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» LymeNet Flash » Questions and Discussion » Medical Questions » Bactrim ds and getting better??advice plss

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Author Topic: Bactrim ds and getting better??advice plss
Jolteon
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Hello everyone. I tested positive for Lyme this past may and immediately started posting to lymenet for help and advice.

It was a huge help and I found a Lyme doctor who has had me on abx ever since.

I started my treatment on doxy 100 twice a day with my normal doc. After meeting with my Lyme doctor he has had me on Sulffamethoxazole-Tmp ds tablets (bactrim ds).

I am wondering if anyone is taking or has taken this for Lyme and what their results have been? Also if anyone knows exactly how this medicine works?

I have now been taking bactrim for the past 2 months and my LLMD says I need to take it untill all my symptoms go away.

The thing is how are you absolutely sure when all your symptoms go away? I have been feeling much better, but I still notice a strange pain in my back left side.

This is the same pain I have had since the time I found the tick and it grew increasingly worse untill I could not move at all. But I have also had a similar pain even before the Lyme.

It is hard for me to judge whether certain things are due to Lyme or just normal aches and pains of everyday life.

I feel so much better then when I was at my worst, but I do not want to stop my meds prematurely only to have it grow stronger in the future, but I also do not want to take abx if it is unnecessary at this point.

I guess what I am asking is how to know when you are better? I know this question is probably pretty broad and based on the individual, but how much "better" do you need to feel before you're done????? [confused]

Any advice and comments will be Greatly appreciated.

Thanks to everyone who has helped me here in the past few months. It has given me back my life. [group hug]

Posts: 17 | From NJ | Registered: Jun 2012  |  IP: Logged | Report this post to a Moderator
Catgirl
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Bactrim, like other abx, is different for everyone. I couldn't take it, so I had to go off of it. But while I was on it, I did make some improvement with bart.

Do you herx? If you don't herx, it's probably more difficult to tell. It sounds like your symptoms are mild? My husband doesn't herx either.

https://chronicillnessrecovery.org/index.php?option=com_content&view=article&id=161

2 months of treatment doesn't sound like very long (don't know your story). Keep treating. Your doc will know when to take you off.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Jolteon
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Catgirl-
I found a tick on me in may and got ridiculously sick within a couple days. So sick I could not sit up for over a few seconds without being in extreme pain.

My normal doctor put me on doxy even though my tests were negative. I herxed like a mother about a week into my doxy treatment and it continued for almost 3 weeks.

I did not get to an LLMD until about a month and a half into treatment. He tested me and they came back positive for Lyme.

He put me on Bactrim and just said to take it until I'm better. The problem was that when he put me on it I already was feeling better, so I am having a really hard time judging the situation...

Posts: 17 | From NJ | Registered: Jun 2012  |  IP: Logged | Report this post to a Moderator
mlg
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I was on bactrium for a month and then got myself better so got off them. But within 1 week I was feeling pretty lousy. So doctor put me back on it.
Posts: 697 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Jolteon
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Mlg-
For how long did you take it after you were put back on it??

Posts: 17 | From NJ | Registered: Jun 2012  |  IP: Logged | Report this post to a Moderator
Catgirl
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Most lyme docs go by the rule of two months symptom free before they take patients off of abx. But you may have had lyme even before your tick bite in May. Many people never even know they were bit.

My husband said he had no symptoms. At least none that he could detect. We just got him tested as a benchmark to see if he ever got it from me in the future. It turned out he had it. So if he can go symptom free, so can others.

We eventually remembered that he had a strange circular rash on the back of his head for years. He's had it for so long, we just forgot about it. It's not a bulls eye, it's just a round pink rash. Drs never knew what it was.

Even his lyme doc didn't really know. After we thought about it for a while, we remembered the rash started about 15 years ago. Yet after about 2 weeks on abx, the rash started to go away.

A strange pain in your back sounds like lyme. My husband had a strange pain in his back shoulder. It went away after a few weeks of abx. But he is staying on abx until his lyme specialist tells him otherwise.

Lyme docs do a lengthy intake apt with patients to try to determine when they originally developed symptoms. Lyme symptoms can be so subtle, they can easily be missed.

I think, and this is just my opinion, that practically everyone has lyme, especially here in the north east (ticks are just part of nature). But it's not until we've either been bit again, or exposed to more toxins, parasites or stress before it becomes a problem. Lyme grows so slowly. And the co infections are another story altogether.

If I were you, I'd stay on abx until your doc says otherwise.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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groovy2
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Bactrum has few side effects --
It works well -- --

You want to take your meds till you have ZERO
symptoms for 2 to 3 contentious months

Posts: 2999 | From Austin tx USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
canefan17
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How high of a dose do people use with Bactrim DS?

I know abxs like ceftin, rocephin, flagyl, doxy, etc all vary in dose ranges.

Is bactrim safe enough to take more than 1 tablet twice a day?

Bactrim DS has helped me... but I want to push it to the limit and take more (possibly double the normal dose)

Any experience?

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
TF
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My lyme doctor gave me Bactrim DS for babesiosis after he treated me for lyme. He said it also hits bart. Bactrim is the way I got rid of babesiosis.

I do not believe that Bactrim is used to treat lyme disease.

You will see Bactrim named on p. 24 of the Burrascano Guidelines under the treatment of babesiosis.

The list of antibiotics used to treat lyme starts on page 14. See also page 18.

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

You will not see Bactrim listed. So, sorry to say, I am really questioning your doctor's expertise with lyme disease.

I have been around for a long time, and the use of Bactrim for lyme just does not make sense to me.

I got rid of my lyme disease (and babesiosis and bartonella) over 7 years ago. I went to a doctor who followed the Burrascano Guidelines. I suggest you find one who follows them. This is the most successful lyme protocol in the world. It is followed by doctors in many countries. It is how my friends all got rid of lyme also.

The doc is the key to getting rid of this disease. I can't emphasize that enough. The doc is the key.

So, your choice of lyme doctors is the most important decision you will make regarding this disease.

Likely, if you stop your meds now, in a few weeks you will be back to as sick as you were in the beginning. But, without proper treatment, you will never be able to stop the meds. This is one tough disease (diseases) to get rid of, and it takes a doc with a lot of expertise to do it for you.

I can give you the name of a great doc who will take care of you properly. But, the doc is not in NJ. Let me know if you want the name.

To canefan, I took one Bactrim DS twice per day.

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canefan17
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TF,

Why is Bactrim more for Babs than Bart?

Also have you heard about flagyl having effects against Babesia? A few have told me this.

Posts: 5394 | From Houston, Tx | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
TF
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canefan,

I don't know if Bactrim is more for babs or for bart. I just know what my lyme doctor used it for in my case and what he said to me about it.

I also know that Dr. H in NY uses it for babs.

Here are the notes I took from Dr. H's talk on babesiosis last Oct. in Toronto at the Lyme Conference:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/112222?

Notice that he doesn't mention using flagyl for babs. I have not heard of it used that way either.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

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