posted
Lapis29, An oxygen concentrator of 5 liter/minute is not suitable. It lacks the power to deal with the back pressure of the chamber.
The zippers of the shallow dive go smoothe, the last inch less smoothe because you have to push and check it tightly closes.
I don’t know how weak your arms are? When I started I was very weak. Crawling in an out of the chamber was very hard but I managed. I had to use both hands for the zippers. I’m not yet at jumping in and out but climbing in and out goes very okay now and I’m zipping easily with one hand.
After 2 years of diving (and one year abx), I was able to go from bedridden to start exercising. I ramped up with a hometrainer now more than 5 minutes a day and for my arms I can use 1kg light weights repetitions for over 5 minutes. Still slowly ramping up.
I’m not sure you’ll see an improvement if you dive only 4 days a week, 7 days a week is best. Phoiph knows most about it. In my own experience I feel more tired if I skip a few days, and I feel better if I keep diving at least 6 days a week.
About your hyperacousis. The sound of the motor and airflow is hard, you’ll need something that’s noise-cancelling like a good headphone and/or earplugs. Can you relieve ear pressure when it builds up? Yawning, swallowing, etc. Is it due to the lymedisease or do you have anything else that’s bothering your ears now that should be adressed first? I think the other divers can tell you more about it.
Phoiph and others, I wanted to let you know that I talked to a doc today who’s specialised at hbot. About my question/worries if it’s okay to dive with my PICC line. He said it’s fine, just make sure it’s properly disconnected and there’s no air in the line, which isn’t because it’s filled with saline or heparine or something like that. He treats patients on 2.5 ATA who also have PICC lines for abx.
Survivorgirl1
Posts: 16 | From Europe | Registered: Jun 2014
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posted
Hi All: Can anyone tell me if they experienced burning in glutes, hips, legs and groin(feels nervy and like joint pain too) that was a part of their mhbot experience. I'm praying I'm hitting some deep stuff but it hurts. Thanks all- I'm 7 months in of daily dives.
Posts: 859 | From Southeast | Registered: Mar 2011
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Phoiph
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willbeatthis~
At 7 months, I was definitely still traversing layers and in the throes of flares. I had random pain, burning and stiffness which would migrate.
That said, it would be worsened by over activity (which didn't take much at first) of a certain area.
Have you changed anything with your exercise or activity? Are you overworking those areas in some way?
Survivorgirl1~ Thank you for passing on the info re the PICC line...
Posts: 1962 | From Earth | Registered: Jul 2013
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Phoiph
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Study posted by Tincup (on separate thread):
The Role of Hyperbaric Oxygen Therapy in Orthopedic and Rheumatological Diseases:
kgg
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posted
Yes, thank you Survivorgirl1. That feedback from the doc about your PICC line. That must be very reassuring.
Willbeatthis. I have had sciatica flare from time to time with my Lyme. Although I do not have burning pain with it. Just pain. I hope this is a short lived symptom for you.
I see my PCP on Monday and hope to tease out whether he thinks my current symptoms of chills, muscle/joint aches, low fatigue and dull headaches are from dropping my T4 too much, a Lyme flare or a new Lyme tick bite problem. Should be interesting.
Posts: 1746 | From Maine | Registered: Jun 2004
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posted
Hi All, Sorry I haven't been here lately but I just got back from a vacation! First time in over 20 years.
I only wish I had found Phoiph and mHBOT years ago. At this point in my life I am fighting aging along with the remaining symptoms from Lyme/CFIDS/FM so it's hard to tell what my healthy baseline should be.
What I do know is that I've gone from disabled to functional, from a wheel chair to riding a bike on the trails and from home-bound to a 2 week road trip.
I can confidently say that my improvement has been from mHBOT and the Ketogenic Diet. No other variables that I'm aware of.
So, hang in there...just keep diving every day and don't micromanage your symptoms. The progress is very slow but when viewed from where I am, it it huge.
Hugs to you all and thank you for freely sharing on this forum. Reading your stories and the encouragement from Phoiph has kept me focused on healing instead of giving in to the illness.
I only wish we could make this amazing therapy available to everyone.
Posts: 549 | From NW Arkansas | Registered: May 2003
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Phoiph
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Awesome update, Digby! So happy for you, and thanks for the kind words.
If it is any consolation, I wish I had found mHBOT sooner rather than later, too. But then...if I hadn't been so ill and close to the brink and when I found it, maybe I wouldn't be as convinced of its power.
I agree, and it is my mission to make it more available to everyone. I'm researching starting a non-profit-type program as we speak.
Thanks to everyone here for their amazing contributions...these posts are so valuable.
Posts: 1962 | From Earth | Registered: Jul 2013
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posted
WOW,thank you Digby....the timing on your post was needed)So happy for you!
Phoiph, through even that kind stress....slowly coming back,if I can do it with all the other things pulling at me.....who knows what this year can still bring.
Keto/Diving not a science guy here,however,something to it.
-------------------- Chronic Lyme Posts: 36 | From Florida | Registered: Jun 2016
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posted
Hooray, Digby! Gosh I needed to see this today! Thank you so much for sharing your journey with us-Phoiph, Peimomma and you have given me so much hope!
I had backed off the rife rather significantly and perhaps while my thyroid is being adjusted, I need to keep things rather status quo.
Kgg- look forward to hearing how your doctor's appointment goes- We all need to Keep the Faith and Keep Diving! Thank you all for your support through this journey- sure wouldn't want to be doing this alone.
I love what you said Digby that Phoiph and this journey kept your focus on healing- not succumbing! To Keto and diving- I'm doing both now religiously. Perhaps the keto is allowing my body to fight more and thus, the herxes. I'll be hanging in there and CANNOT thank you all ENOUGH!
So happy you just vacayed Digby! As my students would say- that's sick (awesome!).
Hugs Team O2!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
willbeatthis...Are you sure that your "herxes" are not "keto flu?" If they are, it is very fixable.
Posts: 549 | From NW Arkansas | Registered: May 2003
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posted
Aww, Digby! You're the best. I don't know honestly- the burning is more like lyme Et al. I have had the keto flu though-perhaps it is part. Thank you for the feedback:).
Posts: 859 | From Southeast | Registered: Mar 2011
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SurvivorGirl- thanks for sure for getting us that info. on the PICC. I am so happy to read of your progress.... Please keep us up to date Posts: 859 | From Southeast | Registered: Mar 2011
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posted
can someone explain the biological mechanism as to how the mhbot actually works?
like what exactly is it doing to the body?
thanks
Posts: 90 | From Wisconsin | Registered: Mar 2016
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Phoiph
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lapis29~
In a very small nutshell, the pressure forces oxygen beyond your red blood cells and into the plasma and tissues, triggering thousands of healing reactions. It also has antimicrobial properties.
I really like this brief, animated video. It gives an informative introduction and broad overview of hyperbaric oxygen and how it works in the body:
posted
It's been fun catching up on the thread. I'm back to the land of wi-fi. We are about 3/4 done with our move (Kgg... showing house and moving.. ugg, I get it)
There is still a lot of work to be done, but we are taking it a day at a time and doing what we can do.
I'm still doing the dance, but moving in the right direction. Every now and again, I will have days that ALMOST feel normal. It's amazing. But it's still sort of like a wave... up, down, swell, recede. It is definitely a dance, but I'm grateful for the better days.
Kids start back to school on tuesday, so I will have a bit more 'me' time to continue healing.
kgg
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posted
HW88, hang in there! 3/4 done is almost there! I think the hardest point is the last 1/4. I am thinking of hiring someone to come clean once it is empty.
So happy to hear that you are having days when you feel almost normal. Yay! Long may it continue and multiply!
Posts: 1746 | From Maine | Registered: Jun 2004
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posted
Yes, HW88- that's wonderful your 3\4 done! That is truly wonderful as well you are having some really good days! Kgg- hope you are doing well too. Getting the thyroid figured out is a dance too. Know we will both be feeling better soon! Keep Diving team! Posts: 859 | From Southeast | Registered: Mar 2011
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posted
I agree that the last 1/4 is the hardest. I've had several friends ask to come help clean after the last of things are moved. I just might take them up on it.
Also, I was looking back at my symptom calendar a few days ago. Before starting mHbot, I was recording 4 or 5 major symptoms each day. The last few months I have only written down around 2. My head is everyday, and usually another that rotates in and out.
I like to look at it on paper and realize some of these dumb things are getting better. Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
I just found out a friend is suffering with gastroparesis. I had/have this, but it is due to Lyme messing with all my nerves.
My question is. Do you think mhbot would be helpful for this disease if it isn't caused by lyme?
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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Phoiph
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HW88~
I had this also.
Gastroparesis is associated with dysfunction of the vagus nerve...whether the cause is Lyme, diabetes, etc.
Since mHBOT is healing to the nervous system, IMO it would definitely be helpful, no matter the cause.
The question is what would be the best pressure and length of treatment of HBOT or mHBOT for her case, and that would be best determined by taking into account her overall diagnosis (e.g., diabetes, etc.), and an evaluation by a doctor who knows HBOT.
In what state does she live?
Posts: 1962 | From Earth | Registered: Jul 2013
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posted
She lives in OH. She doesn't have diabetes. At this point it is idiopathic. She's down to 74 lbs and has been at the children's hospital for 4 days now. I think she will have to get a feeding tube.
My gastroparesis has cleared a lot with treatment, but since I don't think she has lyme, I don't have many suggestions for her. It is a miserable disease.
I will mention it to her mom, though. See if there is someone knowledgable to talk to. If you know of anyone in the cincinnati area, let me know.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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Phoiph
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How old is she?
I will check with my neuro/HBOT friend to see if she can recommend someone near there.
Posts: 1962 | From Earth | Registered: Jul 2013
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Quick question amazing folks- So my thyroid was in the garbage can at over 5. Something. So doctor has prescribed t3-cytomel - generic(gluten free) and since this change- my nature Throid was reduced to two grains as I am creating a lot of Reverse T3. Since this change, I have been super herxy(real muscle pain and vibration after and in chamber) in and out of the chamber and dehydrated to some degree.
I'm drinking more water but my question is - has this turned on my immune system. It makes sense that if the body was kept at 96 degrees-where I was- the bugs would have a better chance- just wondering if anyone knows how much hypothyroidism impacts the immune system?
I know mhbot can make us need more water- correct- so I am drinking, drinking. Thanks all- You rock!
Hope everyone is doing great!!
Posts: 859 | From Southeast | Registered: Mar 2011
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Last week I was blowing my nose, and I felt a "pop" in my neck like a blood vessel had burst. Within an hour, I had a huge number of strange symptoms show up... symptoms I've NEVER had before.
- dizzyness / loss of balance - weakness in my arms and legs - some nausea - slowed mental processing - strange blood flow sensations in my head
Turns out, I probably have CCSVI, which is basically when your veins in the neck can't remove blood from the brain fast enough. This must have been aggrevated by the pressure of blowing my nose.
5 days later and the symptoms haven't really gone down much, which is scary as hell. Doing some research, turns out this kind of thing is implicated in multiple sclerosis. Do I now have MS? I kind of doubt it, but either way it's scary.
I did the chamber once since last week and it exacerbated all the symptoms including the neck pain and discomfort. Of course, this could have been a helpful healing reaction, not sure.
Just looking for any thoughts, input or similar experiences.
Did any of you have MS-type symptoms like balance issues, leg weakness, etc? Did HBOC help it? Thanks.
Bryan
PS - I realize that what I'm describing could be construed as inner ear equilibrium issues. That is not what it is. I've had sinus infections on and off for years and I know exactly what it feels like to have unequal pressure in the ears and be off balance from that. It's completely unrelated, though I wish it were that simple. Thanks.
Posts: 123 | From Tahoe | Registered: Oct 2016
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Phoiph
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Bryan~
I suspect the pop you heard was your neck going out of alignment.
Google "Cervical Spine Instability" and compare the symptoms with yours...they are identical. It also affects blood flow.
I know someone who has this. A chiropractor trained in the "Atlas" method has helped him tremendously, along with mHBOT.
Posts: 1962 | From Earth | Registered: Jul 2013
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posted
Hi Phoiph, thanks. I've had that before actually and this is not related. It's definitely a blood flow / vein thing. Didn't involve any bones or connective tissue, it is on the outside of my neck about 1/2 inch from the surface.
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Have you had this looked at by a doctor? what did they say?
Posts: 90 | From Wisconsin | Registered: Mar 2016
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kgg
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Willbeatthis, it is my understanding that the thyroid does impact the functioning of your immune system. Not sure what the vibration stuff is about. But you may want to check in with your prescriber.
Bryan, I am wondering if you have a cerebral spinal fluid leak. For a while I thought that was what my son was dealing with. It turned out it wasn't. And I am glad. Because having a blood patch done is not the quick cure I was hoping for. Is your nose runny? There is a youtube video of a doc in California who has a daughter that had it. Let me see if I can find it.
Posts: 1746 | From Maine | Registered: Jun 2004
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kgg
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Thanks for the info KGG. I do not think that is what I have based on your info.
Digby, I'm strongly considering trying a ketogenic diet, wondering what the fix is for keto flu? I've tried ketosis several times and usually by the 2nd day, I'm a complete mess. If I try it again I'd like to know what to do when this happens.
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Phoiph
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quote:Originally posted by lapis29: bryan -
Have you had this looked at by a doctor? what did they say?
posted
I have not had it looked at by a doctor yet, but plan to if the symptoms don't subside. When I take anti-microbials, the neck area flares now, along with other Lyme areas, so it seems to be a Lyme thing to me. Also, I talked to another Lyme patient who had a similar thing happen. Looking to start a keto diet to try to stabalize things.
Posts: 123 | From Tahoe | Registered: Oct 2016
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posted
BryanRosner, so sorry for the trouble you are having.
Phoiph, sorry, I didn't get back sooner to your question, but my friend is only 16. She has been fighting gastroparesis for 3 years.
I am almost to dive 100! woot woot. I am very happy with the progress I've made. I still have strides to go, but my progress seems to be quicker. I feel I've made more progress in the last 3 months than I did the previous 9 on antibiotics alone.
I'm on a 4 days on, 3 days off antibiotic protocol. My Dr. wants to see what happens in those 3 days off. So far, so good.
Let us know how you are once checked out!
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Phoiph
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quote:Originally posted by HW88: She lives in OH. She doesn't have diabetes. At this point it is idiopathic. She's down to 74 lbs and has been at the children's hospital for 4 days now. I think she will have to get a feeding tube.
My gastroparesis has cleared a lot with treatment, but since I don't think she has lyme, I don't have many suggestions for her. It is a miserable disease.
I will mention it to her mom, though. See if there is someone knowledgable to talk to. If you know of anyone in the cincinnati area, let me know.
posted
What is the consensus on taking magnesium? There are many studies that show it builds biofilm. But it is also a nutrient we can be deficient in. Apparently the topical spray is best used for easy absorption. But a good idea to use? or bad idea?
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kgg
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I have read that some Lyme docs say not to use oral Magnesium because of that. I used injections for years mainly because my stomach does not tolerate oral Magnesium. But the shots are painful and they use a small amount of aluminum for a preservative. That never thrilled me.
For me, this falls into the category of we just don't know. People in the US are known to be low in Magnesium because our soil is so depleted. It does at least 300 things in the body. That sounds very important. It helps me with energy, muscle pain and sleep.
Over the years, two things have been my foundation in treating my fatigue problems: IM B12 and Magnesium. If I could tolerate oral I would be taking it. And perhaps take a biofilm buster with it. fwiw
Posts: 1746 | From Maine | Registered: Jun 2004
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Over the years, two things have been my foundation in treating my fatigue problems: IM B12 and Magnesium. If I could tolerate oral I would be taking it. And perhaps take a biofilm buster with it. fwiw
do you have a script for your b12?
used to be you could get injectable b12 w/o a script, now i cant find that anymore.
Posts: 90 | From Wisconsin | Registered: Mar 2016
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Phoiph
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quote:Originally posted by BryanRosner1: What is the consensus on taking magnesium? There are many studies that show it builds biofilm. But it is also a nutrient we can be deficient in. Apparently the topical spray is best used for easy absorption. But a good idea to use? or bad idea?
Chronic inflammation drives biofilms, and magnesium reduces inflammation (among many other benefits).
I'm not a fan of taking lots of supplements, but IMO magnesium is crucial for all body systems to function properly, and as mentioned, our soils are depleted, so it is difficult to get adequate amounts from food.
I personally like ReMag liquid.
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kgg
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Hi, Lapsi29! Yes, it is a script. I never have seen it available without a script. What I have seen recently are B12 patches. I first saw them on Amy Yasko's site: http://www.holisticheal.com/b12-patch.htmlPosts: 1746 | From Maine | Registered: Jun 2004
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kgg, it took me literally years to find an oral magnesium I could tolerate. I found Shaklee Vitalmag and have been taking it for years. I am not in there multi-marketing system, just use there product with success.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015
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kgg
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Thank you, jcarlnew. I will see if I can find some. Magnesium makes such a difference for me.
Posts: 1746 | From Maine | Registered: Jun 2004
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Phoiph I just ran my O2 concentrator without the external filter for an entire dive. Do I need to worry about anything?
Posts: 64 | From Washington | Registered: Aug 2015
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Has anyone had lightheadedness, sensory overload, and weakness improve with HBOT?
Also does it make sense to try it at a center first before buying your own or are the two too different?
Thanks!
Posts: 16 | From Los Angeles | Registered: Sep 2017
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kgg
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Welcome, Jesse2233! I am unsure of what is offered at the center you refer to. Many try mild hyperbaric oxygen therapy at a chiropractor's or physician's office first. If the center you mentioned has commercial deep dives, that would be different. Also, many do a rent first or rent to own.
I have had many symptoms improve with this treatment. But I am not sure I suffer specifically the symptoms you listed.
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![[Wink]](wink.gif)
but climbing in and out goes very okay now and I’m zipping easily with one hand.
![[Smile]](smile.gif)
![[woohoo]](graemlins/woohoo.gif)
Kgg- hope you are doing well too. Getting the thyroid figured out is a dance too. Know we will both be feeling better soon! Keep Diving team! ![[group hug]](graemlins/grouphug.gif)
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