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» LymeNet Flash » Questions and Discussion » Medical Questions » parasites? (Page 2)

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Author Topic: parasites?
Tammy N.
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Maya - This is all great news! I am so happy to hear your LLMD is on board!!

From all I have learned in my 20 year ordeal, I believe parasites are the primary reason why most of us are ill and cannot get well.

If you are not taking salt/c, I would strongly consider adding this to your protocol.

You are on your way!!!

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glm1111
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[woohoo] Another worm bites the dust. Totally agree with Tammy. Hopefully, more and more people will start treating for parasites.

Adding salt/c will really add to getting these critters on the run. Really encourage everyone who is having success with this to keep posting about it, because it truly can make the difference in someone getting well or not.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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Maya12
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And I am now officially part of he club, I def feel like I am on the right track now and am even backed by my llmd and llnd, you guys were soooooo, right


And thanks for the support Tammy , I am just taking it slowly but will def add the salt c when I can tolerate it

My llmd wants me to go slow as she says treating parasites can be very difficult and I want to at least not totally loose my marbles lol

But will def add the salt c when I can tolerate iT

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Catgirl
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Right on Maya! I am really happy your doc listened and is treating you. Just a heads up on the salt C. There is another post where another member went too fast with it and ended up in a wheel chair. It's on the board right now (salt C). Just go slowly with it.

Thanks Tammy. [Smile]

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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Maya12
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You should have see the dam thing in the toilet there guys, well I know you already have lol

But I just about fell over and then thought to myself screw you worm glad you are dead and out

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Maya12
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And yes my llmd is totally on board , had apparently been doing research on it lately after it was named the number one co infection
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Maya12
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Thanks so much for the help and encouragement guys I really appreciate it
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Maya12
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And thanks so much to Gael , I didnt see your post before
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Maya12
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Hey guys who here has taken allinia ?

What is it like to take it, are there a lot of side effects? Is it hard to tolerate?

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Catgirl
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It seemed to work as well as ivermectin did on me. It wasn't hard to tolerate at all (easy). I didn't have any side effect other than yeast.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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BBinme
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So I will ask again, do you have treat heavy metals at the same time as treating for parasites?
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Maya12
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Yes bb I think you do , or at least should try, the worms carry heavy metals and these metal , I think can be released when killing the worms , so it is good to do both

The best thing to do is get an llnd( naturopath) who can help guide you through the heavy metal treatment.

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Lala
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I have been on diatomaceous earth every day for two years now and I have seen myself some of those nasty macroscopic creatures, so I do not doubt they are there. I only pointed out that microscopic and macroscopic parasites look like they are the same size on lymephotos, which obviously is not realistic.
Btw: DE is good for traping HM too.

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Lala
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Is there anybody who tried DE? If so, what is your experience?
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Maya12
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Can anyone tell me what they experienced with parasite die off, I just have so much body pain today and feel so incoordinated and for some reason I keep having fearful thoughts that my body is totally shutting down on me , that I won't be able to walk or talk anymore.

This is crazy I know but is there any way I am sort of emotionally and physically experiencing what the worms are going through? Can this happen? Is this nutts?

Thought dr k talked about this but I can't remember where.


Also can parasite die off cause brain and body zaps?

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glm1111
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It's not nuts Maya to think that. I remember Dr. K. talking about how these parasites control emotions.

They have evolved over milenia, and are Masters of survival. When a female worm dies it empties out all of it's eggs to hatch a new generation.

That's why i keep emphasizing the extra cloves. I had emotional sobbing for a long time with dieoff and also fearful thoughts. I do believe we can experience what the worms are going through.

I even at some points had empathy for them as I felt them dying. I quickly got hold of myself, because I clearly understood, it's them or me. This is a battle for sure, but one we can win against these invaders.

If you are herxing too hard, you might want to slow down on your tx until the severe herxing stops and then resume. I am sorry you are going through this, but the good news is that you now know the enemy!!

Just know you are on the road to recovery, War is not easy, but you are the General and the Capatain of your ship. [Cool] [Smile]

Gael

[ 01-10-2013, 07:00 PM: Message edited by: glm1111 ]

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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glm1111
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P. S.

Parasites can cause a lot of pain, brain and body zaps. Coconut oil helped me with pain and also was instrumental with killing yeast.

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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Maya12
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Hey Gael thanks so much for all your help and encouraging words above, you always know how to help me.

Can they also cause dizzy spells?

And Gael did you ever experience weakness or in coordination as if your body parts were just not working like you wanted them too or did they feel jellowey and heavy and slow?

Also have a lot of chest pain and muscle tightness today

I have taken a break from the humaworm today

Wonder if I am also hitting babs a bit with the humaworm

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Maya12
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Interesting about the brain and body zaps too and Gael how could you feel them dying?
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Tammy N.
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Well said Gael! So true. I also experienced a range of emotions. And like Gael said, sometimes even empathy for the dying creatures. I love life and respect all life forms, but I quickly had to change my thinking because it was clear to me I was in the battle for my life.

Maya - as best you can, try to walk every day. I think it is very important to keep things moving (especially the lymphatic system). I find it helps the body deal with it all. Also, try to get on board with daily coffee enemas. I can't emphasize this enough. They made treatment completely tolerable for me....almost a breeze.

BB - my advice is to NOT try to tackle metals at this time. Only take binders to capture metals that are released from the dying parasites. If you try to treat metals further....such as chelation, etc., it will cause them to mobilize and circulate throughout your system and can push you over the edge. Binders are necessary. Mobilizing is not at this stage, I would proceed with caution. And, when the time comes, be sure to be with an experienced practitioner who can guide you through.

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Dove7
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Okay, Y'All,
After being placated by my neuro (& many expensive tests), not getting a lot better on abx these last three months, I began to consider parasites. My LLMD agrees.

BTW, thanks to lax mom and Gael, I have been looking at my stools, and I'm pretty sure I passed small liver flukes and some other little white worm-things. How gross...and fascinating at the same time.

Monday I see a local naturopath (in my llmd's office) who will do tons of muscle testing, which I still hold a bit of skepticism regarding, and who will discuss parasites with me.

How did any of you get medical tests/stool cultures done? I realize it's a truly crappy topic, pun intended, but my LLMD said there is one test that insurance will cover and one that is around $170-200 and is more accurate. What did you do, anyone?

Thanks to all of you. Toes days when I begin to once again think I'm just crazy, I get on here and feel I'm not the only experiencing the rollercoasters of these confections (that word was autocorrect's answer to co-infections!).

--------------------
'Hope' is a thing with feathers, that perches in the soul-- Emily Dickinson

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glm1111
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Save your money! I was tested over the years and the tests were all negative. I, however was LOADED with parasites.

Treating parasites after 4 yrs of abx were not getting me well saved my life. See what the muscle testing comes up with.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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LAXlover
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Dove7,

If you do want to do a stool test, try:

Institute of Parasitic Diseases
1-602-955-4211

I had my daughter with "Crohn's Colitis" do this last year. They found Charcot-Leyden Crystals in her sample but no parasites themselves. I've learned that these crystals almost always are a by-product of parasites in the GI system.

I also emailed back and forth with the owner of www.badbugs.org and they have only connected these crystals with ENTAMOEBA HISTOLYTICA. Muscle testing a couple years ago said this and I didn't believe them! Ugh.

After antibiotics, lots of flagyl and herbs and SCDiet, she has no clinical GI symptoms of Crohn's Colitis!

I highly recommend this lab!

--------------------
LAXlover

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pme
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I am so happy about how well everyone is doing on parasite treatment.

I started salt/c about 8 days ago. I am not sure what I am seeing. Could just be undigested food.....I have no idea.

But Gael I have a question about coconut oil. How much did you take to help you with yeast?

I recently added cipro again and am very yeasty for sure.

Also I would like to know how long until you see things in your stool? I know some of these parasites are microscopic but it seems as though many who successfully treated parasites saw some indication that it was working in the first couple of days (or at least the first week)

Also, I feel very constipated......I am drinking lots of water, but this is never an issue for me. What do you do for this and is it a common side effect (I assume the salt is dehydrating).

Thanks!!!!

--------------------
Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009)
Dx with chronic Lyme May 2011.
LLMD April 2012, Treating with omnicef/zith
Lots of supplements!

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jjourneys
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Thank you to all of you! What wonderful information you have shared!

I was just getting ready to ask what anitparasites you were using and what you thought. I'm researching these before my next appt so we can start working on this possible issue. The more I research, I'm thinking parasites could be an issue for me.

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Catgirl
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Dove, I agree with Gael, save your money on the tests. I did one by metametrix. You only select a tiny portion of your bm to put in the vile. The odds of that tiny portion of poop having any signs of parasites are small. Plus, there's a preservative in the vile that messes with the results (saw this on recent ILADS conference).

Tammy inspired me a few months ago (thank you Tammy!). Gael too. [Smile] Tammy used skewer sticks to examine for parasites. That's when I found proof and told my doc. I did this after taking something to drive them out though (salt c & herbs).

So of course, once I had evidence, my doc started treating. I think they need evidence for insurance purposes and or medical boards.

Pme, I started seeing stuff after a few days of salt c and herbs. I think constipation is common with parasites. I get more constipated the more I treat. Sometimes I have to back off a little. But you can always do coffee enemas or extra mag citrate to relieve this. More leafy greens helps too.

The coffee enemas are great. But I have a gallbladder issue, so I have to back off of them right now.

Maybe the constipation is due to a bunch of worms that are fighting to live. Maybe they've collected in an area where they like to hide, or have just pooled together for protection. I'm not really sure, but the clock is ticking for them.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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BBinme
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Tammy, what do you take to bind metals?
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Tammy N.
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Catgirl - you're welcome:) I'm so happy to have played a role in helping you take the plunge.

BB - my binder of choice would be Chlorella (per Dr. K.) but I have issues with sulphur and I'm not able to handle it right now. I currenty take microsilica. Occassionally I add in Apple Pectin. Also sometimes EDTA suppositories (when my doc ART tests me for it.)

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pme
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Catgirl Thanks

I wonder if the salt itself may cause constipation

For some reason coffee enemas send me over the edge.....just can't do them I feel awful afterwards. I wish i could use them since so many people say that they benefit from them.

Just am not sure what to look for...unless it is very obvious as in Maya's case!

--------------------
Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009)
Dx with chronic Lyme May 2011.
LLMD April 2012, Treating with omnicef/zith
Lots of supplements!

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glm1111
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The sea salt should act as a stimulant. Higher dose Vitamin C will also flush out the colon in higher doses up to 10,000 mg.

How much salt and C are you taking? You might benefit from one of the herbal cleanses such as Parastroy. As far as coconut oil, I started with 1 tsp and increased it according to how I felt.

P. S.
Parasites themselves can cause constipation. You don't have to do coffee enemas to get results. Warm water enemas are just fine.

The pressure of the water usually will stimulate and flush out any parasites sitting in the lower colon.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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CD57
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Maya I have had a lot of symptoms like yours and haven't gotten much progress on abx with BB and co's, and am about to start the Dr K med protocol (keep putting off, chicken!). I have had vibrations, anxiety, weird mood stuff, cognitive, depersonalization, tremors, pain, etc. I have gone through phases of feeling pretty good on something and lose ground/progress. I have seen "the best" LLMDs and they would always shake their head and say something else was going on, but they couldn't say what.

I have blown off parasites as a possibility b/c of the denial stuff that is posted here. But now I think it's a real possibility as I grew up riding horses and with cats, dogs, and birds.

What is interesting to me is that for Tammy and Gael, etc...they tested and treated for Lyme and co's but apparently their symptoms were actually from parasites....or perhaps their symptoms were Lyme and cos but parasites blocked successful treatment?

Anyway, I have hope for both of us. All of us! You remind me a bit of myself in the early days when my CNS was on high-alert and my adrenals were over-firing. It will get better!

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Maya12
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hey guys , what do tapeworm eggs look like and how big are they?

can they be big enough to be visable by the eye?

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Maya12
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And thank you cd57 , I didn't know you had many of the same symptoms as me, I hope parasite treatment helps you

Can parasite die off cause a lot of numbness and tingling in the hands and feet/ skin?

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CD57
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Maya, also please post more about your aunt's success with this....30 years of treating Lyme bart babs ehrlichia?
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Maya12
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Hey cd 57 , yes all I do is herx and either not get better or just get worse on Lyme and co meds

Also my aunt has likely had Lyme and co for 30 years but was only diagnosed 2 years ago, she has only treated for parasites and heavy metals so far over the last 2 years and is doing so much better now

She has not even treated Lyme and the other cos yet

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RZR
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Same story here.....constantly herx on abx and not get any better.

Why would we continue to herx if major problem is parasites, which I definitely know I have.

--------------------
Tick bite May 2009
Diagnosed June 2009

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CD57
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RZR I don't know....I hope someone will come along and answer that. I wonder if it means that the treatment is somehow blocked from being successful but enough to produce an immune response, which are the symptoms/herxing? It could also be toxins not clearing out which some say are the same as actual disease symptoms.
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Maya12
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My llmd told me that parasites hold the bacteria in them so even though you are killing what is in the blood with abx you are not killing the bacteria in the parasites

They also encourage yeast growth and hold heavy metals and apparently even the yeast hold bacteria that you just can't get at with the abx

I don't know if this is why we constantly herx though but I hope by getting rid of some of the parasites and yeast this will take some of the bacteria with them

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CD57
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Maya, I thought you were starting to improve on Mepron/zith for babesia?
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Maya12
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well at first i was doing ok on the mepron and zith combo and then got much worse and have never gotten back to feeling the way i did in oct, so this is why my llmd and i are looking at diff treatment options

i wish it had helped more, at least i am having some sort of better times on the humaworm

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lax mom
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I'm set to start my second round of Pyrantel today...thank goodness!

I felt like I barely made it to this point.

Parasite warriors, please pray that I make some major gains!

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glm1111
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lax mom

[group hug]

Did you ask your doc why he had you take such a long break from the parasite meds?

Gael

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lax mom
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I was in such a fog, I forgot to ask. I did ask what my entire parasite treatment would look like, she said she didn't know at this point.

I'm so glad to see that we have a whole parasite thread going now!!!!

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glm1111
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I agree about having a parasite thread. We should keep it going for support and options. It's really important so those that are still chronically ill can see the progress made with antiparasitics when nothing else works. Good luck with your tx. Keep us informed.

Gael

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PARASITES/WORMS ARE NOW
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Maya12
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i am really glad about the parasite thread too since this is what i am concentrating on right now.

good luck lax mom with the paryntel, i really hope it helps again

i would love to hear some feedback on how you do on this since for the next 2 months i am on the humaworm and then switch to albendazole and ivermectin

and Gael thanks again for all the help you have given me

lets keep this thread going, i also think it is really important too

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Catgirl
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I am really happy we have a thread now. Lets keep it going!

Maya, it sounds like you have a great doc (good for you!). :)

I really like your doc's explanation about yeast, bacteria (quote below). How does your doc propose getting rid of the bacteria? I'm not on abx.

"so even though you are killing what is in the blood with abx you are not killing the bacteria in the parasites"

Thanks for mentioning the warm water enemas Gael (I forgot about them).

Lax, hang in there!

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daynise
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I am waiting on humaworm. The company says it's backordered or something. But I am upping my Salt/C as of yesterday.

Got a little scared with the severe diarrhea from the first doses of Salt/C (was doing only a 1/2 tsp of salt and 1000mg of C!) and so I decided to wait to up the dose.

Today(after doubling the dose yesterday) I woke up with more clarity and so much less pain.

Yesterday I was suicidal. Today I am hopeful.

How slowly do you take this? Is it still effective if I wait a couple weeks to increase each dose?

Did you guys who've been through Salt/C go up and down as you go through this or did you just feel better and better?

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Maya12
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yes i really love my llmd, she always seems to be on top of the newest research and very open to trying new treatments or changing protocols when something doesn't work

i was wondering the same thing cat girl, but while on the albendazole and ivermectin i am to be on bactrim Ds and then Doxy , so i guess this will help to cover the bacteria problem

once this is done i then follow with alinia

also i am to stay on a low dose of iver pulse for a long time, indefinatly apparently

i will also be treating yeast at the same time and working on chelation of heavy metals with my llnd

hope this answers some questions

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Maya12
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hey daynise , please hang in there, i have been there many times myself but somehow i have mnaged to have 2 somewhat okay days in a row recently which i have not had since sept , oct

don't want to jinx myself but i do have some hope today

also noticed my eyes are less blood shot today than they have been in years and the pinples on my back are strting to clear and my brain is slightly clearer and my mood slightly better

i actually feel sort of like i am in reality today and not on an lsd trip with obsessions and anxiety like usual

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daynise
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Thank you Maya. I'm so glad to hear you are feeling better and clearer. It makes me feel hopeful too to see other people on here feeling better!
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glm1111
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daynise,

Having diarrhea after only 1/2 tsp salt/c is from dieoff and is a very good sign that you are killing stuff. Coconut water is also excellent for everyone because it is antifungal, and antiparasitic and high in potassium to balance out electrolytes.

Adding EXTRA cloves (Hanna Kroeger clove caps) is a good idea also to kill eggs and larva. (2 at each meal.) It is also antibacterial and good for pain. BTW,Sea salt kills bb and the cyst form.

RAMP UP SLOWLY WITH SALT/C!! Wait until the herx calms down and then only increase 1/4tsp each day as tolerated.

Ordering the e-book on salt/c is the best thing to do as it is a very helpful guidline. Sorry, I don't have a copy.

Good Luck everyone!!

Gael

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PARASITES/WORMS ARE NOW
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daynise
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Thanks Gael!

Increasing 1/4tsp as symptoms allow sounds like a very good and tolerable plan.

Also will add some cloves to my diet-
Is coconut milk also high in potassium? (I have some of that in the fridge already)

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Maya12
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hey guys, this may sound wierd but does anyone, while killing parasites ever get feeling introspective?

when i say this i just mean about examining life, like why do we think the way we think or why do we choose to do what we do

it is almost like assessing life more phylisophically and thinking about what makes a person a person and how do we really know who we are or what makes us who we are

it is almost like when healthy i just knew who i was and took that for granted but now after this illness question who i am or why.

it's like my brain gets caught in loops of questioning things that i can't necessarily find answers for, is this just part of the ocd thinking and anxiety from killing these critters

i also get flashbacks of memories when i think this way

i know it has to be part of a herx because on the days that i don't take the humaworm , i don't think this way.

just wonder if anyone else has anything like this?

perhaps it is my brain coming to life and thinking again but it kind of scares me so i don't know

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Maya12
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i have never liked to think phylisophically and liked to live in the moment and focus on simple things when i was healthy

it always scared me to think of the bigger picture, so i wonder if this is just my brain misfiring and my ocd flaring from killing the parasites

it is funny though because on the days off meds i can just be more in the moment

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Maya12
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I know this sounds crazy but sometimes it makes me think that the bugs that I am harming try to twist my thinking and scare me into stopping the humaworm

I say this because when I back off the humaworm this pattern of thinking goes away so it is like the more they throw at me to make me feel like crap, I in turn get scared and then want to back off the killers to make the thoughts and feelings go away.

Is this nutts? Can the bugs flare and cause more strange symptoms when trying to kill them to get you to back off the killers ( humaworm)

Can parasites really influence your moods and thinking this much?

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glm1111
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I have had similar thoughts about the bugs contolling our thoughts. The owner of lymestrategies (salt/c) said not to worry about the dark thoughts because it's the bugs causing the mental changes.

I don't know the intricate mechanism of what occurs in the brain, but I have felt that the bugs cause thoughts to make us back off meds etc. If more than one person thinks the same thing, there probably is some truth to it.

I have had wild visions when thinking of opening a can of soup that the can was vicously slicing my hands and causing them to bleed. The parasites have caused me to have REAL cuts in my knuckles. Interesting.

Maya,

I think you are very intuitive to be aware of these possibilities. [Cool] [Smile]

Gael

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Maya12
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Hey Gael what do you mean , did you envision cutting yourself and then accidentally did , or had cuts on the knuckles for a totally different reason?

Also thanks for replying to this and thanks for calling me intuitive , lol

I also get those types of visions and my aunt who had Lyme and co had the same thing, visions and that sort of thing

Do you now feel it is you fully doing the thinking and no longer the bugs? Do you have these types of thoughts or visions anymore or are they now gone?

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glm1111
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Your welcome Maya. The cuts and bleeding knuckles were seperate and early on in tx.that actually occurred. The visions came when I was taking antiparasitics and were absolutely violent and came only when I thought about opening a can.

It was like the sharp lid was the parasite cutting my hand. I never though about cutting myself. Thinking back on it, I am sure it was the parasite fighting back and trying to hurt me,

I am a pretty rationale person, and have given this lots of thought. These parasites are fighting for there lives, just as we are fighting for ours.

Make NO mistake, this is WAR!. I often felt that I was trying to slay dragons. I am a strategist, so I put lots of thought into the tools I can use to get rid of the invaders.

Example: Drinking milk (they love milk)to keep these critters in the gut and then attacking them with salt/c and herbs. This is not just my strategy,

I have read GiGi posting the same thing about the milk esp during a full moon. There are some docs that give sugar along with abx to make the bacteria eat the sugar which they love and then eat the poison of the abx.

Gael

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lax mom
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Ok, guys...I'm going to be honest...I'm scared to take the Pyrantel tonight.

I know it's silly because I already went through one 14 day round.

I feel so crappy and weak...and I know the pyrantel zaps my energy...so I've just gotten apathetic and don't want to do anything that will make me feel worse.

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sillia
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Lax mom, you might consider waiting until you are feeling more up to it...? I take breaks between my parasite meds because even at low doses they do tire me out. I want to get rid of the bugs, but I also don't want to spiral down into exhaustion.

Maybe you've already written somewhere about your dose but if what you were taking really drains you, maybe take a smaller dose?

My hope is that every little bit I do is reducing the overall "load" of parasites. Gradually the load will get smaller and smaller and the herxes and fatigue symptoms will be less troublesome.

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Maya12
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That is so crazy that you have felt the same way about the bugs controlling our thoughts and even creating visions

It sounds nutts but I sometimes feel like I am , with my rational mind , battling against the thoughts the bugs create , almost like having 2 minds , my own and the thoughts I battle against that I KNOW are not my own or not what I would normally think or feel or act

The thoughts that are not my own are the stupid deep dark thoughts but my rational mind realizes they are wrong

I know this sounds crazy but I am not crazy

I recognize that when I fight them more it is like they fight back more but I also know that to regain my body they need to be gone

This is just very interesting that others have experienced this, is it the bugs controlling our thoughts that causes the depersonalization


And I have been finding that the more I fight to kill over time I feel like I am starting to return to more me doing the thinking , not the bugs

Hope I don't sound too crazy

Also lax mom I know it is scarry but how will we ever get back to being ourselves otherwise

I get really scared too but think of what dr. K said we fight against what we need the most , so in theory your fear is telling you this is what you need the most

And Gael are you now in control of your own mind? Do you feel you are yourself again? Are the dark thoughts and visions gone now?

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glm1111
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lax mom,

Wondering if you might do better on the herbs and salt/c. Both nourish the body, fight infections and support the adrenals. The pharma meds are hard on the liver and are just used to kill.

TammyN said that the herbs and salt/c work as good as the pharmas. I know this is what your doctor wants you to do, but this is something for you to consider. Sometimes we have to take charge and drive our own ship. Up to you of course. [Smile]

Gael

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PARASITES/WORMS ARE NOW
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glm1111
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maya,

The dark visions are 99% gone!!I am much stronger now and aware of what's going on.

Gael

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lax mom
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sillia: when I took 1 pyrantel at night, I was fine...then when I went up to the prescribed 2 pills/night, it wiped me out...so maybe I will start off on 1 pill/night again. (It would be really more bearable if the whole 14 days were just 1 pill/night).

Does anyone know if 1 pyrantel, 500mg, would be effective enough? or would that does be too low?

Maya: yes...I do need parasite treatment the most. Dr K is right about us fighting what we need the most.

Also, I read soem of your previous posts, you sound a lot like me...I have lots and lots of anxiety and neuro symptoms. I hope the parasite treatment gets both of us where we have some peace of mind.

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lax mom
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Gael: the herbs made me feel weird. I need to look into Salt/C, but haven't had the brain energy to do so.

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lax mom
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Do you have to order the book to do Salt/C correctly?

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Maya12
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Hey lax mom that is interesting that we have many of the same symptoms , we will have to keep in touch on how we do on treatment

What symptoms have you had

Sounds like our experiences with meds have been similar too

Please keep going

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lax mom
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Maya: Goodness gracious...before my Lyme diagnosis, I was diagnosed with every anxiety disorder under the sun. My twitching and sensitivity to light and sound were called PTSD.

I had derealization which made me feel like I truly was going crazy.

My total exhaustion was called "hypersedation" and I was told I was depressed even though I kept telling the Dr's I wasn't depressed, just exhausted.

Had I not started having fevers last year, I would have kept on accepting that I must be depressed and anxious.

I now know that my teeth grinding is also a parasite symptom.

For me it seems like the bacteria, parasites, and everything else like to go to my brain and nervous system.

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daynise
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hi guys, is skin itching a normal die off symptom?
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nitsuj1225
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Hello. I am so glad I found this parasite thread as I feel this could be the key to getting better.

My story short...bitten by tick as a teenager, experienced joint problems and parecarditis (sp) symptoms regularly for years. 2 years ago started neuro symptoms (anxiety, migraines, tinnitus, visual snow, tingling in feet and head pressure). Had ct scan and MRI of the brain that showed nothing so I went to an llmd where I was dxed with bartonella, Bio film, protozoa, mycoplasma. Lyme was inconclusive but my doc was fairly certain I had that too. Started treatment Oct 2011...have been on minocycline, plaquenil, tindamax and biaxin at various points for at least 6 months at a time as well as dozens of supplements. My initial herx was rough as I was bed ridden for 2 weeks but I was under the impression this is a good sign so I was hopeful we were on the right track.

Fast forward to today and 2 weeks ago I had a migraine and parecarditis symptoms within a day of each other which I haven't had since I began treatment. For the past 2 weeks I feel like I did during my initial herx when I first began treatment. My mildly blurry vision has turned to moderately blurry vision as it seems like the visual snow is a lot worse since this last herx. My blurry vision/floaters are 24/7 for the last 2 years and I feel if I can get rid of that then I would feel semi normal. My blurry vision has never improved while on treatment and neither has the tinnitus so I was wondering if anyone that has treated parasites has had a reversal of the visual symptoms (blurry vision, light sensitivity, floaters, etc)? It was so disheartening recently to have my vision get worse as I thought I was on the right track which brought back a ton of anxiety as I'm sure everyone here is familiar with.

I'm seriously considering starting salt/c protocol to see if this can be the treatment to get me over that plateau. Also read these posts about enema/suppositories being effective. My question is what should I start at when I begin the salt/c? I don't want to herx too bad so I would like to work up slowly. Also, I'm leaning more towards suppositories as its more convenient so I was wondering if that is a waste of time and just go with the enema or if that helps alone? And which suppositories are the best and where can I buy them?

Thank you for reading and providing me with any information you can.

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Tammy N.
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lax mom - you may be surprised and find you have a totally different experience this time around. Our thoughts can often affect our outcomes. Try not to expect to not feel well. Think of those of us who did great on these meds and actually started to feel better.

And if you get tired, rest. You are on the right track!

Friendly reminder - (daily) coffee enemas can greatly help you along the way.

God bless.

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lax mom
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Thanks for your encouragement Tammy!

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dogmom2
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what would be the gentlest way to start treating?the paranix tried years ago gave me IC symptoms, and I didn't even tolerate very small doses of even buffered c, for the salt c, too much gi burning.

Even though my stool test was neg.,I know I have them as i saw what i now know were liver flukes(looked like curled up pieces of tomato skin) when i did the prep for a barium test

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glm1111
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daynise,

Itching can def be a dieoff symptom. There are parasites that are hiding under the skin. Always check the parasite symptom list because the dieoff symptoms are often the same as the symptoms you had before tx.

Also, while coconut milk is very beneficial, the coconut water has different benefits. Google it.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
glm1111
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[QUOTE]Originally posted by nitsuj1225:

Breaking Up For Easier Reading

WELCOME TO LYMENET


Hello. I am so glad I found this parasite thread as I feel this could be the key to getting better.

My story short...bitten by tick as a teenager, experienced joint problems and parecarditis (sp) symptoms regularly for years.

2 years ago started neuro symptoms (anxiety, migraines, tinnitus, visual snow, tingling in feet and head pressure).

Had ct scan and MRI of the brain that showed nothing so I went to an llmd where I was dxed with bartonella, Bio film, protozoa, mycoplasma.

Lyme was inconclusive but my doc was fairly certain I had that too. Started treatment Oct 2011...have been on minocycline, plaquenil, tindamax and biaxin at various points for at least 6 months at a time as well as dozens of supplements.

My initial herx was rough as I was bed ridden for 2 weeks but I was under the impression this is a good sign so I was hopeful we were on the right track.

Fast forward to today and 2 weeks ago I had a migraine and parecarditis symptoms within a day of each other which I haven't had since I began treatment.

For the past 2 weeks I feel like I did during my initial herx when I first began treatment. My mildly blurry vision has turned to moderately blurry vision as it seems like the visual snow is a lot worse since this last herx.

My blurry vision/floaters are 24/7 for the last 2 years and I feel if I can get rid of that then I would feel semi normal.

My blurry vision has never improved while on treatment and neither has the tinnitus so I was wondering if anyone that has treated parasites has had a reversal of the visual symptoms (blurry vision, light sensitivity, floaters, etc)?

It was so disheartening recently to have my vision get worse as I thought I was on the right track which brought back a ton of anxiety as I'm sure everyone here is familiar with.

I'm seriously considering starting salt/c protocol to see if this can be the treatment to get me over that plateau. Also read these posts about enema/suppositories being effective.

My question is what should I start at when I begin the salt/c? I don't want to herx too bad so I would like to work up slowly.

Also, I'm leaning more towards suppositories as its more convenient so I was wondering if that is a waste of time and just go with the enema or if that helps alone? And which suppositories are the best and where can I buy them?

Thank you for reading and providing me with any information you can.
[/QUOTE

Easier for us with neuro Lyme to read so we can help you.

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
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