LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » if you were in my shoes what would you do???

 - UBBFriend: Email this page to someone!    
Author Topic: if you were in my shoes what would you do???
derk diggler
LymeNet Contributor
Member # 31903

Icon 1 posted      Profile for derk diggler     Send New Private Message       Edit/Delete Post   Reply With Quote 
ok,,, so here we go again, some of you no i come

on here once a year or so, and so im back, so

basicly on jan, 23 2010, at 410 pm my brain went

to derealisation and depersonalisation, and for

those of you who dont no what that is concider

yourself very lucky, so ive been stuck like this

for almost 4 years now, accompinied with anxiety

and depression, its so great let me tell you, so

im not gonna bore everyone with all my crap, but

i wanted to no, what would you do, if you were

me, i think i have lyme, have all the classic

symptoms, but for some reason, im having a hard

time accepting that thats what it is, so lets say

im ready to try some treatment if i can find a

doc to treat me otherwise, im treating myself

some how some way, so if you were me and

suspected lyme, and you have a clean slate of no

steriods, no anti biotics ive never done nothing,

if you could start from scratch what would you do thnx

--------------------
+++++++
do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment

Posts: 195 | From california | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
steve1906
Frequent Contributor (1K+ posts)
Member # 16206

Icon 1 posted      Profile for steve1906   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi derk diggler, If it's been four years and you're still sick and have Lyme symptoms, then it's probably Lyme and maybe co-infections.

I would start with this...Go to Seeking a doctor and ask for help with a LLMD in your area (California).

I would also read this, Dr B's 2008 Guidelines for treatment.

http://www.lymenet.org/BurrGuide200810.pdf

--------------------
Everything I say is just my opinion!

Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522

Icon 1 posted      Profile for phyl6648     Send New Private Message       Edit/Delete Post   Reply With Quote 
Derk, you sound so much like me. I had some positive bands on IGg 2 I think. Did see a LLMD wasn't a very good one was never told for sure expect by my GP . Tried Doxy and a few abx but the abx did a number on my esoph. so I stopped.. Still sick after 12 yrs and never really dx not treated as I should have been.

I feel like starting all over but where and how to start. If we still feel bad I think we should try or with me try again. Good Luck the main start if you do is please find a good doctor..That is the key, I think.

Posts: 1058 | From VA | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
derk diggler
LymeNet Contributor
Member # 31903

Icon 1 posted      Profile for derk diggler     Send New Private Message       Edit/Delete Post   Reply With Quote 
thnx everyone i just dont no what to do and i am very educated on lyme and parasites just dont no where to start, and i dont want to start by being a guinny pig????????? 4 years of this bad acid trip, im done frying i want off this horrible ride

--------------------
+++++++
do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment

Posts: 195 | From california | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

Icon 1 posted      Profile for glm1111     Send New Private Message       Edit/Delete Post   Reply With Quote 
If I knew then (when i first got dx) what I know now about parasites being a MAJOR component of Lyme, I would go after the parasites with strong antiparasitic herbs and salt/c.

Add digestive enzymes, extra cloves, coconut oil, coconut water and Kefir. This has been suggested to you each time you are here.

This is a very benign protocol and will help boost your immune system and adrenals as well. What are you waiting for???

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
derk diggler
LymeNet Contributor
Member # 31903

Icon 1 posted      Profile for derk diggler     Send New Private Message       Edit/Delete Post   Reply With Quote 
i no i no thnk you gail, ive never been scared of

anything, in my life, im a rough and tough roudy

young man, but the things that have gone on in my

mind scare the **** out of me, im just worried

that im poking a bear with a stick, but im mad

enough now that i think im ready, oh ya im very

mental compitant and very sane, no mental illnes,

except for what ever is causing all my cognitive

and neuro probs thnx guys and gail, keep the

suggestions coming please

--------------------
+++++++
do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment

Posts: 195 | From california | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
DITTO what Gael said. If I had it to do all over again, I would have done salt/c and herbs in a heart beat (no doubt).

Get back on the wagon with parasites. Check out THE PARASITE WARRIOR'S SUPPORT THREAD (you too Phyl). There is lots of info in that whole thread. Slowly but surely people eventually figure out they have something more (because they're not getting better) and start looking at parasites. IMO, parasites and protomyxzoa are the most overlooked co infections of all.

I like Steve's advice as well.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

Icon 1 posted      Profile for glm1111     Send New Private Message       Edit/Delete Post   Reply With Quote 
derk,

I understand the fear, really I do. This disease is not for the faint of heart or even Goliath. Just start very slow...like half the dose of herbs and a very low dose of salt/c. PACE not RACE is the name of the game.

The sea salt puts the parasites into osmotic shock(dehydrates them)The salt/c plus book from Amazon will give you some excellent guidance along with the folks at Lymestrategies.

The combo of the herbs and salt/c packs quite a punch. GO FOR IT!! Not treating is not a good idea because the parasites will continue to lay eggs. FYI, salt also kills borrelia and the cyst form.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
derk diggler
LymeNet Contributor
Member # 31903

Icon 1 posted      Profile for derk diggler     Send New Private Message       Edit/Delete Post   Reply With Quote 
man it sure feels good just to have a little support from people who get it ,,,, a big thnx guys

--------------------
+++++++
do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment

Posts: 195 | From california | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
surprise
Frequent Contributor (1K+ posts)
Member # 34987

Icon 1 posted      Profile for surprise     Send New Private Message       Edit/Delete Post   Reply With Quote 
I get it. Get it.

CA has some very good LLMD's.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
derk diggler
LymeNet Contributor
Member # 31903

Icon 1 posted      Profile for derk diggler     Send New Private Message       Edit/Delete Post   Reply With Quote 
got it

--------------------
+++++++
do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment

Posts: 195 | From california | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
Find a good doc...

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

Icon 1 posted      Profile for Carol in PA     Send New Private Message       Edit/Delete Post   Reply With Quote 
Fish oil.

The essential fatty acids in fish oil will improve cell wall integrity.

Your brain needs a tremendous amount of nutrients to function properly.

Every cell is surrounded by a cell membrane, and all nutrients must pass through the membranes to reach the mitochondria in the cells.

The mitochondria use oxygen and blood sugar to make energy to power the cells.


Look for a fish oil that has very high EPA, like 400 mg per capsule.
Take 2000 mg EPA daily.

You don't need to buy this particular fish oil, but the site has good info:
http://www.omegabrite.com/why/effects.html


If you want suggestions for fish oil with high EPA, I can tell you.

Posts: 6940 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
derk diggler
LymeNet Contributor
Member # 31903

Icon 1 posted      Profile for derk diggler     Send New Private Message       Edit/Delete Post   Reply With Quote 
gael, what does <benign protocol> mean, or who ever can explain thnx

--------------------
+++++++
do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment

Posts: 195 | From california | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
GretaM
Frequent Contributor (1K+ posts)
Member # 40917

Icon 1 posted      Profile for GretaM     Send New Private Message       Edit/Delete Post   Reply With Quote 
Derk-there are some fairly aggressive parasite protocols out there.

Dr. K's protocol calls for high antiparasitics, and several at once.

It's a hard hitting protocol.

Personally I wouldn't survive it.

I think Gael meant benign, by salt/C and herbal paracides by being good for the body in several ways, but fairly easy on the body on the same time.

Sea salt and powdered vitamin C "Feels Good".

It took me 4 months or so to work up to 2 tsp of each daily...and when I did it was mass exodus of worms and flukes! It was nuts!

Start low and go slow.

If you take good quality probiotics, drink plain effervescent kefir, try to get as much sleep as your body needs...good Omega 3 as suggested by the last poster.

You will be setting a strong foundation for your body if you choose to take antibiotics or herbals for lyme in the future.

Best wishes
Greta

Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

Icon 1 posted      Profile for glm1111     Send New Private Message       Edit/Delete Post   Reply With Quote 
Very well said Greta! Thanks for the detailed explanation.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.