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» LymeNet Flash » Questions and Discussion » Medical Questions » Pots

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Author Topic: Pots
lyme in Putnam
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Just came from llmd. Have pots. Standing blood pressure 60/48. Heart rate 138. Sitting don't know over 82. Could this add to dp? Back on toprol and upped florinef.

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lax mom
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I think so. I notice I think clearer when I'm lying down, because the blood isn't pooling in my legs.

When I wear my TED compression thigh highs, I also feel my mind is clearer.

Your brain needs blood flow in order to think. Makes sense to me.

BTW, your standing BP is extremely low. No wonder you feel so poorly.

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lyme in Putnam
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Thanks. Hope you feel better soon.

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Rumigirl
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quote:
Originally posted by lyme in Putnam:
Just came from llmd. Have pots. Standing blood pressure 60/48. Heart rate 138. Sitting don't know over 82. Could this add to dp? Back on toprol and upped florinef.

Good grief that is a low BP!!! It's a wonder that you aren't passing out. Do you start to? It's a really high heart rate, too.

Yes, upping the Florinef will definitely help.

What's db?

I hope that you start to feel better.

I have POTS/NMH, too. It's pretty miserable. But florinef is a life-saver, along with atenolol for the heart rate, and to help with the inevitable migraines that I otherwise get with upping the florinef.

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coffee71
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I was diagnosed with POTS in Dec 2012 and so far I have seen great improvement in overall symptoms.

My resting heart beat was going up to 154.And I failed tilt table test with flying colours.

Drinking a lot of water 3 liters a day helps a lot, and good quality sea salt in diet. Small meals trough the day and restricted on bread and wheat.


Still experimenting with midodrine dosing, and as of today I am starting 7.5mg four times a day.

Florinef- I could not take it because of drug interactions, but I hope to start taking it soon and have good results.

I don't know how long you have been treating POTS, but it took me 8 months of ups and downs in symptoms to see improvement.

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lyme in Putnam
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I'm sorry. Dp, depersonalization.. Thanks for your comments, hope everybody feels better.

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lyme in Putnam
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Taking zithro, plaquenil and IM bicillin3x a week. Ondamed helping with symptoms. Hard combo?weaning off anafranil for OCD. Going thru menopause. [Frown]

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lax mom
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I was just diagnosed "officially" by Tilt Table Test. Interestingly the Neurologist recommended an abdominal binder along with the compression stockings. I've been using it today and I have to say, it does help with energy and brain fog.

I'm supposed to start Florinef next week.

I found this video about POTS:

http://www.youtube.com/watch?v=8UPMYNkm6Bc

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lyme in Putnam
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Thanks so much.

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