phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I will admit one reason I am still battling the lyme symptoms is because I am so afraid of taking meds. Anyone else?
In the beginning I was excited to finally get a dx and treatment for this long battle of not knowing why I felt so bad. So treatment begins ,I expected Herx but not reactions . Seems my body reacted to most everything I tried so the LLMD took me off all abx and tried to build my body so I could tolerate meds ..
Long story short seems I can't tolerate meds like I once did so I am now on lower doses but at the same time I am having such fear of all the meds and not seeing much improvement.
Feel stuck and know I am doing this to myself. I am no longer seeing a LLMD due to travel and financial issues.
Venting , tks.
Posts: 1058 | From VA | Registered: Oct 2010
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posted
Same thing. I fear meds but lately I have been fearing what the infections are doing to me as a result of not taking meds. Ended up much worse with pots, vertigo, etc. So now I am definitely sticking to meds and hoping these symptoms will improve.
Posts: 581 | From CT | Registered: May 2008
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Same thing. I fear meds but lately I have been fearing what the infections are doing to me as a result of not taking meds.
That is where the fear should be placed.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Since your body is having trouble handling drugs in high dosages and since your can't afford your LLMD, would you be open to an herbal approach along with your low-dose meds?
I have trouble with antibiotics, too, so my LLMD as me on one antibiotic along with the Beyond Balance herbs, but those can only be purchased through an LLMD.
The herbs and antibiotic together seem to be working fine for me.
The Buhner protocal can be done independently of doctors.
Just thought I'd mention that possibility for you.
Good luck.
Posts: 1358 | From Midwest | Registered: Apr 2009
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posted
It's possible you could have a hard time detoxing and that's why you're reacting so much.
My doc suggested we do the www.23andme.com saliva test that will show genetic enzyme defects that keep up from being able to detox, and then a good Lyme doctor will know how to treat the defects.
I'm real sensitive and I'm doing well with anti-inflams, like mangosteen juice, noni juice, grapeseed extract capsules.
Posts: 13155 | From San Francisco | Registered: May 2006
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gigimac
Frequent Contributor (1K+ posts)
Member # 33353
posted
Phyl, i totally understand. i can't tolerate meds everyday. i take them sporadically and it keeps things at bay but it is not helping me get better. Something is blocking me from treating and i can't find or afford a doctor who is knowledgeable enough to put the pieces together.
this is all so confusing. i had the 23&me test done but my llmd had no idea what to do with it or what it meant. all i know is it shows cbs defect and suggests not eating meat. I can't do that i get too weak.
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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posted
Gigimac - my doc says he's going to know how to treat me after seeing the results of the 23andme test. So it IS possible for knowledgeable docs to know what to do - perhaps you could check around on the East coast to find someone to work with?
Posts: 13155 | From San Francisco | Registered: May 2006
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gigimac
Frequent Contributor (1K+ posts)
Member # 33353
posted
Robin 123, Is there a certain kind of Dr. i should be looking for? I'll look into it.
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Might consider checking, next time at a docs, for the MTHFR mutation (blood test). What you are describing can happen to those who have the mutations.
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