LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Doryx? Any experiences?

 - UBBFriend: Email this page to someone!    
Author Topic: Doryx? Any experiences?
Jessiep
LymeNet Contributor
Member # 35399

Icon 4 posted      Profile for Jessiep     Send New Private Message       Edit/Delete Post   Reply With Quote 
Llmd just prescribe it with rifampin. Haven't treated Bart yet--waiting for galaxy result but starting to treat now.
Posts: 342 | From Philadelphia | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have heard good things about this as an alternative to doxycycline. An LLMD (neurologist) that I saw briefly said this was the drug he usually prescribed with rifampin as opposed to doxy since it did not cause nausea. It may be pricier, though.

I wish I had known about it when I was treating for bart. I felt horrible with doxy.

Good luck!

Posts: 2375 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
desertwind
Frequent Contributor (1K+ posts)
Member # 25256

Icon 1 posted      Profile for desertwind     Send New Private Message       Edit/Delete Post   Reply With Quote 
Great med. Was able to take at 400 mg. without any gastro issues.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Jessiep
LymeNet Contributor
Member # 35399

Icon 1 posted      Profile for Jessiep     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thx guys! Did it help you desertwind? This is my last oral abx attempt. Gonna do Iv if this doesn't help. Has been 18months and nothing has worked.
Posts: 342 | From Philadelphia | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
daphnesmom1
LymeNet Contributor
Member # 39433

Icon 1 posted      Profile for daphnesmom1     Send New Private Message       Edit/Delete Post   Reply With Quote 
I took it as an alternative to Doxy. Did fine on it.

--------------------
"Yeah, I miss me too."

Posts: 234 | From NY originally registered in 2008 | Registered: Nov 2012  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's WAY easier on the gut than regular doxy!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95978 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
WPinVA
Frequent Contributor (1K+ posts)
Member # 33581

Icon 1 posted      Profile for WPinVA     Send New Private Message       Edit/Delete Post   Reply With Quote 
I also took it as an alternative to doxy. Efficacy seemed about the same, but as others have said, a little easier on the gut.

My only problem with it was that I had trouble finding it at a local pharmacy. But that was two years ago so hopefully whatever that was has been ironed out by now.

Posts: 1737 | From Virginia | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
we'll win
LymeNet Contributor
Member # 11112

Icon 1 posted      Profile for we'll win     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think any form of doxy is absolute junk. When I first got lyme in 1990, before we knew it was lyme disease, I was put on doxy (alone). Took away all the symptoms for about 4 days. Then the symptoms came roaring back while I was still on doxy. Wasted precious time. I think doxy should be tried, convicted and shot.
But it certainly has helped others, as your other helpful answers above and fellow lyme colleagues (I was busted for using a more playful term) write.

I have been on a number of oral combinations. Here is one of the powerful combinations: omniceff, flagell and ketek.

Here are powerful intramuscular (IM, i.e. shots) antibiotics:

Rocephin (vial mixed with lidocaine)- as good as IV Rocephin. The generic, ceftriaxone, can be as good but can vary widely to the point of ineffectiveness.

Bicillin-LA. Almost as good as Rocephin. But must avoid putting it in the vein? artery? or it can be deadly. Only with Hashem's help did I recover from an errant shot.

If you are going to get intravenous (IV), the gold standard is still Rocephin.

Good luck. We are all pulling for you. Some days good. Some days bad. Keep smiling if you can.

We'll Win (if we fight together)

Posts: 107 | From maryland | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
desertwind
Frequent Contributor (1K+ posts)
Member # 25256

Icon 1 posted      Profile for desertwind     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had been sick for close to 10 years maybe longer - chronic neuro. Went through multiple neuro surgeries and extensive steroid treatments which made me even sicker over the past 3 years.

For me Doryx was not crap but in combination gave me my life back. Been on a variety of meds but w/Doryx I slowly got better. The benefit is that it is gentler on your gut so you can,hopefully, tolerate a higher dose.


I coupled it w/a cyst buster and continued Bab's tx' and other meds /supp.s. Only when I was able to dose up to 400 mg.s a day did I start to really see a difference. My gut could not handle 400 mg.s of the regular doxy but did fine w/400 mg.s of Doryx.

Everyone is different but this was my life saver. Not a true success story yet but I am 4 months off of abx.s and feeling great. Best of luck to you,

Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
we'll win
LymeNet Contributor
Member # 11112

Icon 1 posted      Profile for we'll win     Send New Private Message       Edit/Delete Post   Reply With Quote 
Desertwind,

It's amazing how we all react differently to different antibiotics and regimens. Now, I had used doxy alone. Maybe had the doxy been combined with another antibiotic or two....? No, I don't want to be that open minded.... Just kidding.

But Desertwind, you and the other people who responded call to mind a good point. An antibiotic alone that is ineffective, or slightly effective, can become quite powerful when combined with another antibiotic, two or three. So thank you for the reality check.

Now if the American government put as much effort into finding the cure for lyme as it puts into developing weapons - such as the search for an expedient biological weapon that lead to the [inadvertent?] spread of lyme disease from Plum Island (an attorney wrote a book presenting strong evidence on this topic) - then we'd all be cured.

We'll Win (if our advocacy starts holding the government responsible for their inadvertent? mistake)

Posts: 107 | From maryland | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.