posted
I have been reading about brucellosis as my son has tested positive several times for this and it is a dormant/ relapsing pathogen. I just read an article that it is killed by the body creating an "oxidative burst". Does MBOT have the potential of creating this. Anybody with brucellosis using MBOT?
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015
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Phoiph
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posted
Hi jcarlnew~
Here is an article which states under the mechanisms of action that HBOT helps with the oxidative burst:
posted
Hey phoiph ( or anyone else that had sleep issues that resolved)
I remember you saying you had severe insomnia. I was wondering if you are sleeping through the night now?
I know it's better, but I was wondering if you sleep from the time you go to bed to the time you wake up in the morning.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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HW88 It is too soon to say but my sleep seems to be imrproving but I do a lot of other things for sleep
Posts: 261 | From California | Registered: Sep 2017
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This is my current schedule Big meal at beginning of day not end Magnesium at sleep time Rena Food at beginning of day by standard process Regular exercise Gaba at sleep time Ashwaganda at sleep time Grounding helps alot at sleep time I think the diving helps too but not sure yet 16 hours before I go back to sleep Sometimes I have to use pharmaceuticals If you have any questions let me know
Posts: 261 | From California | Registered: Sep 2017
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posted
Two things I notice after five dives My appetite is slightly higher My old root canal is starting to hurt Thanks
Posts: 261 | From California | Registered: Sep 2017
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kgg
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posted
I have gone through stages of increased and decreased appetite. Can't say I have had old root canal teeth hurt. But have had others hurt. But Lyme does that.
Posts: 1731 | From Maine | Registered: Jun 2004
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Phoiph
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posted
quote:Originally posted by HW88: Hey phoiph ( or anyone else that had sleep issues that resolved)
I remember you saying you had severe insomnia. I was wondering if you are sleeping through the night now?
I know it's better, but I was wondering if you sleep from the time you go to bed to the time you wake up in the morning.
Yes, I had extreme insomnia for years when I was ill. I do sleep well through the night most of the time now (unless my dog wakes me up...lol).
I think I have mentioned before that restoration of sleep took a long time and improvement was a gradual process. My neuro/HBOT expert friend explained to me that sleep architecture is very complicated, and requires many areas of the brain and body to be in synch.
Posts: 1921 | From Earth | Registered: Jul 2013
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posted
I think the old root canal pain has something to do with the dives time will tell
Posts: 261 | From California | Registered: Sep 2017
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posted
Thanks phoiph. I remember you saying that about the brain and also that it was one of your last things to work out. I'm looking forward to good sleep... someday!
Hominahomina, Sometimes I get 'pressure' in an old root canal of mine, but it happened before diving.. so not much help here.
Jesse, Welcome to the dive group. I had a bit of a honeymoon period when I started with a burst of energy I hadn't felt in YEARS.. it was so refreshing.
Continuing to make progress. I'm excited to hear your progress!
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
Hi HH and Jesse! So glad things seem to be going well for you now.
Phoiph is an ANGEL on this EARTH! Yes, my appetite definitely increased. So much so, I make sure I do my dive earlier in the day as I will eat too much before bed otherwise generally.
HW88 seems I have hit a speed bump. You are in good company. Phoiph is so great... she keeps my chin up when I want to look down.
I am nearing 9 months of daily dives and yes, it has been one step forward two steps back and frustrating (and sometimes scary at times) as we have to trust those that have gone before us and that we can RECOVER... I think what scares us is when we go backward and because we all have been so ill for the most part-- it takes our breath away thinking OMG am I going back there.
I think at some level too like with teeth hurting... it is overwhelming to consider how deep these bugs go and I think on the positive, we need to thank GOODNESS and God that our immune system as Phoiph would say is online again.
Just a note for those that hit a speed bump. It is very tempting to get scared to death... and I am tough but when you have been so sick, I think we have to THINK Bigger than the FEAR.
Thank you all here for your constant support and encouragement. I too am having windows where I feel I am getting back to my old self. I find I am laughing easier etc. In essence, I am coming back PRAISE GOD and this team... Especially Phoiph.
I do have one question. Does anyone feel pressure in their quads and glutes when in chamber and then even vibrations after. That heaviness that has been described as babesia.
Interestingly enough, if I detox, the feeling mostly goes away. Praise God for that too...
Thanks, Team... YOU ALL ARE A GIFT! HUGS!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Hi HH: I found mine on letgo of all places. I checked the specs with Phoiph. Have you talked to Phoiph about this? She has many wonderful connections. I hope you find one soon!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Willbeatthis What kind of chamber did you get ? How much did you pay? Are you happy with it? I hope Pholp will chime in on other options available
I am wondering if anyone has tried the Summit to sea Dive Vertical chamber
Thanks
Posts: 261 | From California | Registered: Sep 2017
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Willbeatthis~
Thank you as always for the kind words.
In addition to what we already talked about...are you taking enough magnesium? Do you add minerals to your water?
Are you over doing it with the exercise? IMO, if the rest of your life is more taxing than usual, cutting back on the heavier exercise temporarily to allow some recovery time might be in order...
Posts: 1921 | From Earth | Registered: Jul 2013
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Phoiph
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posted
Hominahomina~
Yes, I do know of some chambers for sale and rent/rent-to-own. You can PM me.
I would be careful re the upright chamber, as they have had issues in the past.
Posts: 1921 | From Earth | Registered: Jul 2013
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posted
Thank you, Phoiph. You are a sage advisor... thank you... cherished too Gosh knows I hope you know that...
I am going to make sure I am getting enough minerals and cut back on exercise. Cannot thank you enough... you always seem to have the answers... like you have been here before God bless you...
HH- I have an Oxyhealth Solace (the smallest chamber) I am very happy with. We paid I think 3,300.00 plus 900.00 shipping- it came from CA. I'm in SC. My husband gave it to me as a bday gift. This year I got a card I tell him all the time, it was the best gift.... why try for something else
This included the Air Sept Concentrator too so it was the whole deal. I checked everything out with Phoiph. It seemed to good a deal to pass up. A nurse with Lyme owned it and was an angel too.
If you aren't too big, the Solace is great. I am about 130 or so (5'5"). I don't know if my husband would be comfortable in it - he's 6 foot and 200 or so (I don't even know). Neither of us like a scale.
Okay, I hope this helps you. I think if I were doing it over again, I might do a Respiro. The size up just for a little more room. If I keep doing this in the foreseeable future, I think that is the route I will take via Phoiph's sources. Given that it is a daily thing with no seeming end at least for now, that is what I would do. If money is tight like mine was, I had to do what I could. Renting too is not a bad option as the nice gentleman Phoiph refers folks too puts the rent towards a chamber. That is a good option too... Thank God for options
Thanks again, Phoiph. Off to take minerals! HUGS!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Does anyone know how mhbot controls glutamate? DR. wants me to take a med that inhibits glutamate, but honestly, I don't want to take another drug that controls my brain chemistry.
Today is one of those days that I need to keep looking up. MAN, this disease is incredibly difficult.
Willbeatthis, I appreciated your words. And yes, we must trust the ones that have gone before us.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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kgg
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posted
A quick search showed that hyperbaric oxygen therapy decreases glutamate in the brain. But that was deep dives. There is not a lot of research on mild dives.
Willbeatthis, one of the top symptom that I abhor in this illness is the heavy leg feeling. Hope it passes quickly for you.
Posts: 1731 | From Maine | Registered: Jun 2004
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posted
Thanks Kgg. That's what I found too, but wasn't sure on mhbot. Kgg, are you treating with antibiotics as well or just mhbot?
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
I should give a little background myself for those tracking people's progress...
- 31 year old male
- sudden onset after flu-like illness in December 2016 (was in excellent health before)
- tested positive for mycoplasma pneumonia IgMs (from LabCorp and Quest), Bartonella IFA antibodies (from Galaxy), streptococcal antibodies (from MAYO), and Coxsackievirus B4 antibodies (from ARUP).
- test positive for the entire Cunningham Panel, a-1 adrenergic antibodies (POTS related), myocardial autoantibodies, and anti-smooth muscle antibodies
- elevated TNFa and PGE2a
- treated thus far with LDN, IVIG, supplements with modest results (was bedbound / housebound previously)
- have not yet taken any antibiotics
- negative IgenX / Western Blot / CDC for Lyme and other co-infections
- normal MRI, have not had SPECT
- no history tick bite or rash, no pain symptoms
- major symptoms are severe lack of physical stamina, POTS, brain fog, pervasive lightheadedness, unrefreshing sleep, exercise intolerance, mild chest pain, occasional muscle weakness
- Walk 1.5-4k steps a day. Cannot yet work or live independently (my two major goals! I'm ok with not running marathons )
- 10 dives in @ 60m o f1.3 ATA w/ supplemental oxygen (over 3 weeks at a clinic, but I will be getting my own Vitaeris chamber soon and will use daily)
Posts: 16 | From Los Angeles | Registered: Sep 2017
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posted
Pholph You mentioned the upright chambers had some problems What sort of problems?
Thanks
Posts: 261 | From California | Registered: Sep 2017
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kgg
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Member # 5867
posted
HW88, I have used a lot of antibiotics in the past. None while I dive. One of the reasons why I bought the chamber was that I did not want to take antibiotics for the rest of my life, my stomach does not tolerate them.
Welcome, Jesse2233! Sounds like you are off to a great start. Over 50% of the people with Lyme do not recall a tick bite or a rash. So don't discount Lyme. You have had some interesting testing done. Some of which I am going to research.
Posts: 1731 | From Maine | Registered: Jun 2004
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posted
Kgg, that is one of the reasons I went to mhbot too is so I can eventually be off of antibiotics. I wish I could get a decent jump forward and I would feel better about stopping antibiotics.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
Hw88 I think patience is key. When did you begin daily dives?
Homina- I know my chamber was a floor model(at Oxy befoe the nurse bought it)- but I don't know many hours honestly. I remember telling Phoiph the number of hours on the compressor with the reader on it and she said it wasn't many. The nurse didn't have a muffler on it either so quite frankly- I don't think there could have been many. She found success with Hortolf Med. In California with allergy like therapy and moved on pretty quickly from mhbot but the truth is- I don't really know.
I did call Oxy Health with the serial number before purchase and their had been no issues. I'd definitely do that if you find yourself in a similar spot. God speed!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Thank you willbeatthis. I'm hoping time and patience will pay off. I started diving early May, but it took 3 months to work up to 1 hr with oxygen.
So, I guess only 2 months of daily 1 hr with oxygen dives.
I've found that because this disease is so up and down I need a lot of reassurances. So thank you everyone for continuing to reassure me when things go south.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
willbeatthis Do you know the year? I am trying to compare yours with another Thanks
Posts: 261 | From California | Registered: Sep 2017
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posted
Hom Hom- It is 2010 - had to go back to my records and was 2700 with 900 shipping (From CA with Compressor- pretty heavy) So total of 3600.00 hope this helps you. To bed.... Amy
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
How's it going Homina? I'm thinking of you! Hw88- you've just gotten started really. Hang in there. I know about the reassurance. I honestly think PTSD is a part of Lyme and Cos. God bless you and keep Diving!!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
How's it going Homina? I'm thinking of you! Hw88- you've just gotten started really. Hang in there. I know about the reassurance. I honestly think PTSD is a part of Lyme and Cos. God bless you and keep Diving!!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
It is going Okay Phoip is giving me leads for a chamber I hope to have one soon
Posts: 261 | From California | Registered: Sep 2017
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Thanks willbeatthis. I know I struggle with PTSD. I have days that it doesn't bother me, but then out of the blue, I will pass a store, or see something and all the panic and trauma of this disease comes at me like a 5 ton truck.
I really have just started. Thank you for the reassurance.
QUESTION: My Dr. is suggesting join up in my dive time to 2 hrs. I remember there was a conversation on here at some point about dive times, but I'm horrible at finding what I want on this site. Can someone direct me to that conversation?
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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quote:Originally posted by HW88: QUESTION: My Dr. is suggesting join up in my dive time to 2 hrs. I remember there was a conversation on here at some point about dive times, but I'm horrible at finding what I want on this site. Can someone direct me to that conversation?
I don't think there's any data unfortunately.
O2 is toxic to some bacteria, that's one of the reasons why hbot is effective, it's also toxic to the brain at higher concentrations though.
If you look at the brain injury studies, outcomes are better at lower pressure (1.5 ata) and outcomes are worse when patients go into the chamber too often, and for too long. They regress, unfortunately.That appears to be the result of oxidative stress. The same mechanism that kills bacteria.
Longer treatments times may help with your Lyme, but there may be downsides.
Posts: 146 | From Virginia | Registered: Mar 2010
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Phoiph
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posted
I am not in favor of diving 2x per day for chronic neuro-type illness like Lyme. IMO, it may upset the balance of free radical production (which is necessary to harm the pathogens), and antioxidant production by the body (that is necessary to protect our own cells from the free radicals), which could cause oxidative stress, especially in someone who is already compromised.
I agree with Charles in that it is useful to look to the brain injury models of mHBOT treatment from an expert like Dr. Harch for guidance with a neurological disease. Like any drug, there is a dosage "sweet spot" that the brain responds best to:
More is Better: The Recurrent Illusion of Higher Pressure HBOT in Chronic Brain Injury, by Dr. Paul Harch
When I was in the early stages of recovery with mHBOT, I wondered how, even if my body were to become functional again, would I ever deal with the psychological fallout of going through 8 years of mental and physical torture.
I can tell you that, although it took time and came in stages, miraculously, I am able to talk about my experience, without reliving the trauma and experiencing psychological pain. I can only attribute that mental healing to mHBOT.
As I was recovering, I would sense that my emotional brain was healing on another level...without my conscious participation in the process.
You are just beginning with mHBOT. Given time, I am optimistic that the PTSD will work itself out just as it did with me, and has done so for others.
You are early in the process. Keep the faith...and if you can't, we will keep it for you!
Posts: 1921 | From Earth | Registered: Jul 2013
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Phoiph
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posted
For those who have been trying to reach me~
I've been deluged with lots of calls and messages as of late...
If I haven't returned your message yet, I haven't forgotten to respond...just a little backlogged!
posted
HW88, FWIW, I upped my time from 1 hour to 90 minutes and STOPPED getting benefits. It took a while to figure it out but when I went back to 1 hour I continued to improve again.
If I were ever do that experiment again I would go to 2 X day and maybe reduce the time under pressure to 45 minutes.
However, the protocol that Phoiph has set up has helped in a number of cases now, so in my mind I see no reason to change it.
Posts: 542 | From NW Arkansas | Registered: May 2003
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posted
Thank you all. My heart is full with the support I find here. I find myself going in waves and when I need reassurances, you all are here.
I love diving. It's interesting because my hair is growing faster, my nails are stronger, and my gums are more pink. I notice little things like this and I know it's doing something.
It will work on the bigger issues too. TIME!
Thank you all!
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
After having problems with repairing window on my 06 Oxyhealth Respiro I laid off diving but still felt I was getting benefit from using my concentrater.
Looking at buying something new this time that I can get a 5 year warranty and affordable.
That brings me to looking at Newtowne and Summit to Sea. I know several years ago Oxyhealth had a false smear job on Summit to Sea that was cleared up after investigation.
Would love to hear any input be it pro or con of either of these manufactures.
Posts: 805 | From Utopia | Registered: Feb 2006
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posted
Thsnks for the input HW. I notice where you can purchase new Newtowne's with warranty on Ebay plus they have an option to offer a lower price.
If anyone purchased one on ebay and they accepted your lower price would be curious about how much they came off asking price.
Posts: 805 | From Utopia | Registered: Feb 2006
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