Phoiph
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posted
Hi Monti...
Welcome...I just replied to your PM...
Posts: 1973 | From Earth | Registered: Jul 2013
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Phoiph
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Member # 41238
posted
Hi Legolas...
Thanks, I just emptied some PM messages.
Regarding the oxygen concentrator hook up...
A home chamber must be sold separately from an oxygen concentrator in the US (FDA Regulations), otherwise, the combination would place it in a different medical class.
This is why you likely won't see instructions on the internet on a manufacturer's website as to how to hook the two together.
That said, the FDA doesn't regulate how doctors prescribe or use equipment, and many doctors prescribe the use of both the chamber and oxygen concentrator together. This is perfectly legal, providing one has a prescription to purchase both units (separately).
To answer your question, you must purchase an oxygen concentrator that has enough PSI (pounds per square inch of pressure; the one I recommend has 20 PSI) to counteract the backpressure from the chamber. Then you must be sure to set the LPM's (liter's per minute) correctly (this differs a little between models).
There is a port on the chamber which the tubing from the concentrator slides through, and a mask is attached to the tubing on the inside of the chamber. There is a hook-up kit available with some simple hardware for this purpose.
Even though you are in Europe, if you decide to buy a new or used chamber, you can take advantage of the discount through the "Free Radical's Hyperbaric Project" I have been working on. If you're interested, you can PM me, and I will send you more information.
Posts: 1973 | From Earth | Registered: Jul 2013
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posted
Hi All, thought I would give a little update as things change every few weeks. I just finished dive 130 today but I don't plan a video until the first week of June as I would like to report on an Alaska trip I have planned and a 5k walk.
Mbdq, thank you for your update. This seems like such a lonely journey when you are in the beginning so it's nice to have others post that are further in the process and feeling well.
Haley, I can't believe you are working....that's great. How do you fit it all in your schedule? haha
After my last video I had two weeks of steady herxing so I adjusted a few things. I've gone down to one coffee enema a day because it seems my body is doing a fine job of detoxing on it's own finally. I don't have a full or toxic feeling any longer. I've also started walking more to get a little sweat going. My goal this last week is 10,000 steps a day M-F and rest on the weekend.
I walked more than 10,000 steps all of last week, and then road motorcycle with hubby over 350 miles this weekend. I'm feeling great today and already have 9,000 steps by noon today. No joint pain or fatigue.....YIPPEEEEEE
I plan to add a light yoga in this week for some stretching and strengthening.
The lows are a bit hard to get through but totally worth getting to the other side and feeling a little better than before the herxing.
Welcome to all the new mHbot'ers. I look forward to reading as you post your progress. Would love to see some videos...lol
Posts: 233 | From AZ | Registered: Jan 2015
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On dive 13 as we speak. So far it seemed that around dive 5 I started herxing.
Symptoms were light sensitivity, extremely tired, weak, dislzzy. Oh and brain fog.
Around dive 10 it began letting up and thought I was over the hump. Yesterday I discovered my 02line was loose and had been getting looser and looser the past few days.
So now I am back on a good flow of 02 and find myself wondering if the dreaded herx will return. I have a feeling it wasn't done with me and the lack of pure 02 stopped it early.
Posts: 120 | From Maine | Registered: May 2015
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Phoiph
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Member # 41238
posted
Monti...
I always suggest that people who have Lyme and/or toxicity start very, very slowly, and work up to the full hour under pressure (1.3ATA/4.2PSI) with 02 daily.
For example, in your case, if you are already up to full pressure, you could do 20 minutes at full pressure for a week to 10 days, then, if you are doing OK, add 20 more minutes for another week, then the final 20 minutes. Some (many) people will need to go more slowly.
Although it is definitely a 2 step forward, 1 step back process of peeling layers, I don't feel that strong Herxheimer reactions are particularly good for the body.
In my opinion, it shows we are trying to rush things more quickly than the body can handle, and it is showing signs of "overwhelm". This sets up a stressful, rather than a healing situation....
What is your protocol (i.e., frequency, pressure, time, LPM,), and what kind of equipment are you using?
Posts: 1973 | From Earth | Registered: Jul 2013
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I bought a used summit to sea "dive" (28") and it came with a OG15 concentrator. I got a great buy on it for $6,000 and it was only lightly used. The concentrator isn't what I would have chosen but it came with the deal. It is rated for 12 psi at 7lpm. It seems to push plenty of 02 into the pressurized chamber.
What I have been doing was an hour a day with 02 seven days a week. I am more then willing to cut it back some if you feel it might be easier on my system. The herx I dealt with was really rough.
I would rather go slower and build up (avoiding some of the extreme fatigue etc) if it didn't take anything away from the end result.
I eat very healthy. Whole foods, organic, no sugar or grains. I do eat some dairy though.
I have done very little abx. I was on cowden for a year and then switched to Zhang for the last 6 months.
Posts: 120 | From Maine | Registered: May 2015
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Phoiph
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posted
Monti...
In my opinion, it would be better to start more slowly, as I mentioned, and work up to the full hour (at full pressure w/O2 daily) over a period of time (consistency is key!).
If anything, it will make the process go a little more smoothly, and you will still benefit from the treatment as you work up.
Also remember to increase your water intake to stay hydrated.
This treatment is very powerful, and often underestimated!
Posts: 1973 | From Earth | Registered: Jul 2013
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Phoiph
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So at this point since I've done about 13 dives at 1 full hour with 02 should I cut back to something like 30minutes each day? And do that for a week and see how I feel? Or two weeks?
Thank you!!
Posts: 120 | From Maine | Registered: May 2015
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Phoiph
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Member # 41238
posted
Monti...
In your case, since you are already up to full pressure, you could do 20 minutes at full pressure with 02 daily for a week to 10 days. Then, if you are doing OK, add 20 more minutes for another week to 10 days, then the final 20 minutes.
This way, you are working up to the full hour over the course of about a month. You can go more slowly if necessary (some people need to go much more slowly than this, some don't), while working toward the goal of the full hour under pressure with 02 daily.
Remember that you are still benefitting while working up...and you can tweak your protocol during this period if you need to, but once you are at the full hour, try to remain as consistent as possible...
Posts: 1973 | From Earth | Registered: Jul 2013
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posted
I will do that starting tomorrow Posts: 120 | From Maine | Registered: May 2015
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Haley
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Welcome Monti. That is great to hear about the Chiropractor with the 12 patients!
So great to see all of the feedback here.
CD57 - how is the diving going?
Peimomma - you go girl!
Phoiph - I didn't even know that the concentrator had a PSI, I have no idea what mine is, but i think it is a good concentrator. It's 10 LPM.
Posts: 2232 | From USA | Registered: Aug 2009
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Phoiph
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posted
Haley...
If I recall, you have an AirSep New Life Intensity 10....is that right?
If so, it is 20PSI, and you should have it set to 8.5 LPM, and leave it there...turning an AirSep too high when used with a chamber will put it into an oxygen-on-demand mode, which you don't want for our purposes.
It is a great concentrator.
Check and see and let me know...because if it is a different manufacturer, you may need to set it differently...
Posts: 1973 | From Earth | Registered: Jul 2013
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Haley
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Yes Phoiph that is the concentrator I have, which is set at 8.5. What is oxygen on demand? Also do I need to clean the filter? I've checked it, it looks perfectly clean so I don't mess with it.
Posts: 2232 | From USA | Registered: Aug 2009
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You have said once I hit an hour a day I would want to be consistent. I do have one concern about that. We are going away for a week in July and I won't be able to bring my mhbot with me. Is that going to be a problem?
Or is the "consistency" that you spoke of more about doing this for a long time aka years. I do plan on doing this long term.
And by the way I really liked what you said about starting slow and not putting your body under stress by hitting it hard at first. That makes a lot of sense especially with this type of treatment. It's about healing.
Oh and one other question. Is it that mhbot can make you dehydrated or is it that it's important to stay hydrated to help flush toxins?
Posts: 120 | From Maine | Registered: May 2015
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posted
One last general question. I am new to lymenet and haven't yet figured out how to be notified when someone makes a post on this thread. Can that be done?
Posts: 120 | From Maine | Registered: May 2015
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posted
Hi all! I keep having trouble logging in to this forum, it says it has to do with my IP!
Welcome new divers, Monti, Nitsuj1225, FromTickToPicc, nice to read your posts! Please do take it a bit slow and steady… Lots of info is in the book The Oxygen Revolution, it’s mainly about hbot, but also a bit about mhbot, it has been a great help to me.
Peimomma, very nice to read your updates and see your videos! Mbdq, Looking4hope, Haley, thanks very much for your posts and updates! Phoiph, thanks for helping out! Monti, a break for a week is no problem, just enjoy your holiday! You can get notification emails when you post a reply and scroll down and check options: email notification.
Legolas, I read you live in Belgium, maybe this is of some help: There’s e.g. an online store in The Hague in The Netherlands that sells the 10L Oxygenconcentrator. The Summit to Sea chambers are possible to be partly shipped to you from France instead of from the USA, that will save you much money in shipping costs, custom duties and taxes instead of importing one such as Oxyhealth from USA to Europe. There’s a nurse in Germany that can help with that. http://www.ueberdrucktherapie.de/index.php/shallow-dive.html
Phoiph, this nurse would love to have your email-adress and get in contact to share success stories and in case someone asks her about Lyme disease and mhbot she can direct them to you. If you like, can you contact her through her website?
Next comes my update…
Posts: 16 | From Europe | Registered: Jun 2014
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posted
My update.. I’m still reading along in this threat and still diving, for about 10 months now! I use a Summit to Sea ‘Shallow Dive’. With a 10L Intensity Oxygenconcentrator. I’m on 100-120 hours. One hour a day seemed to be too much for me, that’s why I do 30 minutes a day, 6 days a week. To me for now that seems perfect. On the day off I use lots of anti-oxidants.
I had a 6-week break, due to a stomach infection. I still don’t know exactly what it was and I don’t know if it was promoted by mhbot.
I have improvements… they are small, but to me they are very big because I was more dead then alive when I started. (I wrote a few posts on page 7 and 8) I’m very happy with my chamber, it gives me much support!
1. I have no more migraines at all, except I had one on my 6-week break, 2. My blood flow is better I feel a bit warmer and a bit less dark circles under my eyes, 3. Pain and restlessness in my legs is a bit less, 4. I feel less 'toxicated', 5. Energy and strength a little bit better (but still bed ridden), maybe because of improved mitochondria, 6. My bowel-function is a bit better and 7. The mhbot together with cholestyramine has given me a little bit improvement in MCS-symptoms.
I’ve added abx now, I couldn’t tolerate it before, but now I seem to do so and I have some little improvements from it. I had tried herbal protocols with minimal results.
Thank you contributors on the internet for sharing experiences! Wishing you all very much progress and health!! Good luck and keep breathing!
Survivorgirl1
P.S. I don’t know when I can update again because of trouble getting logged in to the site. Please webmaster if you read this reply my email.
Posts: 16 | From Europe | Registered: Jun 2014
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Haley...
Oxygen-on-demand is an "intermittent", or "pulse-dose" mode the concentrator goes into when it is set very high to conserve oxygen...it senses when the person is inhaling and sends oxygen at this time rather than continually.
Setting the AirSep model at 10 when using it with a chamber (since it has to compensate for the backflow pressure of the chamber) will put it into this mode. This is why we set it at 8.5.
Different models, like the Sequal Integra, however,doesn't have this function, so that model should be set at 10LPM. The meter will drop to around 8.5 as the chamber inflates and the backpressure causes it to work harder. The LPM dial should not be reset at that time, just left as is. It will bounce back to 10 as the chamber deflates.
Survivorgirl...I will certainly contact the nurse and give her my website (still under construction) address and email (she can contact me through the website also). Thanks for making that connection!
Also, thanks for the great information about options for obtaining a chamber in Europe. My advice to Legolas would be to compare costs WITH discount included via Oxyhealth just to be sure before making a decision (Legolas can PM me for info.), as the discount may be enough to offset costs. There are also differences in the 2 manufacturers to consider...
I will PM a moderator to let them know you're having trouble logging on...
Posts: 1973 | From Earth | Registered: Jul 2013
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Monti...
Drinking more water helps you flush out toxins, although oxygen can also be a little drying to your nasal passages and throat.
About your week vacation in July...I am very conservative about taking time off, especially in the first year, but since you already have this vacation planned, I would just enjoy your trip, and get right back to your mHBOT as soon as you return.
Sometimes travel can't be avoided, but an option in the future might be to take your chamber with you (without the frame, mattress, & bolsters) if traveling via car. Always make sure the concentrator travels upright, and is cushioned well...
Posts: 1973 | From Earth | Registered: Jul 2013
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posted
Survivorgirl1... Thanks for the welcome and info. I guess I needed to use the "full reply" instead of the quick reply to see the email option.
Interesting that the one headache you had was during your break from the treatment.
Phoiph... Thank you again for the help. Upon my return after a week off should I resume my dives at the same level I had been doing prior to leaving or should I build myself back up again?
Posts: 120 | From Maine | Registered: May 2015
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Phoiph
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posted
Monti...
By that time, you will be up to full pressure/time, and should be able to resume at the same level...
Posts: 1973 | From Earth | Registered: Jul 2013
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One more question for ya. I think I saw a post where you said to have the 02 mask on as you are pressurizing. I'm not able to do that and still equalize my ears since I need to pinch my nose and blow. How important is it to do this?
Posts: 120 | From Maine | Registered: May 2015
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Phoiph
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Member # 41238
posted
Monti...
You are right...you need to have the mask off when pressurizing so you can equalize your ears.
It is more important to keep the mask on when you depressurize...
Posts: 1973 | From Earth | Registered: Jul 2013
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Phoiph
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Member # 41238
posted
Haley...
I forgot to answer your earlier question about cleaning the filter on your concentrator.
Once every 2 weeks or so (more often if you have a lot of dust or pets), take the nylon filter off the back, take it outside and clap it between your hands to get the dust off, then put back in place.
Every couple of months or so, take the filter off and wash it in warm, soapy water (dish soap); rinse well and air dry thoroughly overnight, then put back in place.
Posts: 1973 | From Earth | Registered: Jul 2013
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Haley
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Member # 22008
posted
Thanks Phoiph . Will do.
Carry on mHBOTers.
Posts: 2232 | From USA | Registered: Aug 2009
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I walked over 10,000 steps each day M-F, 3 days of yoga and rode 600 miles this weekend and I'm feeling great😍. slowly building the stamina and endurance. I think the heat while riding still bothers me but maybe with time that will improve also.
I finally cut out the sugar😒 so that probably helped too....lol
Posts: 233 | From AZ | Registered: Jan 2015
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Phoiph
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posted
I'm cringing happily for you, Peimomma... Posts: 1973 | From Earth | Registered: Jul 2013
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posted
That is fantastic news Peimomma!! So happy to see your progress. Were you able to be active at all before you started the mhbot?
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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I was at about 30% when I started the mhbot treatments. I was pretty much house bound except doctor appointments and a few local outings. I was feeling so poor that I was ready to go on IV antibiotics because I just didn't know what else to do as I have tried several therapies with little success.
I would say I'm at 50% now and improving every week. If you haven't watched my Youtube videos you can find the links on page 9 of this thread. There are 4 and have documented my journey leading up to choosing mhbot, improvements and struggles during treatments.
Posts: 233 | From AZ | Registered: Jan 2015
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I was at about 30% when I started the mhbot treatments. I was pretty much house bound except doctor appointments and a few local outings. I was feeling so poor that I was ready to go on IV antibiotics because I just didn't know what else to do as I have tried several therapies with little success.
I would say I'm at 50% now and improving every week. If you haven't watched my Youtube videos you can find the links on page 9 of this thread. There are 4 and have documented my journey leading up to choosing mhbot, improvements and struggles during treatments.
Posts: 233 | From AZ | Registered: Jan 2015
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That is both impressive and encouraging. I would describe myself at 30% currently. I am sure 50% must be a wonderful wonderful thing. And you are just starting Posts: 120 | From Maine | Registered: May 2015
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posted
Monti I just completed dive 138 this morning😊. I began treating 1 Feb 2015.
My husband and I were talking about prior to treating with mhbot and how if I had ridden for 50 miles or more I would have been down for 3 days recovering. I was back at my 10,000 steps yesterday and yoga, what a difference some O2 makes.
Posts: 233 | From AZ | Registered: Jan 2015
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It's amazing how fast you are recovering compare to others using mhbot. I think you are the exception.
I am so ready for this. I am on my 21st dive but I reduced the time from the full hour to 20 minutes about 5 dives ago.
Phoiph suggested I start off easy and build up to avoid putting myself thru unneeded misery. That was wonderful advice.
I think I am on the verge of upping the dive time to 40minites since at this point the only issues I am having is some very mild light sensitivity which I am 100% sure is caused my mhbot.
I can't wait to experience my first step forward. I've been 8 years stepping backwards. I am so ready.
Posts: 120 | From Maine | Registered: May 2015
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posted
Monti I did what I would call "prep therapies" prior to finding mhbot which is why I believe I have done so well. Even though none of them got me to a point of functioning I think they kick started my immune system.
The pain, fatigue and brain fog were the symptoms I couldn't see any improvement until mhbot. My gut issues and migraines were much better after having Chinese herbs specifically made for me in fall of 2013. My sleep and pain were somewhat better but not to the point of restful sleep or pain free if I tried to do any sort of activity.
If I exerted myself at all I was down with pain off the charts. In January I attended a ladies event for about 2 hours one evening just sitting and was down for a week. The fatigue was so bad I would take a nap around noon each day and was in bed early but still felt tired in the morning.
I think I had less going on outwardly then most on this board starting out. I still had issues like losing my eyesight and dental issues that hadn't improved until my mhbot treatments. Now I know from the doctors my eyes and teeth are improving, my next step is to visit with my LLND and have my numbers and tests run again from last year to see if those have improved.
I think that is great that you are getting ready to move up to the next level. It goes by fast and soon you will be at 100 treatments. If you aren't keeping a journal I would recommend doing one because it helps you look at how you feel each day and put it in words. I write if I'm tired, woke up, no pain, whatever I'm feeling so I can look back. You will be surprised at the progress you are actually making.
There is a young man in my area that just started treating and his mom said he enjoys going in the chamber because he has much less pain while he's in there after just 5 dives. But when he gets out the pain comes back. Small progress like that gives us hope that our body is healing. It just takes time and like you, I wanted it now because I've been sick for so long.
I know to you I probably sound normal but When I hear my sister is working a day job, a par time night job, baking cakes for money and helping with little league baseball I feel like I am just scratching the surface.
I like seeing others post because it gives me hope that I will be at work in the future and living normal again☺️
Posts: 233 | From AZ | Registered: Jan 2015
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I may have a reasonably fast recovery too then since for the past 1.5 years I have only been treating with healthy approaches like Cowden, Zhang, and I have been eating very healthy for a few years. My abx treatments were oral and brief and 1.5 years ago.
Since then it's been similar to you in some ways since its been more about healthy eating and things that didn't damage my body.
My primary issues are severe fatigue and at times severe brain fog. I have managed pain over the years by eliminating inflammatory foods. For me grain seemed to be the worst one. Prior to eliminating it I had lighting bolts of pain in my body along with joint pain.
So your post continues to be encouraging for me as were/are your videos.
50% compared to 30% is incredible but still a very long ways off.
Posts: 120 | From Maine | Registered: May 2015
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Peimomma - sorry if you already posted this.
What did you do to get your gut in shape? I know you did enemas and that you took an herbal supplement. Do you think the enemas were key in getting the gut repaired?
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Haley I started seeing a Korean acupuncture doctor that also cooks up Chinese herbs specific to each person. He gave me two month of that and now I can eat everything again with no worries of dashing off to the restroom or vomiting.
I used the enemas to detox the liver and am back down to one a day as my body has finally kicked in and started doing the work. I can tell this from the smell of my armpits. I don't use deodorant and when I'm toxic the pits are really smelly. Now I can exercise and go the entire day and have just a little smell.
I learned to listen to my body during 6 months of massage therapy school 15 years ago.
Posts: 233 | From AZ | Registered: Jan 2015
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posted
I have an AirSep New Life Intensity 10 concentrator 20 psi with an oxygen monitor that will sound an alarm if you ever go below 90%. I bought it last year and it only has about 50 hours on it. I didn't use it much. It works perfectly. It had a five year warranty, however I just called and the warranty is only for the original owner.
I have received some PM's and will give details on there, too. It cost me $1300 originally. I didn't keep the box and foam insets (my bad, I know) but I can order them again for safe shipping via UPS ground.
posted
PS I got it to help with fatigue and migraines. Oxygen is known to help cluster headaches. However, I got rid of my migraines by drinking coconut water kefir and using apple cider vinegar.
Posts: 4 | From Georgia | Registered: May 2015
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posted
Just started at my PCP's office last week. I don't know what to expect.
But he charges way too much per visit. I hope to lease one? if all goes well with the treatment.
Posts: 115 | From US | Registered: Sep 2014
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Hi A.G...
What is the protocol (i.e., pressure, O2%, duration and frequency of your dives)?
There are several lease options...you can PM me and I will send you a summary.
Posts: 1973 | From Earth | Registered: Jul 2013
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posted
Have no idea what my protocol will be. My PCP's ND is weaning me up to an hour. I've only had my 1st visit of 5 minutes.
I had an oxygen tube in my nose as well. She had me chew gum to help with the ear popping.
I suffer from intense neuralgia and myalgia. I was in pain before I got into the plastic chamber. During the session, I was pain free.
Posts: 115 | From US | Registered: Sep 2014
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I've been out enjoying the great state of Alaska on vacation. I rode a mountain bike for the first time in 9 years, off road, up and down hills through sand and rocks. The first day as a warm up I biked 2 miles.
Then I completed what I call a 2 day triathlon, I hiked 2.5 miles, kayaked 5.5 miles and mountain biked 7.5 miles. It was fantastic😍. There were so many other activities, mushroom picking, enjoying live music, tasting my first beer and so much more.
Arrived home Tuesday ready for some O2. Therapy. I had one day to rest before a friend came to visit for two days. We spent Thursday in Seattle at Pike Place Market, the Aquarium and rode the Great Wheel. Yesterday we drove to Mt Rainer and found a few waterfalls and took in the beauty of the mountain.
Today I'm resting😏 Next Saturday is my 5k walk and I will record my update video at the finish line.
Posts: 233 | From AZ | Registered: Jan 2015
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posted
Great to see people making progress with mhbot!
Ive decided to give mhbot another chance. Last year i gave up because of lack in progress. This year i am again going all natural, no abx, no supplements. I was terrified to stop abx however, because rifampin kept me mentally stable the last 9 months or so.
This time i decided to do the GAPS introduction diet, which i think is something similar to what phoiph was doing. And i must say, that makes all the difference! Now even without abx i remain mentally stable, not regressing at all. I was important though to leave out vegetables (fiber) for now, because i think that was just feeding bad bugs and causing toxins in my gut. So its a lot of broth im eating. In conjunction with GAPS intro, im also doing intermittent water fasting. The writer of the GAPS diet actually suggests this for people who's detox system is derailed. The detox days are horrible, but well worth it. Im actually underweight and malnourished already, so water fasting was a bit of a gamble. But with this intermittent fasting im pleased to say im no longer losing weight, and the nausea is getting less, yay!
I feel a major source of my bodies toxicity is from bad bugs in my gut. So the diet and fasting helps. But im also suspecting i have Ileocecal Valve Syndrome, which causes colon toxins and bacteria to spill over in to the small intestine (where they are absorbed in the blood). So im hoping i can correct this problem over time and Mhbot can be of assistance i hope.
Mhbot also keeps pain levels very low (hardly noticable), so its doing a good job of keeping borrelia suppressed. On abx i had no pain at all, so mhbot is not as effective as abx, but at least it gives me a chance to restore my gut and get to the root of the problem.
TBC.
Diving 215 hours and counting!
Posts: 381 | From The Netherlands | Registered: Nov 2013
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posted
My doc mentioned this at my last visit but I have claustrophobia and the thought of doing this scares me to death. Has anyone here had to overcome this fear?
-------------------- KB Posts: 172 | From Northern VA | Registered: Apr 2015
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