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» LymeNet Flash » Questions and Discussion » Medical Questions » Mild Hyperbaric Treatment (Page 54)

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Author Topic: Mild Hyperbaric Treatment
LadyT
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Thank you Phoiph and Digby for your replies! Most appreciated.
The reason I was doing 2 hours was I have endometriosis and there was a study showing the reduction of the lesions with 2 hours for each dive. Also, many docs online suggest 2 hours for the lyme/co-infections.
Functioning is non-existent I'm afraid, and has been for years. I do have my mom help me walk across the house because I know I need to move my lymph, etc.
Diet is high in healthy fats and always all organic foods (veggies, meat, berries).
I do wave1 by fremedica (its a form of light therapy) and because of the lack of progress, I am now doing pulsed IV antibiotics.
Supplements include multi-vit, organ supplements by Ancestral, cod liver oil, probiotics.
I used to do a lot of cultured foods but realized that it was negatively affecting me as I have to watch my histamine.
I have had lyme for 29 years, so don't know what the typical recovery rate with mHBOT is for that length of illness.
My doc is recommending 3000 mg of vit C spread out through the day to help with adrenal function, although I don't know if I should because I don't want that to impede the HBOT. I also take cytomel (for hypothyroid), low dose of hydrocortisone for adrenals (trying to help with POTS-like symptoms), and trazodone for insomnia. To support the liver, I also take milk thistle and NAC (small doses as I know they are antioxidants).

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LadyT
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One more thing. My mom wants me to get off all antibiotics and do bee venom therapy. Does anyone know if you can do bvt with hyyperbaric? I have asked 3 different practitioners and they all gave different replies.
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kgg
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Welcome LadyT. Phoiph and Digby have given you wonderful advise. I am a beekeeper and don't do BVT. With histamine issues I would be concerned, but I don't know a lot about it.

If I were you, I would do as they suggested and drop down to 60 minutes of dives a day for a long while and see how you feel before trying something different.

Don't give up!!

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Phoiph
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kgg, How awesome that you are a beekeeper. Bees rock!

Lady T,
Thanks for the additional information. Just so you know, 8 months is not a long time to have been doing mHBOT in the scheme of things. At 8 months, I was just starting to notice "shifts", but these shifts didn't necessarily feel like improvement.

Some people take longer to realizes differences, but if they keep at it, they eventually do (Digby is a good example).

My opinion is that a simple protocol is best. 1 hour/day of mHBOT (not counting pressurization and depressurization time), consistently.

For diet, I would also consider meat broth (less in histamines than bone broth) to help heal your gut. You didn't mention eating gluten, but I would eliminate that if you do. Continue with lots of good fats and a paleo-type diet. The vitamin C dosage suggested is not that high, but I suspect that it may be too much for your gut at this point. You will have to be the judge.

I know your mobility is limited, but consider a very gentle yoga class which can be done in bed or a chair (many offered on Zoom). Focus strongly on your breath. The gentle movement will greatly help your circulation and ability to move lymph/detox.

Finally, unless the antibiotics are somehow helping, I suggest revisiting the antibiotic choice with your doctor. The state of your gut microbiome is crucial to becoming well, and it is severely disrupted by antibiotics.

Usually, someone who does mHBOT while antibiotics will need to gradually reduce and eliminate them once they have become more stable on mHBOT in order to become well. This process inevitably takes longer than it does for someone who is not on antibiotics.

I hope this helps...feel free to PM me anytime.

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keikko
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Hi. I am going to jump into the hyperbaric world soon I was wanting some feedback on what chamber to get.

For those who have Newtowne, wondering about the zipper issue. Has it been hard to use with no one else there? Any feedback about your experience with this chamber would be great...good and bad.

Also, if anyone has the Solace by Oxyhealth Im wondering how you like this chamber? I am a small person 5'3 95lbs. I know its not as roomy but just curious if anyone has or is using this and your experience. Good and bad.

THANK YOU SO MUCH!

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dbpei
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I love my Newtowne, but it does take a little while to figure out the zippers. My husband usually zips up the outside zippers for me and I do the inside, but if he is not home, I am able to do all 3 zippers myself.

Sometimes I need to unzip and start again if I don't get it right the first time, but I have never felt unable to manage things myself. I have the 34", which I find to be very comfortable and I do not feel anxious or claustrophobic in it. Customer service has been excellent as well.

If you are on FB, there is a wonderful group called MHBOT Mild Hyperbaric Oxygen Therapy that has been a huge help to me. I remember searcing and finding some videos with instructions when I was a beginner. Good luck with your decision!

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kgg
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I have a Newtowne as well. Marie at Newtowne suggested to me to use a wooden paint stick to finish closing the zippers into the small pocket area that is at the end of both the outside and inside zipper. I find it works well.

For the middle zipper, I make sure I pull up with my arms over my head to seat it well.

I know everyone talks about the zippers for the Newtowne chamber, but I find it no different than the OxyHealth chambers. I had a Vitaeris chamber. I have had more false starts on the OxyHealth chamber where I did not zip up the outside zipper far enough than using the Newtowne.

As far as size, I am 5 ft tall but weigh more than you. I would not like the Solace size. Even though I may fit in it, I like the ability to sit up and move around in a roomier chamber. I have the 34" chamber.

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S13
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I have a Summit To Sea chamber "the Dive" and it has been working flawless since 2013.

Getting in and out is pretty easy, though you need a bit of flexibility.
I use a wireless remote to switch the pump on and off while im in the chamber, so im in full control.
To the roof ive attached 3M velcro, so i can hang my tablet from the roof and look at netflix/youtube while im laying on the mattress.

I use it approx 70% of the days, so that is about 2000 dives.
Come to think of it, that makes the cost per dive only a couple of euros! Over the years ive probably spend more on certain supplements [Wink]

The chamber hasnt needed any servicing or maintenance, other than me keeping it clean and sometimes lubing the air hose rubber with vaseline (i travel a lot now, and the chamber travels with me, so the air hose gets disconnected every day)

I dont know how long it will last, because traveling does take its toll on the material, but for now it seems to be going just fine. I never use it up to 1.5ATA any more, 1.4 is the max these days and only when im at higher elevation (above 500 - 1000m in the mountains).

Back then the Summit to sea chambers were a bit more affordable and easier to get in the EU. Dont know if that situation has changed since.

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Hominahomina
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Hello All
I wanted to share some info and get some feedback

I have found CBD oil a great help in getting to sleep

For some reason some brands work for this and some dont
The Dr Rawls brand works but a couple others don't

I am wondering if any of you have had this experience and if you know why some work and some don't for sleep

Thanks

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carbokitty
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Hi keikko! Welcome. I also have the Newtowne. Yes, a bit of a learning curve on the zippers but I don’t even think about it any more. I’ve been diving 6 days a week (7 during most of last year) for 2 1/2 years. I do it myself. Great customer service!
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keikko
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Thank you for the replies!

I appreciate it so much. With my poor brain function it is hard to make a decision on what is best.

Dbpei, good to know about the Facebook group and you were able to navigate the zippers. I'm not on FB but maybe I should give it a try.

Kgg, thank you for the info. Interesting the was no difference for you with the Vitaris, Ya, I have heard the Solace is small. I guess Im not sure what to except so I didn't know if the was a big deal or not.

S13, I have not heard of that brand but I will check it out. Sounds like it has worked out really well. Thats a lot of dives!

Thank you carbokitty. Good to get your feedback and that you can do it yourself. Im afraid of getting in there and not being able to get out. [Smile]

Hominahomina, I have had a similar experience with CBD oil Some gives me more energy and some helps me sleep. I take it 4 times a day and love it but I take two different ones. one to give me more energy and one for calming. The one I take before bedtime is from One Farm and it works great for me.

Thank you!

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Hominahomina
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Thanks Keikko

What strength and flavor do you use and how much per night ?

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keikko
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I get the unflavored just because I dont like flavor too much and I get the 30mg bottle and only have to take 8-10 drops. That way the bottle lasts longer so it cheaper. Im pretty sensitive to supplements and medications so less is always better for me.

I started out with the 10mg strength and have moved up to the 30mg and just use the less of the stronger one if that makes sense. Its organic too:)

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Hominahomina
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Thanks I might try it
FYI The Rawls brand at 1200mg when on sale is cheaper

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keikko
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Good to know! Thank you Hominahomina.

I take CBD mostly for anxiety and sleep but it is the one thing in my supplement cabinet that I would hold on to.

It was a process of trying what worked but I was lucky I lived by a pharmacy that carried several brands so I returned them when they weren't helpful.

CBD is so helpful once you get the one that works for you.

I have heard the Charlottes's Web brand has a good one for sleep too but I haven't tried it.

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Hominahomina
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keikko

I am trying to find out why some works and some does not some companies give a lot of detail so that helps
I can check out Charlottes web I have heard it recommended before

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tom f
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Airsep intensity and "pulse" mode-
Wouldn't be true that if the unit was in this mode and under use - the glass lpm indicator would be pulsing/fluctuating instead of a steady reading?

I want to turn it to as close to 10 lpm as possible.

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Phoiph
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Hi Tom,

When used with a chamber, oxygen concentrators have to work harder in general to compensate for the backpressure from the chamber (this is why 20psi units, like the Airsep New Life Intensity 10, are recommended).

The reason you need to keep the AirSep at 8-9LPM (max) when using with a home chamber, is that you will retain about 3% more oxygen purity than if you set it at 10LPM.

In other words, the higher the LPM is set, the greater the flow, but the percentage of 02 will drop.

For the Airsep, it has been determined that 8LPM is the "sweet spot", as it provides good flow without sacrificing 02 purity. Other brands will differ.

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Hominahomina
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Out of curiosity Have any of you been diving specifically to prevent a Covid infection and if so what have been your results ?
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keikko
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Hello.

I was able to do my first mHBOT treatment yesterday in a Newtowne Chamber. I only did 30 minutes and overall it went well.

Less body pain throughout the day but my brain felt worse and things seemed more surreal afterwards.

I am on a waiting list for a Newtowne Chamber but its going to a while and a concentrator.

I am wondering what was the off gassing like for Newtowne Chmabers. I am very sensitive to chemicals and I am wondering once I get the chamber will it need to sit out for several months to even use it?

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kgg
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Congratulations for your first dive! I too am chemically sensitive. There is a slight smell when I first got it but I did not react to it. There was a time that they would send you a sample of the material but that was just going to delay the arrival of my chamber so I did not request it.

I don't remember how long the smell lasted. Maybe a couple of weeks? But again, I did not react to it. I usually get nauseated and increased fatigue when I am exposed to chemicals. That did not happen.

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Lassie27
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Phoiph - I am pming you for some information!
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keikko
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Thank you Kgg!
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keikko
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Hi. My chamber will be here next week and I finally have a concentrator.

Im trying to find the link to the oxygen mask some have purchased off amazon. Does anyone have it?

Anything else I will need to get started? I have read this thread twice and it all leaves my brain in seconds. I should have written more down. Im going to have to read it again [Smile]

Hoping I will be able to successfully do this with such poor brain function.

Thank you

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Phoiph
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Hi keikko,

If you purchased your concentrator from the resource we talked about, it will come with masks.

If you need to purchase one, here is an example:

https://www.amazon.com/Simple-Medium-Concentration-Oxygen-Mask/dp/B00NWZGNXI/ref=pd_di_sccai_2/139-3659857-6821556?pd_rd_w=xjcuR&pf_rd_p=c9443270-b914-4430-a90b-72e3e7e784e0&pf_rd_ r=XFX1TJR9VT6ZRRKMN28E&pd_rd_r=ecb79039-3ea8-49b8-9259-23887f8d79a4&pd_rd_wg=8ANB4&pd_rd_i=B00NWZGNXI&psc=1

(I strongly recommend NOT using a non-rebreather mask [with the attached bag]. Those are designed for more oxygen flow than our concentrators provide when hooked up to a chamber, and could be counterproductive at the very least.)

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kgg
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This is the one I bought off of Amazon. It is an OxyMask. Less hot to wear, imo. I started with the one Phoiph has listed above. But changed to this one. Btw, it may be cheaper elsewhere. But you requested an Amazon link so that's what I did.

https://www.amazon.com/dp/B01JPV5DBA?ref=nb_sb_ss_w_as-ypp-rep_ypp_rep_k1_1_7&crid=3EWUF0RRT6JUZ&sprefix=oxymask

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Phoiph
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Thanks, kgg!

The Oxymasks are great if the simple mask is uncomfortable (I use one). You just have to make sure they are manufactured by Southmedic/Medline Industries, and not a knock-off brand.

I am glad you found this link, as they were unavailable for awhile without a prescription.

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keikko
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Thank you Phoiph and kgg. I will get one of these. Can you also use a nasal cannula. I remember somewhere on the thread that said no but just making sure.

Phoiph I was not able to get a concentrator from James because he has no idea when he is getting them in. Back ordered for who know how long. He told me if I could find one somewhere else to get it cuz they are in demand. He is so nice!

I was able to buy a Drive from the hyperbaric place here. When I was trying out the chamber they had several delivered and I asked if I could buy one. Long story but they sold me one.

Thank you for all the help!!

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Phoiph
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keikko~

Great!

I would use one of the two suggested masks and not a nasal cannula, as the masks will deliver 02 more effectively for our purposes.

Please contact me before you run your chamber, as I have some diving instructions (with precautions) I can send you.

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keikko
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Hi. I am wondering if on the 02 concentrator, do you just leave it at 10LPM?

Or do you work up ? like 2L then 3 etc.?

I know you are supposed to start without wearing it at first, and then wear it for 20 mins etc. but just wondering if it always at 10L?

Thank you!

Also can the compressor and concentrator sit next to each other on the floor or do they need to separated?

Thank you! I

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Phoiph
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Hi Keikko,

With your concentrator, because it is not an AirSep or a SeQual, you will set it and leave it at 10LPM, even throughout your slow start up schedule.

The compressor and concentrator should be separated a bit if possible. Both produce heat that will be drawn into the chamber. Even if you can place one at the head, and the other at the foot of the chamber, that will help.

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keikko
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Got it!

Thank you Phoiph!!!!!

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Phoiph
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An informative review of people's personal experiences with Lyme and Covid "vaccine" reactions. Scroll down to blog section:

https://danielcameronmd.com/opinion-low-covid-19-vaccine-trust-among-lyme-disease-patients/

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kgg
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Thank you for posting Phoiph. I have been in conversation with a physician friend who has chronic Lyme. She thinks this "vaccine" is brilliant. I asked her how she could trust it while it is the very same entity that have been denying Lyme for decades. I did not really get a response, except that she understands how I could be skeptical considering the history. So I guess I agree with this headline. Will take time to read it and the comments later today.
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LadyT
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Hello All,

I was just diagnosed with cranial cervical instability (as a result of long-standing tick borne infections). I am wondering if anyone has any experience with it, such as treatment, etc that doesn't involve surgery. I wonder too if mHBOT would do anything.
Thank you, and I hope everyone is staying safe!

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Phoiph
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Hi LadyT,

I know someone with this condition. He has been helped by a chiropractor specially trained in "Atlas Orthogonal". He also does mHBOT, so it is possible that is helping also.

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Phoiph
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quote:
Originally posted by Phoiph:
An informative review of people's personal experiences with Lyme and Covid "vaccine" reactions. Scroll down to blog section:

https://danielcameronmd.com/opinion-low-covid-19-vaccine-trust-among-lyme-disease-patients/

Dr. Cameron is conducting a survey to understand the impact of COVID-19 on individuals with Lyme Disease and other tick-borne illnesses. You can participate in the survey if you have had Lyme or tick-borne illness and any of these criteria:

1. You have had COVID-19
2. You have had the COVID-19 vaccine
3. You have had neither COVID-19 nor the COVID-19
vaccine

https://danielcameronmd.com/lyme-disease-covid-survey/

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Digby
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LadyT, I have wondered if CCI is the cause of my chronic headache. Here is a link to an alternative approach to treating it as well as lots of information about it: https://regenexx.com/search/cci/

I have considered seeing the doc that wrote these articles but it involves travel and is very expensive.

I have tried multiple upper cervical chiropractic docs with no results. I think that only works on people whose ligaments aren't too stretched out. They typically apply a specific adjustment to the atlas and realign that vertebrae but if your ligaments are too lax, it doesn't hold. Hope you find a solution!

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LadyT
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quote:
Originally posted by Digby:
LadyT, I have wondered if CCI is the cause of my chronic headache. Here is a link to an alternative approach to treating it as well as lots of information about it: https://regenexx.com/search/cci/

I have considered seeing the doc that wrote these articles but it involves travel and is very expensive.

I have tried multiple upper cervical chiropractic docs with no results. I think that only works on people whose ligaments aren't too stretched out. They typically apply a specific adjustment to the atlas and realign that vertebrae but if your ligaments are too lax, it doesn't hold. Hope you find a solution!


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LadyT
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quote:
Originally posted by Digby:
LadyT, I have wondered if CCI is the cause of my chronic headache. Here is a link to an alternative approach to treating it as well as lots of information about it: https://regenexx.com/search/cci/

I have considered seeing the doc that wrote these articles but it involves travel and is very expensive.

I have tried multiple upper cervical chiropractic docs with no results. I think that only works on people whose ligaments aren't too stretched out. They typically apply a specific adjustment to the atlas and realign that vertebrae but if your ligaments are too lax, it doesn't hold. Hope you find a solution!

Hi Digby,
Thank you so much for the reply! I did DMX testing to get a diagnosis and then am doing rehab at Katz Chiropractic in Boulder, CO. This is their specialty. Perhaps you could call them and they might be able to recommend a similar provider near you. I know they are very well connected. Hope this helps!

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LadyT
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Hi All,

You have been so helpful with all my questions so far and I really appreciate it.

I have another one, and it is quite tricky. None of my docs or other medical professionals (or even myself) can figure this one out:
I cannot tolerate any B-vitamin (they make me feel extremely wired, irritable, and ill. No matter the type or form or route of administration. This is especially dangerous for me, as I have been diagnosed with Pernicious Anemia, and desperately need B12, B9, etc. If anyone has any idea as to why I cannot tolerate B-vitamins, or how I could help with this, I would greatly, greatly appreciate it.
I hope every one has a Happy Halloween!

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Phoiph
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Lady T,

Have you looked into MTHFR and COMT mutations?

https://www.mindbodygreen.com/0-11727/are-vitamins-triggering-your-anxiety.html

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Digby
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Thanks Lady T. I'll give them a call. My first thought about the B vitamin issue is the MTHFR pathway, same as Phoiph.
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LadyT
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Thank you Phoiph and Digby. COMT and MTHFR are not a problem for me. Genetically, I am pretty clean. That's why I (and all my docs) cannot figure it out! So weird
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Phoiph
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Lady T,

I know a doc who I'm quite confident can figure this out. You can PM me for contact info if you're interested.

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Kaibyrd
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Hi everyone! It’s been a while since I’ve been here. I didn’t mean to stay away so long but life is just so hard now. I took a break from mHBOT last summer and tried an online doc who subscribed supplements. They didn’t help any. I have been trying to get back into the mHBOT routine ever since then but it severely messes with my sleep which is already really bad. I can’t take sleeping pills since they tend to make me sleep all the time and otc products aren’t much better. My supplements I usually take don’t seem to be working well or they end up giving me nightmares or just increase my brain fog (which is already pretty bad as well). Has anyone had this issue and found a way to get around it?

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KB

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Peimomma
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Hi Kaibyrd,

It’s been a few months since I’ve been on the board too. When do you do your dive? I know I would have a herx reaction if I dove too late in the day and that would interrupt my sleep. Others have said if they dive late in the day the oxygen keeps them awake.

On another note, I’m still doing well and have now started a work from home job recently. It’s much easier with all the Covid stuff, nothing to do with my health. I do still dive periodically just because oxygen is great for the body.

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Kaibyrd
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Hi Peimomma!
I’m so glad to hear you’re doing so well! Congrats on the job!

I usually dive in the afternoon but that’s basically morning for me. I have such a hard time falling asleep and staying asleep ever since I hit menopause that I usually fall into my deepest sleep between 4/5 am to 10/11 am. Then I’m so exhausted that it takes me a while to get my brain functioning and get out of bed. On days where I must get up earlier, I usually get maybe 3 hours of sleep. On the rare nights that I fall asleep before midnight and sleep until 8 or sometimes later, I actually have a small amount of energy the next day so I’d really love to figure out how to get there more often. 😝 The mHBOT makes it all so much worse though. 🙁

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KB

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Peimomma
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I had some sleep issues due to menopause as well and started on BHRT which set me straight. The chamber won’t fix menopause issues, you’ll have to seek a provider well versed in bio identical hormone replacement therapy. A good book to read is “How your Doctor is slowly Killing you”. Getting my hormones P,T&E made a world of difference on my energy level, stiff joints, sleep disturbance and fatigue. I found out not all of the symptoms were only related to Lyme, hormone imbalance also is a cause for these and many more symptoms that crossover with Lyme.
Just another area to look at for some help.

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Kaibyrd
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I’ve been on BHRT, off and on over the past 14 years but it makes my hair fall out pretty bad after a while so I have to go off for a couple years. No one knows why it makes my hair fall out. I’ve seen several different doctors and been on different doses and modalities. It’s never grown back in fully on the sides and is pretty thin so I get very nervous when it starts doing that. I think it may be time to try it again though. Thanks for the reminder!

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KB

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kgg
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For me, if I dive in the afternoon or late in the day, I have a really hard time initiating sleep. So I dive first thing when I wake up.

I used to fall asleep really well when I was on progesterone. But my OBGYN took me off of it. I miss using it.

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Peimomma
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I’m pretty sure I read in the book I mentioned that it’s too much Testosterone that causes the hair to fall out. Hopefully you find a good compromise of hormones to help. I’ve been on them for 5 years and have only experienced extra oily face🤦‍♀️
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Kaibyrd
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Kgg were you on bio identical hormones? They are safe to use long term.

Afternoon is my morning. 😝

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KB

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Kaibyrd
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Peimomma yeah that’s usually the case but I have a normal amount of testosterone so I wasn’t given any extra.
Extra oil means less wrinkles! 😉
Be sure you’re not over cleansing though. That can trigger your skin to produce even more oil.

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KB

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kgg
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Kaibyrd, I used bio identical for a while, when I could afford them. But then switched to prometrium. Progesterone gives me a sense of well being. I know weird. But it does. I used to take it at bedtime and had no problem falling asleep. Because of my Lyme, I was forever waking up at 3 AM and staying awake until 5 before falling back to sleep. But I never had a problem with initiating sleep until diving late and no progesterone.

Have you had your cortisol levels checked? I was forever getting after my son as a teenager for not falling asleep until late when he was a kid. Then I found out through saliva cortisol testing that his cortisol spiked at 10PM! There was no going to sleep for him. He still is a night owl. I sure stopped giving him a hard time after I found out why he was up so late.

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kgg
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Peimomma, so happy to hear you are still doing well! And kudos for being able to work from home.
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Phoiph
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quote:
Originally posted by Kaibyrd:


"...I usually fall into my deepest sleep between 4/5 am to 10/11 am. Then I’m so exhausted that it takes me a while to get my brain functioning and get out of bed..."

Kaibyrd,

I suggest getting out of bed and into the chamber immediately when you first open your eyes at 10 or 11am.

(Don't wait to "wake up", or become less groggy, just get in.) Be sure to set a good alarm in case you fall back to sleep.

Give it a few weeks to see if this is less disruptive to your night-time sleep and let us know!

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Kaibyrd
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Phoiph I’ll give that a try. Thanks!

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KB

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Kaibyrd
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Kgg, yes I’ve had it checked and it does the same as your son. I went through treatments and diet to help correct it but that didn’t do much for me. I’m a night owl and always have been but waking up way too often through the night makes everything worse.

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KB

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kgg
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Kaibyrd, there are supplements to bring down your cortisol to help sleep that you take at supper or early evening. Enzymatic Therapy has one. I am sure there are others. It has been confusing to me whether it should be phosphatidyl serine, choline or a mix. There are varied opinions out there. So you may want to research if they have come up with a conclusive opinion as it has been a while since I searched on it. That is, of course, if you care to change your awake hours. My son enjoys being a night owl. =)
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Kaibyrd
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Kgg I was on those supplements during my treatment. They didn’t help any.

I think my thyroid meds needed to go up a bit. My doc lets me adjust as I feel the need to so I increased a bit Friday night and the past 2 nights I’ve only woken up once. I hope that continues.

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KB

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kgg
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That's great!
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Phoiph
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Informative and straightforward interview with Dr. Peter McCullough on Covid, variants, vaccines, preventative and early treatment, etc.

Hyperbaric is mentioned around 30 minutes into the interview:

https://youtu.be/xWBC-JX6lsg

Dr. McCullough is an internist, cardiologist, epidemiologist and a full professor of medicine at Texas A&M College of Medicine in Dallas. He also has a master’s degree in public health and is known for being one of the top five most-published medical researchers in the US.

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Determinedtobeatthis
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Hi everyone,

I found this forum via Phoenix Rising. After many years searching for answers, I still don’t know if I have Lyme, severe fibromyalgia, chronic fatigue syndrome, or unknown autoimmune problems that led to severe small fiber neuropathy. I have lots of questions but to start with:

1) Does anyone have experience with Oxygen Health Systems chambers? From what I understand the concentrator is build into the system and not a separate piece. I haven’t read of anyone having these chambers so I don’t know about quality, etc.

2) Has anyone recovered from severe small fiber neuropathy? Possibly with dysautonomia involved? I have received no help from conventional doctors. I have negative lyme tests, including from a more speciality lab (medical diagnostic laboratories), and so far negative virus testing for a current infection from a naturopathic physicians (CMV, EBV, HHV-6). I have severe neurological symptoms that come and go in flares. My other top 2 problems are uncontrolled panic attacks (probably from autonomic insufficiency), and horrendous flu like feeling like I can’t get out of bed (not pain, just awful malaise).

Thank you so much for any help you can give!

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Phoiph
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Welcome, Determinedtobeatthis~

The good news is, if you are thinking of doing mHBOT, it doesn't matter if your diagnosis is Lyme, fibro, CFS, or other autoimmune disorder, as mHBOT treats the underlying common denominators of these conditions.

1) Oxygen Health Systems chambers are made in China, so beware.

2) YES, I had small fiber neuropathy (also the other symptoms you describe, and more), with 24/7 severe, relentless burning from head to toe for 8 years, to the point that I could never stop pacing. All gone now, med free, and 100% well for over 8 years now, thanks to mHBOT (plus diet and graded exercise).

I am optimistic that you will benefit from mHBOT, as I and many others have. Please do your best to read this entire thread, starting from page 1, as it will give you a lot of background information, encouragement, and help you to know what to expect.

Also, I can help you with different chamber options (there are discounts and rent-to-own options, etc., available), just PM me and we can discuss.

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keikko
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Hello all,

I am new to this and just working up to full protocol.

I am at about 40 minutes in chamber per day but I notice sometimes when I get out of the chamber I feel pressure in my chest or tightness that sticks around. Is this normal?

Also having increased depression, fatigue and brain fog which Im not as concerned about. Mainly the pressure in chest area is my concern.

Thank you!!

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Jazzman
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Hi keikko,

Although I may not be able to provide the answer you are looking for, my thoughts are a little more information may be helpful.

What ATA are you diving and what chamber are you using?
Describe how you worked you way up to the 40 minutes you describe.
Describe your oxygen setup and how you administer it, did you start full oxygen right from the get go, what mask are you using?
Was there a time, and or combination of time/oxygen when you first started to feel the onset of the pressure you describe?

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kgg
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Welcome, keikko. I like Jazzman's questions. But if this was me, I would back off on the time. There are times to push through and times not to. I think when you are ramping up your time, I would not push through. Phioph may have a different opinion and I really respect her expertise. But by the time I got to using my chamber I had been through years of antibiotics and herbals, feeling poorly with treatment. So I am at point now that I do not (for long) push through. I take a break until I am at "normal" again. For you it would be the depression, fatigue and brain fog would be back at your "normal" level. Or drop back to the time that you were tolerating without the increase in those symptoms. I took 3 months to ramp up to full pressure. I know that is a long time. But by doing that I found it more tolerable and successful.

I have not experienced chest pressure or tightness while diving. So for me, it would not be normal. Again, I believe that is a sign to back off on your time of diving. Do you have asthma? Do you have a heart problem?

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keikko
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Thank you for the replies.

Jazzman I am in a Oxyhealth Respiro 270. I inflated it this morning while not in it to see what the pressure goes to and it is around 4 PSI. The concentrator is DeVilbiss Drive 10L concentrator. I have kept it around 8L because thats what the guy said to do and when I put it at 10L it sometimes beeps low oxygen light. Does fine at 8L though.

I started with 20 minutes no oxygen mask on, just in the chamber by me, everyday full pressure. This was like 2 months ago. Then I started having ear trouble so I had to go every other day lower pressure until the ear thing cleared up.

Then the ear thing cleared up (sorry my brain is a hot mess so my writing is weird probably) so I went to full pressure again and then went to 30 minutes not wearing oxygen just by me. Then to 40 minutes and recently I started wearing the oxygen mask in the chamber for like 5 minutes. I dove the past 3 days in a row but am kind of in a bad way with depression and brain fog and just feeling bad. The chest thing seems a bit better today.

The oxygen mask is Oxygen mask OM I think.

No, I have felt the chest pressure before this time yesterday maybe one or two other times. Im not sure what is causing it. One time I did fall asleep in the chamber for like an hour and 1/2 but no pressure that time. so its weird. Now I set the alarm.

I just notice the chest pressure when I get out of the chamber not when Im in it. Yesterday it stuck around for a while.

Kgg, No I dont have asthma or lung or heart problems. I'm perfectly healthy on paper [Smile] but have been at this 15 years now. Thank you for the advice, yes I will back off for a day or two and see if it clears up.

Thank you!

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Kaibyrd
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I feel chest pain/pressure every morning when I wake up. It started this summer. It’s not bad, just irritating. I first thought it was my thyroid and I needed to decrease meds but that didn’t help. I went to my heart doctor and everything checks out so I can only assume it’s yet another new symptom of Lyme.
I’m not currently diving because it messes with my sleep so bad. I plan to start again after the new year, just want to get through Christmas.

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KB

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Phoiph
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Kaibyrd,

Were you ever able to try doing the chamber first thing in the morning when you wake up?

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Kaibyrd
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Phoiph, not yet. I plan to give it a try after Christmas. Right now there’s just too much going on and I need sleep and what little energy I’ve got.
I think we’ve discussed binders here before but I can’t remember. Do they help body wide or only in the digestive tract? I try to detox but it doesn’t seem to be enough.

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KB

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Phoiph
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I think when you start doing your chamber first thing in the morning it will help with sleep.

I didn't use binders...I know some people swear by them, so hopefully they will comment.

In my experience, if you are doing mHBOT consistently, eating a super clean diet, and doing daily, graded movement/exercise (including yoga), to help move energy, lymph, and increase circulation, your body will gradually improve its ability to detoxify.

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Phoiph
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Regarding chest tightness, as I mentioned to keikko, as long as any serious cause is ruled out, try working on "chest opening" positions/stretches and focus on breathwork with yoga practice.
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Kaibyrd
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Thanks Phoiph, will try the chest opening yoga.

My diet is very clean most of the time but I have so little energy that every day yoga is just not possible on some days but I’ll work on that too.

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KB

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