LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » worst pill ever for you??

 - UBBFriend: Email this page to someone!    
Author Topic: worst pill ever for you??
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
what has been the worst abx or other "pill" for you?

mine was levaquin and any steroid. after a couple of weeks on levaquin i could barely walk my legs hurt so bad.

they did give me morphine in an iv once and i broke out from head to toes in bright red circles. just the circles, nothing else.

also tetracycline made me break out in purple and red blotches all over. could have been a herx at the time but i think it was allergic reaction.

funny how one pill can literally do you in.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Razzle
Frequent Contributor (1K+ posts)
Member # 30398

Icon 1 posted      Profile for Razzle     Send New Private Message       Edit/Delete Post   Reply With Quote 
Japanese Knotweed capsules...a week of them put me in the hospital unable to swallow even my own spit...took 1 year before I could swallow again, took 3 1/2 years to get off the IV fluids & food. I'm still not able to swallow very easily 4 1/2 years later. Definitely Japanese Knotweed in my case!

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4165 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bactrim. It hits an unknown bug.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
cozynana
LymeNet Contributor
Member # 34270

Icon 1 posted      Profile for cozynana     Send New Private Message       Edit/Delete Post   Reply With Quote 
Levaquin, about killed me and also Doxy....in the stomach for 20 minutes, got deathly ill and vomited like I have never vomited in my life.
Posts: 620 | From Ks | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
Ivy
Member
Member # 18365

Icon 1 posted      Profile for Ivy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Can I have 3? Bactrim, Lariam and Levaquin.
Posts: 74 | From Maryland | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
norcal
LymeNet Contributor
Member # 29829

Icon 1 posted      Profile for norcal     Send New Private Message       Edit/Delete Post   Reply With Quote 
Alinia,2010 acid trip from hell.Big germ load and big dosage. Knowing what I know now,I would have cut WAY back on the amount I was taking.
Posts: 342 | From northern california | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
nonna05
Frequent Contributor (1K+ posts)
Member # 33557

Icon 1 posted      Profile for nonna05     Send New Private Message       Edit/Delete Post   Reply With Quote 
more on Levaquin ,please..
I thought because I was moving a bit more,that it was pain from that.

Feels like Fibro all over in an intense flare.

My muscle are hurting like all get out and I'm getting numb easy.

This is first time I've had to think about putting bars up by toilet to help lift off/momentum.

How does going back wards happen or is it killing something new. Also had issues with Bactrim and the second med in that ,when ordered by itself.

[confused] [bow] [shake]

Posts: 2563 | From Denver,CO | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Caprastatin, to treat candida. This well-known wholistic health doctor prescribed this yeast-fighting med, telling me, ok, no more bread, sugar, etc, in your diet, and I agreed.

I took a caprastatin pill the next day, went out and was getting ice at an ice machine at Burger King for an icebag for my sore neck, when I collapsed straight down on the floor. Turned out to be my first herx experience.

I handed the attendant the doctor's number and asked him to call the doctor's office to ask what I should do.

So, I hear him say, "Hello, this is Burger King. We have patient of yours."

And I thought to myself, when I get back in to see this doctor, I'm never going to hear the end of it about just what I was doing at Burger King the next day when I had promised to be good about my diet!

And so it was. I went through a horrible week of die-off, then a week later, went back to see the doctor, and they wouldn't stop teasing me, when I had given them my word I wouldn't eat like that anymore!

Posts: 13028 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
sickmate
LymeNet Contributor
Member # 31502

Icon 1 posted      Profile for sickmate     Send New Private Message       Edit/Delete Post   Reply With Quote 
Prednisolon, Tinidazol, Doxy. Wish I hadnt taken them.
Posts: 214 | From Home | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
twicebitten
LymeNet Contributor
Member # 5412

Icon 1 posted      Profile for twicebitten     Send New Private Message       Edit/Delete Post   Reply With Quote 
flagyl

--------------------
One day at a time

Posts: 409 | From TX | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
flagyl, yes by the time I tried it, I had been on other oral & IV abx for almost 3 years that had much of the lyme load into the cyst form.

I couldn't get more than slivers of it in me and 4 days on and then off. Others do great with it and see improvement.

One man's medicine is another man's poison.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6422 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Rifampin, fluoroquinolones, flagyl... they are all on my "cannot take list."

--Robin-- You are so bad! [lol]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95211 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
dogmom2
LymeNet Contributor
Member # 23822

Icon 1 posted      Profile for dogmom2   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
zithromax,turned my teeth and tongue grey,gave me a torso rash,and started the tinnitus that has never gone away.
Posts: 857 | From northern california | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Life+Lyme
LymeNet Contributor
Member # 33568

Icon 1 posted      Profile for Life+Lyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
I took one Rifampin pill and got very, very ill. I got a rash and was vomiting a lot.

I also got really sick with Alinia and lost 10 pounds in a week.

--------------------
You name it, I've got it.
Full-time medical anomaly.

Posts: 432 | From Southeast | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915

Icon 1 posted      Profile for Kudzuslipper     Send New Private Message       Edit/Delete Post   Reply With Quote 
Rifampin.
Posts: 1725 | From USA | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
gmb
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
My worse was Augmentin. Something about the "Clav" portion that didn't agree with me.
IP: Logged | Report this post to a Moderator
WPinVA
Frequent Contributor (1K+ posts)
Member # 33581

Icon 1 posted      Profile for WPinVA     Send New Private Message       Edit/Delete Post   Reply With Quote 
Prednisone is what got me into this mess to begin with, so that's at the top.

During my treatment though it would have to be Glutathione because it gave me the worse migraine of my life.

Posts: 1737 | From Virginia | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yeah, I've done prednisone too. It's evil stuff.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868

Icon 1 posted      Profile for MichaelTampa     Send New Private Message       Edit/Delete Post   Reply With Quote 
Clindamycin. Although I feel it helped a lot for 1-2 months, it then abruptly ended my tolerance to it and any other abx.
Posts: 1927 | From se usa | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
ketoconazole

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by lpkayak:
ketoconazole

-
Is that ketek??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95211 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
nope, trade name is nizoral...

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
skies
LymeNet Contributor
Member # 28064

Icon 1 posted      Profile for skies     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think ketoconozole is an anti fungal. It's the ingredient in nizoral shampoo.

My worst pill was septra. Almost sent me to the hospital.

--------------------
"The simple things can get you through the hardest times."  -

Posts: 628 | From Connecticut | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
How bizarre, our different responses -

Before I found out I had Lyme, I had all kinds of itches - some it worked to put caladryl on,

and on the completely invisible foot itch - think like invisible ink - I have long put on ketoconazole cream. It's been a lifesaver for me.

Posts: 13028 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
BuffyFan
LymeNet Contributor
Member # 34679

Icon 1 posted      Profile for BuffyFan     Send New Private Message       Edit/Delete Post   Reply With Quote 
zithromax=tummy troubles :'(
Posts: 287 | From somewhere | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Nizoral shampoo is awesome. Never ingested the drug though.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95211 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
i havent been around...after starting the conversation. thanks for answers. yes i was given it for a fungal infection that really wasnt...but my horrible reaction makes me wonder if what ever it was killing was something that has been messing me up for a long time....i cant even remember how long ago that was...way more than 10 yrs...wait...it was 23 yrs ago...my daughter was 7 and i was in hosp for 3 weeks...she came to see me dressed like a mouse for halloween

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
surprise
Frequent Contributor (1K+ posts)
Member # 34987

Icon 1 posted      Profile for surprise     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh I am way over sharing, way over sharing...

I took Ketoconazole capsules right before I knew I had Lyme/ started Lyme treatment.

It is a heavy duty systemic anti-fungal, but I had a parasite exit while on Keto that was a large, whole spider.

Not kidding, kid you not.
Hard to believe all the crazy madness in such a small body.

Thank God I'm better and cleared out than where I was
*shudder*
and I'm a clean, well kept girl. (sorry)

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Haley
Frequent Contributor (1K+ posts)
Member # 22008

Icon 1 posted      Profile for Haley     Send New Private Message       Edit/Delete Post   Reply With Quote 
Okay, you're freaking me out surprise [Wink]
Posts: 2232 | From USA | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
birdie67
LymeNet Contributor
Member # 35994

Icon 1 posted      Profile for birdie67     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow surprise, thats crazy!! Yikes!
Posts: 486 | From USA | Registered: Jan 2012  |  IP: Logged | Report this post to a Moderator
beaches
Frequent Contributor (1K+ posts)
Member # 38251

Icon 1 posted      Profile for beaches     Send New Private Message       Edit/Delete Post   Reply With Quote 
Plaquenil.
Posts: 1885 | From here | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
"I took a caprastatin pill the next day, went out and was getting ice at an ice machine at Burger King for an icebag for my sore neck, when I collapsed straight down on the floor. Turned out to be my first herx experience."

Oh Robin, that's sounds horrible! Funny story but still horrible.

Monocycline. It made me act insane. My mood was like really bad PMS combined with an overdose of steroid rage. My face and neck swelled up and I had horrible vertigo. It took a couple weeks to calm down after I stopped it.

Hydrocortisone (steroid) was worse in some ways.

It caused me permanent eye damage and I didn't even use it by my eyes. Ugh...

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
kadee
LymeNet Contributor
Member # 21199

Icon 1 posted      Profile for kadee     Send New Private Message       Edit/Delete Post   Reply With Quote 
Levaquin almost killed me.
Never ever again!

Posts: 269 | From Germany | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
The only good news outa the whole experience with the caprastatin die-off is it led me to the Candida Research and Information Foundation in the East Bay,

where I went happily for 5 years to monthly meetings, thinking that's what ailed me. I learned a whole lot about wholistic health there. So sometimes a bad experience can lead to something beneficial.

Judie - you mention eye damage from the hydrocortisone - don't know if you're dealing with inflammatory problems from it - drinking mangosteen juice stops all inflammatory Lyme eye symptoms for me.

Posts: 13028 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Indica440
LymeNet Contributor
Member # 39461

Icon 1 posted      Profile for Indica440     Send New Private Message       Edit/Delete Post   Reply With Quote 
Grapefruit seed extract...
It would mess me up like no other med or herb... I dont know why.

First day i had high blood pressure, second the horror began. Constant pain and burning sensations all over the body.

I still dont know if its herxing or i just cant tolerate that stuff. Have been on a lot of herbals or alternative stuff but this was the worst. I sometimes thought its "herxing" but it was just not tolerable.... Maybe i try another time with coffe enemas and huge amounts of binders but im not sure though. I played a concert on this GSE "herx" and i felt like dying every second of it, it was a horrible time for me and even of GSE i was like dead for almost a month.

Posts: 141 | From cali | Registered: Nov 2012  |  IP: Logged | Report this post to a Moderator
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077

Icon 1 posted      Profile for CherylSue     Send New Private Message       Edit/Delete Post   Reply With Quote 
Levaquin and Cipro almost killed me, too.
Posts: 1954 | From Illinois | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wish i had come back to hear about beaches spider

I always thought i was killing something cuz as soon as i took it under my skin i got this squiggly feeling...all over...intense...lasted for hours and i remember telling doc if i needed that they would have to put me to sleep while it was working

I spent some time fighting parasites but might have done more if i had heard about the spider,...id like to know more about what it looked like cuz i have passed some wierd things on parasite meds...but the one thing that looked sorta like a spider i wrote of.As undigested food

Now that it looks like i have a pretty significant mold infection too reacting like that to keto would make sense.

Its awful we look back and if we knew then what we kniw now
We might be better today

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
2roads
Frequent Contributor (1K+ posts)
Member # 4409

Icon 1 posted      Profile for 2roads     Send New Private Message       Edit/Delete Post   Reply With Quote 
GSE for my son. Sorry Judie( you were right)-Levaquin for me. But the Levaquin was a 2 week reuse years later that did it, not the first time on it for several months.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
fitnesskelly
Member
Member # 45806

Icon 1 posted      Profile for fitnesskelly     Send New Private Message       Edit/Delete Post   Reply With Quote 
Prednisone.

Was given to me after I woke one day with both arms swollen and in pain (diagnosed as triceps tendonitis, but I think it was a mild case of rhabdo).

Was a short, but high dose course. Literally made me pee the bed...so embarrassing.

I've not been right since taking that prednisone. I didn't want to take it, but I couldn't even bend my arms, so I made the mistake of agreeing to take it.

Posts: 63 | From Columbus, OH | Registered: May 2015  |  IP: Logged | Report this post to a Moderator
Nula
LymeNet Contributor
Member # 38409

Icon 1 posted      Profile for Nula     Send New Private Message       Edit/Delete Post   Reply With Quote 
Azithromycin - gave me horrible abdominal pain and didn't help at all ...

Rifampin - was great in the beginning but, after 8 months, my thyroid wasn't happy ...

Clindamycin and quinine - got a terrible rash on day 2, don't know which of the meds caused it though ...

Alinia - explosive diarrhea from hell on day 2. Never touched it again ...

--------------------
I appreciate all your replies. If it takes me a while to respond, it is either because I'm too sick or because I am unable to log in. From European servers, Lymenet is very frequently inaccessible for days at a time ...

Posts: 235 | From Europe | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.