posted
I am asking for your educated opinion. Have been treated my a LLMD and also seeing a functional medicine doctor who is Lyme knowledgeable. She is getting training from a top LLMD.
Some background first. I threated with abx for about 2 years. During that time I was not really eating right and sometime did not even take probiotics. I know it was stupid. I guess I was in denial.
I stopped abx because I had a feeling that my remaining issues gut related (leaky gut, candida) or parasites. I had some mild nerve or muscle pain and occasional heart skips that where almost always related to food.
I had a full cardio workup and it was clear. Doc said it could be GI related as there is a link between heart skips and GI.
I have been doing pretty good for the most part. The pain is a lot better and the heart skips as well. I have eliminated a wheat, beans and peanuts almost completely. I have also cut down in sugar and milk. (trying to eliminate them too)
A few weeks ago I had an upper endoscopy with a biopsy. I have irritation in my esophagus with Eosinophilic cells (EoE).
Soon after I stop abx I started to get some acne in my shoulders and face. I have never had an issue with acne. The shoulder acne clear up soon but the face acne is still there I get new bumps still. They are not ez to pop and sometime do have pus.
I did use to get acne / scabs on my scalp that actually clear up while on abx. They are not back but getting better.
Here are my questions:
Is this candida? Leaky Gut? Parasites? or Babesia
I read that Eosinophilic cells are produce by the immune system and high count in blood can be a sign of parasite infection. Babesia is a parasite and I did get treated for it. (no positive blood test). I don't think I have any babesia sx left. I also always had good blood tests while on abx so my Eosinophilic cell count is ok I think
If this is parasite where I want to get it treat it by a doctor. I don't want to self medicate.
I know this is a long post so I will stop here. Thanks for your help
Posts: 324 | From Philly | Registered: Jun 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Have you treated 'regular' parasites, not the babesia kind?
I'm about 99% sure I don't have babesia, but I've had an ongoing issue with parasites.
Bloating, yeast, food intolerances could well be part of parasites.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Tammy N has had very good success with a doctor who is a Dr. K. practioner and does ART testing and I believe is in your area. She has had very good results treating parasites with pharma meds with this doc. You might want to do a test pm because her mailbox might be full.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
EoE (Eosinophilic Esophagitis) involves elevated tissue levels of eosinophils. Blood levels may or may not reflect what's going on in the tissues. Only a biopsy can confirm/rule out EoE.
posted
@dal123 - that is a bold statement. while I think parasites could be the issue, since it only seems to be high on the esaphogus tissue, it seems food allergies is the issue...now parasite can cause food allergies? I don't know...what about candida, can it cause food allergies...?
Posts: 324 | From Philly | Registered: Jun 2010
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Anything that causes inflammation in the gut (parasites, certain foods, candida, Lyme/coinfections, gluten, etc.) can cause food allergies.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Allergies are on the list for parasites. They hibernate in the small intestine and can cause severe inflammation to the esophagus.
Candida especially if it is chronic can have an underlying parasitic component. GiGi has posted about this many times.
Please look on the symptom list by googling parasite symptoms and checking the symptom list for parasites.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
EoE is an autoimmune condition associated with food allergies. You should find an allergist and a GI who are knowledgeable in EoE. It may be hard to find one. I see you are in Philly. CHOP has a great EoE center so maybe they could give you a suggestion for someone who sees adults.
The first thing to do is to figure out which foods are triggering EoE symptoms. Patch testing is one way but it's only about 40% accurate. Another way is to eliminate the top allergens from your diet and then slowly add them back in logging symptoms.
Posts: 1737 | From Virginia | Registered: Aug 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Eating GMO foods - or eggs, milk or meat from animals that were fed GMO feed - can cause all kinds of food allergies like never before seen.
It would be best if you could see the film "GMO Roulette" before you go to any kind of allergy doctor. Link in the set below.
Also, consider celiac. Even a trace of gluten in lip balm can cause all kinds of reactions (after all, we do literally eat whatever products we put on our lips).
And your reaction to dairy (even if not officially "allergic" See the Mark Bitman article from the NYT). See the reader comments, too. I think that is also in the set below.
Lyme, itself can cause all kinds of esophagus and GI damage, too. But, so can many Rx.
What helps may be DGL (a special kind of licorice), slippery elm bark, marshamallow root.
Excitotoxins; MSG; Aspartame; & "Natural" Flavors -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
While those herbs may help with healing, they do not calm down the inflammation. Anti-allergy or anti-inflammatory herbs may be more helpful for initial healing, and once the trigger(s) is/are identified & avoidance is initiated, then the other herbs can assist with healing the damage.
Not all EoE is autoimmune; from patient conferences, there seems to be a range of varieties of Eos. Disorders, from allergic to autoimmune. Some are 100% one way, some are 100% the other, but most fall somewhere in-between (i.e., contain aspects of both).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
Well I am sending my Metametrix full GI profile stool test. Hope it tells a better story of what is going on inside my GI track.
Posts: 324 | From Philly | Registered: Jun 2010
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