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» LymeNet Flash » Questions and Discussion » Medical Questions » Mild Hyperbaric Treatment (Page 51)

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Author Topic: Mild Hyperbaric Treatment
dbpei
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Charles, that is wonderful that you were able to survive your milder case of Covid. You must be very grateful.

Digby, so sorry that chelation has set you back like that. We all try so hard to get well and sometimes regret some of our choices. I know for me, it has been a rocky journey as well. mHBOT has been so far, the best thing I have done. But I know I still have a way to go.

To everyone here, I am just curious... I started to watch some of the latest Lyme Summit 4 and listened to an interview with well known LLMD, Dr. S on the first day, who said that ATA of 1.3 is not high enough to kill all lyme germs in the body. I believe he stated that you must use a higher atmospheric pressure of 2.4 or more.

I am pretty sure from my following this MHBOT thread, that there are some here who have completely recovered, but needed to do daily dives at 1.3 atmospheres for 2 or more years.

I can try to look up your stories, but it would be so helpful to hear from some of those people to keep us hopeful. Phoiph, thank you in advance!

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kgg
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Dbpei, I am cynical. So please forgive me if I sound sarcastic. But Dr S says that because that is what he has in his office for his business!! There is another doc in MD or PA, can't remember which, who recommends mild units for his patients.

Meanwhile, I like you, feel that mHBOT is the best thing I have done for my health and to recover from Lyme. And most importantly, the improvement has been lasting. I still do maintenance dives as I have had Lyme most of my life. But I would not be without my chamber! I will be forever grateful to Phioph for changing my mind about selling my chamber and giving mHBOT a concentrated try. Her support was invaluable. This treatment changed my life.

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dbpei
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Interesting take, kgg. I appreciate it and tend to agree with you. I am so happy to hear about the progress you have made. I'm also very grateful for Phoiph's part in all of this and helping so many of us.
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Phoiph
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Thank you both so much for the kind words. I would like to extend that sentiment to everyone here on the site who offers their invaluable experience and advice, as it "takes a village"!

dbpei,

Think of it as a difference in philosophy.

Thankfully, we are not trying to kill all of the "germs" in our body; that is not our goal. (BTW, we have more bacteria in our body than our own cells!)

Our goal is to regulate and restore our body's ability to fight harmful pathogens and restore health. This is what mHBOT does so well.

If "bug killing" worked so well for CHRONIC Lyme, then everyone would already be well via antibiotics.

Unfortunately, IMO, until this antiquated "must kill the bugs" philosophy evolves, many people will continue to search and struggle.

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Hominahomina
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Digby

My question was knowing what you know now about the chelation protocol that you were on would you modify it just not do it at all or try something completely different? Thanks
Kgg
Can you tell me what your maintenance regime with mHBOT is like
Thanks

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Charles12
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quote:
Originally posted by dbpei:
Charles, that is wonderful that you were able to survive your milder case of Covid. You must be very grateful.

No, not grateful.

I don't think the virus is a serious threat.

The fatality rate looks like it will settle at around 1% or 1.5%.

Public Health officials made a bad gamble, early on, based on Italy's struggles (which said more about Italy than anything else). And once they made that decision, they were married to it.

They were never going say "we were wrong."

The presidential election is the other major factor. The virus has become a useful political tool.

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kgg
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Homina, I did three dives this past week. The last time I had been in the chamber was March. So I go by how I am feeling. Initially, after I had finished 2 years + a few months of daily diving, I would dive a few days and take a few days off. I think my first long stretch of not diving was 3 weeks. But as time went on I got busy with life and found I did not dive as often. Now I dive when my fatigue gets more than just the business of summer.
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Hominahomina
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Thanks Kgg since you are not diving regularly are any symptoms coming back? would you say you are 100
% recovered or a lesser?

Another question to all of you
Do any of you have problems with weak or exhausted adrenals if so what do you do about it?
Thanks

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kgg
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Yes, I have symptoms return. Mostly the fatigue. But my tick bites were when I was 10. I was not diagnosed until I was 45. Cure, it not in my vocabulary. It also helps with aging. So where I am at in life, I will be hanging onto my chamber. =)
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Hominahomina
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Thanks Kgg A couple Lyme doc I heard interviewed said the same as you... total eradication is not realistic. That is sad and I hope they are wrong.
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Phoiph
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Homina,

As I mentioned above, total eradiation is not the goal; it doesn't have to be to have good health and be symptom-free.

Just because we may carry a potential pathogen in our bodies, doesn't mean we have the disease. Many people live their whole lives carrying Lyme without ever knowing or having symptoms.

Conversely, if you do have chronic Lyme Disease, even if you were able to rid yourself of every last Lyme bacteria, unless you address the ongoing immuno-inflammatory response, you will likely still have symptoms.

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Phoiph
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kgg~

Great to hear how well you're doing!

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Hominahomina
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I am wondering if any of you have increased need of b12 and iron because of Lyme and Co infections ?

Thanks

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carbokitty
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Homina~

I recently discovered that adding B12 in the form of methyl B12 made a huge positive difference in my energy levels. I had been taking a methylfolate and methyl B12 supplement for 2 years, but the amounts of each were really low. The company stopped making the product, wo I searched around for something similar (by the same company) and purchased a B-complex, also in the methyl form. Immediate energy boost and feelings of well-being.

However, methyl groups are not for the faint of heart. Those feeling lasted about a week. Then I started feeling really angry (not normal for me). I learned that that can happen with excess "methylation". One of the key remedies for that is to take the nicotinic acid form of B3 (niacin) (but nicinamide form won't work ~ and for me actually compounded the problem). Once I took a very small amount of nicotinic acid, all that uncomfortable feeling of anger went away.

I know. It's sort of complicated. And a little tricky. But the result is that I have energy and stamina that I haven't experienced in years and I'm very grateful for that. Despite the car accident and injuries in January, I've been able to push myself, do my PT exercises and become more active (walking/biking/kayaking) without the crashes in energy of the past.

Why methylated form? 45% of the population has a gene mutation called MTHFR. (I am in that group) and don't process the non-methyl form and don't really get the benefit from non-methyl folate and B12.

Why did I wait so long? I thought I was getting plenty of B12. I was taking a supplement (it turns out it only had a tiny amount of B12 and folate) and I eat paleo=plenty of B12 in protein-so I thought I was covered. I guess not. Game changer.

Hope that helps.

Hope everyone stays well and safe.
Carbokitty

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Hominahomina
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Thanks Carbo
What brand of B complex and nicotinic acid did you use?

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carbokitty
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Dual Health niacin powder Vit B3 + Biotics Research Bio-B complex.

Carbo

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carbokitty
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Dual Health niacin powder Vit B3 + Biotics Research Bio-B complex.

Carbo

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Phoiph
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More info on benefits of HBOT for Covid19:

https://carolinefifemd.com/2020/08/11/hbot-for-covid-19-respiratory-distress-see-article-in-uhm-ahead-of-print/

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dbpei
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Thanks for this study, Phoiph. It is encouraging and once again, makes me happy I have my chamber during these challenging times.
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