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» LymeNet Flash » Questions and Discussion » Medical Questions » I'd Love To Hear From Those Who Tackled Abdominal Pain

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Author Topic: I'd Love To Hear From Those Who Tackled Abdominal Pain
Hambone
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Right now this is my WORST symptom. An all over abdominal pain, but more upper and mid abdomen. It's very tender and sore and feels like a concrete block was shoved in there.

I can't take it anymore. It is debilitating!
Right now I'm constantly laying down because it seems to relieve pressure and tension.


A little history:

Had my gallbladder removed in July '12

Have had two endoscopies ( nothing found )

One colonoscopy ( nothing )

MRCP done last fall ( a little scar tissue in duodenum where bile ducts come out. Other than that....nothing )

Two ultrasounds ( nothing )

One CT scan ( nothing )

I am dairy free and was gluten free for about 4 months with ZERO improvement.

Have taken numerous herbal antiparasitics, as well as Albenza and Ivermectin.

Bowel movements seem normal. Once a day.

No nausea. No vomiting.

Just PAIN PAIN PAIN!!!! OMG the PAIN!!!!!!


Any ideas what it could be?

Did anyone else have god awful abdominal pain and managed to heal it? I just don't know what to do anymore [shake]

Help [bow] [bow] [bow]


Edited to add:

I am also using Ultra InFlamX ( drink mix ) in the mornings, trying to heal my gut. No luck so far.

Posts: 1142 | From South | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
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and no Yeast??

--------------------
--Lymetutu--
Opinions, not medical advice!

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Hambone
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quote:
Originally posted by Lymetoo:
and no Yeast??

I've done many many rounds of Diflucan, and am currently taking Nystatin 3 times a day. Oh, and I did two rounds of Lufenuron recently with zero improvement.

But who knows.

Can yeast cause this much pain?

Posts: 1142 | From South | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
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It causes that much pain for me. I'm better now that my diet is very clean, I eat organic and I make my own fermented vegetables.

Finally improving a bit. I've had days where I couldn't get off the couch more than a few minutes due to abdominal pain. Like a huge cramp.

When you said lying down helps.. that made me think of yeast.

--------------------
--Lymetutu--
Opinions, not medical advice!

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BoxerMom
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Pancreatitis? It's super painful. But I have to assume you've had enzymes checked.

Also, gastritis feels like this for me. It sounds like your anti-inflammatory drink would treat that.

Is it infection? What are you still treating?

So sorry. Abdominal pain is completely debilitating.

--------------------
 - Must...find...BRAIN!!!

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gmb
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I had serious bouts of crippling lower abdominal pain when I started to pulse Tindamaz. It must have been a herx since it repeated every 28 to 30 days or so for several months with each occurance a lttle less severe.

Now I don't even miss it or chart it.

Hope this will pass soon

gmb

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Hambone
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BoxerMom...

Yes, I had my enzymes checked when I had the MRCP.

Would the endoscopies have spotted gastritis?

I just did a round of Levaquin and am now trying Tindamax again, thinking it may be infection because it sure feels like it. But then again, no diarrhea, no nausea. Normal looking poo.


What about endometriosis? Can this be constant and all month long?

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Lymetoo
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Yes, the endo would see gastritis.

and yes, endometriosis could be daily. They could do a scope on that .. forgot what it's called.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Hambone
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Thanks Lymetoo and everyone.
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Razzle
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Sphincter of Oddi dysfunction?

Adhesions from gallbladder surgery?

Endometriosis?

Yes, could be infections in the Pancreas, Bowel, or anywhere else in the vicinity of the pain.

Have you been given anything to help control the pain? How 'bout smooth muscle relaxers (such as Bentyl), for bowel spasms?

Does heat/heating pad on the area help the pain decrease any?

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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lifewithlyme
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Suffering from the same thing currently...aside from trying to get my dr to put me levaquin (i've never been treated for bart and have been sick for 15 years - something's missing), one thing that kind of helped me is bentyl. its an antispasmodic for your stomach; only thing thats brought relief so far. How did you do on levaquin?
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didogs
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I suffer from same pain. It comes and goes and was my first symptom of lyme and cos. Had gall bladder out, intestinal blockage, and mega upper right quadrant pain. Just had endoscope last week which looked perfect, of course.

GI doc and llnd believe it is bart in my digestive tract. Interesting because it has flared after a while when I started treating bart. I am very uncomfortable and can barely eat. Losing weight.

Tramadol does help take the edge off for me. May have to ask about the bentyl.

Good luck to everyone!

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Hambone
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Those are all things I was thinking, Razzle. I went to a highly recommended GI specialist at Mayo Clinic ( I know...what was I thinking ), and he spent 15 minutes with me, and after 10 minutes was clearly pushing me to Mayo's Pain management department to "learn how to deal with the pain", rather than trying to find out the cause. I was the one that insisted on an MRCP and he reluctantly ordered it.

I'm sorry, but there is no "learning to deal with the pain". It took everything I had to not say, "What if I kick you in the nuts and tell you to take this pain management clinic and learn to deal with it?"

I am SOOOOOOO sick of trying to find a doctor who will try to get to the bottom of it. I've never been offered antispasmotics and have had to ask for every single test and drug to try myself. Literally, I have paid THEM to write the scripts and orders for tests I've asked for. It's just not right.

I think my next step is going on a hunt for a gynecologist who will consider endometriosis and not make me beg. Wish me luck.

( Lifewithlyme....Levaquin really didn't do much.)

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fieldbredESS
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I went through the same thing before dx of TBDs. Only I had a few more scopes done & an exploratory surgery for suspected adhesions. I was GF the first time for a couple of months, no relief, no help so stopped. I have had tons of abdominal surgeries (endometriosis, total hysterectomy, GB, appendectomy), so they couldn't figure out what was going on. 1st CT showed Crohn's. 2nd didn't. GI scopes, tests, biopsies, etc couldn't confirm.

After other symptoms were managed & exploratory revealed nothing abnormal & still no relief. I went back to a doc who does acupuncture (she'd helped me before with migraines). She told me to immediately go GF again, told me that it would help with the nausea. She also started me on several supplements. She knew there was something else in addition to the LRQ abdominal pain (i.e. all my TBD symptoms). She was able to find a suspected entraped nerve. Each session we got closer to the actual nerve. She could place the pin & I'd get relief for my session & eventually a couple of hours. So she suggested we try a nerve block. I went to pain management for nerve block. Ultra sound guided nerve block gave some initial relief, but the steroid in the block ****ed off the TBDs in my body. So back to the heating pad & acupuncture when I can. GF has kept the nausea & pain at bay. Allergist, GI, OBGYN & FP all agree I'm gluten sensitive just not Celiac.

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Lilylooloo
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Most of my stomach pain came from food allergies and candida. I got a lot of relief from the rotation diet. I'm leading a rotation diet challenge in June. PM me if interested.
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Tammy N.
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I haven't read everyone's replies...

Have you treated for parasites yet? It is the most prevalent co-infection to Lyme (as stated at this year's ILADS conference).

Only a healthy immune system can keep parasites at bay.....and none of us with chronic Lyme have healthy immune systems.

I hope you feel better soon.

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JCarlhelp
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Try Inflamacore by Orthomolecular
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Judie
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I had horrible, stabbing pain in my stomach.

I got tested for h. pylori (both a stool test and blood test the same week). The blood test was positive and the stool test was negative.

I treated for h. pylori and it seems to have helped.

The breath test is suppose to be most accurate.

I checked with a gyno and a GI specialist (did colonoscopy, ultrasound, etc...). All normal.

It was a lyme doc that figured out part of it was h. pylori.

The other thing causing it was nerve pain. My stomach was to bloated that it was pressing on nerves.

My inflammation has gone down a lot and the pain has subsided quite a bit over the past few months.

Good luck and keep searching. I feel like a ran the gamut of specialists too.

A few supplements helped too like DGL, bitters before meals, lots of peppermint tea, pepogest and digestive enzymes.

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burnsjw
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I had something a little similiar a little over a year ago. Pain kept me up at night. A dr. put me on cipro. and it helped.
Later they did a scope of colon and it did show pos. for celiac with biopsy. I have been on celiac diet with no improvement like you.
I have been tested for celiac's a few times and came back neg. and this time did have it come back pos.
I also had the gallbaldder out and the scarring of billiary tract like you where the ducts come into intest.
lot s of luck

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Hambone
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Thank you everyone.

I did do parasite treatments for probably a good year ( herbs and a few pharmaceuticals ).

I had a tissue biopsy and bloodwork for H.Pylori twice. Negative both times. Have taken the same drugs GI's prescribe for it anyway, but no relief.

I'm leaning toward it being adhesions or endometriosis since nothing else I've tried has helped in any way.

I DID figure out some (not all ) of it was myofascial trigger points in my abdominal muscles and have worked those out. I had no idea they were there until my LLMD suggested it and we started poking around.

I appreciate all the advice/suggestions very much! Thank you again.

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