LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » breastfeeding

 - UBBFriend: Email this page to someone!    
Author Topic: breastfeeding
lymers
LymeNet Contributor
Member # 21512

Icon 1 posted      Profile for lymers     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would love to hear from mothers who have lyme and did or did not breastfeed their babies. I am due to give birth to a boy in February and am having a hard time deciding whether or not to breastfeed him. I am hearing mixed ideas from doctors about whether the benefits outweight the risks when the mother has lyme. Specifically, what was your LLMD's advice to you about breastfeeding with lyme?

Thank you,

Lymers

Posts: 287 | From Humboldt County, CA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
surprise
Frequent Contributor (1K+ posts)
Member # 34987

Icon 1 posted      Profile for surprise     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh boy, I don't like to share this, breast feeding can be such a touchy subject.

I had 2 children later in life, while I had Lyme disease unknown and untreated.

1st child I breast fed, and she has Lyme. Apparent from infancy.
Still no clue about Lyme,

had my last child 2 years later, and did NOT breast feed, personal reasons. (Still untreated)

The last child is/ was like night and day from the other child- and she is 100% neurotypical and healthy.

Dr. B., quoted from the better health guy's website, stated women's breast milk was tested, 5 out of 5 came back with spirochetes.

I do not know if they were untreated, tho.
It can be passed through breast milk.

Obviously, you'd have to stay on treatment.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
lymers
LymeNet Contributor
Member # 21512

Icon 1 posted      Profile for lymers     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you for your insight. I am being treated throughout this pregnancy and plan to remain in treatment throughout breastfeeding IF I choose to breastfeed. I know that lyme can be transferred to baby when mother is untreated, but I'm wondering what the statistics are when the mother is properly treated.

Any other information tidbits from anyone regarding TREATED mothers and breastfeeding?

Thanks,

Lymers

Posts: 287 | From Humboldt County, CA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
jlcd1
LymeNet Contributor
Member # 18138

Icon 1 posted      Profile for jlcd1     Send New Private Message       Edit/Delete Post   Reply With Quote 
I breastfed my son until he was 8 months. I didn't know I had Lyme until he was about 5 months old. The LLMD we took him to said that breastfeeding is the best thing I could do for him right now.

I don't know if that's because she thought why stop now after already breastfeeding for 5 months or not but I continued for 3 months and had to stop when I went on doxy.

He was positive for bartonella at 1yr and had band 41 positive, but didn't have any symptoms so we couldn't treat. He is 3 now and I think I see symptoms sometimes and my husband says he's just 3.

But he wasn't and isn't developmentally slow. I think he is actually advanced for his age. (mother talking)

Good Luck with you decision. I think if you stay on antibiotics then it's one of the best thing's you can do for your baby.

Posts: 908 | From Albany | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
lymers
LymeNet Contributor
Member # 21512

Icon 1 posted      Profile for lymers     Send New Private Message       Edit/Delete Post   Reply With Quote 
jlcd1,

Thank you for your story. Is your LLMD one of the more well-known ones? Do you mind my asking who he/she is (I mean the one who told you to continue breastfeeding)? You could PM me that information if you'd like.

Thank you,

Lymers

Posts: 287 | From Humboldt County, CA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lymers... Congratulations on your pregnancy!!! [Smile]

I hope all goes well for you and your baby!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95252 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
pmerv
Frequent Contributor (1K+ posts)
Member # 1504

Icon 1 posted      Profile for pmerv   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lyme wasn't even discovered when I had my children, and I breastfed them all. I think I got Lyme when I was pregnant with #4. Later he was diagnosed with LD. He was treated and is now 35 and healthy. A couple of my other children got Lyme from ticks. They are doing ok. One daughter got bad enough to seek treatment; she is doing ok now. One son dropped out of school and I think his life is different because of Lyme, but who knows? I've thought about this question. What if you don't breastfeed, and then your child gets Lyme anyway? You will have denied him the known benefits of breastfeeding and your own satisfaction, for nothing. He might be afflicted with allergies or compromised immune system just from being deprived of mother's milk. It's a tough decision but I think I would do it anyway.

--------------------
Phyllis Mervine
LymeDisease.org

Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
pmerv
Frequent Contributor (1K+ posts)
Member # 1504

Icon 1 posted      Profile for pmerv   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
plus, they don't know spirochetes can be effectively passed via breastfeeding although spirochetes have been detected in breast milk. Maybe they die in the GI tract. They are pretty picky about their environment, if the medium is not just right. So it's a pretty sketchy theory to base a big decision on.

--------------------
Phyllis Mervine
LymeDisease.org

Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
surprise
Frequent Contributor (1K+ posts)
Member # 34987

Icon 1 posted      Profile for surprise     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, but the breast milk will also be infused with antibiotics.

Something else to think about.

Sorry, I know it must be a tough decision. I, for one, am okay feeding my babies formula, FWIW.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
philly78
Frequent Contributor (1K+ posts)
Member # 31069

Icon 1 posted      Profile for philly78     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just had a baby boy this past April. He is now 6 months old and doing great. I did breast feed up until 4 months when I had to go back to work. I didn't keep up because it was just too hard to try and pump in my line of work.

I see Dr. C in PA and she said I was fine to breastfeed as long as I was being treated. She encouraged me to do so actually. In my case, the benefits outweighed the risk.

--------------------
When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal.

Posts: 1000 | From PA | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
lymers
LymeNet Contributor
Member # 21512

Icon 1 posted      Profile for lymers     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh...thank you everyone! I really appreciated all of you taking your time to reply to my breastfeeding post.

Does anyone else have any personal experiences they would like to share? Or, insights from their LLMD about breastfeeding with lyme?

Thank you,

Lymers

Posts: 287 | From Humboldt County, CA | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.