Topic: Dr. S./LabCorp Haplotype Genotyping for Mold
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
I recently had the LabCorp bloodwork done to determine the "haplotypes" I have. Dr. S., a mold illness specialist (not really a lyme-focused doctor, probably most would consider him not an LLMD so probably his name could go here, but not sure, just being careful), has developed categories for what various results for this bloodwork means.
Basically, it helps you know how badly you might react to mold in water-damaged buildings. But one of the haplotypes is also referred to as "post-lyme syndrome", and another "MARCONS".
I've done some reading from this doctor, not an expert on all of this works and opinions. It appears he believes a lot of those who feel they have lyme, actually have mold illness. I don't know if he'd agree with a lot of people here on some of those issues. Still, there can be benefit to understand what he understands, even if we don't all agree on interpretation.
Some of this is pretty new stuff, that has been developed over the last couple/few years.
Mine came back as having problems with mold, both the genes from mom and from dad. Neither came back as in the "post lyme syndrome" or "MARCONS" label. They also were not in the worst category, which he labels "multi-susceptible".
Anyway, just curious if others have done this and how their results compared to their situation. Anyone have the "post-lyme syndrome" category? I know what the "mold" category means, so I'm a bit more interested in what it means to NOT have the "post-lyme syndrome" category.
[ 10-17-2012, 12:55 PM: Message edited by: MichaelTampa ]
Posts: 1927 | From se usa | Registered: Mar 2010
| IP: Logged |
I've done some reading from this doctor, not an expert on all of this works and opinions. It appears he believes a lot of those who feel they have lyme, actually have mold illness. I don't know if he'd agree with a lot of people here on some of those issues. Still, there can be benefit to understand what he understands, even if we don't all agree on interpretation.
- Right. That is what I've heard about him. We do protect his name here though.
Hope you find something that will help you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96173 | From Texas | Registered: Feb 2001
| IP: Logged |
posted
Mold illness is a differential diagnosis for Lyme, I think he's just saying that it is possible that some are being treated for Lyme that actually have mold illness, because the symptoms are the same. I have had all of the testing done, positive for Lyme, Babs, and Bartonella. Also am multisucceptable to Lyme and mold. Did an ERMI on my house and sure enough, mold! Did major renovations last winter. I have been treated for MARcONS, done CSM, treated my infections. For some people, like myself, they have both things going on.
Posts: 845 | From Northeast | Registered: May 2011
| IP: Logged |
beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I did the typing and have the multi susceptible gene. So did my 2 girlfriends which make me wonder. 25% of the population has it
Also, am ENT told me if u test the population, most have MRSA In their nose
Not sure how much this all plays into Lyme. I think being susceptible to mold weakens your immune system which isn't good for Lyme.
Posts: 1276 | From maryland | Registered: Jan 2009
| IP: Logged |
beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
MichaelTampa, I did not know about this Labcorp test! Thanks for bringing it to my attention.
I am familiar with Dr. S's work though I have not read his book.
I am VERY interested in this, as we had mold remediation done a couple of years ago. And as luck would have it, a recent air test shows that we still have it the basement, though not nearly as bad as it was, but still. I wonder what is a "safe" level of mold, and I don't think anyone has a good answer to that question. My personal answer to that question would be zero, but I don't know if that's realistic. So we might very well be looking to remediate once again.
::shaking head and rolling eyes::
I am also very interested in MARCONS, because one of my kids has tested + twice for staph in her nose. She's been treated up and down the wazoo yet is still "sick" though better than what she was years ago. This has been extremely frustrating to her and to me, to say the least. So I keep on searching for answers.
From what I remember, a few years ago her HLA DR testing indicated that she could not detox mold effectively. Back then, I had no idea how serious mold was and had no idea we had it in the house. I will have to go back to the old labwork to investigate.
From what I've read, mold can make you very, very sick regardless of whether you have tick borne illnesses or not. If you have Lyme and cos, the mold just adds to the complexity of it all.
MichaelTampa, did this Labcorp test actually differentiate between what genes you inherited from your parents? Were they also tested?
Posts: 1885 | From here | Registered: Jul 2012
| IP: Logged |
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
beths - Dr. S. uses that "25% has it" phrase a lot. I thought it meant 25% had genetic problems dealing with mold, but that multi-susceptible was more the worst of the worst, so would be less than 25%. For example, my report showed in the "mold" category, but not "multisusceptible". Do you understand it this way, or differently?
beaches - This testing is the "HLA DR" testing you refer to, I think it's the same test. Supposedly NCR treatments to restructure the skull can help with drainage and help eliminate the staph (not that NCR by itself would likely do it).
In my family, I am the only one that has been tested (at least to this point). While the report will enable you to figure out both of the types you got (one from mom and one from dad), it does NOT tell you which one was from mom versus which one from dad.
I wonder about the basements. I grew up in the northeast where basements were normal. Where I live now, there are no basements. The basements I knew all had subpumps (sp?) to keep water from flooding in the basement. They seemed always somewhat moldy/misty, and occasionally when the pump failed, it would get wet in there for a while. That situation just seems a little hopeless, at least looking at it from a distance now.
There will always be mold, it is a question of the level. Dr. S. in his book does reference some ERMI score to target for good health, at least for one or two of the haplotypes. He's probably the closest to being able to answer that question for a person, given the number of patients he's seen.
Posts: 1927 | From se usa | Registered: Mar 2010
| IP: Logged |
beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
No, he said 25% are multi-susceptible, so i don't know.
High levels of mold are certainly not healthy for anyone.
The only thing that makes me wonder is I was feeling well, when we discovered our bathroom wall had tons of mold.
We ripped out the wallboard, insulation etc and redid our bathroom. My bed is close to our bathroom. I slept in the room the whole time..
I still reached remission and felt great!...relapsed @ 8 months later
I am working with a practitioner who studied with Dr S helping me detox the biotoxins...see how it goes.
Posts: 1276 | From maryland | Registered: Jan 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/