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» LymeNet Flash » Questions and Discussion » Medical Questions » I am scared... does this happen to you?

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Author Topic: I am scared... does this happen to you?
luvema
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I've noticed the past couple of days... I have hard time controlling my muscles. Like they move on their own. My lips move alone, my eye lids, if I try to grab something in my hand or as I am typing right now my fingers start moving on their own. My neck and head... My shoulders, arms, legs.

All my muscles tense up on their own and I don't know move around. I been calm the past few days, but now it's actually starting to scare me. What if I lose the ability to control my body? The thought scares me!

Have anyone experienced this?

I been treating lyme disease intravenously for a month and half. I don't know if this has anything to do with it. I am not sure what to do at this point.

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Ema

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jnathan
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I haven't been officially diagnosed but I was put on Klonpin for jerky movements they call myoclonus. Any part of my body

will jerk or spasm at anytime. Its not painful, but severely annoying and scary not to have control of your body.

and I haven't been treated yet I'm scared to death of the herx.

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luvema
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Jnathan. i know what you mean.

I hope you get treatment soon, and just make sure you start slowly with everything so you don't get a major herx.

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Ema

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ladycakes
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They called mine ideopathic chorea, but it was basically just muscle spasms. I also had something called intention tremors, where when you'd try to say, pick up a pencil, your hands will shake (whereas at rest, they don't.)

I ended up doing IV antibiotics, and that was really what got rid of my neuro symptoms.

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luvema
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I get tremors too. I have those daily.

This muscle tensing up is getting a lot worse these days. Even when I am walking my leg muscles tense up, and I'd have to sit down.

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Ema

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Bitten in Bergen
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I recently started a new protocol for my lyme+bart+babes and I have been having this happen.

My left quadricep was twitching for extended periods of time on and off over several days.

I think it was a herx in my case - it has since stopped.

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VV
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Keebler is going to show up any moment with links on magnesium.
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luvema
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I do take magnesium

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Ema

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luvema
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This is stressing me out!

I couldn't hold a spoon to eat because of the muscles tensing up

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Ema

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VV
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Have you done IV magnesium or magnesium injections?
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Catgirl
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Luvema, I am so sorry you are going through this. I don't have quite the same thing, but my back muscles tense up and fingers twitch. I think it is parasite related for me, not magnesium. I noticed this last 3 nights. Full moon is on monday. I always get more symptoms just before the full moon.

Check this out (muscle cramping is a sign of parasites): https://humaworm.com/symptoms.html

https://humaworm.com/welcome.html

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--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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luvema
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I never took IV mag..

My magnesium levels have always been normal, yet i still supplement.

I really don't think it's related to magnesium.

I just hope with treatment those symptoms go away. Even though I feel like they are getting worse

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Ema

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KentuckyWoman
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quote:
Originally posted by VV:
Keebler is going to show up any moment with links on magnesium.

Ok, this made me laugh out loud.. so right..so funny.. and a wonderful hat-tip to our "fearless leader"

My muscle spasms (even to the point of seizure quality) have diminished a great deal over the last few months.. proper amts of Magnesium is crucial.

Also, many improvements overall due to 3-4 months on "Organic" diet. elimating all unnecessary chemicals/toxins etc so my liver can keep on detoxing infection. Greatly reducing many of the "algias" sxs aka: fibromy"algia", neur"algias", etc.. due to inflammation.

I have only recently discovered the intense importance of proper diet for fighting these infections and their sxs off.. Organic, high alkaline.

http://www.sciencemeetsnature.org/wp-content/uploads/2013/05/HSC_AcidAlkChart_7-07FINAL2.pdf

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KentuckyWoman
tired of medical run-arounds

Two roads diverged in a wood, and I, I took the one less traveled by,
And that has made all the difference.
~ ~ Robert Frost

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KentuckyWoman
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chart taken from Dr Gary Gruber. Gave a very informative lecture on how bacteria and viruses thrive in acid-based bodies.

https://www.facebook.com/events/528238233899203/

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KentuckyWoman
tired of medical run-arounds

Two roads diverged in a wood, and I, I took the one less traveled by,
And that has made all the difference.
~ ~ Robert Frost

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burnsjw
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I have had the myoclonus (jerking) and then I also have periods of my muscles move on their own.
Mainly , it is in my fingers, esp. left hand. My fingers move around and I don't even pay attention to it anymore. I notice it when my cat will pounce on my left hand because fingers and hand move. I must move them , or bend and roll them around at nite in my sleep, because my cat will pounce on same hand in the night. I think it is just neuro lyme stuff, because it use to increase in severity with stuttering. Stuttering at least one word out of every sentence.
If I have it in both hands, it feels like bouncing around, like jello, fingers while I type. or try to type.
Just becarful eating with a fork. ha. and putting on mascara can be impossible

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luvema
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Thanks guys!!

I try to eat organic, but it gets expensive.

I been taking a good quality mag, and it doesn't seem to help with these symptoms.

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Ema

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KentuckyWoman
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luvema,
I understand how you feel about the expense of organic foods, but in the long run, healthwise, it's really cheaper for you once you realize what your body has to overcome to process GMO and pesticides. Food IS medicine and your very taxed body NEEDS the best.

The twitching will not go away quickly.. It takes time. I've been on Magn for almost a year now. Sxs are greatly diminished, but not gone entirely. I agree with Burns. It IS a neuro-lyme thing. But outside factors can help it or even make it worse.. With me, my monthly hormone cycle increases my stuttering, twitching, palsy..the crazy moon phase, even rainy, stormy weather. I don't understand it all and I'm certain that the Drs do not either.

But the magnesium and diet are the "basics" of a starting point toward improvements. Tried, tested, and learned by many here on lymenet before us.

I thought I was a "patient" person before Lyme.. I am still learning daily how important patience is. Some days, it's even a battle for me. [Smile]

My lymenet buddy, Map1131, has often mentioned to me that lyme will teach you patience and each month that passes, her words are proven right.

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KentuckyWoman
tired of medical run-arounds

Two roads diverged in a wood, and I, I took the one less traveled by,
And that has made all the difference.
~ ~ Robert Frost

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Shiela
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Yup. I had intention tremors. Shoulders would jerk bad. Abdominal muscles would gang up on me and jerk rapidly so I couldn't stand up and could barely talk. Lower lip keeps trying to curl in. Fingers twitched. I'm not sure what made them ease up. I don't think I was taking magnesium supplement but was drinking carrot juice every day which has magnesium in it. I hadn't been diagnosed yet so I wasn't on antibiotics. But they did ease up. The lower lip thing is going on now and very slight shoulder jerk occasionally when I go to bed. I've been on antibiotics since February, 2013.

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I'm not there yet but I'm closer than I was yesterday.----
Lyme Band 31,41,58. Being treated for Lyme and Bartonella.

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