LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » What type of port?

 - UBBFriend: Email this page to someone!    
Author Topic: What type of port?
treeinatree
LymeNet Contributor
Member # 38613

Icon 1 posted      Profile for treeinatree     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am scheduled for port placement by interventional radiology and noticed they did not give a choice of type of port. I don't care about the ability to withdraw blood - only want things to go in - but aren't there multiple types in current use?
Tree

Posts: 146 | From South | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
My port is from the company Bard. The most important part for me is the Groshong catheter. It prevents air embolisms, blood reflux and clots. I believe the addition of the Groshong catheter is relatively new, but I asked for it.

I also requested one that can be accessed more than less. But because of that, it is thick. That thickness initially made it hard to access the port. So I don't know if I recommend that or not. I just wanted my Port to last a long time.

Faithful, will mention her Power Port. What I like I about that is that it tends to be smaller. And it has three bumps on it to help find the right spot for the needle. Kind of like, X marks the spot. There have been times when I wish mine was the Power Port.

Lastly, Faithful has mentioned that she marked where her bra straps hit her chest area so that the port was implanted to avoid rubbing. (Obviously only needed if you are female).

I am glad that you don't care about blood withdrawal. My surgeon did not want me to aspirate or do a blood draw through the port. His theory was that no matter how well you flush the port there was still a chance that a clot could form in the port and then get flushed out. Not good.

Hope that helps,
Karen

Posts: 1604 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
poppy
Frequent Contributor (1K+ posts)
Member # 5355

Icon 1 posted      Profile for poppy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Try an archive search for the word port and previous posts on the subject will come up. Been discussed frequently, so maybe you will get additional help there.
Posts: 2888 | From USA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
sammy
Frequent Contributor (5K+ posts)
Member # 13952

Icon 1 posted      Profile for sammy     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have an AngioDynamics Low Profile Smart Port. It is very tiny. About the size of a nickel.

It also does NOT have any raised bumps. I could not have the bumps because they could erode through my skin due to my collegen disorder. You access it always in the soft silicon center and avoid the hard metal outer rim (both you can feel).

Mine is not a silicon catheter with groshong tip because my surgeon thought that the material of my poly catheter would last longer. This was a tough choice. Really, both catheters work well and last a long time.

If you are simply getting a port for Lyme, you don't need to stress so much. You will only keep it a year or two max. You will probably not need to keep your port as long as me. I need mine for life since I need IVIG for my immune deficiency.

When you see your surgeon talk about your concerns. That is what I did, that is how we ended up picking out what I think is the best port for me.

Your hospital may only stock one or two ports. If you want another you may have to allow a month or two for your surgeon to contact the company rep to get a port for you if they are willing to do that.

I would recommend that you get a power port, it allows for higher pressure infusions and is visible on x-ray or CT.

Best for you to go talk with your doctor though. It will all be OK [Smile]

Oh and I do have my labs drawn through my port because my veins are gone... Wish I didn't have to but glad I have the port and can use it!

Posts: 5237 | From here | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
faithful777
Moderator
Member # 22872

Icon 1 posted      Profile for faithful777     Send New Private Message       Edit/Delete Post   Reply With Quote 
Don't let them draw blood from your port. It will promote clotting.

I have a Bard Power Port that is only accessed when I infuse. When you are done for the week, the needle comes out so you can shower, swim or sauna if you would like to. My husband has the same thing.

Mine is staying in until I am sure remission will stick around. I only need to flush it once a month.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2682 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

Icon 1 posted      Profile for Rumigirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have a Bard Power Port, also. I asked for a low-profile, small port (I am small on top). It is a little harder to access as a result of being small, but otherwise is good.

I do recommend having a consult with the surgeon ahead of time to discuss which kind of port and where it will be placed.

If you are female, you may want to draw a line with a magic marker as to where your scoop necks are, so the port is below and to the side of this, so it won't show.

The dressing that goes over it when you are accessed (the needle is in) is clear, but shiny, so that will only show, if it isn't placed just so.

In terms of how long you keep it, if you have had Lyme for a very long time, you may want to keep the port for years, as if you

have a relapse, you may need it again. That's my feeling. In my case, I've needed it for years already, due to so many treatment obstacles, and long-term IVIG.

Once you get it, get the nursing guidelines from your infusion company, and familiarize yourself with exactly what the nurse

should do and not do. And don't ever let a nurse take short cuts or do or not do anything they shouldn't. Make sure that they

follow sterile and clean technique to a T. Your life and the life of your port depends on it.

Posts: 3748 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
faithful777
Moderator
Member # 22872

Icon 1 posted      Profile for faithful777     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wore a racer back bra to my appt and had the radiologist mark where the straps were. They cut in a lot and I wear those types of tops a lot in the summer. He was happy to accommodate me.

I never minded if my port showed with a tank top. If someone asked about it, it gave me a chance to tell them about Lyme disease.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2682 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
treeinatree
LymeNet Contributor
Member # 38613

Icon 1 posted      Profile for treeinatree     Send New Private Message       Edit/Delete Post   Reply With Quote 
Finally found out, it is a PowerPort - and that's the only one they use. After reading several stories of people with PowerPorts who had catheter separations and the tube floating in their body, I'm happy some of you are doing well with it!
Tree

Posts: 146 | From South | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.