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» LymeNet Flash » Questions and Discussion » Medical Questions » Just recvd new treatment plan

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Author Topic: Just recvd new treatment plan
maps
LymeNet Contributor
Member # 19758

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I have been on Ceften, Azithro, Minocin, Flagl since january 1st pulsing Monday,Wednesday,Friday 2 weeks on 1 week off

My treatment will be changing next week to Ceften, Azithro, Malorne, Artemisinin pulsing M/W/F one week on one week off.

I am terrified and have already sent a request to cut the dosage in half for the first week. I was wondering if anyone has any experience or recommendations with this combo.

I am in Canada and going to Washington, DC for treatment.


regards maps [confused]

--------------------
1999 CFS, 2002 CMV Myco pneumonia
1 year antibiotics on and off
2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease
Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics

Posts: 328 | From somewhereelse | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
droid1226
Frequent Contributor (1K+ posts)
Member # 34930

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I'm on Ceftin, Zithro, Bactrim, Plaquenil all IV. I've been on enough different regimines to realize that it's never as bad as you think it's gonna be...

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Messa
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I'm starting azith, mepron, crypto and artemesia. I'm wondering same thing. Dr wants me to take art 2 pills, three times a day.

Guess all we can do is try and see.

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joysie
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"My treatment will be changing next week to Ceften, Azithro, Malorne, Artemisinin pulsing M/W/F one week on one week off."
Currently taking this plus Bactrim every day . It's been a good combo for me.

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faithful777
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I never did well with all that pulsing. I can guess who you are seeing. I did way better when I switched to another LLMD in the same area who did not pulse.

I use ceftin, bactrim ds, flagly (two weeks on and two weeks off) mepron, arteminisin 4 days a week, cryptolepsis and I am on IV Clindamycin. Now I am getting better.

Everyone is going to be on a different protocol. The same things don't work for everyone as we are all different in our infeection, genetics, how we live and eat, etc.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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maps
LymeNet Contributor
Member # 19758

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Heard back from the doc and a no to reducing the dose and no to taking a week off, suggested i stay on my current regime for another three weeks
which i think i will do as i need to do my taxes and try to refinance my house - need the money for treatment, hopefully if i can do that then i will be one of the very lucky lymies.

Thank you for the input it is very helpful, i live on my own so was just wondering if I should have someone with me the first day my total daily dosage m/w/f including artemisinin is 5400mg t/f will be 6500mg

So do you think it would be necessary to have someone with me?

--------------------
1999 CFS, 2002 CMV Myco pneumonia
1 year antibiotics on and off
2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease
Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics

Posts: 328 | From somewhereelse | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
   

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