
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My symptoms were extreme cognitive dysfunction...couldn't remember how to write a check..couldn't read a paragraph and comprehend it...couldn't remember friends names when they were standing in front of me...would start crying in front of people when I'm not a cryer...
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Lymedin2010
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IV Rocephin by week 3 (90-95%) & then backslide after that, but not as severe with head and neck pressures. By severe I mean, so painful that I could not stand up for much or walk very far.

Doxy & Biaxin (99%) & backslid after that as well.

If I had to do it again I would do all 3x & add in Flagyl by week 3-4. Flagyl should bust the cysts formed from Doxy & Rocephin.

Posts: 2087 | From NY | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
   

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