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» LymeNet Flash » Questions and Discussion » Medical Questions » Lyme neuropathy

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Author Topic: Lyme neuropathy
Kansasgirl
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Has anyone had success with eliminating neuropathy symptoms? Prior to diagnosis I had a tingling in my lower torso area that was mostly noticed when i was sitting. It went away after I started treatment but now I have it back again but in a larger area to include most of my body. My face, entire torso, and upper legs. It is faint and I only notice it when I am still. However, when I get in bed at night I feel like my entire body is vibrating. Any suggestions?
Posts: 3 | From Kansas | Registered: Apr 2012  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Welcome!! I'm headed out the door.. but here is a thread about vibrations:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/121320

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94761 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
gmb
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Gabapentin may help. I take (2) capsules everynight at bedtime. Also try B-6.

Neuropathy symptoms seem to come and go during various stages of Lyme/Babs/Bart treatments.

Some parts of me are tingling/numb, burning hot, and ice cold, during differnt times of the day.

Pre-treatment symptoms were bland compared to present conditions. But at least I now know its the diseases, and stopped going to neurologists and rhymatologists.

gmb

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GiGi
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Per Dr. K. and my own experience: numbness, tingling, burning, ice cold in high summer, cold upper body, warm lower body or opposite --- major cause is heavy metal toxicity.

Check into treating parasites and toxic metals.
EMF and Smart Meter exposure makes vibrations, burning, everything much worse.

http://www.youtube.com/watch?v=b_wxM6IAF1I

There is actually a life after vibrations and mini-earthquakes and freezing skin! Find a doctor who understands this.

Best wishes, gmb.

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sickmate
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I also have it. But it is more painful neuralgia than mild neuropathy unfortunately. My worst symptom.
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Kansasgirl
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Thank you for the responses to my question regarding the neuropathy. I don't seem to have the other symptoms such as numbness, burning hot or ice cold. Just a slight tingling that is very noticeable at night. I'll check into your suggestions to remedy this. Thanks for your help.
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gmb
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Thanks for the well wishes GiGi

I have been experimenting for a few weeeks with Salt C, and taking cloves. Also just started TindaMax for cyst busting, which is also anti-parasitic; and added Chlorella last week as a binder.

I've read Dr K's protocols on parasites, but don't think I should layer it on top of my current ABX regimen at this time. I'm sure mold is part of my issues as well.

gmb

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sickmate
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be careful. tindamax can cause neuropathy or make it worse.
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gmb
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Sickmate,

thanks for warning.... tindamax in my opinion is the most toxic ABX I've taken so far. At this point of my treatment how can anything get any worse?

If this don't improve my symptoms, I have limited options left. I've been on IV rocephin for a year, mepron forever, and a round of Rifampin/doxy last year around this time.

I know this all takes time....

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sickmate
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Im in the same boat. Ive tried all abx on the planet (at least it feels like).

Tindamax made me incredibly worse. Im sure it contributed to the fact I cant take most meds anymore.

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p4lyme
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I wish I had some good advise for you. I am dealing with my 6th re-occurence of my chronic lyme, since 1987. I started having this crazy making symptom about 3 months ago. I knew it was a neuropathy; but I was in denial about having to treat my Lyme again. With all the other symptoms I am having I can't stay in denial. I have a lot of arthritic pain, knee pain, back and neck pain, etc. But right now it is the "vibrations" that are making me crazy. A regular internes I was seeing had no idea what I was talking about when I told them about these "Vibrations" It is much worse (or I notice it more, when I am still or trying to lay quiet to fall asleep. I welcome anyones ideas. I am waiting for my app't with a LLMD.
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Lymetoo
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p4lyme... be sure to click on the link I posted up above

some info there

--------------------
--Lymetutu--
Opinions, not medical advice!

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sickmate
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I can only tell you what is supposed to help for nerve regeneration:

b-vitamins high doses (incl. benfothiamin)
carnitin
vitamin e
alpha lipoic acid
tumeric
boswelia
fish oil
magnesium
lecithin

[ 11-26-2012, 07:21 AM: Message edited by: sickmate ]

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dbpei
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I have experienced these 'vibrating feelings' since my lyme symptoms intensified following hearing loss almost 2 years ago. These sensations were mostly in my head and my extremities (hands and feet).

I recently went off all prescription ABX and started herbal ABX (samento and banderol), which are supposed to go after all 3 forms of the lyme bacteria as well as biofilms.

When I first started these herbal ABX, my vibrating symptoms significantly worsened - and occurred in new parts of my body including chest, shoulders, torso...

This was very frightening for me. They have now almost disappeared in about a month's time of being on the herbs. My guess is that the cyst form of bacteria might be related to these vibrating feelings that we get. That could be why these symptoms worsen with tindemax.

Perhaps the cysts hang out on the nerves? I don't know. But at any rate, I wonder if you have to get worse before you feel better (the worsening of vibrations are herxes?) with this.

I also started chelating heavy metals about 4 months ago, but the increased vibrations did not occur until 1 month ago when I went off ABX and started taking Samento and Banderol.

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dbpei
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Forgot to mention that my 'vibrations' were always more noticeable at night when trying to sleep - or while still (sometimes at computer).
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sickmate
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I also notice my vibrations more at night, but i guess thats because you are distracted from them all day long.
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Littlesprout
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Look at rebuilder machine for nerve pain
My ins coverages it. Not the end all be all but helps over time
I also take lyrica, cymbalta and B1 shots

Posts: 315 | From USA | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
   

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