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» LymeNet Flash » Questions and Discussion » Medical Questions » Interesting article about Lyme wars

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Author Topic: Interesting article about Lyme wars
DanP
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in the issue of the New Yorker that hits newstands today....
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lax mom
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http://www.newyorker.com/reporting/2013/07/01/130701fa_fact_specter

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♥ ♥ ♥ ♥ ♥
(aperture)
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

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poppy
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quote:
For Lyme activists to be taken seriously, they will have to be led more by people like Roth than by those who foster dark conspiracies. I was told by several Lyme activists that the government created the infection on Plum Island, that reporters at the Times have been muzzled and prevented from reporting honestly about Lyme, and that the N.I.H. has made a pact with pharmaceutical companies to ignore chronic Lyme. There is now a bill before the legislature in New York that would require insurance companies to reimburse long-term treatment with antibioticseven though no study has proved their effectiveness, and treatment with I.V. antibiotics can cause serious, and sometimes fatal, complications.
So that is where the conspiracy theory people get us....nutcase labels.

And his conclusion that no study proves effectiveness, when there have only been four small studies that should not have been used to make definitive treatment decisions....

Compared to tens of thousands of people who have been treated longer than the limited amount enforced by IDSA and who have some quality of life because of continuing treatment. if he had been wheelchair bound and was able to get up and go back to school or work, would this count as good treatment. Apparently not, all that counts are limited studies with outsize conclusions made afterwards by Wormser and the gang of thieves.

No way to tell this author he missed the boat, again as usual, because no comments place on this website. This is a very superficial article.

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Keebler
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And the entire profession of honest, responsible journalism [which is a mighty tiny contingent by now] weeps.

This lack of professionalism also makes it increasingly difficult for those with lyme to have solid relationships with those who do not have lyme (or know much at all about it) when they see something like this. They will believe the reporters and not even realize they missed the investigative boat, in so many ways.
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poppy
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Why is it that these guys home in on the alternative treatments? Not the abx that let the person get up from the wheelchair.

And why no mention of the successes for thousands of patients of NY doctors who are being taken down en masse, also not mentioned by this author. I just don't understand how these so called journalists can never get to the heart of the matter, unless they are either incompetent/lazy or being told what line to take. How else can you explain these failures to understand and describe the real situation?

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Keebler
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Who OWNS the New Yorker?

Who are their consistent advertisers or donors? Their board members?

Who are their medical advisers?

Bet those answers would help to explain their lack of honest research on this.
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poppy
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Conde Nast owns the New Yorker, said to be known for rigorous fact checking. Guess that only applies to some of its articles.

https://en.wikipedia.org/wiki/The_New_Yorker

https://en.wikipedia.org/wiki/Cond%C3%A9_Nast_Publications

These people travel in elevated circles of monied folks. That is a hint for motivation, IMO, in case you are looking for one beyond lazy journalism.

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Catgirl
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Wow, this piece by Michael Specter was much better than the one we had in the Boston Globe a few weeks ago (thanks for sharing)!

Lax, thank you for posting the link!

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--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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Keebler
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There were some very good sections here, and some good interviews. But he still stopped way short and misinterpreted quite a lot as he was trying to think like the CDC and the IDSA.

He would pose a good thought and then always blast it.

Many errors. But he doesn't know that. It can take years for anyone to learn enough to be able to write a good article about lyme - many more years than one might think. I hope the author keeps learning - and that would include opening his eyes a bit wider, not stopping with just what the governemental agencies have to say.

I would like to think he would build on this but he just seems so closed minded. Wish he would talk to MacDonald, Sapi and also give some credibilty to patients, themselves. Seems to have the same distain for patients as ID docs do for them.

Forgets - or never even considers - that the patient should be the reason we need to not leave any stone unturned.

He seems to think anyone who gets better from various "alternative" methods must be doing the placebo dance. He paints it all with the same brush. And that's just not accurate.

Good diet was mentioned but he seemed to put down her efforts, really, making it sound extreme and then thinking, well, maybe it was just the diet that worked and lyme was never an issue, after all - because he discounted so many positive Rife experiences.

Some writers, like some doctors, want this to be simple, black & white. They just can't see beyond that, sadly. What is most disturbing, however, is the distain that the writer clearly shows for those with lyme (and the ILADS doctors who are brave enough to look deeper).

Someone "claiming" to have lyme is immediately discredited by the writer's qualifier of "claiming". Various similar examples of this distain throughout.
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[ 06-24-2013, 03:27 PM: Message edited by: Keebler ]

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