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» LymeNet Flash » Questions and Discussion » Medical Questions » Mild Hyperbaric Treatment (Page 6)

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Author Topic: Mild Hyperbaric Treatment
Lymetoo
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The moderators only removed DUPLICATE POSTS. When I posted the above, LN was experiencing problems and things got crazy. That is probably why there were so many duplicates that night.

Feel free to post whatever it was again.

Thank you for eliminnating any duplicates that might occur.

--------------------
--Lymetutu--
Opinions, not medical advice!

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jarjar
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I purchased a used Respiro a month ago so I have about 30 dives to give you feedback from. I do thank Phoiph for guiding me thru the purchase even though I did not purchase it from her connections.

As I told Phoiph in an email earlier I remember her saying after she did about 40 dives she considered returning the chamber.

In my case after 20 dives I would have said "over my dead body does this chamber leave this house"!
Phoiph was more ill then me when she started out and I have my gb4000 with MOPA to thank for that. I still was not well enough to return to work though.

I was able to find a used 08 Respiro for 5,750.00 with oxygen concentrator. My only regret is that I wish I had purchased one years ago when I had a friend from a support group recover with a chamber. I thought he was just one of lucky ones as there no data for home chambers with lyme.

Since I'm only 30 days into this deal all I can say is that I'm pleasantly surprised at the direction my health is going in such a short period.

I continue to use IFR suana, supplements, collodial silver and rife which seems to be more effective combined with MHBOT.

Will post another update in a month or so.

[ 08-05-2016, 06:22 PM: Message edited by: jarjar ]

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levity101
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Phoiph,it's great to hear another success story.

JarJar, please keep us posted--really glad to hear of the direction that your health seems to be going.

It's too early to report much on our end. Took us a while to find a mask to fit my son, and now he's been up to 60 min/day with oxygen for the past week.

Editing with a question, Phoiph, was the Canadian woman doing MHBOT alone or did she combine with abx or other treatment?

[ 04-02-2014, 11:12 PM: Message edited by: levity101 ]

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jarjar
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Not sure if this has been posted, thought it belonged in this thread. Notes from 2013 ILADS meeting,

Dr S** spoke on "Hyperbaric Oxygen Therapy in the Management of Lyme Disease".

There are soft shell and hard shell units available, but soft shell units cannot go to the depths of the hard shell units.

1 ATA is sea level. 3 ATA is 66 feet below sea level; a hard shell unit can go to this level where soft shell units can only go to about 1.3 ATA.

HBOT therapy can provide the body with 22 times more oxygen.

Stimulates over 5,000 genes. Increases growth factors, reduces swelling, promotes the growth of neural pathways, activates sleeping neurons, increases ATP, and downregulates inflammation.

Dormant mitochondria produce 2 ATP; whereas after HBOT, 36 ATP may be produced.
VEGF increases which is associated with improved blood flow.
Stem cells may be stimulated.

HBOT may have an antimicrobial impact being both bacteriostatic and in some cases bacteriocidal for anaerobic infections and even some aerobic. HBOT may create a toxic environment for Borrelia.

Interleukins, TNF-alpha, and others improve.
If one has a genetic predisposition to biotoxin-associated illness, HBOT may improve outcomes.

1.5-2.0 ATA may support detoxification. 2.4 ATA may have antimicrobial effects and support reducing inflammation.
HBOT may help minimize Herxheimer reactions.

- See more at: http://betterhealthguy.com/ilads-2013#sthash.xvh8QvSe.dpuf

**edited name of LLMD**

..................................................
Breaking this up for easier reading for many here - Robin

[ 04-05-2014, 12:11 AM: Message edited by: Robin123 ]

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Looking4hope
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Below is what I originally posted here on Lymenet close to two weeks ago or March, 23 2014....hope this helps(-:

I'm relatively new to these forms so before I proceed I would like to give a brief history. I'm a 37 year old male who went from being a very busy Personal Trainer, working ridiculously long hours to near collapse over 2.5 years ago!
   
Like many hear my body was giving signs my "System", was breaking down (IE) frequent colds, headaches, and intermittent nausea. I attributed the above symptoms at the time to a very nasty divorce, coupled with work related stress, and poor sleeping patterns.
   
Around June of 2011, I became really ill with all the typical Lyme "Trimming And Fixings". I had a really stiff neck, excruciating headaches, intense nausea, relentless fatigue, dizziness, and an overall feeling of not feeling well.
   
I took a leave of absence from my job at the time....not exactly easy when you have anywhere from 26-32 clients and averaging anywhere from 120-140 sessions a month as a trainer.

Nonetheless, I left then came back only to leave for good in December of 2011, as I was now sicker then ever!
   
It should be noted during this time I voluntarily went to the ER, saw numerous Doctors, who all stated they couldn't find anything wrong with me. I became so sick, I had to move back home with my parents in another state.
   
2012 was filled with a series of "Ups And Downs". After doing a great deal of research I suspected based on my symtomology I was a fairly good candidate for having contracted Lyme Disease. I decided to consult with an LLMD or Lyme Literate Medical Doctor in July of 2012.
   
During the appointment I was given an Igenix testing kit. Feeling I was already getting better doing my own treatments at the time...I elected not to go through with the testing.

Looking back...part of me didn't want to face the grim prospect I had this "Big Green Monster", called Lyme Disease to possibly deal with!
   
So I packed up my bags, and headed back to where I was living before I fell ill.. where both my son and girlfriend were residing.

Within a couple months of moving back, I started getting sick again. The following year was in which I would get sick, then "Kind Of Rebound", then get sick again.
   
It wasn't until around April of 2013 that I awoke one morning to what can best be described as a "Living Purgatory". Everything was "Off",

I had trouble speaking at times, couldn't tolerate loud noises, couldn't think clearly, had intense head pressure, and had to force myself to keep my eyes open. I truly thought I had endured some sort of stroke during the night time hours.
   
These symptoms became progressively worse over the next month ultimately forcing me to move back home to another state once again.

Upon arriving home I had an MRI performed with and without contrast. The MRI showed small whitespots on my frontal lobes. My neurologist stated I had nothing to worry about, and there was no need to test for Lyme Disease.

I proceeded to tell her, I still wanted to go through with the test. Shrugging her shoulders and shaking her head she reluctantly agreed.
   
Two weeks later my test results come back "Inconclusive". She then states via the phone I don't have Lyme Disease and I'm simply wasting my time. I told her I respectfully disagreed with her and hung up the phone.
   
I then went back to the LLMD, I originally saw in my hometown and had my blood work sent to Igenix. Not to my surprise my test came back "Positive", for   Lyme Disease meeting both CDC criteria as well as Ig Igenix criteria for diagnosing such.

I didn't test positive for either "Bart", or "Bab", however that doesn't necessarily mean I don't have either one or possibly other "CO-INFECTION"?
    
The last year has been filled with a very wide and dizzying assortment of "Lyme Disease" treatments.

The only thing that "Kind Of Worked", was various forms of Ozone Theraphy. With that being said I still intuitively knew after roughly six months of Ozone Therapy it wasn't going to do everything I was hoping it would do.

I continued to lose weight going from 5 "9" weighing 170lbs with 7% bodyfat in early 2012 to 140lbs.
   
My encephalitis also continued to spiral out of control! It was roughly 60 days ago....I won't go into all of the "Gory Details", however I really was losing all capacity to continue living on this great big old "Spinng Rock" also referred to as planet earth.
   
So at this point I'm basically homebound, spending a ton of time in bed. So there I was lying in bed with my Kindle Fire, which has a couple tabs opened one of which was "Lymenet".

I somehow stumbled upon this thread and just started reading. I had heard of HBOT in the treatment of Lyme Disease, yet I had never heard of "Mhbot".
 
The more I read the more interested I became. Let me rephrase that....I became as interested as someone with Lyme Encephalopathy might be able to become? I was still miserable, both Physically and Mentally yet I continued to read.
   
I saw these posts from someone in Arizona who goes by the username "Phoiph", here on Lymenet. After reading all of the posts I very reluctantly reached out to Phoiph via private messaging here telling Phoiph just how sick I was.

It was only after hearing about Phoiphs experience first-hand which BTW gave me the chills as they were earaily similar to mine!

I truley thought I was the only one on earth who felt the way I did. It didn't matter how many testimonials I read from others on various "Lyme Boards"....I truley thought my case was unique and different before hearing Phoips story!

Let me further state that no one can make this "Stuff Up"! It's one of those things where it "Takes One To Know One"!

I believe even the brightest of minds filled with compassion can't begin to grasp on the most elementary of levels just how painful this disease can become!
 
So after working with Phoiph for a couple weeks intermittently via email and such, and seeing my Dr I place an order for my chamber through Oxyhealth.

However before placing the order I went to a naturopathic clinic here in town and tried out "Mhbot" first hand.
   
Now remember at this point I had been basically homebound for months, and was extremely nervous even being around people.

After the treatment I wouldn't say I felt any different, with the exception of one little caveat. I drove myself to the store when I was done with the treatment....something I hadn't done in close to two months.
 
Four days later my chamber arrives, and I do my first official dive by myself with supplemental O2. Again when the session is over I get out and don't feel any different.

The next day however I'm herxing like crazy, yet I dive again for another hour with supplemental O2.

I reach my fith dive and I'm now looking at the chamber which lays on my bed next to me with "Great Despise"..LOL! I'm herxing like crazy, and decide to cut my dives back to 30 minutes.
 
It was after my "Ninth Dive", which I did without Oxygen for thirty minutes that I began to start feeling "Different".

I Can't put my finger on it...the only thing I can tell you guys is that it felt like something was working on a "Really Deep Level".

I can tell you without question that when the chamber was deflating it felt like my brain was "Waking Up", as I just lied there motionless in the chamber.

The last four days has been filled with energy, and my Brain fog has decreased by at least 50%. I know it's still to soon to tell what's going to happen as I continue Mhbot,

however these changes are near unbelievable for those who have seen me at my worst over the last couple years.

"Update" 4/3/2014...I continue to do Mhbot, for 30-40 minutes five times a week. I continue to make progress each and every day...with some herxing here and there.

I missed Four days due to travel...my first time on an airplane in three years followed by rigorous walking while away!
   
For now I'm SOLEY using just the chamber without supplemental oxygen or the oxygen concentrator. I Just couldn't handle the Herxs when using 02..again everyone is different.

Eventually I will resume with supplemental oxygen, which ultimately I feel intuitively heals me personally on a deeper level. I simply need to work up to it as this is a progressive processes.
   
I'm not a doctor, so please don't take what I'm doing as any type of medical advice etc. Everyone is different, in regard to how they handle dieoff.

I don't subscribe to the "More You Herx", the better camp. Most here have already been sick for far to long and don't need to feel even worse. As Phoiph, says here on these boards "Slow And Steady"!
    
I'm not using Antibiotics, just Mhbot and I'm following a Paleo diet 80% of the time. I should be Paleo 100% off the time, as it's not only condusive to treating LD, and Co-infections but also helps in my experience with my Herxs.

I also drink as much purified water as possible, which helps my Herxs.

If anyone has any questions feel free to "Fire Away", that's how we learn...good luck to all of you.

................................................

Breaking up the text for easier reading for any here -

[ 04-27-2014, 11:29 PM: Message edited by: Robin123 ]

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jarjar
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Hope, are you using anything to clear out the toxins when you herx? I have to keep chlorella, liquid bentonite clay and charcoal around.

You should be able to accelerate your healing when you are able to get the toxins cleared out of your body faster.

I will send a pm showing what I use and where I order.

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CD57
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Hope, I am so glad you came back to post! yay. I have also been working with Phoiph and she is a godsend and a savior. She was also very sick and abx did not work for her, nor have they for me (although they sort of seem to keep stuff getting worse).

What forms do your herxes or flares take? What kinds of symptoms do you have.....brain fog, psych, nerve pain, gut pain, muscle, etc?

So interesting that you are not using the O2 also....I think Phoiph has posted about another woman doing that as well.

You are very lucky that you have seen results so quickly, that is pretty amazing.

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Looking4hope
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My herxs are mainly deep throbbing headaches, with an occasional "Retracing", of old symptoms.

The old symptoms coming back are back pain, and nausea at times. When the body heals or begins to heal for that matter this phenomenon often occurs.

As far as my symptoms pre Mhbot go....I was pretty much as "Bad", as Phoiph at times. Horrible burning pain all throughout my body which literally felt like acid was being poured all over my body!

This coupled with intense nausea, chills, flulike symptoms, pain, numbness in both hands and feet, horrible fatigue, insomnia, sleeping to much, agoraphobia, depression, OCD, Anxiety, and Encephalopathy!

Out of all of these symptoms... I would have to say the encephalopathy was the worse hands down! I really have a tough time talking about it as it was the most traumatizing thing I have ever been through.

I would be willing to expand on this for you guys...however it's pretty frightening to say the least.

As far as detox goes Mhbot, will eventually do just that...especially when I add 02 again.

I have tried everything from IV L Glutathione, to my own Infrared Sauna, bentonite clay with Pyhsillium Husk, and to many other things to mention.

In my opinion the less variables the better. How can one truly know what's working, and what's not working if they add to many variables to the equation?

On top of that I believe you have to ask yourself the question....are all of these variables I'm adding even sustainable long term?

Mhbot is incredibly simple, even when following a Paleo Diet. With the aforementioned being said sometimes the simplest of things are the most difficult for many to execute.

As a formal competitive natural bodybuilder, and personal trainer....I had witnessed this for years observing clients who couldn't follow a very simple "Meal Plan", or regular training schedule.

[ 04-27-2014, 11:32 PM: Message edited by: Robin123 ]

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Looking4hope
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I also wanted to add that my "Brain Fog", is just about completely gone! Also worth mentioning is the inital surge of energy I get from Mhbot right after I get out of the chamber.

This burst in energy usually lasts for roughly 12 hours or so now, before a herx comes on. I then get complete wiped out..

largely attributed to all of the things I'm trying to do that I haven't been able to do both physically and mentally in three years.

I have a long way to go, however for now I will take "Colors Seeming Brighter", "No Sound Sensitivity", "A more relaxed disposition", and a more physically capable body.

I'm not benching 365LBS, Deadlifting 450LBS, and Squatting 315LBS as I used to before getting Sick.

For now my exercise simply consists of walking...often times barefoot to attract the energy from the earth. I also try and get moderate amounts of sunlight when available.

[ 04-27-2014, 11:33 PM: Message edited by: Robin123 ]

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CD57
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Hope did you not do any antiobiotics?
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Looking4hope
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Hey CD57, no I have never personally used antibiotics..in regard to treating Lyme Disease, and Co-infections. I truly believe I was infected when I was in the fifth grade.

I spent two hours trying to remove the ticks at the time which were deeply imbedded in my Private Area...Yah OUCH! Later that year I started experiencing horrible headaches.

At age 21, I had a catheter ablation surgery after being diagnosed with SVT, or Supra Ventricular Tachycardia. Now looking back I'm almost positive these were all early manifestations of LD.

[ 04-27-2014, 11:33 PM: Message edited by: Robin123 ]

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CD57
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That is amazing story. You have such good early results hope it keeps going. Keep posting!
Didn't the LLMDs want to use antibiotics?

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Lymetoo
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Looking4Hope .. Please leave more space between paragraphs for easier reading. Most here cannot read large blocks of print.

Thanks! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Looking4hope
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CD57, My LLMDS and myself never really discussed the whole ABX thing simply because I never followed up with them.

I just found myself observing many spending both allot of money and time on both LLMDS, and ABX who were still sick years later.

ABX, do work for some no doubt about it. However I'm a very intuitive person and didn't feel they were for me.

I have many reasons for not going the ABX route personally.....most of which involves the duration of time I believe I have had LD.

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Looking4hope
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I also recently saw a very prominent Lyme Doctor, and actually have a follow up via the phone in roughly two weeks.

I will comment more on this experience if I feel any value can be extracted from it for you guys and gals here!

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jarjar
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Phoiph, thanks for sharing the story of the lady in Canada. The more "I recovered" stories the better.

It also dovetails with your personal story. Give it time and don't expect miracles overnight.

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jarjar
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quote:
Originally posted by Lymetoo:
Looking4Hope .. Please leave more space between paragraphs for easier reading. Most here cannot read large blocks of print.

Thanks! [Smile]

Betty G approves of this message!!

Sorry I couldn't resist. [Razz]

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Phoiph
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I posted this experience I had recently on the "Family Diagnosed With Parkinson's" thread, but wanted to include it here also:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/128366#000009

"...A volunteer where I work has a husband who was diagnosed with Parkinson's and dementia (no telling if it was Lyme induced), and she was unable to care for him anymore at home. He was using a walker and falling frequently, would sit and stare for hours, and needed 24 hour supervision.

She finally agreed to have him see my friend, who is a neurologist and also runs a hyperbaric clinic with a 6-person chamber. He was prescribed a block of 40, 1 hour treatments at 1.5 ATA (considered "mild" hyperbaric, or "mHBOT"), with further treatments if necessary.

At 20 treatments, there was no discernible change, according to the wife. At 39 treatments, the wife flagged me down as I drove into work, and told me her husband's dementia was "gone". She also said he was walking without a walker, using a cane only, on occasion.

A week later, I asked her how he was doing, and she said she had left him home, because he was busy building something in his workshop (using power tools). She said he had been talking about the future, and making plans to travel. She said he was "back". They plan to do another block of treatments, and/or possibly purchase a home chamber.

I spoke to my neurologist friend who had given him the treatments, and she said that he was one of 3 Parkinson's patients who had started treatment at the same time, and all 3 were doing well.

A great resource regarding mHBOT and neurological (& other) conditions is "The Oxygen Revolution" by Dr. Paul Harch, and also his website: hbot.com. Both include before and after SPECT scans which are remarkable..."

Update: I saw the volunteer (wife) again yesterday at work, and she and her husband are willing to do a video testimonial of their experience...

If they (and others I have videotaped) grant permission, I hope to post their videos on an educational website I'm working on...

I also think the fact that it takes many fewer mHBOT sessions to treat Parkinson's (and many other neurological conditions) than it does Lyme is a testament to the tenacity and complexity of Lyme disease...

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soccermama
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Has HBOT helped with insomnia?
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spinning122
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Soccermama! What a coincidence! I just logged on to report my experience with improved sleep and mHBOT...

It took me a while to realize this, but mHBOT has improved my sleep so much! I go to bed at a decent hour, am not tossing and turning for hours, or waking up every two hours, or waking up way too early and not being able to go back to bed. The sleep is refreshing and I'm able to hop out of bed rather early in the morning. No dragging around, or "just ten more minutes pleasssse"

I am 55 hours in, btw. So overall improvements: PAIN gone or greatly diminished (bone, joint, muscle, nerve, headaches). Insomnia gone.

I also sometimes take a nap inside of the chamber during my 1-hr dive. It is most refreshing.

Phoiph, I am so happy to hear about more success stories. Thank you for sharing, and I can't wait for your website!

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CD57
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This is really encouraging folks. Please keep posting!
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Phoiph
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About sleep...

Severe insomnia was one of my first symptoms, and one of the last to leave. It returned to normal gradually; in increments, over time with mHBOT.

I asked my friend, the neurologist/HBOT specialist about this recently...and she said that sleep architecture is very complex, requiring many areas of the brain to be in synch, so can be one of the later symptoms to resolve.

This can take time...but improvement of sleep is a very good sign...

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Phoiph
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Levity101...

"...Editing with a question, Phoiph, was the Canadian woman doing MHBOT alone or did she combine with abx or other treatment?..."

She had been off and on antibiotics over the years which had helped her temporarily...but this time around she was unable to take them, as they made her too ill (she said she "didn't think she was going to make it"). She was not on any other therapies when she began mHBOT 1-1/2 years ago, or throughout the subsequent daily mHBOT treatments.

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CD57
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I have recently begun diving with the help of Phoiph. I don't have much to report because I am not very far in and have not made it up to an hour per day consistently (recommended).

My symptoms are highly neurological and cognitive/psych in nature.

I have been diagnosed with two strains of bartonella, Lyme, the usual elevated viruses, and possibly FL1953, parasites, and/or babesia (not sure about those three).

I don't seem to fit the usual mold here at LN in that I have done a lot of treatment with IV and oral, herbs, silver, ozone, and seem to have killed off a lot of Lyme but possibly unable to touch "bartonella".

It *feels* to me that somewhere along the way my immune system lost the ability to kill anything, possbly induced by the treatment itself? very scary.

The treatment for "bartonella" made my symptoms swarm and worsen, flare, but never improved.

Now I am stuck with the symptoms that emerged during the time. Sometimes it is really hard to keep going.

Abx for me don't seem to really kill anything but seem to prevent my worsening...although I get toxic after 4-5 days on them.

I am really hoping that this treatment will help reboot my immune system and come back online and do what it is supposed to do.

[ 04-27-2014, 11:35 PM: Message edited by: Robin123 ]

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levity101
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It's so great to hear of progress being made. What an amazing story, Phoiph, about the man with Parkinson's.

It does seem that Lyme takes longer and I'm guessing it's because we're not only addressing neuro damage, which seems to respond remarkably, but that those with chronic Lyme need a 'reboot' of the immune system, as CD57 so aptly put it.

The immune modulating effects have been documented--changes in stem cells and white blood cells, etc. but it will take longer because the system is so taxed and possibly still fighting active infection, which has to be dealt with as well.

...therefore, slow and steady...makes sense.

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BBinme
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jarjar, would you mind telling us what has gotten better since adding mhbot? Thanks [Smile]
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Haley
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Wow CD57, I'm so happy to hear that you are doing this. I have a good feeling about it.

I may experiment soon, but I'm doing other things right now. Hoping my ear problem will get better and then i will try it at a local place that has a chamber.

Please keep up posted.

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jarjar
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quote:
Originally posted by BBinme:
jarjar, would you mind telling us what has gotten better since adding mhbot? Thanks [Smile]

Mental clarity and energy/stamina.....two of my worst symptoms.
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CD57
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Jarjar, what were/are your diagnoses?
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jarjar
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CD57 the usual lyme and co-infections..bart, babs and mycoplasma. With my MOPA I was hitting several other infections also.

I should add my symptoms are better but I'm only a little over 34 dives or so. I still have a ways to go. I'm more interested in where I will be in 2 or 3 months from now. Then I will be interested when I have 6 months invested in the treatment.

[ 04-09-2014, 06:19 PM: Message edited by: jarjar ]

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CD57
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Glad to hear it jarjar. I have fear about growing the bartonella that Phoiph has been helping talk me out of. I'm glad to see others w this infection posting and doing mHBOT.

The bartonella specialist I used to see had a chamber in his office and thought that the physiology of Bart was such that it would be "resistant" to hbot, probably since it is aerobic. But he did not say that it would make it grow. So I am holding on to this and going for it.

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Phoiph
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At the risk of sounding like a broken record...

Bartonella and Babesia are usually not an issue for people who have intact immune systems.

With mHBOT, although it has antimicrobial properties, it is more about strengthening the immune system so it can do its job, rather than just "chasing bugs". It also has the advantage of treating multiple issues in the body simultaneously.

These are just a few of the reasons why mHBOT is effective for so many different conditions...

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CD57
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Phoiph never will you sound like a broken record.....

any idea what mHBOT does against viruses, do we know? My viral titers came back extremely high and LLMD wants to address...

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oxygenbabe
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I think it's unwarranted to say most people with intact immune systems don't have a problem with bartonella or babesia. The latter can cause serious problems in healthy people all on its own, including needing hospitalization. The former has a lot of veterinary research indicating it's a significant pathogen, and under-recognized for its morbidity.

I do think worrying about mild hbot stimulating babesia or bartonella is probably unwarranted though. It's not enough oxygen to do more than change the terrain in most cases.

With more significant treatment (deeper dives, and/or a clinic chamber with 100% oxygen at a high flow rate) you may indeed upset the balance of organisms and get a rebound effect when you stop, because you will have allowed the growth of organisms not vulnerable to oxygen.

[ 04-27-2014, 11:36 PM: Message edited by: Robin123 ]

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Toni L
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My daughter completed her 43rd dive and so far no changes that she notices. She still has insomnia, headaches, brain fog, fatigue and a host of other symptoms.

We're in it for the the long haul so we'll see what the future brings.

She is currently diving 5 days on and 2 days off. After May 8th when she moves back home she will be in the chamber every day.

Someone from Oxyhealth said she should go in the chamber 2 times a day with a minimum of 4 hours in between. He was not specifically speaking about Lyme just in general. Has anyone done that?

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Phoiph
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Here are some quotes from a few research articles that support my statement that "Bartonella and Babesia are usually not an issue for people with intact immune systems."

Regarding Babesia:

"...The babesias are one of the most ubiquitous and widespread blood parasites in the world based on numbers and distribution of species in animals..."

"...Most cases of B. microti infection are mild and usually resolve on their own, without treatment..."

"...The most severe infections occur predominantly in the elderly and in splenectomized or immunocompromised hosts..."

"...Additional factors determining the severity of babesiosis are asplenia and coinfection with other infectious agents..."

"...Coinfection with other tick-transmitted infectious agents can result in more severe manifestations (108). This could be due to an overall immunosuppressive effect that facilitates establishment of infection, or perhaps there is a more specific synergy between organisms that occupy the same transmission cycle..."

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC88943/

Regarding Bartonella:

"...the Bartonella genus, one of the most common types of bacteria in the world..."

"...infections are usually self-limiting..."

"...The nature and severity of the clinical presentation correlates well with the status of the hosts' immune system. Individuals with impaired immune function, including HIV infection, progress to systemic infections more often. The reduced ability of the hosts immune response to control bacterial infection apparently results in a bacteremia of longer duration..."

http://www.ncbi.nlm.nih.gov/pubmed/12906736

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Phoiph
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CD-57...

I also had high viral titers, including HHV6, Epstein-Barr, and more (which can become re-activated when the immune system is compromised).

These resolved with mHBOT (I never took anti-virals).

HBOT is also showing promise with HIV by penetrating the lipid coating of the virus...

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Phoiph
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ToniL...

I'm glad you are in it for the "long haul"...because, as you know, I didn't have any overt improvement after 43 dives...

I am not in favor of diving 2x per day...it is my opinion that it may upset the balance of free radical production (which is necessary to harm the pathogens), and antioxidant production by the body (that is necessary to protect our own cells from the free radicals).

As Dr. Harch states..."More is better is just an illusion..."

http://www.netnet.net/mums/Harch2.htm

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Phoiph
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Interesting article on mHBOT and mold exposure:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2998645/

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soccermama
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I am glad you reposted this article. I posted here some weeks back. I had mold exposure in past and apparently have the "gene" that does not detox well.

Spent $4500 from HSA for medical and $4600 out of pocket this year. This does not include bills that I have not paid. With the exception of the surgery I had, it was money wasted.

Trying to convince my husband that we could all benefit from a home chamber and that the cost would be worth it.

Really tired of throwing money away and not seeing any benefit.

Phoiph, please pm me what you think the monthly cost of everything for a small decent chamber.

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oxygenbabe
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Phoiph, I'm not going to do a battle of citations with you.

Here's a thread on page one of lymenet here, where the doctor himself talks about babesia being immunosuppressive and hard to shake:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=128593;p=0

One patient was treated for five years and couldn't shake it, finally crytopleptis and Byron White formulas made him feel better.

It's simply careless to make the assumption that bartonella and babesia don't have significant morbidity in some people.

Bartonella is truly under-estimated in human illness. As are ricketssia, if you do a literature review, and look at chronic rickettsial infections worldwide. There's no reason to assume they don't exist here, too.

Veternarians will treat rickettsias for 3-6 months...while humans are treated for a few weeks. Etc.

OTOH, mhbot imho shouldn't cause a significant increase in babesia or bartonella, but what do I know. I know in me, daily was a problem.

Something was stimulated (a bug, I thought yeast. Who knows). OTOH deep dive, did not have that same effect (stimulating a bug).

[ 04-27-2014, 11:36 PM: Message edited by: Robin123 ]

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oxygenbabe
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Also, nobody should accept at face value what another patient says, in terms of a therapy.

Take it all with a lot of grains of salt and skepticism.

And be under the care of a good LLMD who isn't overly fond of antibiotics or your money. Be followed while on any treatment, mainstream or alternative.

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Phoiph
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Oxygenbabe...

Lyme, Babesia and Bartonella almost killed me. I am not disputing that they are "immunosuppressive and hard to shake". If you read carefully, I never made a "careless assumption" by saying they "don't have significant morbidity in some people". Of course they do.

I was pointing out that in MOST people with healthy immune systems, the infections (Babesia and Bartonella) can be mild and even asymptomatic. (For example, I have read that people can be carriers of Babesia and not be aware of it, and this is one of the ways it gets into the donor blood supply.)

I was not referring to people who likely have immune dysfunction, including those with Lyme or other pre-existing conditions or cofactors, nor do I doubt your statement that these infections may be underreported.

The point of my original post was to suggest the possibility that if/when the immune system becomes healthy and balanced again (in my case with mHBOT), then the immune system may be capable of dealing with these coinfections.

You called my statement "unwarranted", and I provided references.

[ 04-16-2014, 08:44 PM: Message edited by: Phoiph ]

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CD57
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Up. Any updates?
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janej
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Hi im writing an update on my daughter. It has been 7 months since we bought the chamber.

The first month was brutal. The pain increased and it was hard. She wanted to tough it out so she kept going.

The changes over time have been very positive. When shes in the chamber her pain is usually gone and her energy increases. She gets out in a good mood due to feeling better.

In the beginning of the treatments her pain has become extreme at times requiring morphine.Now her pain is 70 percent better. It has been two steps forwarded 1-4 back but now her recovery has started to look better.

Her memory is still somewhat impaired and she has fatigue but is much better overall. We can laugh together and have long conversations. We all have hope. ♡

[ 04-27-2014, 11:38 PM: Message edited by: Robin123 ]

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CD57
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That is wonderful Jane! Please keep
Us updated.

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oxygenbabe
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Phoiph, lyme can also be asymptomatic. Many test positive to borrelia all over the world and feel well.

It's simply not the case that lyme is the bad infection and the rest of them are usually not problematic.

Often the others, particularly babesia, are extremely problematic. There are people who don't get well until they aggressively treat babesia--and people who treat it and relapse--or who need to be on constant treatment.

There are people I know who have been able to get rid of all their other tickborne infections but are still treating babesia.

And though hyperbaric oxygen is a potent adjunctive treatment, emphasis on it as potentially curative is, in my opinion, mostly overselling it.

Helpful yes. A monotherapy, especially when at mild pressures (1.25 ata), that treats all the tbi?

I don't know *what* you had. Without documentation, they are simply anonymous anecdotes--ones that should be followed up on with one's doctor and independent research.

** edited to remove argumentative comments towards another board member **

[ 04-28-2014, 10:21 AM: Message edited by: sixgoofykids ]

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Robin123
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Please, everyone, remember to break up your posts into a couple lines so everyone can read them - I just broke up lots of posts here.

Also, seems to me that everyone here can testify about treatments and discuss them. Best to bring the best info forward and let people do with it as they wish.

I don't think it's necessary for a big argument between Phoiph and Oxygenbabe here - point is, you can present info here for people to evaluate, but please stop the personal attacks. Terms and Conditions for use of the board ask for no harassment of one another.

If anyone has questions or concerns about this, you can report a post to the mods who evaluate postings according to Lymenet rules.

[ 04-28-2014, 09:25 AM: Message edited by: sixgoofykids ]

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CD57
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Thanks Robin for posting this.

Phoiph, don't leave ok? You've started such a groundswell here. Such hard work! We need you!

** edited **

[ 04-28-2014, 03:59 PM: Message edited by: sixgoofykids ]

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levity101
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Jane, thanks so much for posting your update. So glad that your daughter is continuing to improve with mHBOT! I can relate to the rocky beginning.

We're in a holding pattern right now due to some other medication related issues with my son's pain meds, but are still committed to continuing and will update when there is news.

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Marnie
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How does HBOT help out?

"Second, the research showed the way that adding in extra oxygen helped.

This discovery had to do with the normal brain molecule, glutamate, mentioned earlier.

In stroke, this molecule is released in excess in the body's attempt to keep the brain working.

The problem is that extra glutamate acts like a poison to nerve cells and causes damage.

Adding more oxygen helps to convert the excess glutamate into much needed energy for the cells.

A special protective factor called "GOT" (glutamate oxaloacetate transaminase)

***facilitates the conversion of glutamate into fuel for the brain.***

GOT makes the system work even under conditions of lower oxygen so the brain doesn't release too much toxic glutamate and damage the nerve cells."

http://www.netwellness.org/healthtopics/brainattack/Oxygen.cfm


Cut and paste section of my reply under vagus nerve post.

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yanivnaced
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I have read through this thread and it looks interesting + promising.

Is mhbot approved for children under 3 years of age? I am thinking it might speed up the healing process for my son.

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CD57
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hopefully Phoiph will stop by to weigh in on this. I do know that the man who helped me with my chamber was having young folks use it, including his very young son.
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oxygenbabe
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A qualified doctor should weigh in on a toddler using mhbot...and the toddler should be under that doctor's care and be followed and monitored closely. Especially since the neurological system is still developing at that age, and nobody has studied what repeated exposure to oxygen even at mild pressures, might do, on a longer term basis.
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Phoiph
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Hi yanivnaced...

My neurologist friend routinely treats young children and babies with mild hyperbaric, as does her colleague, Dr. Paul Harch (see "The Oxygen Revolution").

mHBOT has been successfully used with children with birth injuries, Cerebral Palsy, Autism, etc., and there are many research articles available.

There is a great network/website for parents, called "MUMS" (Mothers Unified in Moral Support) that discusses how mHBOT has helped their children with different conditions:

http://www.netnet.net/mums/Whyhbo.htm

If you'd like to share what your son is recovering from and the area of the country you're in (PM is fine), I can ask my neuro friend if it is something potentially treatable with mHBOT, and if she recommends someone in your area for an evaluation for your son...

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yanivnaced
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hi Phoiph,

my son is currently treating his Lyme with abx for the past couple of months with no improvement yet. He got Lyme in utero during my wife's pregnancy.

His symptom is arthritic type pains in hands and feet. Hoping we can see some gains for him with the mhbot.

Any practitioner info would be appreciated. We are in the NY/CT area.

thanks!

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Phoiph
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yanivnaced...

I just PM'd you...

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yanivnaced
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pho - thanks for the PM. I tried to reply but your box is full.
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springshowers
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Phoiph.
I tried to reply to your pm about cold laser and your mailbox was full. Are you looking into cold laser ?

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Phoiph
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Sorry...please try again!

springshowers...someone had asked me about cold laser, and I was going to point them to your thread, but it was gone...

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soccermama
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Up. How is it going with those who are diving? Please continue to post updates. I am still watching.
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joahsark
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Looking into and seriously considering getting a mhbot machine and concentrator into my home.

Nervous about my most severe symptom which is extremely severe brain swelling. It is mainly the reason I am purchasing. If it can help and even if I have to do it every day for the rest of my life it'll be worth it. I am currently on abx, both IV and oral with no real change in this symptom.

Hoping someone will weigh in on if it initially made it worse or had any effect at all.

Thank you all so much for this thread.

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Phoiph
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Hi joahsark...

I had brain inflammation/encephalopathy to the point that I was non-functional, and didn't think I would ever make it back, mentally or physically...

Here's a link where you can download a PDF (see icon at bottom of page) which illustrates before and after mHBOT SPECT scans of people with various brain conditions:

http://www.hbot.com/SPECT-imaging-PDF

I have lots of info/resources I can share with you if you like, just let me know...

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Looking4hope
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Just a quick update for you guys and gals here. I continue to make progress, and I'm now back in the gym working out!

I'm gaining my weight back 'In A Good Way", gaining around 10lbs of quality muscle! Those who have known me for years say both my skin color and complexion look back to normal " I Would Have To Agree"(-:

I continue to dive without supplemental oxygen.....just utilizing the chamber and that's it. i do various breathing exercises while in the chamber and also watch movies on my Kindle Fire HD.

I'm still following for the most part a roughly 80% Paleo based diet. I drink 1 to 2 42.5 FL OZ of mineral water daily which I purchase at the $1.00 store.

I wake up much earlier these days and feel like I have both the energy and stamina to get things done like a "Normal Person" should.

With the aforementioned being said I still believe I can improve even more! This is most certainly a "Two Steps Forward One Step
Backwards" process with the healing coming in "Waves".

I have found it beneficial to decompress in the chamber SLOWLY (IE) around 10 minutes....however I think this is the norm?

I feel like my mind is "Really Clear", and now would be a fantastic time to take the "Cognitive Tests", I had previously taken only months ago.

The amazing thing is I had completed only "Nine Dives", before taking the Cognitive tests yet still performed really well in certain categories. Without the "Nine Dives", I'm 100% positive the scores would have been radically different.


If any of you have any questions please feel free to PM me or just post on this forum. I encourage each and every one of you to "Keep Up The Hope", and pray you all find the answers you deserve!

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JCarlhelp
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I would be very careful about mineral water as some indication depletes bone calcium. Wife drank for years the has very serious osteoporosis.
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Looking4hope
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@Jcarl I was told to drink mineral water, however maybe I won't drink so much....sorry to hear about your wife.

On a sidenote I increased my training volume today in the gym by 50% and felt like I could have continued training! I trained for roughly one hour and did both allot of stretching, and self myofacial release in between sets.

My reasoning behind the self myofacial release is twofold. The first part consisting of me breaking up scar tissue which grew worse over the years the more sedintatary I became.

Last but not least the second benefit of self myofacial release is it help stimulate the GREAT lymphatic system.

Between the healing benefits associated with the chamber, and my continued use of "The Stick", which I use when doing self myofacial release I feel my recovery ability is greatly enhanced.

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CD57
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Hope, what happens when you use the supplemental oxygen? Are you still getting herxes without it, or just improvement?

Your testimonial is interesting because not only does it go to show that mHBOT is effective but also that the supplemental oxygen may not even be necessary for some....just the pressure....

Your case really must be unusual. But congrats!

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Looking4hope
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Hey CD, I still herx if I overdo it (IE) I still can't tolerate 50 minutes everyday. So I do 50 minuts one day then 30 minutes the following day. I'm still not using O2...just relying on the chamber.

I really seem to get different results every time I dive! Sometimes it gives me allot of energy while other times it tires me out.

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CD57
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I have had to break it down a bit, ie have not been able to jump right in with diving with supplemental oxygen for an hour. I have had some pretty intense flares of psych symptoms that were not tolerable. So weird! So I am doing just the o2 concentrator or just pressure in the chamber but not the combo.

[ 05-16-2014, 01:20 AM: Message edited by: CD57 ]

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Toni L
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With ambient air temps increasing the chamber becomes unbearably hot and my daughter can't stay in it. Any suggestions?
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Phoiph
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Toni L...

1. Make sure the oxygen concentrator and the compressor are separated by at least several feet; each generate heat, and that heat is sucked up by each machine and sent into the chamber.

2. Have a fan blowing near the oxygen concentrator and compressor to circulate the warm air away from them.

3. Take a block of "blue ice" inside a zip lock bag and wrapped in a thin towel inside the chamber and lay it on your chest.

4. Coolers are available for the chamber...they consist of a modified water cooler filled with ice, inside which the tubing that runs from the compressor to the chamber is coiled. As the air passes through the tubing (which is immersed in ice), it is cooled before entering the chamber.

These coolers are expensive for what they consist of, but you can also buy the parts and make your own...

http://coolpressure.com/

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levity101
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We have purchased a window a.c. unit to supplement cooling, and hope to get it in today or tomorrow. We're in Florida, and the room with the chamber was added on to the house and doesn't get sufficient a.c.

Hoping that by cooling the room down substantially before sessions, that will do the trick.

Update--my son has been having some new health problems that have slowed down his mHBOT usage--gallbladder issues and possible infection. So, we're still in the early stages of figuring out what is going to work and getting up to speed.

Will let you all know how it goes.

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Toni L
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I could immerse the coiled tubing in an ice bath to cool the air going into the chamber. Anyone see a problem with that?
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canadianmama
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Toni, maybe sealed ice packs would be better then water baths around electrical equipment?
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Phoiph
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Toni L...

The issue with submersing the coiled tubing in ice water is that it will collect condensation inside the tubing...

The commercial coolers have a condensation trap to collect moisture, but even so, the cooler and tubing has to be dried out between uses, or mold could potentially form.

The tubing can be dried by blowing air though it with the compressor while it is not attached to the chamber. You could do this also, but it wouldn't prevent moisture from condensation gathering and being blown into the chamber during use, since you wouldn't have the condensation trap to catch it.

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