lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
my pain has become uncontrollable lately
i know from the past i respond to anti-inflammatories-high does ibu or torodol is best-but im getting worried about gi and kidneys etc so i have been trying to replace ibu with herbs/supps
i also used to need neurontin occassionally for specific nerve pain...but i have given int and take it everyday now. only 300mg and at a special time because i cant drive with it
i cut the ibu from 3200mg a day to 1200 a day by adding 6000 fish oil
i still need more help
i figured out curcumin doesnt hurt my gi and i am so happy
the bottle says 1-3 625mg pills a day
im wondering how much you take and what would the highest dose that is ok be? thanks
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
The max dose on the bottle is a safe amount. I have used twice that amount for a few months without a problem, but I do not know at what point is too much.
Astaxanthin is a powerful antioxidant and antiinflammatory supplement. It may be a good addition to the mix.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thanyou---so curcumin does reduce your pain?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
posted
Just wanted to share that changing my diet greatly reduced my pain. 85% at least. I stopped eating all night shade vegetables: potatoes, tomatoes, all red and green peppers and eggplant. These foods were extremely inflammatory for me. I also don't eat any peanut products for the same reason.
You might pay attention to what you eat and how you feel. Hope this helps you feel better.
Wishing you well Heather
-------------------- Lymer since 89 Namaste Posts: 52 | From Fort Worth Texas | Registered: Jan 2013
| IP: Logged |
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I do not have Lyme, but inflammation from Crohn's disease. If I stop taking the various antiinflammatory supplements I can feel a lot of age related aches and pains.
Curcumin, Ginger, and Krill oil were staple supplements for my wife while I treated her Lyme Disease. I believe they made the pain more manageable and also helped improve treatment results.
Inflammatory foods do affect people in a negative way. Tomatoes really affect me negatively and I do not have Lyme.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
| IP: Logged |
posted
I take 500 mg twice a day along with 10 grams of msm twice a day. If I miss those two supplements, it gets ugly.
My integrative doctor said I could even go up on the msm as it is very safe, if I needed more.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thank you
i stopped nightshades a long time ago for a long time and didnt notice a difference
i also didnt notice a difference with msm
but-fish oil and ibu and torodol or ketoralac after surgey changes my life...i almost like surgery cuz i get those few pain free days after ffrom the meds
im really glad nothing bad is happening from the curcuman-i was afraid of it for somme reason...i will build it up
i wish i felt a difference with the msm and nightshades ---but i dont. and it is so clear to me when something helps...i go from being able to walk without help to hanging on to furniture to get to my wheelchair...such a difference.
i did eat quinoa for the first time and was kinda disappointed...ive been all excited about using it to replace my oatmeal but i think maybe i didnt cook it enough---it was really hard...i'll try again.
in the next few days i am going off gluten, dairy, peanuts, sugar, -and 3 more things...cant remember . its late. off them for 3 weeks-then add them back one at a time to see if i have a reaction.
thanks for your help
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Dare I ask if you are going after parasites Ip? They can cause excruciating pain when left untreated. Just thought I'd ask. P. S. Coconut oil can help a lot with pain and is antifungal of course. Hope you get relief soon.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
not yet on the parasites. really feel like i need the house in better shape...im getting there
the pain really is the one that i think i got from lipitor and it got much worse a month ago when a PT gave me a cortisone treatment
it does respond to ibu...but i worry about gi and want to find subs for that
i have done huma worm a few times and another one you suggest and there are some things i do that make me see them more...so many things to deal with
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96063 | From Texas | Registered: Feb 2001
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thx-i have the same curcumen as you tutu
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
To see benefit from MSM requires high doses.
My DH was taking as much as 8,000mg/day before he saw enough improvement in his joint pain to enable him to exercise again (he does not have Lyme, at least, we don't think he does, LOL!).
I've been experimenting with essential oils and have found Copaiba oil applied to my hot, swollen painful hip works magic. The severe pain disappears instantly.
I did not expect the oil to work so well, but have been amazed. And the effects are lasting.
I also use Nettle Leaf powder - if I forget my dose of nettles, my hands become so stiff and painful I cannot use them for anything.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
| IP: Logged |
posted
Razzle, thanks for posting copaiba oil for swollen hip pain. I wake up every morning at 3:00 -4:00 a.m. with pain in the hip? I also have cramping in the buttock muscle. I am going to try it.
Posts: 620 | From Ks | Registered: Oct 2011
| IP: Logged |
posted
I hope you are getting it as cheaply, kayak!
- Copaiba oil .. Where exactly do you apply it? I think I'm having hip pain ... not sure where to put the oil!! I will order that one next. I have peppermint and lavender.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96063 | From Texas | Registered: Feb 2001
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
yeah tutu-you told me where to get it
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
I drink Oat straw infusion. It is a really great anti-inflammatory and doesn't taste too bad. I use 1/4 cup of Oat straw to 1 quart of water. I boil the water and pour it over the oat straw in a 1 quart mason jar. Seal it up and let it sit for 4 hours or overnight. Then strain off the herb and drink it. You can add 1 tbs of peppermint leaf for flavor. It has helped me a lot.
I also use lavender oil. I sprinkle it in my sheets about an hour before bed. Just a few drops. It is a natural pain reliever and a relaxant. Helps me sleep well.
-------------------- Lymer since 89 Namaste Posts: 52 | From Fort Worth Texas | Registered: Jan 2013
| IP: Logged |
posted
Peanut products cause bad inflammation for me. I totally stay away from them. I think it is good to eliminate possible inflammatory foods and then re-introduce them one at a time to see how they effect your body. I did that and that's how I found out what foods hurt me.
-------------------- Lymer since 89 Namaste Posts: 52 | From Fort Worth Texas | Registered: Jan 2013
| IP: Logged |
posted
D Bergy, Thank You for mentioning Astaxanthin. After researching the product, it sounds amazing! What strength do you take daily and what brand?
Posts: 964 | From san diego | Registered: Oct 2009
| IP: Logged |
quote:Originally posted by lpkayak: thx tutu-i would love that. i think im gonna start buying more food thru the net. our healthfood stores are ridiculous with the prices.
i cant afford almond butter at all anymore and it is my favorite [/qb]
- I buy most of my stuff at Vitacost or Swanson's Vitamins. I love the NOW brand and Swanson's has most everything I need.
posted
I get bulk turmeric at the healthfood store and dip capsules in it. I take them throughout the day and notice joint swelling relief within the hour.
Posts: 13101 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
Robin.. How much do you think it costs you per month? Do you have any idea of how many mg that is per capsule?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96063 | From Texas | Registered: Feb 2001
| IP: Logged |
annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
Read reviews of serrapeptase at iherb and at amazon. It is an enzyme that literally EATS inflammation and helps many with pain. Very impressive reviews at iherb and amazon on MSM and serra peptase .
I have better knees and sinuses with serra peptase and I just started it . It also has helped people with clogged arteries , which is profound , and adhesions and scar tissue.
It has been used by some for biofilms, and I definitely herx some with it ! However , no cure for lyme yet! I read many reviews of people who felt far better with pain after using it .
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
| IP: Logged |
posted
[QUOTE]Originally posted by Lymetoo: [QB] Robin.. How much do you think it costs you per month? Do you have any idea of how many mg that is per capsule?
I haven't really paid attention to cost, since it's not that expensive for a bunch of bulk turmeric in a bag, nor are the capsules. I'd say on the scale of what we can be dealing with here, it's the el cheapo way to go...
As far as amount, no idea - I take whatever amount makes a difference in alleviating my joint swelling symptoms, which is one average capsule dipped in turmeric. Not very helpful, I know, but it's like cooking - season according to taste...
Posts: 13101 | From San Francisco | Registered: May 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Wink]](wink.gif)
Printer-friendly view of this topic