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» LymeNet Flash » Questions and Discussion » Medical Questions » * Top 10 * new treatments that worked for you?

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Author Topic: * Top 10 * new treatments that worked for you?
dan67
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I'm wondering if everyone can share the top 10 new treatments that have worked for them over the last 12 months or so. Here's my thinking.... if a dozen or so people post their top 10, that would be a total of 120 treatments listed out... will help us all to get NEW TREATMENT IDEAS! Here are mine:

1) Dr. K parasite drug protocol
2) Rife / MRS 2000 / Bionic
3) Nutramedix products
4) Mercury chelation
5) Tinidazole
6) Exercise!
7) Addressing adrenal fatigue as explained in Strasheim's book "Beyond Lyme"
8) Dr. K's pyrolouria treatment
9) B vitamins
10) Paleo diet!

(If you only have 5 instead of 10, please share!)

Thanks!

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Haley
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1) Parasites (ivermectin and others)
2) iMRS (magic mat)
3) Raw food diet - making medicine with my Blendtec blender
4) Exercise
5) Prayer

Can't say these are in a specific order.

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blinkie
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1. Parasite (ivermectin #1, biltricide, alinia)
2. Dhea, progesterone cream (helped sleep, painful, irregular menstrual cycles)
3. Digestive enzymes
4. Nystatin/itraconazole(for yeast)
5. Funding a hobby I love to get my focus off lyme

These are current but I did two years of Orval's plus two years of Iv abx. The best one Iv was vancomycin. That 4 Years was invaluable to my wellness.

[ 03-10-2013, 12:56 AM: Message edited by: blinkie ]

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lyme987
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1. Rife
2. Upper Cervial Work (realigns brain and nervous systmem)
3. Detox
4. NMT (Neuro Modulation Technique)
5. Inhaled glutathione

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LSG Scott
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salt and tumeric in a 3 to 1 salt to temeric ratio

--------------------
LSG Scott

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kimmie
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Great thread!!!!

1). Photon therapy
2). Treating KPU
3). Gluten free
4). LDN
5). FIR sauna

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Haley
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LSG Scott - can you expound on that. Tumeric - 3 parts and salt 1 part? Is that correct?

How much do you use?

I should add to my list diegestive enzymes and serrapeptase.

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springshowers
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1 Detox Detox Detox
2 Parasite Treatments
3 Diet
4 Rife
5 Heat
6 Exercise
7 Integrative Treatment Technique*
*If Antibiotics are necessary make sure your doing just as much of the supportive therapies you need for your immune system and detox. Preferably in a professional setting because they have the equipment we can not afford.
Detox detox detox detox.

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CD57
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Can people specify what they mean by detox -- is this addressing the MTHFR gene?
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surprise
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Bicillin injections 2x a week for 6 months.

Tindamax 2 weeks on/2 weeks off 6 months+

Levaquin

Parasite treatments

Gluten free, healthy eating

Yeast treatments

Samento and Bandeol, HH2 capsules, Byron White herbs

Doxy and Biaxin

Quality high dose curcumin, quality high dose probiotics, milk thistle.

Sweating through Epsom salt baths, circulation with walking

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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Catgirl
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Great idea Dan!

Finding a really good lyme specialist
Balancing yeast with probiotics, s.boulardii, herbs, diflucan, compounded nystatin and rotating yeast products (I needed way more probiotics than I was originally put on).
Parasite treatment (iver, alinia, bilt, salt/C)
Energy testing
Amalgam removal
Coffee enemas
Exercise every other day or 3rd day (light weights)--this is by far the best detox I've used
Reducing fat (lower fat than I was eating)
Adrenal support(dhea, adrenal herbs)
Byron White herbs
Rotating herbs (on same herb no longer than 3 or 4 weeks)
Enzymes

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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droid1226
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So only two entries where anyone even mentioned antibiotics.

I haven't found much that has worked but I got back to 50% better on hardcore IV antibiotics and am trying parasite treatment now. But as far as feeling better my list is:

1. Levaquin
2. Lemon(whole)/Baking Soda mix
3. Eating carbs again
4. Yeast meds Diflucan/Nystatin
5. Coffee Enemas
6. Rhodiola
7. Avoiding Gluten/Sugar


Things that I felt did nothing:

1. All types of Glutathione. IV, Trans, and inhaled
2. Bicillin
3. Doxy/flagyl (oral)
4. Amalgam Removal

--------------------
http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

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Razzle
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1. Getting rid of mold in the house
2. Flagyl + Andrographis
3. Progesterone support
4. Molybdenum
5. Vitamin B12 shots once a week (instead of less often)
6. Exercise
7. Making my bed more comfortable (so I can actually sleep in it)
8. Finding a biological dentist who is actually worth going to!
9. Avoiding potatoes
10. Home improvements - cleaning up piles of junk, fixing the broken dishwasher, etc.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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sixgoofykids
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In no meaningful order, and not in the past 12 months as I've been well for a few years and haven't treated in the last 12 months:

1. Bionic 880 photon treatment
2. Eliminating mold
3. Treating parasites
4. Fermented foods for the gut
5. HCl for the gut (Thorne Biogest)
6. Diet - plant based with meat/eggs/dairy, but mostly plants, and this was impossible at one point due to gut damage
7. Exercise - pilates specifically did more for me than weightlifting because it reaches the deep muscles
8. Vitamin D levels
9. Paying attention to adrenal fatigue (there are great websites with info on combating adrenal fatigue)
10. Rest/sleep

--------------------
sixgoofykids.blogspot.com

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anuta
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1. Learning how to test energetically
2. Photon treatment with homeopathic nosodes
3. KPU treatment
4. MFT, EFT, tapping

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Robin123
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My current top treatments:

*Turmeric capsules = anti-inflam (joints, soft tissue)
*Drinking mangosteen juice = anti-inflam (eyes, intestines)
*Taking Armour thyroid tablets = "more present"
*Taking Vitamin D drops = more perked up
*Detoxing every 5 days in a portable sauna tent = getting less chemical-sensitive)
*Taking Vitamin C powder capsules = keeps me from getting bugs all the time

Previously, I'd have to say oral clindamycin abx kept joint and soft tissue pain at bay for 5 years.

Also, drinking noni juice and taking grapeseed extract capsules stopped lipomas.

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Lymetoo
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1. Treating yeast
2. Drinking Xango, taking curcumin
3. Using essential oils
4. Being gluten, dairy and sugar free
5. Avoiding all nightshades and GMO's
6. Rifing
7. Amalgam removal
8. Making and eating fermented veggies
9. Rest
10. B12 shots

PS .. Exercise is extremely important. I'm unable to exercise right now due to foot issues. I know it kept me going for sure!!

[ 06-08-2013, 12:57 PM: Message edited by: Lymetoo ]

--------------------
--Lymetutu--
Opinions, not medical advice!

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WPinVA
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This is a great thread! I'm not all the way there yet, but:

- yoga
- detox - Nutramedix products plus dry brushing (never felt Epsom salt baths did anything)
- sauna
- addressing adrenal fatigue through supplements and lifestyle
- energy supplements - NT Energy, COQ10
- addressing MTHFR mutation
- thyroid meds - these were HUGE
- abx - there is no way I would have gotten to this point without abx - I was just too sick.

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Lymetoo
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Yes, abx! I did 4 long years of that!

--------------------
--Lymetutu--
Opinions, not medical advice!

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kimmie
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Up
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daphnesmom1
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What did you all take for adrenal fatigue?

--------------------
"Yeah, I miss me too."

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Dekrator48
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Doxycycline

Bioidentical Hormones

Regular exercise at a gym

Sugar free, gluten free, dairy free, soy free diet

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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dan67
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Has anyone else recovered from adrenal fatigue to the point that they can do cardio exercise again? I used to be able to do a lot of cardio, but after some stressful events, my cardio tolerance has dropped to almost zero.
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sixgoofykids
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quote:
Originally posted by dan67:
Has anyone else recovered from adrenal fatigue to the point that they can do cardio exercise again? I used to be able to do a lot of cardio, but after some stressful events, my cardio tolerance has dropped to almost zero.

Yes! I prefer sprints to long ended cardio, but I can do whatever workout I want.

--------------------
sixgoofykids.blogspot.com

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Ellen101
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Systemic enzymes!!!
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kaybabalima
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I'm taking the Detox and Lyme formulas from Byron White. Apparently there are layers of illness that need to be "unraveled" so I have also taken the parasite formula and lots of antioxidants, water, green smoothies etc. Trying to unravel the mystery that many doctors don't even understand. Byron WHite is giving another public teleconference this month on Radiation. Which also effects those of us fighting other illnesses. It will be on April 24 at 5:30. You have to sign up on their website so they can send you the number to call. They don't sell to the public so the teleconference isn't a sales pitch. If it's like the one they did last month it will be full of quality information. INFO is key!
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lightfoot
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None of these are 'new' but what has helped the most.

IV Rocephin in combination with orals
Wobenzym (enzymes)
DIET (paleo - grain, dairy, sugar, low carb)
Warm pool therapy 2 x a week
Got strong enough with water therapy to hike the mts
Adrenal support
Meditation
DIET (whole clean organic foods)
Iodine
Various supplements.....

--------------------
Healing Smiles.....lightfoot [Smile] [Smile] [Smile]

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lightfoot
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PS DIET!!!!!!!! [Smile] [Smile] [Smile] [Smile]

--------------------
Healing Smiles.....lightfoot [Smile] [Smile] [Smile]

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Life+Lyme
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1. Bicillin shots 2x/week
2. Diet changes (eliminating things I'm allergic to--wheat, soy, etc)
3. IV Vancomycin
4. Biaxin+Bactrim for neuro pain
5. IV Glutathione
6. Xymogen shakes for GI health (OptiCleanse GHI, GlutAloeMine, and i5)
7. IV Clindamycin
8. ADRENAL SUPPLEMENTS

--no particular order

Things that didn't help me
-IV Rocephin (caused lots of problems)
-IV Zith

--------------------
You name it, I've got it.
Full-time medical anomaly.

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annxyzz
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This is something I have only begun to explore, but I would like to share that I have spent hours researching other health boards with lyme afflicted people posting , and to my surprise , the only thing I read that encourages me significantly is COLLOIDAL SILVER .

Some people are afraid of argyria, for good reason, but Dr Mercola has an article on safe usage of colloidal silver that you can easily google . There are over a hundred comments from silver users there who have used it safely , and many made their own . None have had argyria .

I also found an article in Australia about a man desperately ill with lyme who tried to get well and nothing worked til he used silver . He now makes his own and is well and was photographed by the newspaper for the interview.
His story sounded extremely credible.

The thing that is causing me angst is that many sites like web MD or Mayo ridicule it ! And it is a fact that a scientist from Willy Burgdorfer lab found it killed lyme, which was published in DR Farber's book.

I am not a scientist , but am inclined to believe this - despite being a huge skeptic in general. Why ? When I take silver with my lyme herbs I have HUGE (!) herxes that knock me flat !! If I take it with ivermectin I have same result . Not a scientist , but I question the idea that biofilm is being destroyed . Even without herbs, I have a strong herx similar to an antibiotic drug , but no yeast nightmare .

Others here might want to google "colloidal silver lyme improvement or cure ". I used a variety of search words and found MANY links, and am quite surprised how many people have posted that it improved or cured them .

It is not my intent to present myself as a scientist or to mislead anyone . I am just a desperate seeker who is generally skeptical of most things without evidence . Do your own search , and you will probably find many people who say they DEFINITELY felt better after using it . Not one report of argyria either .

--------------------
annxyzz

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Lymetoo
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quote:
Originally posted by lightfoot:
PS DIET!!!!!!!! [Smile] [Smile] [Smile] [Smile]

-
and then there's DIET!!! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Life+Lyme
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Dr. H's new area of exploration is colloidal silver. He said that the bad stuff can't survive it--it is pretty broad spectrum.

I'm interested in trying it down the road!

--------------------
You name it, I've got it.
Full-time medical anomaly.

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canadianmama
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Top ten:
1.Photon therapy
2.Diet-gluten/sugar free, whole organic foods
3.Detox-activated charcoal, chorella, epsome salt baths, detox foot pads...
4.rest
5.postive people around
6.fun
7.Hands on healings
8.Very Low doses of natural antibiotics, GSE, colloidal silver, mangosteen juice.
9.excercise
10. relaxation

A note on colloidal silver, when my son was really sick he couldn't tolerate it as it was too strong. Now he can take it as he is almost well. In our experience it hits lyme hard.

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droid1226
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Life+Lyme, how do you know Dr. H is experimenting with Colloidal Silver?

--------------------
http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

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dbpei
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I'm still working on inflammation in auditory area but the following seem to have made a difference for me in my struggle with this illness:

1. Mepron and Omnicef (Biaxin and Zith may have increased my tinnitus but were needed with this to work)
2. Byron White herbs (AL complex)
3. Samento and Banderol
4. Cilantro and chlorella
5. Fish Oil
6. Exercise
7. Yoga
8. Valtrex and Lysine
9. Acupuncture!
10. Kefir and Kombucha Tea

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Garden
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1. Ceftin + Biaxin
2. Daily "real" sauerkraut or other fermented food - goal of 1/2 cup per day
3. Volunteer work that gives me purpose outside of myself

#2 was so critical because it addresses my significant constipation issues. I feel much better and more energetic when I'm not "full of it". Hello, toxins! Go figure.

#3 is important for me psychologically, but I don't know that it would have been possible without all the other treatment I've been doing.

--------------------
Garden

"Fibromylagia" for 8+ years
Pos IgeneX WB per both Igenex and CDC
Pos Neuroscience MyLymeImmuneID
Started tx for Lyme in March 2011

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annxyzz
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canadianmama ,
The colloidal silver I have been using is so powerful at 1 tsp . I think I will need to go to 3 tsp daily , and I can barely stand upright with one. I have been treating a LONG time, so I think it HITS LYME . I am not sure about coinfections, but think it may bec of reading on other health boards .

The silver seems like taking a drink of water , is tasteless . The first day herx was noticeable, and each day has been more intense.
I too find it a powerful killer and the only thing I am consistently reading about at other health boards that seems to work for a variety of people. There are quite a few I found who have their own lyme blogs now and feel silver was a critical helper in improvement .

I hope I will start feeling better also . I defintely feel worse now!

--------------------
annxyzz

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nefferdun
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1. Ivermectin
2. Methyl cycle mutations supplements
3. Low fat whole foods vegan(ish) diet
4. LDN

As long as I stick to the diet I am drug free and pretty much in remission - but PR is incurable so things are tenuous.

Other things in the mix to break down biofilm are:
Lumbrokinase/boluoke/jiaogulan/danshen/ wobenzyme
LipoPhos EDTA

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
gigimac
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Annxyzz, what brand of silver and what ppm are u taking?
Posts: 1533 | From Greensboro NC | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
migs
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1)Ceftin

2)Doxycycline

3)Rifabutin

4)Bicillin

5)Amoxicillin

6)Clarithromycin

7)Roxithromycin

8/9)Tinidazole/Metronidazole...requires a primary antibiotic or will not do anything

10)Azithromycin...slightly helpful for short time

Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Life+Lyme
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droid1226, he told me at an appointment.

--------------------
You name it, I've got it.
Full-time medical anomaly.

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droid1226
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Life+Lyme, that's great to hear. He is constantly evolving his treatment plans. It also brings some legitimacy to silver.

--------------------
http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

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canga
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1) Diet (Paleo like, focus on vegetables but not only, DAIRY is a killer)
2) Detox (chlorella, spirulina)
3) Colloidal and nanoparticle silver
4) LDN
5) Suplements: niacin, selenium, Vit E
6) Alpha lipoic acid
7) Flaxseed oil (omega3)

Canga

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annxyzz
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I am using Sovereign Silver. Cockapoo is using Apex and feeling better with that brand from her practitioner LLMD.

There are studies from Britain that even show silver effective at killing cancer cells - found this at Motley Fool Caps online . That was a shocker for me !

There is an interesting blog called "knowlyme"
with posts on silver usage and results.

--------------------
annxyzz

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stiffyoungman
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I see so many people saying Parasite treatment, my original LLMD wanted me to do 3 weeks Albendazole before treating my Lyme but she was too long distance and i didnt start treatment.

New LLMD is aware prev dr wanted this, however he skips this straight to Lyme specific antibiotics.

Should I ask Dr to consider 3 weeks albendazole before treating my Lyme?

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dan67
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UP
Posts: 637 | From Nevada | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
MichaelTampa
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Here are the top ones I've started within the last 12 months, given in alphabetical order:

1. Amino acids, all-out focus on each one
2. Borax
3. Canada Dry diet tonic water
4. Coffee enemas
5. Diosmin and hesperidin
6. John Douglas workshop treatment
7. Treatment for cavities and cavitations

Here is my all-time hall of fame, broken into three tiers. Tier one the best group; tier three the least great group, but still all listed here have been great, they have been better for me than other very good treatments that haven't made these lists.

Tier 1

1. Antiparasitic full moon treatments using biltricide, ivermectin, pyrantel pamoate, albendazole, alinia, and supporting herbals

2. Borax (accidental overdose caused scary herx but appears to have wiped out protomyxzoa rheumatica, a.k.a. FL1953)

3. Coffee enemas (toxin circulation and toxin elimination portions of detoxification)

4. Diosmin, hesperidin, grape seed extract, and nattokinase (healing circulatory system)

5. GcMAF injections (decreasing nagalase, rebuilding immune system)

6. Hormone supplementation (vitamin D3, hydrocortisone, thyroid hormones T3 and T4, testosterone, DHEA, pregnenolone) and herbs to balance estrogen (gave me the energy to make it through varoius treatments listed here; true healing appears to have occurred as I am using much less of these now)

7. John Douglas workshop treatment (he killed my entire borrelia infection)

8. Low-carbohydrate diet (got control of candida/fungal infection)

9. Meditation CDs, brands Holosync and Lifeflow (trigger toxin circulation portion of detoxification and perhaps balance brain hemispheres)

10. Regulat, serrapeptase, and cistus incanus tea (break biofilm)

11. Treatment for cavities and cavitations

Tier 2

1. Allergie-Immun (trigger toxin circulation portion of detoxification)

2. Antibiotics intravenous ertapenem (brand name Invanz) with oral tindamax and alinia rotated

3. Low-fat diet (was needed until protomyxzoa rheumatica and circulatory system treatments)

4. Neuro-cranial restructuring (improved sinus circulation and improved cranial and body-wide bone alignment/posture)

5. Periodontal grafting surgery

6. Reduction of exposure to wireless signals and fluorescent lights and devices to help improve response to exposure (Philip Stein watch and EarthCalm and GiaWellness home systems and pendants)

Tier 3

1. Angioplasty for CCSVI

2. Canada Dry diet tonic water (contains quinine to treat babesia)

3. Chlorella (toxin elimination portion of detoxification)

4. Detoxamin (toxin circulation and toxin elimination portions of detoxification)

5. Nutrient supplementation including essentially all amino acids, vitamins, and minerals along with some antioxidants

6. Oral antibiotics clindamycin, telithromycin (a.k.a. Ketek), and Malarone targeting babesia

7. Oxygen concentrator (before lyme diagnosis; improved oxygenation of blood and increased energy; likely helped immune system lower level of infection)

8. St. John Clark Pain Treatment Center treatments (improve bone alignment/posture)

9. Urine as nasal spray (balance/train immune system)

10. Willard Water (enhance assimilation of water and food in damaged digestive tract and help heal digestive tract)

Posts: 1927 | From se usa | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
dan67
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MichaelTampa, I just PM'd you. I'd love to hear more about the borax... what dose? Brand? Side effects?Any articles about it? Thanks.
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imaqt
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Wow, what a list of treatments. It goes to show not all people get help from the same things. I would say

walking
diet
detox
sleep
anti-parasite meds
Lyme herbs

have helped me the most. That said I still have major allergies, gut, and intestinal issues.

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LymeNut
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Michaeltampa and Dan67, yeah I'm interested in the borax regimen too! Is it a powder and is it ingested, what brands to buy, what dosage, etc....
Posts: 32 | From tri-state area | Registered: Mar 2013  |  IP: Logged | Report this post to a Moderator
   

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